Digital Commons Network^™

Differences Between Government, Consortium, And Private Database Stewards Impacting The Genomic Data Market: A Survey Of U.S. Academic Genetic Researchers., Amanda K Greene, J Denard Thomas, Kaitlyn Jaffe, Luyun Chen, Kerry A Ryan, Brian J Zikmund-Fisher, J Scott Roberts, Amy L Mcguire, Katherine Hendy, Kayte Spector-Bagdady

Center for Medical Ethics and Health Policy Staff Publications

Background: Despite major shifts in U.S. federal government data sharing requirements, their impact, and relation to researcher choice of database, are underexplored. This study surveyed genetic researchers regarding trends, priorities, perceptions of quality, impact on research outcomes, and genomic data sharing and use across government, consortium, and private databases.

Methods: As part of an exploratory sequential mixed methods project, we surveyed 294 U.S.-based genomic academic researchers.

Results: Genetic researchers generally have a choice between databases, which allows them to prioritize data quality. This might explain recent trends toward the use of government and consortium databases away from private ones. Respondents …

Can I Get A Witness? The Ethical Dimensions Of Family Presence In Patient Suffering, Jennifer Blumenthal-Barby, Trevor M Bibler, Holland Kaplan, Adam Omelianchuk, Joanna Smolenski

Center for Medical Ethics and Health Policy Staff Publications

For patients who are suffering, the bedside presence of a family member can provide comfort, and many people hold that there is moral value in being present with a conscious, suffering patient. Yet what is the moral significance of the absence of family members when a patient is minimally conscious or unconscious and not aware of their absence? Clinicians are often troubled when family members and surrogate decision-makers who are able to spend a significant amount of time at an unconscious, seriously ill patient's bedside do not do so. Clinicians feel frustrated that they must bear the burden of witnessing …

Anything But Endo: Diagnostic Buck-Passing In Endometriosis Diagnosis, Rita Dexter, Megan Kitts, Heather Welty, Melanie Jeske

Center for Medical Ethics and Health Policy Staff Publications

People living with endometriosis, a disease in which tissue similar to the lining of the uterus grows elsewhere in the body, often experience prolonged diagnostic journeys because of symptom variability, normalisation of period pain and other symptoms, and lack of awareness of the condition. In this article, we analyse the endometriosis diagnostic journey through the lens of epistemic injustice. Drawing on in-depth interviews with 52 people living with endometriosis in the United States, we introduce the concept of diagnostic buck-passing to characterise the phenomenon wherein individuals who seek treatment for their symptoms end up stuck in a cycle of seeing …

Toward Ethical Provenance Tracking: The Ga4gh Model Data Access Agreement (Daa), Alexander Bernier, Bartha Maria Knoppers, Jonathan Lawson, Robyn Mcdougall, Maili Raven-Adams, Vasiliki Rahimzadeh

Center for Medical Ethics and Health Policy Staff Publications

Purpose: Standardizing contractual clauses that govern data access enables research institutions to responsibly steward genomic and related health data while enabling its efficient downstream reuse.

Methods: We describe a document analysis study using both qualitative and comparative law analytical approaches to identify the most common categories of clauses from 29 different data access agreements used by human biomedical research consortia globally. We furthermore characterized the legal positions and standard practices for each common element of the agreement and synthesized across them to develop model clauses. A total of 3 discussion sessions were organized virtually to refine the clauses among members …

Imagining Genomics And Population Health In 2050: Anticipating Future Research, Policy, And Governance Needs, Bartha Maria Knoppers, Yann Joly, Ma Apos N H Zawati, Habiba Alsafar, Jeffrey C Barrett, Laura Blackburn, Brian Hon-Yin Chung, Martina C Cornel, Edward S Dove, David Glazer, Calvin Wai-Loon Ho, Muin J Khoury, Anna C F Lewis, Anneke Lucassen, Peter F R Mills, Colin Mitchell, Nicola Mulder, Ainsley J Newson, Anthony Ng, Paul D P Pharoah, Vasiliki Rahimzadeh, Megan C Roberts, Saskia C Sanderson, Jeffrey M Skopek, Ron Zimmern, Eric M Meslin

Center for Medical Ethics and Health Policy Staff Publications

No abstract provided.

Clinicians’ Views On A Patient Decision Aid For Deep Brain Stimulation In Parkinson’S Disease, Hillary S King, Jennifer Blumenthal-Barby, Benjamin H Levi, Sol De Jesus, Harini Sarva, Laura Y Cabrera

Center for Medical Ethics and Health Policy Staff Publications

Introduction: For people with Parkinson's disease (PD), deciding whether to pursue deep brain stimulation (DBS) has become increasingly complex. Evidence suggests current approaches to collaborative decision-making may fall short of accepted standards. Thus, a decision support intervention, such as a patient decision aid (PtDA) may be warranted. PtDAs have been shown to improve patients' knowledge, expectations, and participation in decision-making for other, similar healthcare decisions. We therefore sought to assess neurologists' awareness of, and experience using, PtDAs, and to solicit their opinions on the ideal features of a PtDA for PD patients considering DBS.

Methods: Sixteen United States-based neurology clinicians …

Ai Deployment Authorisation: A Global Standard For Machine-Readable Governance Of High-Risk Artificial Intelligence, Daniel Djan Saparning

Student Publications

Modern artificial intelligence (AI) governance lacks a formal, enforceable mechanism for determining whether a given AI system is legally permitted to operate in a specific domain and jurisdiction. Existing approaches-such as model cards, audits, and benchmark evaluations provide descriptive information about model behaviour and training data but do not produce binding deployment decisions with legal or financial force. This paper introduces the AI Deployment Authorisation Score (ADAS). This machine-readable, regulator-grade framework evaluates AI systems across five legally and economically grounded dimensions: Risk, Alignment, Externality, Control, and Auditability, derived from safety engineering, alignment theory, algorithmic accountability, and liability economics. ADAS produces …

The Political Disconnect: Working-Class And Low-Income People On What Politics Means To Them And How They Might Be Mobilized, Daniel Laurison, Kelly Diaz, Monica Guzman , '25, Zachary Kreines , '25, Kaj Tug Lee , '25, Lydia Orr, Sahiba Tandon , '25

Sociology & Anthropology Faculty Works

A functioning democratic society must involve all kinds of people in deciding who will hold the power to enact laws and allocate tax dollars. However, working-class and low-income people vote at significantly lower rates than the more privileged in the US, and their participation has been declining in recent elections. In order to understand why those with fewer resources are less likely to vote and how this might change, a diverse group of researchers interviewed 232 low-income and working-class people (in every major racial group) from across Pennsylvania – 144 of whom either did not vote, or voted only occasionally. …

Construction Industry Preparedness For Generation Z And Millennials: Aligning Industry Characteristics With Workforce Job Preferences, Ameenullah Amiri, Dhaval R. Gajjar, Jason D. Lucas

The Professional Constructor

The construction industry in the United States suffers from workforce shortages, partly due to younger generations being hired more slowly than baby boomers retire. Generation Z’s (Gen Z) lack of interest in joining the construction industry, coupled with the retirement of older workers, has amplified the problem. This paper investigates existing literature to identify the work and career preferences of Gen Z and Millennials and determine where the industry may focus efforts to attract these two generations. Through a systematic literature review, this study identified overlaps and gaps between the current construction industry workforce’s perceptions of the industry and the …

School Girls; Or The African Mean Girls Play

Theatre and Performance Studies Programs

School Girls; or the African Mean Girls Play

Daisies For My Grandmother, Miriam Smith

Athena: Undergraduate Research and Literary Journal

No abstract provided.

Autologous Peripheral Nerve Tissue Grafts Implanted Into The Nucleus Basalis Of Meynert And Substantia Nigra At The Time Of Bilateral Deep Brain Stimulation In Parkinson Disease: A Report Of 2 Cases, Samuel R. Daly, Jorge E. Quintero, Lisa M. Koehl, Elizabeth Roslyn Wallace, Zain Guduru, Julie A. Gurwell, Tripp Hines, Jaimie Hixson, Saad Hulou, John T. Slevin, Frederick A. Schmitt, Greg A. Gerhardt, Craig G. Van Horne

Neurosurgery Faculty Publications

Background and Objectives: Cholinergic degeneration in the nucleus basalis of Meynert (NBM) is implicated in the cognitive impairment seen in Parkinson disease (PD) and is being examined as a potential therapeutic target. We have previously shown the safety of delivering investigational autologous cell-based therapy, ie, peripheral nerve tissue (PNT), to the substantia nigra (SN) at the time of deep brain stimulation (DBS) surgery in PD (DBS-Plus). In this study, we assessed the safety and feasibility of simultaneously delivering that PNT to both the NBM and SN at the time of DBS.

Methods: Two patients with idiopathic PD and mild cognitive …

“… It's Google That's Big Brother”: The Symbiosis Between Icac Investigators And The Private Sector Regarding Encryption And Privacy, Christopher G. Brewer, Kevin F. Steinmetz, Don Kurtz, Brian Schaefer

Faculty Publications - Criminal Justice Sciences

Encryption technologies have become ubiquitous for both individual and commercial sectors. Perhaps no realm of law enforcement is so acutely affected by encryption than cybercrime, including internet crimes against children (ICAC) personnel. There exist a variety of encryption-based tools and authentication measures available to help online child sexual abusers and consumers of child sexual abuse material (CSAM) hide their activities and obstruct law enforcement efforts to gather evidence of criminal activity. Established here is the idea that ICAC investigative practice is ultimately shaped by these technologies as well as the relationship between the distributors of these technologies and private platforms …

Investigating The Effects Of Atg3 On Autophagosome Size And Number, Keeran R. Senthil Kumar

Senior Honors Theses and Projects

Macroautophagy, or autophagy, is a highly conserved catabolic process in all eukaryotes which allows for the degradation of large cytosolic contents. It occurs in two forms: bulk autophagy, which is induced by nutrient deprivation and targets nonspecific cargo, and selective autophagy, which is induced by cellular stress and sequesters specific substrates. The process of autophagosome formation is carried out by a group of Atg (autophagy-related) proteins, one of which is Atg3. Atg3 functions as an E2-like enzyme by conjugating Atg8 — a ubiquitin-like protein — to phosphatidylethanolamine (PE), a step required for autophagosome membrane formation. This lipidation process is catalyzed …

Examining The Relationship Between Sleep And Physical Activity Among University Students, Maddie Stock

Senior Honors Theses and Projects

Sleep and physical activity (PA) are important factors for maintaining overall health and are positively associated. The relationship between sleep and PA is well-documented for the general adult population, but there is less research on college students who are in a formative stage of developing lifelong health behaviors. The purpose of this study was to examine the relationship between aerobic PA and sleep in college students. College students at a Midwest University were invited to participate by completing the American College Health Association’s National College Health Assessment evaluating students’ health behaviors over the previous 1-2 weeks. These values were used …

Zero Tolerance Discipline In American Schools: Racial Injustice In The Age Of Youth Disposability, Trinity J. Perkins

Senior Honors Theses and Projects

This study critically examines how neoliberal social controls and school-based criminalization efforts emerged in response to a series of moral panics surrounding perceived increases in school violence and mass shootings. Largely, this response manifested in the form of rigid zerotolerance disciplinary policies focused on deterrence and retribution. However, research reveals the application of these policies produce racial and income-based disparities in how school discipline is administered, which contributes to the school-to-prison pipeline (i.e., a pathway for youth to be funneled out of education and into incarceration). As such, it is believed that racial threat dynamics may be contributing to the …

“If You Think This Vilifies The Police, Then You Think The Police Are Villains”: Teaching Reparations Won As An Antidote To Copaganda, Kaitlyn Selman, Hannah Carson Baggett, Justin Turner

Faculty Publications - Criminal Justice Sciences

Building on prior research about copaganda and pro-police socialization, we argue that the Reparations Won curriculum in Chicago Public Schools is an antidote to police legitimization efforts in K-12 schools. Specifically, the curriculum affirms student experiences that are not accounted for nor deemed possible in a world built by and for policing; it emphasizes relationship-building and centers definitions of community that resist the alienation required for such a world; and it facilitates an understanding of local histories as inseparable from broader social structures. We conclude that in an era of contested curricula, Reparations Won provides the structure needed to grapple …

Language Policy In Superdiverse Indonesia, Written By Zein, Subhan, Reni Kusumaningputri

Manusya, Journal of Humanities

No abstract provided.

Surveying The Knowledge Landscape Of Western Languages And Literature In Thailand, Nantana Anuntkosol, Narut Chaosakun, Akra Chowchong, Marut Hantaley, Aratee Kaewsumrit, Natthaporn Kanjanapinyowong, Usa Padgate, Penpisa Srivoranart, Wilita Sriuranpong, Raksangob Wijitsopon

Manusya, Journal of Humanities

Although Western languages and literature have had a constant role in Thailand’s educational system, it has not yet been possible to project an unbiased picture of the development of related academic works as a data-driven study of such scale has not been attempted before. This study, therefore, purposes to 1) conduct a systematic survey of academic works and research studies produced by scholars and students in Thailand on the linguistics, pedagogy, translation, and literature of the following Western languages: English, French, German, and Spanish; and 2) perform a meta-analysis of the acquired data to draw an overall landscape of the …

Eastern Languages And Literature Research In Thailand : Past, Present, And Future Perspectives From 25 Years Of Research, Sansanee Ek-Atchariya, Somkiat Chawengkijwanich, Kanokwan Laohaburanakit Katagiri, Aroonwan Kongmebhol, Ruttapond Swanpitak, Sompornnuch Tansrisook, Pitchaya Vipaveenukul, Piyanuch Wiriyaenawat

Manusya, Journal of Humanities

This study examines the evolution of Chinese, Japanese, and Pali and Sanskrit language and literature research in Thailand over the past 25 years (1998–2022). Drawing from research articles, theses, and academic journals, it highlights the unique strengths and trends of each field. Chinese research demonstrates dynamic growth, driven by applied linguistics and educational innovations. Japanese research shows steady development, focusing on education research and analyses of individual literary works. Pali and Sanskrit research excels in cultural preservation and religious studies, reflecting Thailand’s deep-rooted connections with ancient Indian traditions. This comparative analysis underscores the shared focus on applied research and localization …

Structured Laser Vision-Based Measurement Of Gta-Weld Pool, Gang Zhang, Jianbo Wang, Yu Shi, Ding Fan, Yuming Zhang

Electrical and Computer Engineering Faculty Publications

The current study of weld pool fluid dynamics in arc welding focuses on the numerical model establishment and simulation, and the x-ray combined with particle trace imaging observations, there is no real-time monitor and quantitatively characterize the weld pool flow behavior in welding process for controlling the weld quality. This study develops an innovative structured laser vision-based sensing system for three-dimensional (3D) reconstruction and quantitative analysis of weld pool surface topographies in gas tungsten arc welding (GTAW). Through characterization of dynamic weld pool morphologies, two novel parameters are proposed: the surface convexity variation rate (R_h) and fluid …

Vegetation Species And Bed Position May Drive Epifaunal But Not Nekton Habitat Use In Estuarine Submerged Vegetation In The Mobile-Tensaw River Delta, Alabama, Steven Vroljik, Kathryn O'Shaughnessy, Ashley Mcdonald, Zoey Hendrickson, Bethany Kiley, Anna Reimer, Sierra Robertson, Samantha Smith, Edward Sullivan, Charles Martin

Gulf and Caribbean Research

Submerged aquatic vegetation (SAV) supports nekton and epifaunal macroinvertebrates, sustaining food webs and ecosystem services in estuaries. Invasive SAV can alter these dynamics by displacing native vegetation and restructuring communities. In Alabama’s Mobile-Tensaw Delta (MTD), Eurasian milfoil (Myriophyllum spicatum) is rapidly expanding and outcompeting native wild celery (Vallisneria americana). This study compared nekton and epifaunal assemblages between M. spicatum and V. americana, focusing on edge versus interior positions. Nekton surveys identified 22 taxa (M. spicatum, n = 13; V. americana, n = 18), but assemblages did not differ significantly between vegetation types …

I And Ai: Human Personhood In An Age Of Artificial Intelligence, Jonathan A. Powers, Daniel H. Strait

Academic Books

No abstract provided.

Practicing Law From Home During The Pandemic: Findings From The University Of Michigan Law School Alumni Survey, David L. Chambers

Bibliography of Research Using UMLS Alumni Survey Data

The University of Michigan Law School, through its Alumni Survey Project, conducts annual surveys of its graduates regarding their current work and their careers as a whole.  In the surveys conducted in 2022, 2023, and 2024, the Project included questions about the impacts of the coronavirus pandemic on various aspects of graduates’ work – their productivity, their co-worker relationships, their client relationships, the balance of their work and family life, and their income – as well as on their work experience overall. 819 graduates who had practiced law fulltime during the pandemic responded to the questions and more than half …

Thrive Together: A Culturally Responsive Group Intervention To Support Emotional Regulation And Behavioral Health Among Underserved Middle School Youth, Cherish Harris

Psychology Doctoral Specialization Projects

Mental health concerns among children and adolescents continue to represent a significant public health concern, particularly among underserved and minority youth who experience disproportionate exposure to systemic inequities, chronic stressors, and barriers to mental health care. Schools frequently serve as primary points of contact for youth experiencing emotional and behavioral difficulties; however, many settings lack accessible interventions that adequately address both internalizing and externalizing concerns. The purpose of this doctoral project was to develop Thrive Together, a culturally responsive group intervention designed to support middle school students experiencing emotional, behavioral, and interpersonal challenges. The intervention was developed in response …

Table Of Contents, Loyola Consumer Law Review

Loyola Consumer Law Review

No abstract provided.

Subversion By Design, Daniel Nicastro

Loyola Consumer Law Review

Dark patterns, in the words of the design expert who coined the term, are ".. . tricks used in websites and apps that make you do things that you didn't mean to, like buying or signing up for something."¹ The FTC, in its 2022 Staff Report on the subject, defined them similarly as ". . . design practices that trick or manipulate users into making choices they would not otherwise have made and that may cause harm."² Endemic to the digital retail space, dark patterns subvert consumer decision making, resulting in inflated spending, widespread privacy violations, and the …

The Limits Of Privacy Protection: Why Ai Chatbots Demand Coppa Changes, Jacob Yeskis

Loyola Consumer Law Review

No abstract provided.

Changes In Telehealth Usage Among Medicaid Beneficiaries With Mental Illnesses In A Rural State: An Analysis Of Kentucky Medicaid Dataset Over 5 Years (2018–2022), Chizimuzo T.C. Okoli, Tianyi Wang, Bassema Abufarsakh, Sarret Seng, Zainab Almogheer, Jarrah Al-Kayed, Pooja Bhattarai, Holly Stith, Andrew Makowski

Nursing Faculty Publications

Introduction: Accessing mental health care remains challenging for Medicaid beneficiaries with mental illnesses (MI) in rural settings. The COVID-19 pandemic prompted telehealth service expansion through temporary policy changes and shifts in health care delivery. Despite the increased availability of telehealth as a modality to address disparities in health care access, telehealth adoption and associated use are inadequately explored among Medicaid beneficiaries with MI in Kentucky.

Objective: To examine trends and factors associated with telehealth use by residence status among Kentucky Medicaid beneficiaries with MI.

Design: A retrospective analysis of Kentucky Medicaid claims data obtained from 174,354 beneficiaries aged 18 years …

Ceo Compensation Changes Following Acquisitions, Leonce Bargeron, David J. Denis

Finance and Quantitative Methods Faculty Publications

We find that CEO compensation increases following acquisitions only in those deals in which acquirer stock is used as the method of payment. These compensation increases are driven by increases in equity-based compensation and are concentrated in riskier acquirers, in riskier acquisitions, and in acquirers whose CEOs have low exposure to the stock price. We find little support for traditional agency cost explanations of changes in CEO pay following acquisitions. However, our findings are broadly consistent with compensation changes representing a contracting solution to a two-sided adverse selection problem that is present only in stock acquisitions.