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Full-Text Articles in Philosophy
Rethinking Ethical Questions In Life-History Interview Research, Anne Rothe
Rethinking Ethical Questions In Life-History Interview Research, Anne Rothe
The Qualitative Report
Having interviewed Germans who emigrated to Israel and, in most cases, converted to Judaism, I experienced a paralyzing sense of ethical conflict when I began analyzing the first order discourse my participants and I had co-constructed to transform it into the second-order discourse of research publications. So, I set out to rethink the ethics of life-history interview research. My quest into our ethical responsibilities began with rule-based deontological and consequentialist ethics and the guidelines in the social sciences they inform. It led me to reconsider such core notions as informed consent, privacy, and risk-benefit analysis. I came to realize that …
A Critical Examination Of Informed Consent Approaches In Pragmatic Cluster-Randomized Trials, Cory E. Goldstein
A Critical Examination Of Informed Consent Approaches In Pragmatic Cluster-Randomized Trials, Cory E. Goldstein
Electronic Thesis and Dissertation Repository
This thesis addresses the tension in pragmatic cluster-randomized trials between their social value and the requirement to respect the autonomy of research participants. Pragmatic trials are designed to evaluate the effectiveness of treatments in real-world settings to inform clinical decision-making and promote cost-efficient care. These trials are often embedded into clinical settings and ideally include all patients who would receive the treatments under investigation as a part of routine care. Trialists increasingly adopt cluster-randomized designs—in which intact groups, such as hospitals or clinics, are allocated randomly to study interventions—to simplify the inclusion of all patients. But including all-comers conflicts with …