Digital Commons Network^™

Understanding Patient Experiences: A Qualitative Study On Communication And Cultural Competence In Multiple Sclerosis Care, Vaishnavi Sridharan, Charee Thompson, Rola Mahmoud, Minnatallah N. E. Eltinay, Chungyi Chiu

Patient Experience Journal

Objective: Effective communication is crucial in multiple sclerosis (MS) care, influencing patient satisfaction, self-management, and health outcomes. This study explores the experiences of people with MS (PwMS) regarding communication with healthcare providers and between providers within healthcare systems. Methods: This qualitative study analyzed open-ended responses from 590 participants in a national cross-sectional survey. Thematic content analysis was conducted to explore MS patients’ experiences with healthcare communication and care delivery. Results: Three major themes emerged: (1) Patient-provider communication, where 62.9% of participants reported positive experiences, citing responsiveness and empathy, while 37.1% noted issues such as inattentiveness and rushed consultations. (2) …

“Why Should Anyone Want To Make Things Better For Me Particularly?” – A Qualitative Exploration Of Care Opinion And Nhs Care Improvements, Emma Berry, Zoe Skea, Marion K. Campbell, Louise Locock

Patient Experience Journal

Care Opinion is an online platform which enables people to share anonymous feedback (known as “stories”) about their experiences of UK healthcare. In Scotland, this platform has official government backing, though healthcare organisations are not obliged to use it. Care Opinion staff review and edit these stories, acting as moderators. Healthcare staff are invited to respond to stories and are encouraged to use it for healthcare improvement. However, the number of changes made and registered on the platform is relatively small. This paper brings together findings from interviews with story authors (those sharing experiences), NHS staff and Care Opinion moderators …

Psychosocial Dimensions Of Living With Hep B: Notes From The Field: The Lived Experience Of A Mother Raising A Daughter With Hepatitis B, Julie Gerhardt

Patient Experience Journal

What follows is based on the interweaving of three points of view each of which contributes to an understanding of the experience of living with Hepatitis B: (i) as the mother of a daughter who was diagnosed with HBV at 5 months and who still, at age 22, carries traces of the surface antigen in her blood; (ii) as a participant in the Hepatitis B Foundation’s (HBF) “Storytellers” program in which those impacted by the disease meet with others to share experiences and narrate a short video posted on the HBF website; and (iii) as a PhD research psychologist-turned-psychoanalyst interested …

Holding Space: An Effective Intervention For When Hope Wanes, Annette Lane, Marlette Reed, Rose Schroeder

Patient Experience Journal

Holding space is a person-centered, non-judgmental approach to working with clients. This approach goes beyond listening to client concerns; it entails deep listening and being present, developing trust with clients, and helping them connect goals with values. Within this brief account, the concept of holding space is described. What it is and is not is explained. Examples of holding space are woven throughout in order illustrate this concept. Finally, implications for professionals are provided.

“Those Boxes Do Not Hold Me”: Using Narrative Health Experiences Research To Learn From Patients And Care Partners Beyond Surveys, Rachel Grob, Barbara Warren, Erika Cottrell, Njeri Grevious, Sara Knight, Mark Schlesinger, Kate Clegg Smith, Nancy Pandhi

Patient Experience Journal

Stories are fundamental to how we understand individual beliefs and experiences, as well as collective mindsets and institutional practices. Volunteered narratives are abundant, especially on the interweb. We in the health experiences research community, however, are challenged to develop effective, equitable approaches to moving beyond surveys by hearing and responding to not just dominant voices, but also those whom research has historically ignored, silenced, or objectified. In this commentary, we describe one such approach: the Database of Individual Patient Experiences (DIPEx) methodology as adapted by the Health Experiences Research Network (HERN) for use in the U.S. context since 2015. We …

Mastering The Art Of Listening: The Human Experience Superpower, Jason A. Wolf

Patient Experience Journal

As human beings we do not live in isolation. Our existence is framed in the context of others. We are a part of families and teams, communities and countries; all which provide us with ideas and information, most delivered through the interactions we have with others. The very definition of experience itself conveys this as it opens with the words, “the sum of all interactions.”¹ Every experience that we have is impacted by interactions with others. This give and take of connection is the breath of our humanity. Through it we transfer thoughts and beliefs, words and emotions. Moments …

Neutrophil-To-Lymphocyte, Monocyte-To-Lymphocyte, And Platelet-To-Lymphocyte Ratio In Acute Hospitalized Patients With Schizophrenia, Apichan Dangrungroj, Mayteewat Chiddaycha

Chulalongkorn Medical Journal

Background: Schizophrenia has been increasingly linked to inflammation. The neutrophil-to-lymphocyte ratio (NLR), monocyte-to-lymphocyte ratio (MLR), and platelet-to-lymphocyte ratio (PLR) have emerged as potential indicators of systemic inflammation.

Objectives: The objectives are to compare NLR, MLR, and PLR between patients with schizophrenia and healthy controls, and to investigate the factors associated with NLR. Methods: This retrospective study included 102 sex- and age-matched patients hospitalized with schizophrenia and control subjects. NLR, MLR, and PLR were calculated from the Complete Blood Count (CBC) results and compared between groups. Sociodemographic data and clinical characteristics were analyzed using multiple linear regression to identify …

The Works Of Plato, Plato

Hannah Arendt Marginalia - All

New York: Tudor Publishing Co.,1937

Call #: B358 .J8 1937

PDF Information: 17 pages – 12.7mb

Politique Et Philosophie Chez Thomas Hobbes, Raymond Polin

Hannah Arendt Marginalia - All

Paris, Presses universitaires de France, 1953

Call #: B1247 .P76

Contains marginalia, underlining and marginal lining.

PDF Information: 101 pages – 74.6mb

The New Science: 3 Complete Works, Max Planck

Hannah Arendt Marginalia - All

[New York] : Meridian Books, 1959

Call#: QC6 .P623

Contains marginalia, underlining and marginal lining. Also contained ephemera: a 1957-1958 Princeton- Penn Station train schedule covered with local business advertisements.

PDF Information: 77 pages – 5.1 MB

Plato’S Symposium, Plato

Hannah Arendt Marginalia - All

New York : Liberal Arts Press, 1956

Call #: B385 .J68 1956

Contains marginalia, underlining and marginal lining

PDF Information: 22 pages – 10 MB

The Age Of The Democratic Revolution: A Political History Of Europe And America, 1760-1800, R. R. Palmer

Hannah Arendt Marginalia - All

Princeton, N.J. : Princeton University Press, 1959-64

Call #: D295 .P3 v.1

Arendt library has v.1 only

Arendt v.1 contains marginalia, underlining, marginal lining & endpaper notes on back cover

PDF Information: 89 pages – 8.3MB

On Love... Aspects Of A Single Theme, José Ortega Y Gasset

Hannah Arendt Marginalia - All

London, Cape, 1967

Call#: PQ6627.R8 E77 1967

Contains very light marginalia, underlining and marginal lining

PDF Information: 21 pages – 1.1 MB

Relational Design In Healthcare Innovation: Exploring A Multi-Site Context, Kathrina Dankl, Laura Aguado-González, Victoria Artigas, Canan Akoglu, Kasper Frank, Marie Kremer, Erika Renedo-Illarregi, Carlos Romero, Yeray Sañudo, Jorge Sierra-Pérez

Nordes Conference Series

Healthcare is a critical component of the infrastructure of a welfare state, with public services at its core. However, its challenges are more complex and intractable than those addressed by service design frameworks. The relational design approach, aligned with participatory design principles, could provide insights for service design that promotes a focus on relationships, networks and situated knowledge generation. This study explores situating tactics in the research process of a large EU project focusing on shared decision making in cancer care. By analysing how topic, timescale and methods are situated across two research sites, we discuss how relational sensitivity has …

Nrm-Critical Design As A Path Forward In The Relational Turn: Examples From A Norm-Critical Exploration Of The Hbsc Survey, Anna Isaksson, Karin Ehrnberger, Malin Björklund, Emma Börjesson

Nordes Conference Series

This article explores how norm-critical design can contribute to the relational turn in design, drawing on a previous study of the Health Behaviour in School-aged Children survey. While relational design emphasizes contextualization, interdependencies, and evolving relationships, norm-critical design provides tools to identify, visualize, and challenge embedded norms within these relationships. By transforming survey questions into design concepts, this study demonstrates how norm-critical design materializes implicit assumptions, making them visible for critique and reflection. The findings illustrate that surveys are not neutral data collection tools but performative instruments shaping relationships, self-perceptions, and societal norms. The article argues that norm-critical design expands …

Design For Longevity: A Relational And Systemic Perspective, Sheng-Hung Lee

Nordes Conference Series

As Relational Design (RD) grows in popularity, Casual Loop Diagrams (CLD) can complement RD in systemic analysis by visualizing relationships between variables. This study integrates CLD with RD within the context of longevity planning, which considers dimensions of financial, social and physical wellness. While RD maps static relationships, CLDs model dynamic interactions and feedback loops, enhancing innovation through a holistic and adaptive approach. By bridging relational and systemic perspectives, this preliminary study advances discourse in service design, system thinking, and research methodologies, demonstrating how RD and CLD contribute to a more comprehensive understanding of longevity planning. Findings emphasize the importance …

Equine Equipment And Relational Design In Horse-Human Intra-Action, Synne Skjulstad

Nordes Conference Series

This exploratory paper examines equine tack and equipment as relational interfaces between horses, humans and their wider surroundings. It unpacks the notion of relational design within a posthuman view on design, and the long-term relationships and wordless dialogues with an Arabian horse. It frames equestrian tack as relational interfaces for horse-human intra-action. These interfaces are documented in use through ongoing photographic exploration and documentation of horses in a leisure riding context in a Norway. The hours spent in the saddle and in companionship with these horses form a situated knowledge basis from which the relationship between horse, human, tack, and …

Balancing Children’S Play With Plastic–Materialistic Character Toys, Minjin Kim, Young-Ae Hahn

Nordes Conference Series

This study investigates the impact of the South Korean TV show Catch! Teenieping: Fairies of Emotion and its associated merchandise on children's play and values. A survey of 100 mothers and an analysis of existing literature reveal the excessive time and expenses that children, particularly young girls, spend on Teenieping play, in spite of the play being primarily imitative and potentially limiting developmental benefits. Such commercial success led to an imbalance in children’s play. Additionally, Teenieping merchandise functions as a status symbol, contributing to materialistic attitudes among children. To address these issues, this study proposes a framework of Place, Material, …

Expanding Environmental Discourse Through Practice-Led Research: From An Experimental Pavilion To Mainstream Architecture, Maiju Suomi, Sofie Pelsmakers

Nordes Conference Series

This practice-led research paper explores how the making of a temporary architectural intervention with a transformative sustainability aim can expand environmental discourse in mainstream architecture. The paper explores the case of Alusta, a pavilion to enhance urban biodiversity and encourage multi-species encounters and environmental discussion in the context of Finland. Through the case, architecture emerges as a practical environmental act and a cultural representation of lower impact living. Findings show how an experimental pavilion can bypass some constraints of large-scale architecture and become an agile tool in discussing topical sustainability issues. Small-scale projects enable testing and showcasing experimental solutions, lessons …

Everywhere, All At Once: Speculative Layering Of Multiple Temporalities With Augmented Reality, Alessandro Ianniello, Roy Bendor

Nordes Conference Series

This paper considers the design of Augmented Reality experiences that allow the interrogation of multiple temporalities, in order to foster engagement with More-than-Human worlds. While Augmented Reality has traditionally been used to layer different spatial contexts onto the physical environment, we explore its potential to visualize alternative temporalities, offering users unique ontological perspectives on time and its role in shaping interconnected human and non-human futures. Drawing from futures studies, experiential futures, and speculative design, we examine how Augmented Reality’s capacity to represent temporal layers can deepen understanding of More-than-Human interdependencies. We report on a pilot experiment where participants engaged with …

Exploring The Entanglement Of Relational Design, Spatiality And Places, Thomas Binder, Jörn Christiansson, Gabriela Quintana Vigiola

Nordes Conference Series

Over the last two decades, we have witnessed a relational turn in design research, embracing the entanglements of human and non-human elements in socio-material arrangements. Despite the foregrounding of relations in these entanglements, little attention has been given to what role spatiality and places may have in relational design. This workshop explores the entanglement of relational design, spatiality and places based on design case studies from participants. Using a design charette methodology, participants will collaboratively (1) map how relational entanglements shape and are shaped by design research and practice; (2) identify and unpack cross-disciplinary tensions and opportunities; and (3) co-create …

Exploring Affective Dimensions Of The Ecological Crisis In Design: A Reflective Manifesto Writing Workshop, Femke Coops, Anna Schröder, Daphne Hamilton-Jones

Nordes Conference Series

This workshop aims to bring together members from the NORDES community interested in work relating to environmental urgency, regenerative practices and the affective dimensions of design. Participants will collectively reflect on the affective dimensions of their design practice when engaging with ecological/sustainability transitions and explore the values in which they root their designerly practice. Through engaging with the relationality between the breadth of angles from which participants might understand the troubling experiences they encounter in this context, this workshop aims to bring participants to draw from their experiences and the epistemologies they work with to craft a Manifesto regarding the …

The Conspiracy Capitaliser: A Tool For Exploring The Intersection Of Ai, Politics And Profit, Robert Collins

Nordes Conference Series

The Conspiracy Capitaliser is a physical interface for Generative AI which allows the user to produce a bespoke conspiracy through the operation of knobs, switches and buttons. The original intent of the artefact was as a personal exploration of how conspiracy theories were being monetised against a backdrop of social media disinformation and how these observations could be communicated to the general public. While the artefact began as a non-functioning sculptural work, the advent of accessible AI models like ChatGPT allowed it to become fully functional and transformed it into a useful tool for design ethics, public awareness and a …

Toying With Relations: Speculative Toys For Children And Sustainability, Karey Helms, Petra Jääskeläinen, Sharon Lindberg, Elin Sporrong, Arjun Menon, Meike Schalk, Airi Lampinen

Nordes Conference Series

Toys as situated within the relational ontologies of children includes how more-than-human relations are imagined and valued through play. Motivated by a concern for a damaged environment, we critique a selection of existing toys intended for outdoor play and fabulate other versions based upon alternative relations. From the detailing of six redesigns through text and collage, we foreground generative pathways for how children, and adults, might relate differently to nature. These pathways are presented as questions prompted by the toys. This exploratory research contributes to the imagining of multispecies worlds and the agency of children in toying with more-than-human relations.

The Relational Designer, Michaela Honauer

Nordes Conference Series

Despite the growing recognition of relational design, limited attention has been given to the designer as a relational individual. Why is a designer relational (i.e. relationship-oriented)? How can they reflect and make their individual relationality transparent? This exploratory paper sheds light on these questions and stimulates reflection of designers as relational entities. A designer can take on many roles –practitioner, researcher, manager, collaborator, provider, politician, etc.– but always remains an individual with personal feelings and connections. Like every other individual, a designer experiences their being and doing uniquely. This constructivist understanding of the designer likewise suggests that every designer approaches …

Shaping Space And Forming Dimensionality Through Origami Practice, Laureen Mahler

Nordes Conference Series

Space surrounds and enfolds the breadth of our doings. It is vital in relational perspectives on designing because relations exist both in and because of space. This is especially apparent in practice-led design research, in which world-building is predicated on repeated flows that form becomings. Through diverse documentation of the author's origami research, this exploratory paper investigates how engagement with space in the making process provides a rich medium for new perspectives on relationality. Specifically, when space is perceived as alive and dynamic — physically made alongside the artifact — its activation reveals new potentialities for identifying relations and interdependencies. …

Relational Design For Remote Intergenerational Sensorial Play Experiences, Kristi Kuusk, Azeem Hamid, Zaur Babayev, Paula Veske-Lepp, Nesli Hazal Oktay

Nordes Conference Series

This paper explores intergenerational mental well-being through sensorial play between children and remote grandparents. With increasing physical separation due to transnational family networks, maintaining these relationships is vital for mental health. While digital communication tools help, excessive screen use negatively impacts children's well-being. Through three case studies, we exemplify relational design sensitivities by engaging participants in co-creation, adaptive improvisation, and networked interactions through our design process. We investigate how relational design approaches combined with sensorial design could enhance connection beyond screens, emphasizing the role of embodied, multisensory engagement in intergenerational bonds.

Exploring Data Physicalization For Environmental Engagement: A Case Study On The Disposal Of Contact Lens Blisters, Chengtian Li, Daichi Tezuka, Xinru Zhu, Salani Giorgio, Kayoko Nohara

Nordes Conference Series

In response to increasing calls for more responsible and creative design approaches, this research explores how data physicalization can shed light on the often-overlooked ecological impacts of everyday consumption. Focusing on the disposal of contact lens blisters, a seemingly trivial yet significant waste stream, we developed two tangible interfaces that encourage playful and reflective interactions. Through participant observation and discussion, we found that making disposal habits both visible and interactive enhanced participants' awareness of, and engagement with, routine actions typically deemed insignificant. By emphasizing embodied engagement, playfulness, and metaphorical representations, this exploratory paper contributes to design practices seeking to nurture …

Is It About Time? On The Meanings Of Temporal Representations In Object Art, Patricia Ciobanu, Ylva Fernaeus

Nordes Conference Series

Perspectives on time within interaction design research have extended beyond material embodiments, such as standard clocks, to exploring alternative designs and situating these in cultural practices and relations. We investigate examples of how time has been expressed in a series of object-based artworks that represent time otherwise, highlighting how they use a variety of material forms to engage with social, political, and contextually performative issues. Through a critical analysis, we illustrate how such works engage with topics of social negotiation, hidden labour, gender, power, and technology-supported disruptive living. We end with a reflection on how these expressions of meaning-making cultivate …

Intentional Action At The Margins: Unpacking Agency In Public Service Ecosystem Design, Nicole Hußmann, Annukka Svanda, Martina Čaić

Nordes Conference Series

This paper examines how public service ecosystems shape the agency of marginalized residents, focusing on immigrant job seekers. While ecosystem perspectives in service design have highlighted marginalization and actor interconnectedness, the role and intricacies of agency remain underexplored. To address this gap, we draw on a service design project in the City of Espoo aimed at improving an employment service for immigrants. Our findings reveal that immigrant job seekers’ agency is affected by (i) limited psychological, financial, and temporal resources, (ii) distorted information flows, (iii) the dependence on community support, (iv) biased attitudes of service staff and managers, and (v) …