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An Equitable End: Meeting The Needs Of Queer Families Within Deathcare, Nyssa Peck

University Honors Theses

This thesis seeks to explore end-of-life care experiences of queer families, focusing on interactions with palliative and hospice caregivers. Currently, end-of-life (EOL) practitioners in institutional and medical care settings are often poorly equipped to interact with queer families due to inadequate cultural training models, personal biases, and ignorance regarding the queer identities of their clients. This manifests in substantial inequities within deathcare systems regarding the accommodation of the unique needs of queer familial structures. Drawing upon multidisciplinary scholarship, I sought to examine these needs, which diverge from that of heterosexual families due to queer families’ absence of legal protections and …

Symptom Documentation In Unstructured Palliative Care Notes Of Children And Adolescents With Cancer., Katherine Bernier Carney, Jacob Wilkes, Tumilara Aderibigbe, Kristin Stegenga, Holly Spraker-Perlman, Lauri A. Linder

Manuscripts, Articles, Book Chapters and Other Papers

CONTEXT: Children and adolescents with cancer experiencing complex symptoms can benefit from subspeciality palliative care. However, standardized methods of symptom documentation by pediatric palliative care teams are lacking. Understanding current approaches to symptom documentation will inform next steps to optimize symptom support.

OBJECTIVE: To explore the documentation of symptom prevalence and characteristics in unstructured clinical notes by pediatric palliative care clinicians caring for children and adolescents with cancer.

METHODS: We reviewed unstructured clinical notes documented by the pediatric palliative care team for 115 children and adolescents with cancer. Symptom-related data were abstracted and evaluated using content analysis based on the …

Introduction Of Clinical Pastoral Education In Ukraine: The Experience Of The Volyn Orthodox Theological Academy, Vladyslav Fulmes, Volodymyr Vakin, Oleksandr Khoroshko

Occasional Papers on Religion in Eastern Europe

Medical chaplaincy is an important component in many countries, as it helps to ensure a holistic approach to treatment, taking into account the spiritual needs of patients. The relevance of this direction was due to the invasion of russian troops on the territory of Ukraine back in 2014, and in the conditions of a full-scale war in Ukraine, the role of medical chaplaincy has increased significantly. This article reveals the experience of the Volyn Orthodox Theological Academy (Lutsk, Ukraine) in training medical chaplains, which was the first in Ukraine, responding to social challenges, in particular health care institutions, to develop …

Poor Cancer Prevention And Detection In Zimbabwe, Kenyon C. Chipman

Journal of Nonprofit Innovation

Abstract

In the aftermath of the HIV/AIDS epidemic, Sub-Saharan Africa, particularly Zimbabwe, has witnessed a surge in noncommunicable diseases such as cancer. Despite the decline in HIV/AIDS and other cancer-associated illnesses like HPV, these diseases have set the stage for a growing cancer epidemic. Key contributing factors to this rise include a lack of knowledge about cancer among both patients and health professionals, the prevalence of cancer-associated communicable diseases, and limited accessibility to early detection and prevention services and resources. These factors have led to late diagnoses, increased burden on the healthcare system, and adverse effects on individuals and families. …

Ecotones Of Faith, Tracy Paschke-Johannes

Intersections

No abstract provided.

Donna Winkelman, Oral History Interview, 2025, Kat Hacanyan

Oral Histories

Donna Winkelman is a member of the Center for Jewish Studies advisory board and a dedicated member of the local Jewish community. Originally from Huntington Woods, Winkelman first moved to Ann Arbor while attending U of M--where she later met her husband, Tom. She became part of the CJS team after learning about it from friend and neighbor, Decky Alexander. Both strong supporters of the center, Winkelman and her husband developed the Donna Winkelman and Thomas Easthope Endowed Scholarship in Jewish Studies, which funds students taking travel courses. In this interview, she talks about finding community, her experiences in the …

Prognostic Utility Of Palliative Prognostic Index In Advanced Cancer: A Systematic Review And Meta-Analysis, Si Qi Yoong, Hui Zhang, Dee Whitty, Wilson Wai San Tam, Wenru Wang, Davina Porock

Research outputs 2022 to 2026

OBJECTIVES: To evaluate the prognostic utility of Palliative Prognostic Index (PPI) scores in predicting the death of adults with advanced cancer. METHODS: A systematic review and meta-analysis were conducted. Six databases were searched for articles published from inception till 16 February 2024. Observational studies reporting time-to-event outcomes of PPI scores used in any setting, timing and score cutoffs were eligible. Participants were adults with advanced cancer residing in any setting. Random effects meta-analysis was used to pool hazard, risk, or odds ratios. Findings were narratively synthesized when meta-analysis was not possible. RESULTS: Twenty-three studies (n = 11,235 patients) were included. …

Volume 31 Issue 1

NEBO: A Literary Journal

This issue of Nebo: A Literary Journal, published in Fall 2017, presents a thought-provoking collection of poetry, fiction, and creative non-fiction that examines themes of multicultural identity, artistic expression, and societal "isms"—prejudices, ideologies, and cultural perceptions that shape human interactions. The issue, archived as Volume 31, Issue 1, corresponds to the print edition labeled Volume 36, Issue 1. Due to necessary metadata adjustments in the digital archiving process, some volume and issue numbers in the online collection may not match those printed in the original journals.

Editor John ToShawn Jarrett, in his editorial preface …

Evaluation Of The Distress Thermometer In Older Patients With Cancer, Charlotte Zuber, Kristine Swartz, Andrew Chapman, Lora Rhodes, Tingting Zhan, Kuang-Yi Wen

Kimmel Cancer Center Faculty Papers

INTRODUCTION: The Geriatric Depression Scale is a useful tool in screening for depression in older adults, a particularly vulnerable population in oncology. The National Comprehensive Cancer Network (NCCN) Distress Thermometer (DT) has been validated as a fast and effective screening tool for psychological distress in general oncology populations, and it could possibly be used as a surrogate for the longer Geriatric Depression Scale (GDS) test in older adults with cancer.

MATERIALS AND METHODS: In this retrospective cross-sectional study in older adults prior to starting cancer treatment, we evaluated the relationship between the DT and GDS by comparing 242 older adults …

The Impact Of Religious Music On Psychological Well-Being: A Survey Study Of Chinese Christians In Hong Kong Churches, Ka Man Lee

Doctoral Dissertations and Projects

This cross-sectional survey investigates the relationship between listening to religious music and psychological well-being among Chinese Christians in Hong Kong, addressing a critical gap in Asian studies. Data were collected from 243 participants through a survey comprising demographic questions, music-listening habits (weekly frequency, average duration, and music era preference), and the 24-item Chinese Ryff Psychological Well-being Scale. Multiple linear regression and ANOVA analyses reveal that the average duration of listening to religious music positively associates with overall psychological well-being and its six dimensions, while frequency shows a negative relationship. Traditional religious music (composed in or before 1980) is associated with …

Health System, Community-Based, Or Usual Dementia Care For Persons With Dementia And Caregivers: The D-Care Randomized Clinical Trial, David B Reuben, Thomas M Gill, Alan Stevens, Jeff Williamson, Elena Volpi, Maya Lichtenstein, Lee A Jennings, Rebecca Galloway, Jenny Summapund, Katy Araujo, David Bass, Lisa Weitzman, Zaldy S Tan, Leslie Evertson, Mia Yang, Katherine Currie, Aval-Na'ree S Green, Sybila Godoy, Sitara Abraham, Jordan Reese, Rafael Samper-Ternent, Roxana M Hirst, Pamela Borek, Peter Charpentier, Can Meng, James Dziura, Yunshan Xu, Eleni A Skokos, Zili He, Sherry Aiudi, Peter Peduzzi, Erich J Greene, D-Care Study

Faculty, Staff and Student Publications

Importance: The effectiveness of different approaches to dementia care is unknown.

Objective: To determine the effectiveness of health system-based, community-based dementia care, and usual care for persons with dementia and for caregiver outcomes.

Design, setting, and participants: Randomized clinical trial of community-dwelling persons living with dementia and their caregivers conducted at 4 sites in the US (enrollment June 2019-January 2023; final follow-up, August 2023).

Interventions: Participants were randomized 7:7:1 to health system-based care provided by an advanced practice dementia care specialist (n = 1016); community-based care provided by a social worker, nurse, or licensed therapist care consultant (n = 1016); …

Predictors And Drivers Of End-Of-Life Medicare Spending Among Older Adults With Solid Tumors: A Population-Based Study, Courtney E Baird, Elizabeth Wulff-Burchfield, Pamela C Egan, Lee A Hugar, Ami Vyas, Nikolaos A Trikalinos, Michael A Liu, Adam J Olszewski, Leonidas E Bantis, Orestis A Panagiotou, Emmanuelle Bélanger

2020-Current year OA Pubs

High-intensity end-of-life (EoL) care for patients with cancer often includes multiple transitions to the hospital and intensive care unit (ICU) and is associated with adverse outcomes, such as declines in patient functional abilities [...].

“Leading For Peace, Equity, Sustainability, And Prosperity”: The Architecture Of Healing And Hope, Bro. Ignatius Perkins, O.P.

Faculty Conference Presentations

Presentation to the Leadership Academy Retreat, March 16, 2025, NLN/ Walden University College of Nursing, Institute for Social Determinants of Health and Social Change.

Recovering Palestinian Lives: Qudsiyya Khurshid From Mandate Palestine To Postwar Pennsylvania, Andrea L. Stanton

Religious Studies: Faculty Scholarship

This article works to recover the life story of Qudsiyya Khurshid, a once well-known Mandate Palestinian intellectual and educator, who wrote essays for publication and for broadcasting on the Palestine Broadcasting Service, while working as a principal at girls’ schools in al-Bireh and Jerusalem. One of a number of educated women active in the Mandate public sphere, she disappeared from public consciousness after the Nakba. But in Luzerne County, Pennsylvania, where she had moved with her husband, a naturalized U.S. citizen, she became a prominent figure in civic work and as a community speaker on Palestinian and Middle Eastern life …

Feasibility, Acceptability, And Satisfaction Of Redcap As A Tool For Interprofessional Education, Ross J. Bindler, Skye Mckennon, Connie M. Remsberg, Jennifer C. Miller, Marian Wilson

Innovations in Health Sciences Education Journal

Interprofessional education (IPE) is an important component of health science training. Ensuring all students have access to necessary information prior to, during, and following simulation-enhanced IPE (Sim-IPE) activities is imperative to ensure a beneficial learning environment and student engagement. Ensuring access to necessary materials can be difficult due to differences in educational resources between institutions. This manuscript will assess the feasibility, acceptability, and satisfaction of using Research Electronic Data Capture (REDCap) as an educational tool for a Sim-IPE activity. After a pilot Sim-IPE activity, data from student evaluations was reviewed. Updates were made including use of REDCap as a universally …

How Do I Care For Those Who Are Dying?, Todd Zuidema

Staff Work

"Often, the most important work was a ministry of presence, letting people know that they were not alone."

Posting about ­­­­­­­­offering hope at the end of earthly life from In All Things, an online hub that offers insight into maintaining and faithful and orthodox Reformed Christian worldview while fearlessly engaging in every aspect of contemporary life – until all is made new.

How Do I Care for Those Who Are Dying?

“How To Have Courageous, Culturally And Soulfully Competent Conversations At End-Of-Life”, Jana Dluehosh

Doctor of Leadership

Signature Healthcare at Home (Hospice, Palliative, and Home Health) workers are often not prepared to facilitate courageous and culturally competent “Goals of Care” conversations with their patients as they approach the End-of-Life. Working in Hospice has given me a direct line of research as I worked on ways to help healthcare workers gain confidence in talking with patients about death and dying in what we call a Goals of Care conversation.

One of the challenges I found in my research was finding healthcare workers who could give the time to participate in stakeholder workshops. Much healthcare operates at high demand, …

Frontotemporal Dementia And Amyotrophic Lateral Sclerosis: A Case Report And Clinical Insights, Audrey Grigore, Lynne J. Goebel

Internal Medicine

Primary care providers are often the first contact for patients with neurodegenerative illnesses, however, they may not be aware of the relationship of certain diseases that may have an impact on their patients' longevity. This case report reminds clinicians of the association between frontotemporal dementia (FTD) and amyotrophic lateral sclerosis (ALS). Physicians should be aware of the association, because FTD commonly occurs first and may prepare clinicians to be alert to the signs of ALS in these patients, leading to earlier detection of ALS and the prescription of disease-modifying medication that may extend the lifespan of people with these diseases. …

The Association Of Opioid Prescribing Continuity And The Risk Of Opioid Use Disorder Among Older Adults, Prachi Prajapati, Shadi Bazzazzadehgan, Yi Yang, Kaustuv Bhattacharya, Shishir Maharjan, John P. Bentley, Sujith Ramachandran

Annual Poster Session 2024-2025

Study objective: To evaluate the association between opioid prescribing continuity and risk of opioid use disorder (OUD) among older Medicare beneficiaries on long term opioid therapy (LTOT).

Systemic Functioning Of Puerto Rican Families With A Cancer Patient, Nicole Velez Agosto

Research Symposium

Background: Systemic family interventions with Latino families that have a cancer patient have been suggested as effective and necessary, but few studies have focused on evaluating systemic functioning to design culturally relevant interventions. The purpose of this mixed-methods study was to assess systemic functioning in Puerto Rican families with a cancer patient using the Spanish translated version of the Family Genogram Interview (FGI) that measures Bowen’s four emotional processes in nuclear family and family of origin.

Methods: Translation and cultural adaptation of the Family Genogram Interview in Spanish was done following a modified version of Erkutt and collegues (1999) dual-focus …

Nursing Now, 2008 Summer, Advocate Health - Midwest

Historical Documents - Combined

Advocate Christ Medical Center and Hope Children's Hospital, Oak Lawn, IL: Internal newsletter publication written by nurses for nurses and published 6 times a year (bi-monthly). The mission of NURSING Now was to communicate, educate and motivate CMC nursing professionals towards continued excellence.

Nursing Now, 2009 May - June, Advocate Health - Midwest

Historical Documents - Combined

Advocate Christ Medical Center and Hope Children's Hospital, Oak Lawn, IL: Internal newsletter publication written by nurses for nurses and published 6 times a year (bi-monthly). The mission of NURSING Now was to communicate, educate and motivate CMC nursing professionals towards continued excellence.

Nursing Now, 2007 March - April, Advocate Health - Midwest

Historical Documents - Combined

Advocate Christ Medical Center and Hope Children's Hospital, Oak Lawn, IL: Internal newsletter publication written by nurses for nurses and published 6 times a year (bi-monthly). The mission of NURSING Now was to communicate, educate and motivate CMC nursing professionals towards continued excellence.

Whole Broken People Wholeness Of Life At All Ages, Brenda K. Lewis

Doctor of Ministry

NPO Statement

Experiences of lost independence or control overwhelm or block the spiritual coping mechanisms of some Independent Living residents at Givens Estates.

Key Research Insights

Deep cultural bias, denial, and a lack of realistic role models form blocks between us and healthy coping with the realities of aging. When we lose independence and control, we often lose our expected storyline, our sense of our identity, and our understanding of the role of our spiritual traditions. The Christian tradition offers rich resources for redefining our story and ourselves in ways that deepen our faith and our connection with the people …

Communication, Collaboration, And Teamwork Among Health Care Professionals, Laura L. Ellingson

Communication Research Trends

No abstract provided.

A Model For Integrating Interpersonal Education In Higher Education, Siti Arshad-Snyder, Sarah Flanagan

International Journal of Teaching and Learning in Higher Education

Interprofessional Education (IPE) is a critical component of healthcare education and a requirement of many accrediting bodies. Approaching IPE from a holistic, comprehensive lens allows academic institutions to overcome challenges related to operating within program- and discipline-specific silos. Bringing students together to learn with, from, and about one another’s professions empowers them to improve their teamwork and communication skills while broadening their understanding of various roles and responsibilities. Clarkson College developed a compulsory IPE course that is documented on students’ transcripts. This online IPE 301 course was designed to provide students with educational materials to enhance their collaborative skills for …

Staff Education Program On Medication Reconciliation, Chika Nweze-Muoghalu

Walden Dissertations and Doctoral Studies

A minimum of one medication error occurs daily in the life of a hospitalized patient, which confirms the research that medication errors constitute the most significant patient safety issue and that about 20% of these errors result in patient harm. Many errors could have been averted if an accurate medication reconciliation process had been practiced. Medication reconciliation is a formal process whereby the patient’s current medication list is compared to the patient’s record or medication orders whenever the patient’s level of care changes. Framed within the analysis, design, development, implementation, and evaluation (ADDIE) model of instructional design, the purpose of …

Keeping Private Citizens Out Of The Government’S Shoes: How To Retool The Qui Tam Apparatus To Survive A Constitutional Challenge, Timothy R. Wagner

Seton Hall Journal of Legislation and Public Policy

No abstract provided.

Targeted Normoxemia And Supplemental Oxygen-Free Days In Critically Injured Adults: A Stepped-Wedge Cluster Randomized Clinical Trial, David J Douin, John D Rice, Erin L Anderson, Conner L Jackson, Alex C Cheng, Mengli Xiao, Jessica Cwik, Laurel E Beaty, Jessica L Wild, Mohamud R Daya, Pratik B Doshi, Shannon C Eastham, Michael D Goodman, Scott R Gunn, Jason S Haukoos, Jessica A Hudson, Jan O Jansen, Jason T Mcmullan, Julie A Rizzo, Martin A Schreiber, Wesley H Self, Matthew W Semler, Aimee Steinwand, Nicole Werner, Vikhyat S Bebarta, Steven G Schauer, Adit A Ginde

Faculty, Staff and Student Publications

Importance: Supplemental oxygen is fundamental to caring for critically injured adults but can expose them to excess inspired oxygen.

Objective: To determine the safety and effectiveness of targeting normoxemia in critically ill trauma patients.

Design, setting, and participants: This multicenter, stepped-wedge, cluster randomized clinical trial compared targeted normoxemia (defined as a peripheral oxygen saturation [Spo2] of 90% to 96%) with usual care among adult trauma patients admitted to an intensive care unit (ICU) at 8 level I trauma centers across the US. These trauma centers were randomized at 3-month intervals when they crossed over from usual care to targeting normoxemia. …

Exploring The Challenges Experienced By Patients And Families Using Palliative And End-Of-Life Care Services: A Qualitative Focus Group Study, Gina Kallis, Gary Hodge, Hannah Wheat, Tomasina Oh, Susie Pearce

School of Nursing and Midwifery

ObjectivesIn the UK, access to dignified and compassionate palliative care is increasingly being reported as inadequate. This is a particular issue in South-West England, where there is an ageing population, historical lack of research, and particular challenges due to its rural and coastal location. The aim of this study was to provide a holistic view of patient and family experiences of care toward the end-of-life in this location and to collaboratively identify the challenges they face.MethodsSix qualitative focus groups were held with people who were toward the end of their life, family/carers, and people who were bereaved. Participants were recruited …