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Pediatric Solid Organ Transplant Recipients: Transition To Home And Chronic Illness Care, Stacee M. Lerret, Marianne E. Weiss, Gail Stendahl, Shelley Chapman, Jerome Menendez, Laurel Williams, Michelle L. Nadler, Katie Neighbors, Katie Amsden, Yumei Cao, Melodee Nugent, Estella M. Alonso, Pippa Simpson

College of Nursing Faculty Research and Publications

Pediatric SOT recipients are medically fragile and present with complex care issues requiring high-level management at home. Parents of hospitalized children have reported inadequate preparation for discharge, resulting in problems transitioning from hospital to home and independently self-managing their child's complex care needs. The aim of this study was to investigate factors associated with the transition from hospital to home and chronic illness care for parents of heart, kidney, liver, lung, or multivisceral recipients. Fifty-one parents from five pediatric transplant centers completed questionnaires on the day of hospital discharge and telephone interviews at three wk, three months, and six months …