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2020

Disability and Equity in Education

The Qualitative Report

Acquired Disability

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On Being A Zebra: Negotiating A Professional Identity Whilst Coping With A Rare And Recurrent Illness, Phyllis Jones Professor Jun 2020

On Being A Zebra: Negotiating A Professional Identity Whilst Coping With A Rare And Recurrent Illness, Phyllis Jones Professor

The Qualitative Report

In this autoethnography I discuss some of the impacts of a chronic and long -term illness on my professional identity of a professor. I examine issues of lack of control throughout the discussion. I also discuss the contribution of phenomenological accounts in the form of autoethnography in serving to challenge society’s view of disability. I suggest the individual intersection of disability and identity demand that the scholarly community listen more to the stories of people who have actual experience of long-term chronic illness. In doing this, we may develop nuanced understandings of the impact of chronic long - term illness …