Open Access. Powered by Scholars. Published by Universities.®

Medicine and Health Sciences Commons™

Open Access. Powered by Scholars. Published by Universities.®

Business

Institution
Keyword
Publication Year
Publication
Publication Type
File Type

Articles 1 - 30 of 6981

Full-Text Articles in Medicine and Health Sciences

Advancing Pfac Initiatives, Effectiveness, And Visibility Through Strategic Planning And Assessment, Aimee Williamson, Katherine Litterer Nov 2026

Advancing Pfac Initiatives, Effectiveness, And Visibility Through Strategic Planning And Assessment, Aimee Williamson, Katherine Litterer

Patient Experience Journal

Patient and Family Advisory Councils (PFACs) are a growing approach for engaging patient and family voices into healthcare organization decisions and projects. While their importance is well accepted in the literature, individual councils often grapple with practical challenges and a desire to elevate visibility and impact. Over the last ten years, Boston Children's Hospital's Family Advisory Council (FAC) has embedded strategic planning practices into council governance and operations to elevate council functioning and drive innovation. Beginning with an initial formal strategic planning and visioning process in 2016, followed by annual prioritization and strategic planning refresh sessions every three years, the …

Go to article

A Dynamic Three-Stage Co-Design Process For Developing An Assessment Scale For Children With Neurodevelopmental Conditions, Syeda Ishra Azim, Christa Lam-Cassettari, Tsz Ying Wong, Ping-I Lin, Antonio Mendoza Diaz, Anne Masi, Kylie-Ann Mallitt, Alicia Montgomery, Catherine Mchugh, Andrew Whitehouse, Mark R Dadds, Valsamma Eapen Nov 2026

A Dynamic Three-Stage Co-Design Process For Developing An Assessment Scale For Children With Neurodevelopmental Conditions, Syeda Ishra Azim, Christa Lam-Cassettari, Tsz Ying Wong, Ping-I Lin, Antonio Mendoza Diaz, Anne Masi, Kylie-Ann Mallitt, Alicia Montgomery, Catherine Mchugh, Andrew Whitehouse, Mark R Dadds, Valsamma Eapen

Patient Experience Journal

Background: Involving patient partners and diverse stakeholders in research is increasingly recognised as essential for aligning outcomes with patient priorities and improving service design. Co-design brings together individuals with lived experience, professional insights, and technical knowledge to improve research tools. Objective: This case study describes the process of co-designing a user-friendly assessment scale for children's developmental issues. It highlights the collaborative effort to integrate the unique perspectives of diverse stakeholders, including families and service providers. Methods: A three-stage iterative approach was used to collect qualitative data gathered through semi-structured interviews engaging adults with lived experience, parents, clinicians, and disability service …

Go to article

Optimizing `People-Centred Care' Best Practices In A Multi-Site Community Hospital: A Case Study, Kimberly Johnston, Carla Arpa, Mary Jane Mcnally, Veronique Boscart, Shalini Pattabiraman Nov 2026

Optimizing `People-Centred Care' Best Practices In A Multi-Site Community Hospital: A Case Study, Kimberly Johnston, Carla Arpa, Mary Jane Mcnally, Veronique Boscart, Shalini Pattabiraman

Patient Experience Journal

Objective: In 2016, The World Health Organization issued a People-Centred Care Policy Framework highlighting the importance of engaging and empowering people and communities, where care is coordinated around people's unique needs and preferences, is affordable, timely and safe. A multi-site community hospital set out to advance patient and family engagement through the Registered Nurses Association of Ontario (RNAO) Best Practice Guideline (BPG) on People Centred Care (PCC) and a modification of the Health Quality Ontario Patient Family Engagement Framework. Methods: This intervention study implemented the BPG for PCC with several initiatives directed towards improving patients' perception of their involvement in …

Go to article

Improving Patient Experience Scores Through Patient Experience Coaches: A Case Study, Maryann Bowersox, Patricia Coryea-Hafkey, Kristin Baird, Raime Cendoma, Nancy Borkowski Nov 2026

Improving Patient Experience Scores Through Patient Experience Coaches: A Case Study, Maryann Bowersox, Patricia Coryea-Hafkey, Kristin Baird, Raime Cendoma, Nancy Borkowski

Patient Experience Journal

Patient experience (PEX) is a key healthcare quality metric that may signal safety vulnerabilities by revealing gaps in communication and care processes before adverse events occur. Despite the importance of evidence-based practices (EBPs), maintaining consistent adherence remains a challenge. As a strategy to improve patient experience while reinforcing adherence to EBPs, this case study describes the development, implementation, and evaluation of a Patient Experience Coach (PEXC) program at two hospitals within a large health system. The intervention embedded trained coaches within clinical units to provide real-time observation, feedback, and reinforcement of EBPs. Core EBPs targeted by the program included hourly …

Go to article

The Global Experience Measure: A Common Ground For Experience Excellence, Jason A. Wolf, Brittany Lax, Karen Walsh Nov 2026

The Global Experience Measure: A Common Ground For Experience Excellence, Jason A. Wolf, Brittany Lax, Karen Walsh

Patient Experience Journal

In 2022, The Beryl Institute community called for a new approach to experience measurement, one that was focused on what truly matters to patients and promoted opportunities for shared learning across borders. Over four years, more than 1,000 community members from six continents co-designed the Global Experience Measure (GXM). Between October 2024 and May 2026, GXM was deployed to healthcare organizations in 12 countries and translated from English into five other languages, capturing over 8,000 diverse voices. The six core questions formed a single, reliable measure overall (Cronbach's α = .95) and held strong in every country surveyed (α …

Go to article

Does System Structure Affect Organizational Application Of Prems: A Comparative Evaluation Of 5 Countries, Heather Lee, J'Aime C Jennings, Logan R Marler, Raime Cendoma, Amy Yarbrough Landry Nov 2026

Does System Structure Affect Organizational Application Of Prems: A Comparative Evaluation Of 5 Countries, Heather Lee, J'Aime C Jennings, Logan R Marler, Raime Cendoma, Amy Yarbrough Landry

Patient Experience Journal

Patient-reported experience measures (PREMs) are widely used to assess healthcare quality, yet approaches to measurement and data utilization vary significantly across countries. This meta-narrative review examines how health system structure, regulatory context, and market dynamics shape the collection, reporting, and application of PREM data in Canada, Germany, the Netherlands, the United Kingdom, and the United States. Using RAMESES guidelines, we searched PubMed, Web of Science, and ABI/INFORM and identified 58 peer-reviewed studies, primarily from the U.S. and U.K. Studies most frequently examined the relationship between hospital characteristics and patient experience, measurement tools, and quality improvement efforts. Our findings suggest that …

Go to article

Beyond Borders: A Comparative Analysis Of The Patient Experience Of Kazakh Citizens In Türkiye And Kazakhstan, Azhar Zhaiykkyzy, Harun Kırılmaz Nov 2026

Beyond Borders: A Comparative Analysis Of The Patient Experience Of Kazakh Citizens In Türkiye And Kazakhstan, Azhar Zhaiykkyzy, Harun Kırılmaz

Patient Experience Journal

Patient experience is widely regarded as a core indicator of healthcare quality. Whilst the majority of research focuses on ethnic disparities, there is a paucity of studies that examine structural influences when cultural background is held constant. The present study sought to compare patient-reported experiences of 600 Kazakhstani citizens (n = 300 per country) receiving care in Kazakhstan and as medical tourists in Türkiye. The Picker Patient Experience Questionnaire (PPE-15) was utilised to analyse domain-level problem scores, employing chi-square tests (Cramer's V) and binary logistic regression. The findings indicated significant disparities in several domains, including coordination of care (V = …

Go to article

Who Is The Patient Trusting? A Scoping Review Of Patient-Physician Trust In The Generative Artificial Intelligence (Genai) Era, Ashleigh M. Allgood, Eugenia B. Yiadom, Michele L. Heath, Geoffrey A. Silvera Nov 2026

Who Is The Patient Trusting? A Scoping Review Of Patient-Physician Trust In The Generative Artificial Intelligence (Genai) Era, Ashleigh M. Allgood, Eugenia B. Yiadom, Michele L. Heath, Geoffrey A. Silvera

Patient Experience Journal

Patients extend trust to physicians whose expertise they cannot fully inspect. Generative artificial intelligence (GenAI) is now part of that exchange. Clinicians use it, organizations deploy it, and patients bring it to appointments themselves. This scoping review asks what is known about GenAI and trust in the patient-physician relationship. Following PRISMA-ScR guidance, we searched PubMed, Scopus, CINAHL, and APA PsycINFO on March 9, 2026, and screened records in Covidence. Twelve studies met inclusion criteria. For each article, we documented how trust was conceptualized and measured, then classified each study by construct fidelity and closeness to an actual care relationship. None …

Go to article

Use Of Generative Artificial Intelligence For Development Of Plain Language Summaries: A Blinded Assessment Of Education Preferences Of The Uk Sickle Cell Disease Community, Oliver Shastri, Orlando Agrippa, Valerie Moss, Eleanor Millard, Lianne More, Eleanor Rose Brown, Seraj Sharif, Chris Finch Nov 2026

Use Of Generative Artificial Intelligence For Development Of Plain Language Summaries: A Blinded Assessment Of Education Preferences Of The Uk Sickle Cell Disease Community, Oliver Shastri, Orlando Agrippa, Valerie Moss, Eleanor Millard, Lianne More, Eleanor Rose Brown, Seraj Sharif, Chris Finch

Patient Experience Journal

Objective: Generative artificial intelligence (GenAI) supports medical content development, including plain language summaries (PLS), thereby supporting accessibility of education. We examined preferences of PLS format created from a study assessing UK sickle cell disease (SCD) community social media conversations. Methods: Three written PLS were developed, human-written, AI-generated, and hybrid AI-human (person with SCD edited AI version for understandability). Videos were developed of each written PLS using the AI tool Synthesia. Adults (n = 93) with SCD and carers completed a survey assessing understandability of each written PLS and preference for written versus video. Participants were blinded to PLS source. …

Go to article

Care Experiences Of People With Copd During The Covid-19 Pandemic, Judith Kecskemeti, Mausam Vadakkayil, Benson Law, Hengliang Wu, Caitlin Carrigan, Rosa Nguyen, Shannon L Sibbald Nov 2026

Care Experiences Of People With Copd During The Covid-19 Pandemic, Judith Kecskemeti, Mausam Vadakkayil, Benson Law, Hengliang Wu, Caitlin Carrigan, Rosa Nguyen, Shannon L Sibbald

Patient Experience Journal

Although there is a substantial body of literature focused on the pathophysiology regarding chronic obstructive pulmonary disease (COPD) and COVID-19, there remains limited exploration of the healthcare experiences of patients with COPD during the pandemic. This study explores the challenges patients with COPD (PWC) experienced during the pandemic, including access to care, the efficacy of virtual COPD care, and mental health impacts. We performed a cross-sectional survey of 200 individuals with COPD recruited through respirologists' offices and local lung health groups on social media from Southwestern Ontario, Canada, who accessed care since the COVID-19 pandemic. The study included 200 participants, …

Go to article

Patient Experience With Insulin Pump Therapy And Health-Related Quality Of Life In Adults With Type 1 Diabetes: A Cross-Sectional Survey, Miriam Cruz-Andina, Juan Pablo Hervás-Pérez, Raquel Moreno-Sánchez, Raquel Caballero De La Calle, Eduardo Cimadevilla Fernández-De Pola, Clara Lucas-Guerra, Carlos Ruíz-Núñez, Ivan Herrera-Peco Nov 2026

Patient Experience With Insulin Pump Therapy And Health-Related Quality Of Life In Adults With Type 1 Diabetes: A Cross-Sectional Survey, Miriam Cruz-Andina, Juan Pablo Hervás-Pérez, Raquel Moreno-Sánchez, Raquel Caballero De La Calle, Eduardo Cimadevilla Fernández-De Pola, Clara Lucas-Guerra, Carlos Ruíz-Núñez, Ivan Herrera-Peco

Patient Experience Journal

Objective: To examine patient experience with continuous subcutaneous insulin infusion (CSII) and its association with health-related quality of life (HRQoL) in adults with type 1 diabetes (T1D), incorporating experiential and equity-related dimensions. Methods: We conducted a cross-sectional online survey in Spain (February-March 2025) among adults with T1D using CSII (n = 107). An ad hoc 26-item patient-reported experience measure assessed daily-life domains using 0–10 scales, from which a Global Quality of Life index (G-QoL) was computed. Additional items examined access to CSII, education, and ongoing professional support. Group differences were analyzed using non-parametric tests, and experience-based predictors of HRQoL were …

Go to article

The Patient Experience Across The Care Continuum: Inpatient Rehabilitation, Discharge Preparedness, And Community Reintegration After Spinal Cord Injuries/Disorders, Sherri L. Lavela, Myrissa Le, Ibuola O. Kale, Ashley Craig, Jane Duff, Marcel Post, Sara Ahmed, Allen W. Heinemann Nov 2026

The Patient Experience Across The Care Continuum: Inpatient Rehabilitation, Discharge Preparedness, And Community Reintegration After Spinal Cord Injuries/Disorders, Sherri L. Lavela, Myrissa Le, Ibuola O. Kale, Ashley Craig, Jane Duff, Marcel Post, Sara Ahmed, Allen W. Heinemann

Patient Experience Journal

The objective was to describe patient experiences, barriers, and facilitators of inpatient rehabilitation, discharge preparedness, and community reintegration after spinal cord injury and disorders (SCI/D) from the perspectives of Veterans with SCI/D. Methods included a descriptive qualitative design using a virtual focus group analyzed via reflexive thematic analysis. Focus group participants (n = 7) were mostly male, white, injured for 1-10 years, with mean age of 52 years. Two domains were identified. The first domain, Barriers and ways rehabilitation could have improved patient experience, included five themes: (1) insufficient preparation for psychological impacts; (2) inadequate preparation for relationship changes; (3) …

Go to article

The Patient Voice In Rehabilitation: Experiences With High-Intensity Gait Training In A Student-Run Pro Bono Clinic, Amy M. Yorke, Emma Cleason, Drew Uhlmeyer, Sidney Kulhanek, Brookelyn Stafford, Tracy Koepplin, Leslie M. Smith, Suzanne Trojanowski, Beverly Dabney Nov 2026

The Patient Voice In Rehabilitation: Experiences With High-Intensity Gait Training In A Student-Run Pro Bono Clinic, Amy M. Yorke, Emma Cleason, Drew Uhlmeyer, Sidney Kulhanek, Brookelyn Stafford, Tracy Koepplin, Leslie M. Smith, Suzanne Trojanowski, Beverly Dabney

Patient Experience Journal

Improved walking ability is a common goal for people with chronic stroke; however, access to skilled physical therapy is often limited. Student-run pro bono clinics (SRPBCs) address this care gap. Despite evidence supporting high aerobic intensity walking training for chronic stroke, the patient perspective on its delivery within SRPBCs remains underexplored. This qualitative study explored the experiences of persons with chronic stroke participating in MoveMore, an intensive walking program delivered by physical therapy students in a SRPBC. Semi-structured interviews were conducted with five individuals with chronic stroke (4–7 years post-stroke, ages 53–70) and four caregivers, all of whom contributed perspectives …

Go to article

Pilot Medical Student Greeters For Pediatric Cystic Fibrosis Patient-Centering, Katherine Schoeffler, Mulan Tang, Jennifer Dannelley, Nighat Mehdi, Dee Wu Nov 2026

Pilot Medical Student Greeters For Pediatric Cystic Fibrosis Patient-Centering, Katherine Schoeffler, Mulan Tang, Jennifer Dannelley, Nighat Mehdi, Dee Wu

Patient Experience Journal

This pilot study assessed the impact of a medical student-led volunteer and companionship program on anxiety during annual phlebotomy in children aged 3–7 with cystic fibrosis. Pediatric cystic fibrosis patients undergo frequent medical procedures that may lead to anxiety and distress during clinical encounters. The medical student volunteer met with patients prior to phlebotomy, providing companionship and encouragement using 360 degree animal-themed videos before and during phlebotomy, and collected responses via surveys from patients and their parents. Children rated nervousness using a five-point cartoon-face scale, while parents used a 1–4 rating and qualitative comments to assess the intervention. Twelve patients …

Go to article

Health Justice Education To Enhance Overall Patient Experience In The Context Of Acute-Care Hospitals, A Sivasubramaniam, C. Blanchard, S Pattabiraman, C Uzoh, Y Khalid Nov 2026

Health Justice Education To Enhance Overall Patient Experience In The Context Of Acute-Care Hospitals, A Sivasubramaniam, C. Blanchard, S Pattabiraman, C Uzoh, Y Khalid

Patient Experience Journal

Within our healthcare system today, the prevalence of biomedical traditions and notions of health and well-being greatly shape how care is provided and perceived. Less apparent, however, is their histories and their manifestations today.14 Our healthcare system is rooted in systems of oppression such as colonialism, racism and capitalism; that perpetuate violence, barriers and inequities, and maintain hierarchies of dominating and non-dominating groups that have become commonplace. There is a need for radical change, and critical measures are underway to create a more equitable healthcare system. With the increased recognition of equity, diversity and inclusion (EDI), concepts like cross-cultural …

Go to article

`Bridging The Gap': A Directed Content-Analysis Evaluating Regulatory Guidance For Education In Person Centred Care For Heatlhcare-Professional Students, Lindsay Harrison, Vivienne Byers, Damon Berry Nov 2026

`Bridging The Gap': A Directed Content-Analysis Evaluating Regulatory Guidance For Education In Person Centred Care For Heatlhcare-Professional Students, Lindsay Harrison, Vivienne Byers, Damon Berry

Patient Experience Journal

Background: Person-centred care (PCC) is a values-based approach which is central in international and Irish healthcare-policy due to its association with improved health and social outcomes. Research indicates that healthcare-professional (HCP) students struggle to implement PCC, prompting calls for education in PCC. While HCP registration boards play a key governance role in professional HCP education, it is unclear whether or how they support education in PCC. Objective: To evaluate whether medical, nursing and HCP registration boards in Ireland promote PCC within standards for professional education and competence. Methods: Directed content-analysis was conducted with 33 publicly available regulatory documents governing pre-registration …

Go to article

Healthcare Provider Communication Training: The Influence Of Training Participation On Engagement And Patient Experience, Amanda Woods Herron, Phoebe Hessen, Katelyn J. Cavanaugh, Reeni J. Luke, Courtney L. Holladay Nov 2026

Healthcare Provider Communication Training: The Influence Of Training Participation On Engagement And Patient Experience, Amanda Woods Herron, Phoebe Hessen, Katelyn J. Cavanaugh, Reeni J. Luke, Courtney L. Holladay

Patient Experience Journal

Communication is essential to healthcare leadership. The challenges healthcare providers face are growing in breadth and complexity, and providers rely on effective communication to face many of these challenges. Training is one avenue commonly invested in by organizations to provide resources to grow critical skills, such as communication. The present investigation leverages the Job Demands-Resources model to explore the impact of healthcare provider participation in communication training on organizational outcomes at the individual level. The study was conducted in a healthcare organization, wherein 65 healthcare providers participated in a communication training centered around the personality framework Real Colors® , and …

Go to article

Interpreter Use, Code-Switching, And Patient Outcomes In U.S. Clinics: A Narrative Review For Graduate Medical Education, Ruth Ese Otaigboria, Kenneth Anaeto Nwankwo, Mishael Ifeanyi Nonyelum, Ayodele Blessing Ayo-Ige, Aliaa Mohammed Soliman, Tumoe Heni Nov 2026

Interpreter Use, Code-Switching, And Patient Outcomes In U.S. Clinics: A Narrative Review For Graduate Medical Education, Ruth Ese Otaigboria, Kenneth Anaeto Nwankwo, Mishael Ifeanyi Nonyelum, Ayodele Blessing Ayo-Ige, Aliaa Mohammed Soliman, Tumoe Heni

Patient Experience Journal

Language discordance between clinicians and patients in U.S. clinics is a recognized driver of communication-sensitive adverse events, yet the synthesis linking specific linguistic practices to clinical outcomes remains incomplete, and graduate medical education programs lack a unified evidence base on which to build interpreter-mediated competencies. This narrative review evaluates whether interpreter use, translanguaging, and code-switching constitute an interactional pathway through which cultural and explanatory models shape outcomes for limited-English-proficient (LEP) patients, and derives recommendations for graduate medical education. Searches across MEDLINE/PubMed, Embase, CINAHL, PsycINFO, and Scopus covered January 2000–September 2025 and prioritized U.S. immigrant and LEP encounters that linked language …

Go to article

A Qualitative Phenomenological Study On The Perceived Impact Of Health Literacy On Health Care Experiences Among Haitian Immigrant Adults In The U.S., Tanya Bouchette, Laurie Latvis Nov 2026

A Qualitative Phenomenological Study On The Perceived Impact Of Health Literacy On Health Care Experiences Among Haitian Immigrant Adults In The U.S., Tanya Bouchette, Laurie Latvis

Patient Experience Journal

Several important aspects of health care leadership include improving patient health literacy, patient health care experiences, quality of patient care, efficiency of care, and access to health education. This qualitative research study was aimed to understand the perceived effects of health literacy on the Haitian immigrants' health care experiences. A self-administered survey was used to collect primary demographic and qualitative data. The survey consisted of 12 questions, 9 demographic questions and 3 open-ended qualitative questions. Validity and reliability were ensured by thoroughly reviewing the survey instrument, consulting with three subject matter experts, and completing three cognitive interviews. Demographic and qualitative …

Go to article

Evaluating Patient Experience And Access To Eye Care For Underserved Populations At Orange County Eye Project Free Clinic: Survey Study, Negin Hadjiabdolhamid, Khuong Trong Dinh, Yurixi Lopez-Miranda, Rajat Agrawal Nov 2026

Evaluating Patient Experience And Access To Eye Care For Underserved Populations At Orange County Eye Project Free Clinic: Survey Study, Negin Hadjiabdolhamid, Khuong Trong Dinh, Yurixi Lopez-Miranda, Rajat Agrawal

Patient Experience Journal

Underserved populations in the United States face persistent barriers to eye care. This cross-sectional survey study assessed patient experience and ophthalmic care access at a free clinic serving medically underserved adults. A mixed-methods survey was conducted at the Orange County Eye Project, which provides comprehensive ophthalmology care to underserved residents of Southern California. Surveys were distributed through convenience sampling to 32 adult patients between January and February 2025, and all submitted surveys were included. Offered in English and Spanish, the survey included structured and open-ended questions addressing appointment scheduling, transportation, wait times, understanding of eye health, and overall satisfaction. Survey …

Go to article

Patient-Reported Experiences Of Communication In Tertiary Otorhinolaryngology Outpatient Care: An Exploratory Cross-Sectional Study, Jasna Mesarić, Iva Lončarić Kelečić, Maroje Višić Nov 2026

Patient-Reported Experiences Of Communication In Tertiary Otorhinolaryngology Outpatient Care: An Exploratory Cross-Sectional Study, Jasna Mesarić, Iva Lončarić Kelečić, Maroje Višić

Patient Experience Journal

Objective: Patient experience (PE) is a key healthcare quality indicator, particularly in tertiary and specialised outpatient settings where organisational complexity increases communication demands. This study examined patient-reported experiences of communication in a tertiary otorhinolaryngology (ORL) outpatient clinic and their association with sociodemographic characteristics. Methods: This exploratory cross-sectional study analysed survey data from adult patients attending a tertiary ORL outpatient clinic in Croatia between April and May 2025 (N = 189). PE was assessed by analysing 21 items grouped into three communication-related domains: communication and relationship, non-verbal communication, and treatment information. All items were rated on a 5-point Likert scale. Composite …

Go to article

Patient Reported Experiences Of Anxiety And Depression Screenings In A Canadian Adult Cystic Fibrosis Clinic, Pat Macdiarmid, April Tanzler, Waqar Younas, Terra Stephenson, Nick Kanaan, Bradley S. Quon Nov 2026

Patient Reported Experiences Of Anxiety And Depression Screenings In A Canadian Adult Cystic Fibrosis Clinic, Pat Macdiarmid, April Tanzler, Waqar Younas, Terra Stephenson, Nick Kanaan, Bradley S. Quon

Patient Experience Journal

The International Depression Epidemiological Study (TIDES) found rates of anxiety and depression 2–3 times higher in the cystic fibrosis (CF) population than in community samples. Following recommendations of the International Committee on Mental Health in CF we began conducting screenings at our Canadian Adult CF Clinic using the GAD-7 and PHQ-9, referring patients to mental health (MH) supports within and outside the clinic. Our aim was to provide a service patients themselves experienced as supportive of their MH. We found few studies on patient reported experiences of MH screening programs in CF clinics, and none in the Canadian context. Patients …

Go to article

Patient Reported Experiences Of Mental Health And Substance Use In British Columbia Emergency Departments: A Patient-Oriented Exploration Of Survey Data, Ross Duncan, Ed Martin, Louise Yeoh, John Grogan, Riyad B. Abu-Laban Nov 2026

Patient Reported Experiences Of Mental Health And Substance Use In British Columbia Emergency Departments: A Patient-Oriented Exploration Of Survey Data, Ross Duncan, Ed Martin, Louise Yeoh, John Grogan, Riyad B. Abu-Laban

Patient Experience Journal

Project Title: Patient reported experiences of mental health and substance use in British Columbia Emergency Departments: A patient-oriented exploration of survey data. Background: Existing surveys of BC EDs have failed to engage patients to guide research. A provincial level survey of patient experiences in emergency departments was identified as a rich source of data for collaboration level patient-oriented research, with patient partners co-developing research questions and focus of data analysis. Methods: This Patient Oriented Research recruited three patient partners who, through a co-creation process, prioritized dimensions and questions on communication with providers, culturally safe and compassionate care, overall ED rating, …

Go to article

Implementation Of An Integrated Prems-Proms Survey In Saudi Arabia: A Cross-Sectional Pilot Study, Muhammad Waseem Shahzad, Adel Al-Shabaan, Ammar Mattar, Eman Alturaiki, Naseem Almulla, Daniel Hage, Dragana Gough, Michael Foytik, Adam Higman Nov 2026

Implementation Of An Integrated Prems-Proms Survey In Saudi Arabia: A Cross-Sectional Pilot Study, Muhammad Waseem Shahzad, Adel Al-Shabaan, Ammar Mattar, Eman Alturaiki, Naseem Almulla, Daniel Hage, Dragana Gough, Michael Foytik, Adam Higman

Patient Experience Journal

PROMs capture health-related quality of life from the patient's perspective, while PREMs assess how patients experience care delivery. Although each measure provides distinct insights, their integration into a single survey offers a more comprehensive view of care quality, enabling healthcare systems to understand not only what outcomes patients achieve, but how they experience receiving care. Despite growing international momentum for combined PREMs-PROMs measurement, their integrated use has not been systematically assessed in Saudi Arabia. This pilot study evaluated the feasibility and psychometric properties of two internationally validated PROMs tools, EQ-5D-5L and PROMIS-10 Global Health, when administered within an existing nationally …

Go to article

Evaluating Quality Of Care Under Nigeria's National Health Insurance Scheme: A Thematic Analysis Of Patient Narratives At A Tertiary Care Public Hospital, Nkiru Nwamaka Ezeama, Nene Okunna, Chukwuemeka Okwudili Ezeama Nov 2026

Evaluating Quality Of Care Under Nigeria's National Health Insurance Scheme: A Thematic Analysis Of Patient Narratives At A Tertiary Care Public Hospital, Nkiru Nwamaka Ezeama, Nene Okunna, Chukwuemeka Okwudili Ezeama

Patient Experience Journal

Objective: Patient narratives provide in-depth insights of user quality ratings of healthcare delivery but are underutilized. The assessment of patient satisfaction often relies on survey data based on quantifiable indicators. While quantifiable indicators provide a snapshot of patient perceptions of the care they receive, they tend to gloss over pertinent details to understand their experiences and perceptions of the quality of care they received. This study assessed patients' narratives to better understand patient satisfaction ratings of healthcare services provided under the National Health Insurance Scheme (NHIS) in Nigeria. Method: A cross-sectional survey using semi-structured interviews of 406 participants was conducted …

Go to article

Evaluation Of Patient And Patient Relative Complaints From The Perspective Of Patient Rights, Hilal Kamer, Öznur Karaoğlu, Oya Sancar Nov 2026

Evaluation Of Patient And Patient Relative Complaints From The Perspective Of Patient Rights, Hilal Kamer, Öznur Karaoğlu, Oya Sancar

Patient Experience Journal

This study seeks to analyze patient and patient-relative grievances from a patient rights standpoint and to pinpoint significant issues in healthcare service provision. A qualitative research design was utilized, and data were gathered via an online grievance forum. The analysis encompassed 1,731 complaints from patients and their relatives. Concurrent thematic and content analysis methodologies were employed, resulting in the development of themes and subthemes derived from the Turkish Patient Rights Regulation. All analyses were performed utilizing NVivo software. The results reveal that grievances were mostly focused on the issue of the Right to Access Health Services. Principal concerns encompassed insufficient …

Go to article

Beyond Survival: A Qualitative Study Of Recovery Barriers And Facilitators Following Emergency Laparotomy, Christie L Martin, Samuel Sn Theesfeld, Genevieve B Melton, Elizabeth C Wick, Lindsay L Welton, Samuel E O'Brien, Miranda K Considine, Jenna L Marquard Nov 2026

Beyond Survival: A Qualitative Study Of Recovery Barriers And Facilitators Following Emergency Laparotomy, Christie L Martin, Samuel Sn Theesfeld, Genevieve B Melton, Elizabeth C Wick, Lindsay L Welton, Samuel E O'Brien, Miranda K Considine, Jenna L Marquard

Patient Experience Journal

This mixed-methods study aimed to identify multi-level barriers, facilitators, and actionable interventions for recovery following emergency laparotomy, a high-acuity event where traditional clinical metrics often fail to capture the nuances of patients' lived experience during convalescence. We conducted semi-structured interviews and surveys with 15 adults recovering from emergency laparotomy and subsequently completed human-in-the-loop AI-assisted thematic analysis. Findings reveal a ``satisfaction paradox'': despite 93.4% satisfaction with acute hospital care, patients experienced a protracted recovery marked by significant distress across 5 themes: (1) Quality and Coordination of Care; (2) Life Impact and Financial Burden; (3) Patient Education and Information Modalities; (4) Environmental …

Go to article

Centering Torture Survivor Voices From Their Experiences, Linda Piwowarczyk, Nandini Agarwal, Kathryn Price, Dmitrii Krivorotko, Arslan Kasimov, Alexandra Brinker, Suzanne Wilson, Salma Amin, Tithi D. Baul Nov 2026

Centering Torture Survivor Voices From Their Experiences, Linda Piwowarczyk, Nandini Agarwal, Kathryn Price, Dmitrii Krivorotko, Arslan Kasimov, Alexandra Brinker, Suzanne Wilson, Salma Amin, Tithi D. Baul

Patient Experience Journal

Background: Human rights violations persist globally, with torture routinely utilized as a mechanism to repress democratic expression and silence social movements. The Boston Center for Refugee Health and Human Rights (BCRHHR) is a hospital-based program providing services to refugees, survivors of torture (SOT), and asylum seekers. Emerging evidence suggests that circumstances encountered after resettlement may exert a greater traumatogenic effect than those experienced in the country of origin or along the migration journey. We performed a qualitative needs assessment interviewing 22 randomly selected patients who received BCRHHR services at least twice between January 1, 2021, and December 31, 2021. SOT …

Go to article

Exploring Lived Experiences To Gain Insight Into The Support Needs Of People Following Stoma Surgery: A Qualitative Study, Julia Kittscha, Val Wilson, Vida Bliokas, Greg Fairbrother Nov 2026

Exploring Lived Experiences To Gain Insight Into The Support Needs Of People Following Stoma Surgery: A Qualitative Study, Julia Kittscha, Val Wilson, Vida Bliokas, Greg Fairbrother

Patient Experience Journal

Aim To describe the supports that are important to people in the early weeks after stoma surgery and explore participants' thoughts and feelings about these supports. Design A consumer-researcher co-design approach was used to design and undertake a qualitative patient interview study among people who have had stoma surgery. People who had an existing stoma were trained as co-researchers to work alongside the clinician researcher. Method Semi-structured interviews were conducted with consenting participants 6-8 weeks after stoma surgery. Thematic data analysis was conducted by the research team using Braun, Clarke\citealpbib1 six step-phase reflexive thematic analysis, members of the team initially …

Go to article

What Matters To Patients When Preparing For A Colonoscopy: A Mixed-Methods Study Of Needs And Worry, Louise Bang Grode, Anne Højager Nielsen, Anette Viftrup, Lene Lehmkuhl, Hejdi Gamst-Jensen, Brigitta R Villumsen, Malene Kaas Larsen, Lone Dragnes Brix Nov 2026

What Matters To Patients When Preparing For A Colonoscopy: A Mixed-Methods Study Of Needs And Worry, Louise Bang Grode, Anne Højager Nielsen, Anette Viftrup, Lene Lehmkuhl, Hejdi Gamst-Jensen, Brigitta R Villumsen, Malene Kaas Larsen, Lone Dragnes Brix

Patient Experience Journal

Background: Colonoscopy is essential for diagnosing, treating, and preventing colorectal cancer, and many patients experience considerable procedure worry. Limited evidence exists on which aspects of preparation and the procedure matter most to patients or how these relate to their Degree-of-Worry (DOW). Understanding these factors is important for improving patient readiness and care quality. This study explores what matters to patients when preparing for colonoscopy, including how they prepare, their perceived readiness, and their DOW. Method: A flash-mob study with a convergent mixed methods was conducted, collecting quantitative and qualitative data simultaneously across multiple sites. Results: Among 203 patients completing the …

Go to article

Next Last