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Grand Valley State University

Journal

Ought: The Journal of Autistic Culture

Articles 1 - 30 of 31

Full-Text Articles in Arts and Humanities

The Future Of Critical Autism Studies (Cas): Thinking Through Critical Discourse Studies And Postcolonial Feminism, Cansu Elmadagli Dec 2023

The Future Of Critical Autism Studies (Cas): Thinking Through Critical Discourse Studies And Postcolonial Feminism, Cansu Elmadagli

Ought: The Journal of Autistic Culture

The field of Critical Autism Studies (CAS) has evolved significantly since its inception, with scholars continually redefining its key tenets and objectives. CAS emerged as a response to conventional medical and social deficit-based models of autism and seeks to challenge the prevailing norm that considers neurotypicality as the unquestioned standard. This article, written by an autistic scholar, aims to contribute to the ongoing discussions in CAS. The article introduces novel perspectives by suggesting connections between CAS, Critical Discourse Studies (CDS), and postcolonial feminism. It advocates for the incorporation of concepts and tools from these traditions to enrich CAS’s approach. Furthermore, …


Sharp Stick Grasps At Autistic Women’S Liminal Vulnerability, Meaghan Krazinski Dec 2023

Sharp Stick Grasps At Autistic Women’S Liminal Vulnerability, Meaghan Krazinski

Ought: The Journal of Autistic Culture

This film analysis of Sharp Stick by Lena Dunham critically explores how the film uptakes representations of the ideas around the vulnerabilities of Autistic women in popular culture, and yet does not explicitly name them as such. This liminality is critical and plays into the intersectional analysis that the author engages around the way vulnerability and Autistic identity is interpreted and read. The author draws upon McDermott's (2022) "neurotypical gaze" in an analysis that shows how traditional tropes around Autistic women’s vulnerability are social constructions that are brought into relief by stereotypes around race, gender, and ability. The author uses …


Critical Autism Studies Beyond Academia: An Annotated List, Alyssa Hillary Zisk Dec 2023

Critical Autism Studies Beyond Academia: An Annotated List, Alyssa Hillary Zisk

Ought: The Journal of Autistic Culture

This is an introduced and annotated list of sources from beyond academia which are, have been, or may yet be important texts for critical autism or neurodiversity studies. The defining actions of critical autism studies, or of critical neurodiversity studies, have been taken outside academia and will continue to be taken outside academia. This list serves as a reminder of this reality through examples.


Critical Autism Studies: The State Of The Field, Sonya Freeman Loftis Dec 2023

Critical Autism Studies: The State Of The Field, Sonya Freeman Loftis

Ought: The Journal of Autistic Culture

In this essay, I attempt to define critical autism studies and to provide a brief survey of some of the major work done in this field so far. I hope my discussion gives a sense of the robust strength of this ever-growing field and also a glimpse of some of the key issues being discussed within the field right now.


Online Worship And The Autism Community, Stephen J. Bedard May 2023

Online Worship And The Autism Community, Stephen J. Bedard

Ought: The Journal of Autistic Culture

The COVID-19 pandemic forced many faith communities to move their services online. This may have been a pragmatic decision to adapt to health regulations but it also provided an accessible option for autistic worshipers to participate in their faith community. Although there are some challenges to online worship services, they remain an important option for autistic members of faith communities.


Breaking Me Down And Lifting Me Up: An Autoethnography Of Being A Black Autistic Woman Online, Morgan Harper-Nichols May 2023

Breaking Me Down And Lifting Me Up: An Autoethnography Of Being A Black Autistic Woman Online, Morgan Harper-Nichols

Ought: The Journal of Autistic Culture

This autoethnography investigates the diverse challenges associated with being a Black, undiagnosed autistic woman coming of age on the internet, and examines how online experiences shaped my identity over the past twenty years. Early encounters with racism and cautious self-expression on platforms such as forums, GeoCities, Myspace, and YouTube are explored as my initial efforts to "fit in" in virtual spaces. I discuss how engaging with platforms like Instagram and Etsy enabled my participation in the gig economy while grappling with my pre-diagnosis social struggles. I also share how I navigate post-2020 experiences as a Black autistic online creator, how …


The Benefits Of Asynchronous Friendship, Sarah Shotts May 2023

The Benefits Of Asynchronous Friendship, Sarah Shotts

Ought: The Journal of Autistic Culture

No abstract provided.


True Posts, Archana Kadam May 2023

True Posts, Archana Kadam

Ought: The Journal of Autistic Culture

The poem "True posts" is written from the perspective of an autistic child who is learning his way with social media.


Talking Heads, Fear Of Music, And The "Different Thinking" Of David Byrne, John Bruni May 2023

Talking Heads, Fear Of Music, And The "Different Thinking" Of David Byrne, John Bruni

Ought: The Journal of Autistic Culture

This article proposes that the 2006 post on the website of David Byrne, the vocalist/guitarist of Talking Heads, announcing his self-diagnosis as an autistic person, invites a reappraisal of the band’s discography, especially Fear of Music (1979), which foregrounds his lyrical approach. Fear of Music, I suggest, relies on “autistic misdirections” that illustrate Byrne’s “different thinking” about his body, mind, communicative (in)ability, and relationship to physical spaces – all prominent and productive areas of exploration within critical autism studies.

“Different thinking” is taken from the 2020 memoir of Chris Frantz, the drummer of Talking Heads, in describing, retroactively, how …


Kiss/Caress, Laurie Green Nov 2022

Kiss/Caress, Laurie Green

Ought: The Journal of Autistic Culture

Like many aspects of self, my sexuality remained under wraps for the first three decades of my life. I felt desexualised in my body, unaware of my autism but deeply aware of my alienation and social position. Unable to find a sexual reflection in popular culture and bombarded with tropes of toxic masculinity I turned my sexual desires inwards. Only with my closest confidant, my partner, did any semblance of sexuality emerge, mediated by images and symbols imbibed as a teenager. My deep desire for connection that extended into sexuality felt ossified and unaired—kept in an air-sealed wrapper, like a …


Everything’S Gonna Be Kinda Queer: Autistic Gender & Sexuality In Everything’S Gonna Be Okay, Jinx Mylo Nov 2022

Everything’S Gonna Be Kinda Queer: Autistic Gender & Sexuality In Everything’S Gonna Be Okay, Jinx Mylo

Ought: The Journal of Autistic Culture

This paper analyzes the representations of autistic characters in the television show Everything’s Gonna Be Okay in relation to gender and sexuality. In contrast to previous screen representations, the four autistic characters provide a variety of gender expressions and sexual orientations, challenging the stereotypes that perpetuate the idea of autism being limited to heterosexual men. Issues explored include attitudes toward autistic sexual consent and agency, sexual experimentation, and the impacts of communication norms on romantic relationships.


Theorizing Autistic Sexualities As Collective Poetic Experiences, Anna Nygren, Hanna Bertilsdotter Rosqvist Nov 2022

Theorizing Autistic Sexualities As Collective Poetic Experiences, Anna Nygren, Hanna Bertilsdotter Rosqvist

Ought: The Journal of Autistic Culture

This article is a palimpsest emerging as part of a project of collective autoethnographic writing on the theme of sexuality. It draws on the intensification of friendly writing, friendly as in friends with benefits. We write as autistic and neuroqueer subjects, writing until our textualities becomes sexualities. We write until the text becomes a room – call it Earth or call it Body, call it Brain or call it Heart – in which one could crack meanings―but these are not the most important ones. Instead of meanings and positions, we want to write about movements in time. The time it …


The Sun Child And The Moon Child, Mateo Izan Luna May 2022

The Sun Child And The Moon Child, Mateo Izan Luna

Ought: The Journal of Autistic Culture

No abstract provided.


Don’T Be Like Me: A Letter To My Daughters, Morénike Giwa Onaiwu May 2022

Don’T Be Like Me: A Letter To My Daughters, Morénike Giwa Onaiwu

Ought: The Journal of Autistic Culture

It is often stated that parenting is "the toughest job you'll ever love." And it certainly doesn't come with an instruction manual. However, though we will falter, because of our love for our children, most of us learn a lot on the journey. This growth helps us to develop the skills and understanding needed, as parents, to be able to effectively guide, support, and nurture our children. Such knowledge, though beneficial for all families, is critical within neurodiverse households.

So what do you do when you just don't have it? What do you do when you have as much (if …


It’S Not Autism. It’S Your Parenting. An Autoethnographic Exploration Of The Relationships Between Professionals And Parents Of An Autistic Child In The Uk, Barbara Mitra Dr May 2022

It’S Not Autism. It’S Your Parenting. An Autoethnographic Exploration Of The Relationships Between Professionals And Parents Of An Autistic Child In The Uk, Barbara Mitra Dr

Ought: The Journal of Autistic Culture

This paper is based on my own child who was diagnosed with Autism (aged 7 years and Autism and PDA aged 11). Using autoethnography, drawing on my own diaries, records and journals that I kept throughout this process, I document how our parenting was continually questioned and considered to be ineffective. This was the case even when our child had received his first diagnosis of autism. The extra stress and trauma that such continual questioning had impacted not only on us as parents, but also on our child with worsening behaviour. It seems that professionals continually questioned parenting styles, rather …


An Analysis Of Self-Published Novels By Autistic Authors As A Form Of Advocacy, Jennifer J. Nelson May 2022

An Analysis Of Self-Published Novels By Autistic Authors As A Form Of Advocacy, Jennifer J. Nelson

Ought: The Journal of Autistic Culture

The Autistic Representation Database (ARD) indexes nearly 1,000 works of fiction, auto-biographical non-fiction, film, and television that feature autistic representations. Robert Rozema and I created the ARD with the purpose of compiling all works of art with autistic representation in one place. In my work on the ARD, I recognized a key pattern: a higher ratio of autistic authors are self-published in comparison to neurotypical authors writing about autism. Autistic authors may self-publish because of barriers in the traditional publishing industry; however, I assert it is because self-publishing allows them to portray autism how they desire. In this way, autistic …


My Learning Circles, Archana Kadam May 2022

My Learning Circles, Archana Kadam

Ought: The Journal of Autistic Culture

This poem is written from the perspective of an autistic child who loves mathematical concepts. The poem attempts to explain his or her understanding of rules of social thinking.


What Are Intended As Systems Of Support Become Systems Of Struggle, Kevin Timpe Dec 2021

What Are Intended As Systems Of Support Become Systems Of Struggle, Kevin Timpe

Ought: The Journal of Autistic Culture

Education is, in theory, a human right owed to all individuals, including those who are disabled. In practice, however, that right is often not satisfied. While disabled students now have a federal right to a public education in the United States, the Individuals with Disabilities Education Act is often not followed. And even when it is, ensuring that it is often places undue demands on disabled students and their families. The system that is supposed to support disabled students all too often is itself a source of struggle.


Autism-As-Machine Metaphors In Film And Television Sound, Erin Felepchuk Jun 2021

Autism-As-Machine Metaphors In Film And Television Sound, Erin Felepchuk

Ought: The Journal of Autistic Culture

Around the turn of the millennium, there was an outpouring of autistic representation in literature, film, and television. These resulted in a multitude of new cultural texts that reinforced damaging metaphors about autism that had previously emerged in medical discourse. In film and television, autistic people are portrayed through a variety of metaphors: as impenetrable fortress, missing puzzle pieces, confusing aliens, and as malfunctioning robots or supercomputers. In this paper, I examine the role of film and television sound in reinforcing the metaphor of autistic people as “unfeeling machines.” The unfeeling machine metaphor is personified through sound tracks that deploy …


Rules, Archana Kadam Jun 2021

Rules, Archana Kadam

Ought: The Journal of Autistic Culture

The poem "Rules" attempts to describe rules of Social Pragmatics from the perspective of a child with Autism.


"Erase Me": Gary Numan's 1978-80 Recordings, John Bruni Jun 2021

"Erase Me": Gary Numan's 1978-80 Recordings, John Bruni

Ought: The Journal of Autistic Culture

This article considers the music of Gary Numan as a test case for questioning the traditional idea of individual artistic genius. Although Numan was diagnosed as autistic later in life, he claims that he exhibited signs of autistic behavior at the age of 14, which suggests that his music can reflect a different way of perceiving the world that is characteristic of autistic people. While arguing against the notion that autism distinctly influences art, the article considers the limitations of evaluating Numan’s work in the context of a humanist aesthetic that posits universal assumptions, based on an individual self, about …


I, Too, Sing Neurodiversity, Morénike Giwa Onaiwu Nov 2020

I, Too, Sing Neurodiversity, Morénike Giwa Onaiwu

Ought: The Journal of Autistic Culture

The neurodiversity community was envisioned as an inclusive and welcoming space for individuals with neurological conditions such as ADHD, autism, Tourette’s Syndrome, giftedness, dyslexia, dyscalculia, dyspraxia, intellectual disability, NVLD and related diagnoses. The underlying premise of neurodiversity is that people present with various neurological differences and there is value in acknowledging and accepting these differences. Despite efforts made over the past few decades, a growing number of individuals within the neurodiversity community, including people of color, have called for intersectional concepts to be more intentionally and more effectively interwoven into neurodiversity as a whole. Referencing “I, Too,” a decades-old poem …


Babble About Autism Talks Too Much, Adam J. Wolfond Nov 2020

Babble About Autism Talks Too Much, Adam J. Wolfond

Ought: The Journal of Autistic Culture

Two poems by Adam Wolfond, "How" and "Babble About Autism Talks Too Much" (2020) "language" autism differently, questioning the way neurotypicality asserts authority over the meaning and experiences of autistic people. Wolfond is a non-speaking writer who is the first and youngest poet to be published by poets.org. He is a public text-to-speech presenter, collaborator on academic projects, an artist who has previously exhibited in Toronto, Canada and has published two books of poetry with Unrestricted Interest. His interest lies in movement, relation, affect and language.


Visuals, Archana Kadam May 2020

Visuals, Archana Kadam

Ought: The Journal of Autistic Culture

The poem “Visuals” is written from the perspective of a child with Autism who is a visual learner and encourages us to see the world through his eyes.


Book Review: Camouflage: The Hidden Lives Of Autistic Women By Sarah Bargiela, Sara M. Acevedo May 2020

Book Review: Camouflage: The Hidden Lives Of Autistic Women By Sarah Bargiela, Sara M. Acevedo

Ought: The Journal of Autistic Culture

No abstract provided.


The Things We Talked About, Angelica Davilla May 2020

The Things We Talked About, Angelica Davilla

Ought: The Journal of Autistic Culture

Creative nonfiction about Latinx sisterhood


Waiting For Autistic Superman: On Autistic Representation In Superhero Comics, Robert Rozema May 2020

Waiting For Autistic Superman: On Autistic Representation In Superhero Comics, Robert Rozema

Ought: The Journal of Autistic Culture

Climate activist Greta Thunberg recently likened her autism to a “superpower,” invoking a term first used in the American Golden Age comic Supersnipe in 1945. Thunberg’s use of the term superpower, however, is complicated by the way in which superhero comics have historically represented disability in general--and autism in particular. Over the past 30 years, representations of autistic characters in superhero comics have been very rare and mostly wrong, even as autistic presence has increased dramatically in film, television, popular fiction, and other media. This article examines the representation of autistic superheroes, who appear only rarely in superhero comics. As …


Private Facebook Group, Aimee Chor May 2020

Private Facebook Group, Aimee Chor

Ought: The Journal of Autistic Culture

No abstract provided.


Establishing A Presumption Of Competence In The Ela Classroom: One Teacher’S Story Of Creating Space For Autistic Culture, Christopher Bass Dec 2019

Establishing A Presumption Of Competence In The Ela Classroom: One Teacher’S Story Of Creating Space For Autistic Culture, Christopher Bass

Ought: The Journal of Autistic Culture

Much has been written about the exclusive nature of inclusive teaching (Allan 2015; Owen & Gabriel, 2010; Smith 2010; Ware, 2004). Many general educators approach neurodiversity with a deficit approach (Smagorinsky, Tobin and Lee, 2019; Myers, 2019) As an active ELA teacher, I argue that teachers must first establish a presumption of competence (Biklen, 2005), then model and promote asset-based rhetoric around ability. Once students engage with asset-based rhetoric, the classroom may become more inclusive of autistic culture. This article shares the story of my attempt to establish a presumption of competence through student tattoos.


The Moon Is Especially Full: Notes On Poetry, Teaching, Tests, And [Autistic] Intelligence, Chris Martin Dec 2019

The Moon Is Especially Full: Notes On Poetry, Teaching, Tests, And [Autistic] Intelligence, Chris Martin

Ought: The Journal of Autistic Culture

This essay explores the ways in which poetry can help autistic students utilize creative expression and develop tools for self-advocacy.