Education Commons^™

Parents' Experiences Of Children With A Rare Disease Attending A Mainstream School: Australia, Mandie Foster, Esther Adama, Diana Arabiat, Kevin Runions, Rena Vithiatharan, Maggie Zgambo, Ashleigh Lin

Research outputs 2022 to 2026

Purpose:

To explore the perceptions of parents who had a child or adolescent (6-18 years) diagnosed with a rare disease who attended a mainstream school in Western Australia.

Design and methods:

A cross-sectional online survey was conducted with 41 parents of children with a rare disease. Here we report the findings of 14 open-ended questions on their experience of illness-related factors and impact on school-related social activities, such as sports, school camps and leadership roles whilst their child with a rare disease attended a mainstream school in Australia. Responses were analysed using an inductive thematic content approach.

Results:

We identified …

Does Education Level Influence The Practice Profile Of Advanced Practice Nursing?, Christine Duffield, Glenn Gardner, Anna Doubrovsky, Marg Adams

Research outputs 2014 to 2021

Background Advanced practice nursing is recognised globally as central to meeting this community need. Whilst there is increasing recognition that advanced practice nurses should be educated to at least a master degree level, there is scant evidence on the influence of higher education on the practice profile of advanced practice nursing. Aim To investigate the relationship between level of education and domain practice scores of nurses in advanced practice roles. Methods The validated Advanced Practice Nursing Role Delineation (APRD) tool was used to measure the practice profile of advanced practice nurses at different postgraduate education levels, across five domains of …

Develop A Sudden Infant Death Syndrome (Sids) Education Package In Jordan: Using Participatory Action Research Approach To Create Ripple Of Change, Shereen Hamadneh, Jehan Hamadneh

eCULTURE

IInfant mortality is high in Jordan, a developing country in the Middle East, at 19 per 1000 live births. Most mortality risk factors are preventable. The SIDS incidence rate has also been extrapolated as 11.22 per 1000 live births [1]. This is much higher than the United State of America (USA), a developed country (0.54 per 1000 live births) [2]. Most of modifiable SIDS risk factors can be reduced by increasing knowledge, change behaviors and practices regarding SIDS risks and prevention measures.

There has not been a major investment in educating Jordanians about SIDS. Heath care providers are identified …

Enhancing The Uptake Of Learning Through Simulation In Health, Cobie Rudd

Research outputs 2013

The initial reason that a simulated learning environment (SLE) was pursued was to offer university-based health students a safe and authentic environment in which to learn and practise their skills. Since that time, some eight years later, experience has shown that an SLE needed multiple dimensions to its work, based on evidence. In addition, a new approach to applying and integrating learning through simulation within health curricula, that was replicable and affordable, was required...

Creating Cultural Empathy And Challenging Attitudes Through Indigenous Narratives, Cobie Rudd, Moira Sim, Colleen Hayward, Toni Wain

Research outputs 2013

The poorer health status of Indigenous Australians has been largely attributed to social disadvantage and their marginalisation within mainstream society (Marmot, 2011). This includes access to health care, as well as proximity to health services, availability and cultural appropriateness of health services, transport availability, health insurance, the affordability of health services and patient proficiency in English (AIHW, 2011).

The interpersonal attitudes and behaviours of non-Indigenous health providers, both conscious and unconscious, are also known to contribute to disparities in treatment, impairment of communication between health providers and patients, and consequently, patients’ mistrust of the health system due to negative past …

Pastoral Care In Education, Lydia Hearn, Renee Campbell-Pope, Joanne House, Donna Cross

Research outputs pre 2011

EXECUTIVE SUMMARY

1. During the past decade, there has been growing recognition the school environment plays a major role in the social and emotional competence and wellbeing of children. As a consequence, increasing national and international commitment has been directed towards the development of Health Promoting Schools2, with efforts being made to assess how curriculum and pastoral practice can best contribute to students’ social, emotional, physical and moral wellbeing. Within Australia, the National Safe Schools Framework3 has set as a key priority the importance of achieving a shared vision of physical and emotional safety and wellbeing for all students …