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Hospice Care In Malaysia: Knowledge, Attitude And Time Of Discussion, Shanthi Ellen Solomon

Loma Linda University Electronic Theses, Dissertations & Projects

Despite available and adequate hospice care resources, fewer terminally ill patients in Malaysia use hospice care services than one might reasonably expect. It is reported that only around 10% of patients who die of terminal illness in Malaysia, die in hospice care (Devaraj, 2003). The projected number of individuals that should receive palliative care in Malaysia is 17 to 27% (Connor & Sepulveda Bermedo, 2014). In order to study why hospice care is not accessed as expected, nurses and doctors in Penang and Sabah completed a survey measuring knowledge of current hospice practices, attitude toward caring for the dying, personal …

Perceptions Of Guitar Use And Training In Music Therapy: A Survey Of Clinicians, Joshua Robert Keller

Masters Theses

The purpose of this study was to examine music therapists' perceptions of guitar use and training in clinical practice. Three major research questions dealt with guitar use, guitar training, and clinicians' confidence using the guitar in clinical practice. A quasi-random sample of 1000 board-certified music therapists were invited to complete an online questionnaire with 27 questions in the areas of guitar use, guitar training and experience, and the importance of 28 specific skills. One hundred fifty music therapists (n = 150) responded.

Major findings include: (1) clinicians appear to use the guitar frequently and, on average, see guitar skills as …

Analyzing Pain Medication Use And Adherence In Patients With Myotonic Dystrophy And Facioscapulohumeral Dystrophy, Bryan Fitzgerald, Amy L. Parkhill

Pharmacy Faculty/Staff Publications

Objectives: Myotonic dystrophy (DM) and facioscapulohumeral dystrophy (FSHD) are two of the most common muscular dystrophies in adults. It has been reported that patients with these two disorders may suffer from pain and inadequate pain management. The purpose of this study is to analyze the current use of pain medications and develop a survey to assess pain medication use and adherence in this patient population.

Methods: Patients registered in the National Registry for DM and FSHD at the University of Rochester were surveyed on pain medication use and the most significant problem of their disease. After analysis of these surveys, …

Impact Of Hospice Nurse Education On After-Hours Calls And Visits, Cheryl Slack

Evidence-Based Practice Project Reports

Medicare-certified hospice home care agencies must provide a 24/7 on call system for after business hours patient concerns. An agency identified a problem with a high volume of after-hours hospice calls for symptom management. How these calls are handled impact patient and family outcomes and satisfaction. A literature review provided evidence that hospice nurse education and appropriate telephone support improves symptom management, enhances family support, provides a sense of security, reduces anxiety, and promotes comfort. Providing hospice nurse education on symptom management supported the goal of this evidence based practice (EBP) project to reduce the family/caregiver need for frequent on-call …

Hospice, Palliative Care And Aid-In-Dying: The Current Status Of End Of Life Policies In The U.S. And Their Impact On Population Health, Alina M. Perez, Akiva Turner, Kathy Cerminara

GWEP Conference

No abstract provided.

From The Warehouse To The Deathbed: Challenging The Conditions Of Mass Death In Prison, Ernest K. Chavez

Themis: Research Journal of Justice Studies and Forensic Science

The purpose of this project is to analyze the crisis of mass incarceration by placing the conditions faced by elderly, terminally ill, and dying prisoners, as its main point of focus. Much of this crisis was built through post-1970s American penal policies which set in place tough sentencing laws, increased prosecutorial power, and ultimately, led to a significant growth in the prisoner population. Today, elderly and terminally ill prisoners make up the fastest growing population inside of prisons. Few of these prisoners are approved for early release, and instead die while incarcerated. This has resulted in a condition of mass …

Choices Related To Maximizing Quality Of Life At End Of Life, Theresa Lynn

Dissertations

Humans, including those residing in the United States, can live in denial of their own mortality. Because of this, futile care is sometimes provided, often at great monetary expense and for little or no return in terms of quality or length of life. At least two opportunities exist for making choices regarding care at the end of life in the U.S.: completing advance directives and choosing hospice care. This dissertation consists of three studies related to this topic. The first is a quantitative study about advance directives and attitude toward death. The advance directive completion rate among adults in the …

Patient Care News: January 2015, St. Cloud Hospital

Patient Care News

Are We Keeping Staff Safety in Mind When We Move Our Patients?

Nasal Cannula (NC) Systems

Definition of Cultural Competence

Implications of Cultural Competence for Nurses

New Public Prayer Space Now Open at St. Cloud Hospital

Updates to the Animal/Pet Visitation Policy

The Effect Of Art Therapy On Hospice And Palliative Caregivers, Carol E. Gress

Nursing Theses and Capstone Projects

A quazi-experimental, one-group, pretest/posttest study was conducted with a group of 25 hospice workers employed by a medium sized county hospice organization in the southeastern United States that was experiencing rapid personnel turn-over. Participants in the study included a doctor, a physician’s assistant, a nurse practitioner, a massage therapist, a grief counselor, a licensed practical nurse, a certified nursing assistant, two clergy, three administrative staff, three social workers, seven volunteers, eight registered nurses and one other. The purpose was to investigate whether attending four 1-hour art therapy sessions could help reduce stress and thereby Burnout. Stamm’s (2010) Professional Quality of …

Integrating Palliative Care Into The Care Of Neurocritically Ill Patients: A Report From The Improving Palliative Care In The Icu Project Advisory Board And The Center To Advance Palliative Care, J. A. Frontera, J. R. Curtis, J. E. Nelson, M. Campbell, M. Gabriel, A. C. Mosenthal, D. R. Lustbader, K. J. Brasel, S. P. Weiss, D. E. Weissman, +5 Additional Authors

Journal Articles

OBJECTIVES: To describe unique features of neurocritical illness that are relevant to provision of high-quality palliative care; to discuss key prognostic aids and their limitations for neurocritical illnesses; to review challenges and strategies for establishing realistic goals of care for patients in the neuro-ICU; and to describe elements of best practice concerning symptom management, limitation of life support, and organ donation for the neurocritically ill. DATA SOURCES: A search of PubMed and MEDLINE was conducted from inception through January 2015 for all English-language articles using the term "palliative care," "supportive care," "end-of-life care," "withdrawal of life-sustaining therapy," "limitation of life …

Intricate Conversations: Caring For Clients With Severe Mental Illness, John D. Chovan

Nursing Faculty Scholarship

This presentation describes the characteristics of persons living with severe mental illness who intersect with hospice, and palliative care, and their communication challenges.

Comparison Of Home Medication Adherence In Adults Age 65 And Older After Completion Of Standardized Discharge Medication Education Or Non-Standardized Discharge Medication Education, Jill Weller

Regis University Student Publications (comprehensive collection)

Executive Summary

Comparison of Home Medication Adherence in Adults Age 65 and Older After Completion of Standardized Discharge Medication Education or Non-Standardized Discharge Medication Education
Problem
The older patient (age 65 and older) is at higher risk of medication induced illness because of numerous co-morbid conditions treated with multiple medications, a standardized approach to medication education at hospital discharge can reduce adverse medication events for this at risk population (Esposito, 1995; Jack et al., 2009). The primary driving force for this project is the limited number of research studies published to date that include this specific age bracket and setting. …

An Appreciative Inquiry Of An Exemplary Hospice Interdisciplinary Group Caring For Individuals With Alzheimer’S Disease, Patricia Ozzie Dixon

Department of Family Therapy Dissertations and Applied Clinical Projects

Alzheimer’s disease is a debilitating illness that is the 6th leading cause of death among the elderly. The treatment of Alzheimer’s requires multiple interventions due to the complexity of the disease. The interdisciplinary group (IDG) model of care is considered a best practice for patients’ medical management (Molyneux, 2001). The IDG focuses on a holistic approach, which includes both patients and their caregivers. The IDG in hospice consists of professionals from different clinical disciplines whose collaborative knowledge and skills assist in caring for patients and their families.

This study focused on what works well in an exemplary IDG, using appreciative …

Development, Implementation, And Evaluation Of An End Of Life Care Online Module For Pre-Clinical Students, Chung Sang Tse

Yale Medicine Thesis Digital Library

Basic palliative and end-of-life care skills are necessary for all physicians regardless of their field of specialty. Education should begin during the early stages of medical training, as early as medical school, to ensure that all physicians acquire a basic understanding of these aspects of medical care. At the Yale School of Medicine, the End-of-Life and Palliative Care Curriculum was formalized in 2008 to address this need and was expanded in 2012 to include an original educational online module. This new module was designed specifically for second-year medical students, who had the opportunity to visit hospice patients but do not …

Interdisciplinary Collaboration With Music Therapy During Routine Pediatric Dental Procedures, Austin S. Robinson

Theses and Dissertations--Music

The incorporation of integrative medicine into traditional treatment options has steadily increased during the past two decades. This has resulted in a change in the dynamics of interdisciplinary teams creating the need to better understand the roles and responsibilities of team members. The purpose of this study was to examine the perceptions of dental treatment team members regarding the role and responsibilities of music therapy during treatment.

A total of 10 participants were included in this study. Participants completed a pre-music therapy survey to establish prior knowledge, experience with, and perceptions of music therapy. Following an experiential intervention, participants completed …

Nursing Care At The End Of Life: What Every Clinician Should Know, Susan E. Lowey

Milne Open Textbooks

Nursing Care at the End of Life: What Every Clinician Should Know should be an essential component of basic educational preparation for the professional registered nurse student. Recent studies show that only one in four nurses feel confident in caring for dying patients and their families and less than 2% of overall content in nursing textbooks is related to end-of-life care, despite the tremendous growth in palliative and end-of-life care programs across the country. The purpose of this textbook is to provide an indepth look at death and dying in this country, including the vital role of the nurse in …

Relieving Human Suffering: Compassion In Social Policy, Mary E. Collins, Sarah Garlington, Kate Cooney

The Journal of Sociology & Social Welfare

Human suffering is always present in society. There is general consensus that action should be taken to address suffering, but there are differing views as to the appropriate means of doing so. In this paper we utilize a classical understanding of the virtue of compassion to answer the research question: How does contemporary U.S. policy address human suffering through compassionate response? To answer this question, we conduct a critical analysis of three policy domains (hospice care, domestic violence, and disaster relief) to determine variation in response to human suffering. Comparisons among the domains suggest the various ways in which compassion …

The Impact Of The Carer Support Needs Assessment Tool (Csnat) In Community Palliative Care Using A Stepped Wedge Cluster Trial, Samar Aoun, Gunn Grande, Denise Howting, Kathleen Deas, Chris Toye, Lakkhina Troeung, Kelli Stajduhar, Gail Ewing

Medical Papers and Journal Articles

Family caregiving towards the end-of-life entails considerable emotional, social, financial and physical costs for caregivers. Evidence suggests that good support can improve caregiver psychological outcomes. The primary aim of this study was to investigate the impact of using the carer support needs assessment tool (CSNAT), as an intervention to identify and address support needs in end of life home care, on family caregiver outcomes. A stepped wedge design was used to trial the CSNAT intervention in three bases of Silver Chain Hospice Care in Western Australia, 2012-14. The intervention consisted of at least two visits from nurses (2-3 weeks apart) …

Behavioral Adjustment In Children With Life Threatening Illness A Qualitative Study, E. Joseph Becher Jr.

Antioch University Dissertations & Theses

This study investigated factors that affect adjustment in children with life-threatening illness from the viewpoint of the parents/caregivers. The data were collected from parents/caregivers whose children have a life threatening diagnosis. Parents/caregivers were interviewed and asked to complete the Parent Request Questionnaire (PRQ) which was given to them after the in-person interview. This newly developed PRQ was utilized into prior research to predict the levels of adjustment in children. It includes age, whether the child has been informed of the diagnosis, whether the child engages in age-appropriate activities, the child's prior experience with death, the child's family's involvement in treatment, …

A Narrative Inquiry: Case Leaders' Perspectives On Resilience In Hospice Care, Gail Renee Ahern

Antioch University Dissertations & Theses

This study is a qualitative inquiry examining the perspective of team leaders within hospice organizations on resilience. The goal of this study was to examine how hospice leaders build resilience for themselves and within the interdisciplinary teams they lead. A framework of three key theories of leadership—servant, spiritual and authentic—was used to help in understanding the similarities and differences of the interviewed leaders and their key themes and practices. The eight leaders interviewed were from a range of hospices in diverse settings and all were directly responsible for leading interdisciplinary teams. In-depth phenomenological interviewing was undertaken until the study reached …

The Compassion Fatigue And Resilience Connection: A Survey Of Resilience, Compassion Fatigue, Burnout, And Compassion Satisfaction Among Trauma Responders, Harvey J. Burnett Jr, Kathleen Wahl

Faculty Publications

Research has shown that compassion fatigue is associated with burnout and compassion satisfaction. Practically no studies have examined how resilience may impact these variables. This study examined how resilience is related to compassion fatigue, burnout, and compassion satisfaction among a convenience sample of disaster behavioral health and emergency preparedness responders (N =139) attending a training conference in Michigan. Measures included the 30-item Professional Quality of Life Scale, the 14-item Resilience Scale, and a demographic questionnaire. Seventy-two percent of the participants were at risk for compassion fatigue, while 19% were at risk for burnout. Only 22% of participants had scores indicative …

Volunteer Yearbook 2014, Centracare Health

Volunteer Yearbook

• Volunteer governing board structure/recipients of awards pg. 1-5
• Areas of Service pg. 5-11
• Volunteer Program Summary pg. 12
• Highlights pg. 13
• Summary of Operations St. Cloud Hospital Volunteer Auxiliary pg. 14
• Projects Funded pg. 15
• Ways to Give pg. 16
• Featured Projects pg.17-19
• Volunteer Snapshots pg. 20-21
• Milestones of Service pg. 22-24
• Volunteer Supervisors pg. 25

Patient Care News: December 2014, St. Cloud Hospital

Patient Care News

Snowstorm/Weather Related Absence Guidelines

Christmas and New Year's Holiday Sign-up Sheets for Cut/Call

Onsite Somali Interpreter

Into The Abyss: A Review Of The Literature Related To The Spiritual Care Of Family Caregivers In Community Hospice And Palliative Care, Donna Mann

Consensus

No abstract provided.

Trait Negative Affectivity: A Predictor Of Burnout And Secondary Traumatic Stress In Nurses In Wa, Desley G. Hegney, Karen Francis, Samar Aoun, David Hemsworth, Vicki Drury, Mark Craigie

International Nursing Research Congress (INRC)

Session presented on Thursday, July 24, 2014:

Purpose: The aim was to ascertain the relationship between the constructs of trait negative affectivity (TNA), depression, state anxiety, stress, compassion fatigue and compassion satisfaction.

Methods: In 2013 an on-line self-report study was conducted. The survey contained demographic information and the Professional Quality of Life Scale (ProQOL), the DASS21 and the Spielberger Trait Anxiety Scale. The study included all nurses employed part or full time in an acute tertiary hospital in Perth.

Results: 299 of 1292 nurses provided useable data. Approximately 12% of nurses had stress levels in the moderate, severe to extreme …

Value-Based Healthcare Through Care Coordination And Clinical Integration, Angelo Sinopoli, Jennifer Snow

Prisma Health

No abstract provided.

Extended-Release Hydrocodone: The Devil In Disguise Or Just Misunderstood?, Anne Schweighardt, Katherine Juba

Pharmacy Faculty/Staff Publications

Opioid abuse in the United States increased significantly over the past decade, leading to opioid-related deaths. Approval of Zohydro ER, a product that lacks an abuse-deterrent formulation, has provoked media controversy and aggressive legislative action from multiple stakeholders. Only the American Academy of Pain Management has released a position statement on this medication, and individual opinion varies. Additional single-entity extended-release hydrocodone formulations are in the pipeline, and Zohydro ER's limited clinical utility may make the controversy associated with its approval a moot point. As with other opioids, providers will need to assess individual patient risk versus benefit when prescribing Zohydro …

“Finishing Business” The Important Role Of The Psychosocial Worker In The Interdisciplinary Palliative Care Team: A Hypothetical Case, Merridy Rowe, Catherine Turnbull

Internet Journal of Allied Health Sciences and Practice

The assessment of the palliative client and family caregivers by an interdisciplinary team comprising medical, nursing, and allied health allows for all aspects including the physical, social, and psychological and spiritual needs to be incorporated into care planning. This comprehensive level of planning for the care of the client and family caregivers can allow for a client to fulfil their own definition of a good death, or dying well. Whilst the provision of psychosocial support can be the seen as the role of the social worker in the team, all members of the palliative care team, especially in rural and …

Palliative Care And Hospice Community Education, Mary Castang

Regis University Student Publications (comprehensive collection)

Executive Summary Palliative Care and Hospice Community Education Problem In the researcher's home hospice practice, a need for community education regarding Palliative Care and Hospice is recognized. Patients and family members need information about End of Life (EOL) care options prior to the urgency of a crisis. According to Szirony, Oopko, Masiulaniec and Binder (2011) many patients and family members learn of hospice and palliative care services only after admission into a program. The decision to sign in to a program reflects their perception of there being no other choice rather than understanding the options and benefits (Szirony, et al, …