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Family, Life Course, and Society

2020

University of the Pacific Theses and Dissertations

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Connections: Social Media And Parents Raising Children With Profound Multiple Disabilities, Amy Ann Terra Jan 2020

Connections: Social Media And Parents Raising Children With Profound Multiple Disabilities, Amy Ann Terra

University of the Pacific Theses and Dissertations

Parenting plays an important role in many adult lives. Parenting a child with profound multiple disabilities results in a distinct parenting experience. This qualitative phenomenological study examined the role of social media in the lives of parents raising children with profound multiple disabilities. Five parents raising children with profound multiple disabilities were interviewed, and resulting themes were identified.

Consistent with previous research, parents described the initial adaptation to their child’s disability-related needs as the most challenging period of their parenting to date. Adaptation was followed by an acclimation to a new normal of their parenting experience. Parents described moving from …