Digital Commons Network^™

The Impact Of Clinical Genome Sequencing In A Global Population With Suspected Rare Genetic Disease, Erin Thorpe, Taylor Williams, Chad Shaw, Evgenii Chekalin, Julia Ortega, Keisha Robinson, Jason Button, Marilyn C Jones, Miguel Del Campo, Donald Basel, Julie Mccarrier, Laura Davis Keppen, Erin Royer, Romina Foster-Bonds, Milagros M Duenas-Roque, Nora Urraca, Kerri Bosfield, Chester W Brown, Holly Lydigsen, Henry J Mroczkowski, Jewell Ward, Fabio Sirchia, Elisa Giorgio, Keith Vaux, Hildegard Peña Salguero, Aimé Lumaka, Gerrye Mubungu, Prince Makay, Mamy Ngole, Prosper Tshilobo Lukusa, Adeline Vanderver, Kayla Muirhead, Omar Sherbini, Melissa D Lah, Katelynn Anderson, Jeny Bazalar-Montoya, Richard S Rodriguez, Mario Cornejo-Olivas, Karina Milla-Neyra, Marwan Shinawi, Pilar Magoulas, Duncan Henry, Kate Gibson, Samuel Wiafe, Parul Jayakar, Daria Salyakina, Diane Masser-Frye, Arturo Serize, Jorge E Perez, Alan Taylor, Shruti Shenbagam, Ahmad Abou Tayoun, Alka Malhotra, Maren Bennett, Vani Rajan, James Avecilla, Andrew Warren, Max Arseneault, Tasha Kalista, Ali Crawford, Subramanian S Ajay, Denise L Perry, John Belmont, Ryan J Taft

Center for Medical Ethics and Health Policy Staff Publications

There is mounting evidence of the value of clinical genome sequencing (cGS) in individuals with suspected rare genetic disease (RGD), but cGS performance and impact on clinical care in a diverse population drawn from both high-income countries (HICs) and low- and middle-income countries (LMICs) has not been investigated. The iHope program, a philanthropic cGS initiative, established a network of 24 clinical sites in eight countries through which it provided cGS to individuals with signs or symptoms of an RGD and constrained access to molecular testing. A total of 1,004 individuals (median age, 6.5 years; 53.5% male) with diverse ancestral backgrounds …

Reflections On The Past, Present, And Potential Futures Of Knowledge Hierarchies In Ocean Biodiversity Governance Research, Holly J. Niner, David Wilson, Kelly Hoareau, Mia Strand, Jennifer Whittingham, Dylan Mcgarry, Bolanle Erinosho, Sulley Ibrahim, Sirkka Tshiningayamwe, Senia Febrica, Alana Malinde S. N. Lancaster, Milica Prokic

School of Biological and Marine Sciences

Governance of the ocean and its biodiversity is deeply entangled within social, political and cultural histories. The evolution of marine science has been subject to similar influences, and we (the authors) consider these factors to create, embed and reinforce knowledge hierarchies in ocean governance processes and associated research that set societal patterns of prioritisation and exclusion. Such knowledge hierarchies have constructed dominant Western-oriented knowledge systems as ‘rational’ and ‘objective’ approaches to environmental governance in contrast to non-Western knowledge systems and have led to a dominance of natural (normal) sciences over centralised biodiversity governance. The extraction and incorporation of traditional knowledge …

Changes In Values And Perception Of Life: Natural Disaster Devastates A Mountain Community, Sharifullah Baig, Abida Begum

The Journal of Values-Based Leadership

The mountain communities of Karakorum and the Himalayas in Pakistan are frequently experiencing climate change-induced natural disasters, which are inflicting irreparable losses to their generation's old value system and socio-economic life. Focusing on the value system, this small-scale study explored the change in values and perceptions of a disaster-affected mountain community about natural hazards and its implications for their future lives. Twenty participants from the affected community, including local political activists, religious leaders, teachers, and youth activists, were thoroughly interviewed. The study explored significant deviations from their traditional values of connectedness to each other and with their ancestors' land. The …

Vol. 15 No. 4, Glen Goodknight

Mythprint

Mythprint is the monthly bulletin of the Mythopoeic Society, a nonprofit educational organization devoted to the study, discussion, and enjoyment of myth and fantasy literature, especially the works of J.R.R. Tolkien, C.S. Lewis, and Charles Williams. To promote these interests, the Society publishes three magazines, maintains a World Wide Web site, and sponsors the annual Mythopoeic Conference and awards for fiction and scholarship, as well as local and written discussion groups.

Vol. 14 No. 5, Glen Goodknight

Mythprint

Mythprint is the monthly bulletin of the Mythopoeic Society, a nonprofit educational organization devoted to the study, discussion, and enjoyment of myth and fantasy literature, especially the works of J.R.R. Tolkien, C.S. Lewis, and Charles Williams. To promote these interests, the Society publishes three magazines, maintains a World Wide Web site, and sponsors the annual Mythopoeic Conference and awards for fiction and scholarship, as well as local and written discussion groups.

Spatial And Temporal Analysis Of Pm 2.5 Concentrations In Chicago Along The Lakefront Trail Using Wearable Air Quality Sensors, Jacob A. Johnson

DePaul Discoveries

Mass urbanization and transportation practices have resulted in high amounts of air pollution. Air pollution can have detrimental effects on human health causing respiratory issues as well as other health complications. Certain areas of cities experience more exposure to air pollution which can also cause them to have more health issues and lower life expectancy. These areas are often associated with disinvestment and minoritized communities of color. This research explores patterns of air quality related to environmental justice areas using low-cost wearable air quality monitoring sensors attached to a bicycle. Data was collected along the Lakefront Trail stretching from Irving …

Vol. 7 No. 2, Glen Goodknight

Mythprint

Mythprint is the monthly bulletin of the Mythopoeic Society, a nonprofit educational organization devoted to the study, discussion, and enjoyment of myth and fantasy literature, especially the works of J.R.R. Tolkien, C.S. Lewis, and Charles Williams. To promote these interests, the Society publishes three magazines, maintains a World Wide Web site, and sponsors the annual Mythopoeic Conference and awards for fiction and scholarship, as well as local and written discussion groups.

Vol. 6 No. 6, Glen Goodknight

Mythprint

Mythprint is the monthly bulletin of the Mythopoeic Society, a nonprofit educational organization devoted to the study, discussion, and enjoyment of myth and fantasy literature, especially the works of J.R.R. Tolkien, C.S. Lewis, and Charles Williams. To promote these interests, the Society publishes three magazines, maintains a World Wide Web site, and sponsors the annual Mythopoeic Conference and awards for fiction and scholarship, as well as local and written discussion groups.

Vol. 6 No. 3, Glen Goodknight

Mythprint

Mythprint is the monthly bulletin of the Mythopoeic Society, a nonprofit educational organization devoted to the study, discussion, and enjoyment of myth and fantasy literature, especially the works of J.R.R. Tolkien, C.S. Lewis, and Charles Williams. To promote these interests, the Society publishes three magazines, maintains a World Wide Web site, and sponsors the annual Mythopoeic Conference and awards for fiction and scholarship, as well as local and written discussion groups.

Topics In Wappo Phonology, Aaron W. Marks

Linguistics ETDs

This work examines various topics in the phonology and phonetics of the Wappo language (ʔonaʔcáṭis), an Indigenous American language spoken in Northern California. Utilizing both published written sources and the large audio corpus of spoken Wappo compiled by linguist Jesse Sawyer and housed at the California Language Archive at UC Berkeley, this work addresses several fundamental questions in Wappo phonology, including phoneme inventory structure, phonotactics, phoneme frequency, phonetics and allophony, word-level prosody, morphophonemics, and a detailed discussion of the context of Wappo phonology within the California Linguistic Area, including the question of a localized linguistic sub-area around the …

Limited Thermal Plasticity In High Mountain Tropical Water Bear, Juan Manuel Carvajalino-Fernández, Valentina Diaz-Galvis, Alan Dante Torres-Jaramillo

Turkish Journal of Zoology

Tardigrades, a phylum of microscopic organisms well known for their resistance to extreme conditions thanks to adaptations such as cryptobiosis, in which they are able to suspend their metabolism until more favorable conditions arise. These organisms are found in a wide range of environments, and high Andean mountains are not the exception, even though weather conditions are highly variable during the day, let alone a month. An experiment was thus conducted at 2600m in Bogotá, Colombia to evaluate the resistance of Macrobiotus sp. found on trees, three sets of fifteen tardigrades were exposed to 20 °C, 30 °C and 40 …

Spatial Pattern Of Tropical Cyclone In South Indonesia During 1990-2023, Agus Salim Nur, Adi Wibowo, Supriatna Supriatna Department Of Geography, Faculty Of Mathematics And Natural Sciences, Universitas Indonesia, Stefanus Binoto Tampubolon

Jurnal Geografi Lingkungan Tropik (Journal of Geography of Tropical Environments)

Tropical cyclones are one of the most destructive weather phenomena because they pose three main dangers: heavy rainfall, strong winds, and storm surge. The occurrence of tropical cyclones is expected to increase both in terms of intensity and geographical spread due to climate change. Indonesia, located around the equator with a low Coriolis force, was previously considered safe from tropical cyclones. This study aims to examine the spatial pattern of tropical cyclones in the southern part of Indonesia during the period from 1990 to 2023 to understand the extent to which tropical cyclones can occur near the equator. The analysis …

The Rediscovery Of America: Native Peoples And The Unmaking Of Us History, John P. Bowes

EKU Faculty and Staff Scholarship

No abstract provided.

The Effects Of Physical Accessibility And Subjective Accessibility On Grocery Shopping Behaviors In Oakland, California, Huijun Tan

Dissertations and Theses

Existing studies underscore the complexity of urban accessibility, defined by a range of factors, including the city's physical layout and infrastructure as well as the subjective perceptions and experiences of its inhabitants. As urban areas continue to grow and diversify, gaining a comprehensive understanding of these varied interactions is imperative. This broader context highlights the necessity of investigating the interplay between physical and subjective accessibility, aiming to illuminate the specific challenges and opportunities faced by these communities in accessing necessary services. This study explored the relationship between physical and subjective accessibility and their consequential impact on grocery shopping behaviors among …

Geospatial And How It's Used By Casfer, Eduardo A. Castillo, Olatunde D. Akanbi, Vibha S. Mandayam, Erika I. Barcelos, Roger H. French

Student Scholarship

Project CASFER has a goal to develop the next generation of decarbonized nitrogen based fertilizer. They want to do this by

• Capturing nitrogen from waste, recycling the nitrogen, then producing and distributing CASFER fertilizers to farmers. 

CASFER is made up of 5 different universities that all work together to make up CASFER, Texas Tech University, Case Western University, FAMU, Georgia tech, and MIT.

Sense Of Program Community And Imposterism In Online Business Graduate Programs, Heather Leigh Rippetoe

Electronic Theses and Dissertations Archive

Building off seminal works on community including McMillan and Chavis, Lave and Wenger, Graves, and Wenger et al, the Institutional, Program, and Professional (IPP) community framework for online allows students, faculty, administrators, and alumni the opportunity to consider how to support community beyond online courses into programs, the institution, and the early career (profession). At the same time, as this way of thinking about community in online learning is emerging, academia is increasingly acknowledging the presence of imposterism, also known as imposter feelings, Imposter Phenomenon, or Imposter Syndrome for students, scholars, and early professionals. Researchers are increasingly considering imposter feelings …

Drought Assessment Based On Rainfall Anomaly Index (Rai) Across Erbil-Iraq, Khalid A. Abbas

Polytechnic Journal

The prolonged occurrence of anomalies in rainfall is a significant hydro-meteorological event that has the potential to impact the hydrological imbalance, contribute to climate change, and affect the production of agriculture, which is mainly dependent on rainfall. This study analyzes the rainfall data of 12 stations for 20 years from 2001-2020 to indicate drought occurrence across Erbil-Iraq. Previous research used different methods for studying and analyzing droughts in the region but not RAI; the current study aims to evaluate the meteorological Rainfall Anomaly Index (RAI) in Erbil to evaluate the dry and wet years in the rainfall pattern in the …

"We're Going To Tear Up The Caldera So We Can Have An Electric Car": Competing Perceptions And Spatial Dimensions Of Open-Pit Lithium Mining In The Mcdermitt Caldera, Oregon, Elizabeth Bartholomew

Dissertations and Theses

As the world attempts to pivot away from fossil fuels and other greenhouse gas-emitting activities that fuel climate change, the proposed technological solutions all require raw materials, resources, and land; each of which have their own logistical and political dimensions. Lithium, a federally recognized critical mineral that is considered a crucial element in modern battery production, plays a vital role in decarbonizing efforts. Under the banners of national security, resource independence, and carbon mitigation goals, the United States has incentivized domestic lithium extraction, expediting exploration throughout the American West. The McDermitt Caldera, spanning from southeastern Oregon into northern Nevada, is …

Synoptic Drivers Of Extreme Precipitation In The Upper Yuba Watershed Of California, Emma Nichole Russell

Dissertations and Theses

The United States state of California is vulnerable to both droughts and extreme precipitation events due to the timing and processes of precipitation in the region. California's annual precipitation is dependent on a few strong storms and in addition to its Mediterranean climate, leads to great variability in precipitation both within and across years. While efforts to reduce the impacts of extreme precipitation events have been implemented, forecasting for these events remains a challenge in regions with complex terrain and dynamic meteorological drivers. In order to improve forecasting and preparedness for such events, it is important to understand the range …

Modeling Habitat Suitability And Current Distribution Of The Relicted Maghreb Magpie (Pica Mauritanica), Kamel Eddine Mederbal, Mohcen Menaa, Abdallah Aouadi, Lamia Boutabia, Lamia Bensaâd-Bendjedid, Khalladi Mederbal, Amira Bouderbala, Abderrahmane Chebli, Salah Telailia

Turkish Journal of Zoology

The Maghreb Magpie (Pica mauritanica) is an endemic bird to North Africa, encompassing Algeria, Morocco, and Tunisia. Unfortunately, its population is facing a significant decline primarily attributed to habitat loss and fragmentation resulting from urbanization and agricultural practices. Due to the lack of studies on habitat requirements of Pica mauritanica on a large scale, investigating the habitat preferences of this species and thereby understanding the potential threats, remains crucial for effective conservation strategies. We performed species distribution modeling (SDM), incorporating both occurrence records and predictor variables, to investigate the potentially suitable habitat and the factors influencing the distribution of the …

Role Of China’S Belt And The Road Initiative In Global Development Finance, Srinivasa Madhur

The Journal of International Relations, Peace Studies, and Development

China’s Belt and the Road Initiative (BRI), introduced in 2013 by China’s President Xi, has been a major milestone in global development finance. Resonating with the historical ‘Silk Road”, BRI attempts to connect many countries and continents around the world. Matching its humongous size of nearly $1 trillion, it covers about 165 countries around the world. Even as the BRI benefitted some of the recipient countries, it has built a mountain of debt among many developing countries. This paper suggests an efficient, equitable, and representative method of resolving the BRI debt-distress through the formation of a BRI Club, which should …

Impacts Of The Russo-Ukrainian Conflict On Food Security In Sub-Sahara Africa, Dare Isaac Akindoyin

The Journal of International Relations, Peace Studies, and Development

As an eccentric surprise to global food supply security, the invasion of Ukraine by Russia in February 2022 has the potential to undermine national and international initiatives to combat poverty and hunger. Africa, which is widely believed to be at the receiving end of globalization and development is at the mercy of food insecurity as a result of Ukraine unproved attacked by Russia. This research paper evaluates the impact of Russia's invasion of Ukraine on food security and food supply particularly in Sub-Sahara Africa. The time of the incursion and the two states involved in the conflict are two notable …

Security Or Vulnerability? The Optics Of Data In The Humanitarian Sphere, Nicole M. Bennett, Hamid Ekbia

Genocide Studies and Prevention: An International Journal

Governments, humanitarian agencies, and non-government organizations increasingly resort to data-driven techniques to meet the challenges they face in dealing with growing mobile populations such as refugees. Such techniques originate in bureaucratic administrations of the 19th century and, even earlier, in slave trade and plantation accounting methods. They were then perfected in logistics and global supply chain management of the twentieth and twenty-first centuries, especially with the advent of information technology. We examine the application of these techniques in humanitarian cases, seeking to contextualize them within the framework of logistic security. To understand the drivers of this trend, we introduce the …

Career Preferences Of Business Students: Traditional Career Path Or Entrepreneurship And Self-Employment?, David W. Whitlock, Ashley J. Hampton, Shanker Menon

Journal of Business & Entrepreneurship

Factors influencing career preferences of business students are explored. This study builds upon an original research project conducted in 1995, which focused on comparing pursuits of entrepreneurship versus more traditional business employment as career paths for business students. In the present study, 40 students enrolled in the senior-level capstone business course and 26 students enrolled in the freshman-level introductory business course in an AACSB accredited business school were administered surveys to determine career preferences and the factors influencing those preferences. The results of the introductory-level course are compared to those of students in the senior-level capstone business course and reported. …

Fisherman Community Health Behavior In Facing Covid 19 Pandemic At Port Iii, Pamekasan Regency, Budijanto Budijanto, Ifan Deffinika, Alfyananda Kurnia Putra

Jurnal Pendidikan Geografi: Kajian, Teori, dan Praktek dalam Bidang Pendidikan dan Ilmu Geografi

The problem of slum and squatter settlement is caused by improper environmental planning. This study examines socioeconomic determinants of human health by adopting concepts of population morbidity from Mosley and Chen. The purpose of this study was to analyze various conditions behind the low environmental health behavior of fishermen's households in the face of the COVID 19 pandemic. This study used a quantitative approach with a population from fishermen's households. The samples were selected purposively by considering economic and spatial conditions. Primary data collection was carried out through structured and in-depth interviews. The dependent variable in this study was individual …

Building A Resilient Community With An Ict-Powered Local Government Unit (Lgu): Community-Based Disaster Solution, Von Gerald D Macose

Jurnal Pendidikan Geografi: Kajian, Teori, dan Praktek dalam Bidang Pendidikan dan Ilmu Geografi

The Philippines is the 3rd most disaster-prone country globally. While the Aurora, one of its provinces facing the Pacific, is included in 27 identified high-risk provinces in the Philippines. Due to its high disaster risk, the community and the local government craft different policies and innovations to ensure the local population's safety. This development research study harnesses the potential of ICT in providing solutions for the community. The researcher develops an ICT solution that empowers the LGU and the community, thus helping them in formulating decisions and responses. The chaos and panic caused by disasters demand quick solutions as time …

Arcgis Story Maps In Improving Teachers’ Geography Awareness, Purwanto Purwanto, Ike Sari Astuti, Rudi Hartono, Ghada Abd Elsattar Mohammed Oraby

Jurnal Pendidikan Geografi: Kajian, Teori, dan Praktek dalam Bidang Pendidikan dan Ilmu Geografi

The purpose of this study is to examine the use of story maps in increasing sustainable Geography awareness among Geography teachers. The advent of story maps has altered the current Geography education in the digital era. ArcGIS story maps are a type of user-friendly geospatial technology renewal. This story map is believed capable of helping students learn Geography more independently, transforming Geography education. This belief should be reinforced by implementing story maps on their own Geography teachers, who have low Geography literacy rates in general. This action research involved 67 Geography teachers who were members of the East Java Geography …

Analysis Of Circular Population Migration Pattern From Sigi Regency To Palu City, Hadi Suryono, Iwan Alim Saputra

Jurnal Pendidikan Geografi: Kajian, Teori, dan Praktek dalam Bidang Pendidikan dan Ilmu Geografi

Urbanization is closely related to regional development. The population migration in Palu City is mostly caused by the people’s needs to fulfill their needs. This study aims to identify the migration pattern of the residents of Sigi Regency to Palu City. This study used a descriptive quantitative method and gathered data from secondary data on the Labor Force (AK) from the Center Bureau of Statistics of Palu City in 2015 and 2019. Meanwhile, the data analysis was carried out using gravity analysis to see the interactions and linkages between Palu City and Sigi Regency. Our data analysis results indicate that …

Evaluation Of Land Resilience Against Natural Disasters Using Ecosystem Services Approach In Kendari City, Southeast Sulawesi, Indonesia, La Ode Restele, Fitra Saleh, L. M. Iradat, Jufri Karim, Noor Husna Khairisa

Jurnal Pendidikan Geografi: Kajian, Teori, dan Praktek dalam Bidang Pendidikan dan Ilmu Geografi

Kendari City has multiple disasters hazard, especially floods and landslides. Consequently, the city requires systematic preventive efforts to minimize the potential disaster risk. This study aims to create a spatial model to determine the resilience of the land against floods and landslides with an ecosystem services approach. We used Sentinel-2 and DEMNAS (National Digital Elevation Model of Indonesia) as our primary data collection tools. Sentinel-2 was used to compile land use maps, and DEMNAS was the basis for compiling landform maps. The integration of the two was carried out by the analytic hierarchy process (AHP). The results showed that 8,259.98 …

Automatic Geographic Information System Algorithm For Temporal Mangrove Observation: A Case Study In Gopek Beach, North Banten, Della Ayu Lestari, Willdan Aprizal Arifin, Novi Sofia Fitriasari, Taufiq Ejaz Ahmad, Amien Rais, Dhea Rahma Azhari

Jurnal Pendidikan Geografi: Kajian, Teori, dan Praktek dalam Bidang Pendidikan dan Ilmu Geografi

Temporal observation is a series of processes started by collecting the necessary data, which is then processed, so that valid information is obtained to support the right decision. To increase the ease of data collection, an automatic algorithm is needed to increase efficiency, shorten the time, and reduce the required resources. The automatic algorithm based on the geographic information system developed in this study was applied to monitoring mangrove forests in Gopek Beach, located on the north coast of Serang, Banten. Using the cloud computing process from an automatic algorithm, the results of vegetation monitoring showed increased efficiency in time …