Education Commons^™

Role Of Advocacy Organizations In Promoting Inclusive Education Policies For Students With Rare Chronic Health Conditions: Insights For Education Leaders, Jennifer Flinn

Electronic Thesis and Dissertation Repository

This qualitative study investigated how advocacy groups for rare chronic health conditions understood their relation to, and interaction with, educational leadership and policy. This study adopted a critical research orientation and framed inclusion as an equity and social justice issue. Semi structured interviews were conducted with advocates representing various rare chronic health conditions, and a policy review of Ontario’s inclusion policy, as well as relevant health policies were conducted. The analysis revealed that there was tension in participants’ understanding of inclusion, and participants did not always support full inclusion for students with rare chronic health conditions. There is a lack …