Digital Commons Network^™

The Impact Of Having Foreign Domestic Workers On Informal Caregivers Of Persons With Dementia: Findings From A Multi-Method Research In Singapore, Qi Yuan, Yunjue Zhang, Ellaisha Samari, Anitha Jeyagurunathan, Tee Hng Tan, Fiona Devi, Peizhi Wang, Harish Magadi, Richard Goveas, Li Ling Ng, Mythily Subramaniam

Research Collection School of Social Sciences

Background: Informal caregivers of persons with dementia (PWDs) sometimes engage foreign domestic workers (FDWs) to support their caregiving journey. However, there has not been much research to establish if this is really beneficial. The current study aims to investigate whether engaging FDWs specifically for caregiving of PWDs truly moderates caregiver stress and to explore caregivers’ experiences of engaging FDWs. Methods: A multi-method study design with a quantitative and qualitative sub-study was adopted. For the quantitative sub-study, 282 informal caregivers of PWDs were recruited. Propensity score matching analysis was used. For the qualitative sub-study, 15 informal caregivers with FDWs were interviewed. …

Aging In Middleton: A Community Needs Assessment, Sue Berger, Caitlin Coyle

Center for Social and Demographic Research on Aging Publications

This report describes research undertaken by the Center for Social & Demographic Research on Aging within the Gerontology Institute at the University of Massachusetts Boston, on behalf of the Town of Middleton. The content of this report is meant to inform the Middleton Council on Aging (COA), and organizations that work with and on behalf of older residents of Middleton, for the purposes of planning and coordination of services. Through a process of community engagement and mixed method data collection, the goals of this project are twofold: 1) to inform the planning and design of the future senior center space …

“We Live On An Island:” Perspectives On Rural Family Caregiving For Adults With Alzheimer’S Disease And Related Dementias In The United States, Heather J. Williamson, Andria B. Begay, Dorothy J. Dunn, Rachel Bacon, Mark Remiker, Yolanda E. Garcia, Michael J. Mccarthy, Julie A. Baldwin

The Qualitative Report

As the United States’ aging population grows, there will be increased prevalence of individuals living with Alzheimer’s Disease and related dementias (ADRD), who largely rely on the support of their family caregivers. Family caregivers residing in rural areas face additional challenges with managing caregiving responsibilities and navigating support services. The purpose of this multilevel phenomenological qualitative study was to explore the assets, unique needs, and resources of rural-residing ADRD caregivers from the caregiver, provider, and policy influencers’ perspectives. The study took place between 2019 through 2021 in northern Arizona, a largely rural and geographically vast area home to caregivers from …

Chronic Neuropsychiatric Sequelae Of Sars-Cov-2: Protocol And Methods From The Alzheimer's Association Global Consortium, Gabriel A. De Erausquin, Heather Snyder, Traolach S. Brugha, Sudha Seshadri, Maria Carrillo, Rajesh Sagar, Yueqin Huang, Charles Newton, Carmela Tartaglia, John Blangero, Gladys E. Maestre, Sarah Williams Blangero

School of Medicine Publications

Introduction

Coronavirus disease 2019 (COVID‐19) has caused >3.5 million deaths worldwide and affected >160 million people. At least twice as many have been infected but remained asymptomatic or minimally symptomatic. COVID‐19 includes central nervous system manifestations mediated by inflammation and cerebrovascular, anoxic, and/or viral neurotoxicity mechanisms. More than one third of patients with COVID‐19 develop neurologic problems during the acute phase of the illness, including loss of sense of smell or taste, seizures, and stroke. Damage or functional changes to the brain may result in chronic sequelae. The risk of incident cognitive and neuropsychiatric complications appears independent from the severity …

Adult Day Services In Maine: Benefits, Challenges, And Opportunities, Elizabeth Gattine Jd, Eileen Griffin Jd, Kimberly I. Snow Mhsa, Ba

Disability & Aging

In Maine and nationally, adult day services tend to be underfunded and underutilized compared to other types of long term services and supports (LTSS). In part, investment in adult day services is hampered by a lack of standardized data collection and limited research on issues of accessibility, cost-effectiveness, and the impact of adult day services on the broader health system. Lack of uniformity in state regulatory frameworks for licensing, program design, service delivery, and other administrative requirements further complicates cross-state comparisons. Considering these limitations, a key goal of this report is to provide a more detailed and comprehensive understanding of …

Emergency Department Communication In Persons Living With Dementia And Care Partners: A Scoping Review, Christopher R Carpenter, Jesseca Leggett, Fernanda Bellolio, Marian Betz, Ryan M Carnahan, David Carr, Michelle Doering, Jennie Chin Hansen, Eric D Isaacs, Deborah Jobe, Kathleen Kelly, Nancy Morrow-Howell, Beth Prusaczyk, Bob Savage, Joe Suyama, Allan S Vann, Kristin L Rising, Ula Hwang, Manish N Shah

Faculty, Staff and Student Publications

OBJECTIVES: To synthesize published research exploring emergency department (ED) communication strategies and decision-making with persons living with dementia (PLWD) and their care partners as the basis for a multistakeholder consensus conference to prioritize future research.

DESIGN: Systematic scoping review.

SETTINGS AND PARTICIPANTS: PLWD and their care partners in the ED setting.

METHODS: Informed by 2 Patient-Intervention-Comparison-Outcome (PICO) questions, we conducted systematic electronic searches of medical research databases for relevant publications following standardized methodological guidelines. The results were presented to interdisciplinary stakeholders, including dementia researchers, clinicians, PLWD, care partners, and advocacy organizations. The PICO questions included: How does communication differ for …

Detecting Cognitive Impairment And Dementia In The Emergency Department: A Scoping Review, Armin Nowroozpoor, Jeff Dussetschleger, William Perry, Mary Sano, Amy Aloysi, Michael Belleville, Alexandria Brackett, Jon Mark Hirshon, William Hung, Joan Michelle Moccia, Ugochi Ohuabunwa, Manish N Shah, Ula Hwang

Faculty, Staff and Student Publications

OBJECTIVES: To identify research and practice gaps to establish future research priorities to advance the detection of cognitive impairment and dementia in the emergency department (ED).

DESIGN: Literature review and consensus-based rankings by a transdisciplinary, stakeholder task force of experts, persons living with dementia, and care partners.

SETTING AND PARTICIPANTS: Scoping reviews focused on adult ED patients.

METHODS: Two systematic scoping reviews of 7 medical research databases focusing on best tools and approaches for detecting cognitive impairment and dementia in the ED in terms of (1) most accurate and (2) most pragmatic to implement. The results were screened, reviewed, and …

Emergency Department Communication In Persons Living With Dementia And Care Partners: A Scoping Review, Christopher R Carpenter, Jesseca Leggett, Fernanda Bellolio, Marian Betz, Ryan M Carnahan, David Carr, Michelle Doering, Jennie Chin Hansen, Eric D Isaacs, Deborah Jobe, Kathleen Kelly, Nancy Morrow-Howell, Beth Prusaczyk, Bob Savage, Joe Suyama, Allan S Vann, Kristin L Rising, Ula Hwang, Manish N Shah

Department of Emergency Medicine Faculty Papers

OBJECTIVES: To synthesize published research exploring emergency department (ED) communication strategies and decision-making with persons living with dementia (PLWD) and their care partners as the basis for a multistakeholder consensus conference to prioritize future research.

DESIGN: Systematic scoping review.

SETTINGS AND PARTICIPANTS: PLWD and their care partners in the ED setting.

METHODS: Informed by 2 Patient-Intervention-Comparison-Outcome (PICO) questions, we conducted systematic electronic searches of medical research databases for relevant publications following standardized methodological guidelines. The results were presented to interdisciplinary stakeholders, including dementia researchers, clinicians, PLWD, care partners, and advocacy organizations. The PICO questions included: How does communication differ for …

Co-Design To Support Engagement In Activities Of Daily Living And Meaningful Activities For People Living With Dementia, Michael Wilson, Julie Doyle, Ann Marron, Jonathan Turner, Ciaran Nugent, Dympna O'Sullivan

Articles

Dementia is a chronic and progressive neurodegenerative illness, which can lead to significant difficulties in a person’s capacity to perform activities of daily living and engage in meaningful activities. The Smart Dementia Care project aims to establish an understanding of how best to design digital tools that persons with dementia and their carers will find useful and usable for care planning and goal setting. This paper discusses the first phase of this project and describes how co-design is being used to support engagement in activities of daily living and meaningful activities for people living with the early stages of dementia, …

Modelo De Predicción De La Demencia En Adultos Mayores De 60 Años [Dementia Prediction Model In Adults Over 60 Years Old], Maria Del Pilar Santacruz-Ortega, Maria Fernanda Cobo-Charry, Bertha Lucia Avendaño-Prieto, Silvia Mejia-Arango

School of Medicine Publications

In order to determine the contribution of the sociodemographic, psychosocial and health variables to a prediction model of dementia in the elderly population, a secondary analysis was carried out with the data from the “Health, Well-being and Aging. Bogotá, 2012”, with 2000 men and women over 60 years of age from urban and rural areas of Bogotá. To select the sample, a probabilistic, multistage, conglomerate and stratified sampling was carried out, based on the 2005 National Census. The SABE questionnaire adapted for Colombia was used. According to the level of measurement of each variable and the distribution of the data, …

An Overview Of Current Practices And Approaches To Co-Designing Services With And For People With Dementia Towards Developing A Framework For Best Practice, Kristina Niedderer, Laura Orton, Isabelle Tournier

DRS Biennial Conference Series

The aim of this paper is to provide an overview of current practices and approaches to co-designing services with and for people living with early to mid-stage dementia to derive a set of principles and practices for application in the IDoService project. It explores the understanding of service design and of co-design for the purposes of this paper, and then uses a meta-review of co-design of services for people with dementia, underpinned by a selection of case studies from the literature to extract and collate a set of key principles of best practice. We then consider the application of these …

Soundscapes For Storytelling And Meaningful Activity In Dementia Care, Maarten Houben, Melvin Van Berlo, Gail Kenning, Rens Brankaert

DRS Biennial Conference Series

Researchers are investigating how soundscapes can reduce agitation and contribute to the well-being of people with dementia. We advance this research by exploring further how to incorporate the personal background and preferences of individuals with dementia in soundscapes to evoke storytelling and meaningful activity in their everyday surroundings. In this study, we assembled personal soundscapes that were evaluated in individual participatory workshops with six care home residents with dementia. The workshops provided insights into the experiences of people in the mid to advanced stages of dementia listening to personal sounds. The results demonstrate how these soundscapes evoked: interaction with surroundings; …

A Digital Application For Assessment Of Neurocognitive Disabilities, Thomas H. Auriemma

Theses and Dissertations

Background: Neuropsychological assessment is designed to identify neurocognitive impairment and has traditionally relied on pen-and-paper tests. The behavior collected from these tests is usually expressed as a total summary score or a score that reflects a restricted number of features that assess errors. There is now interest in coupling traditional paper and pencil tests with digital assessment technology. In this context traditional metrics such as summary scores are still available. However, using digital technology, a host of time-based parameters can now be obtained. These time-based parameters include the total time to complete the task or total time to completion, as …

Pool-Based Dance/Movement Therapy With An Elder Population: A Literature Review, Jabyn Cleere

Expressive Therapies Capstone Theses

Dance/Movement Therapy (DMT) is used widely with elders, yet little is known about the sub-field of pool-based therapy. Specific practices in DMT with elders appear in the literature with groups and individuals and uses of props that support issues of balance. While pool-based DMT literature is limited, there is a body of knowledge in related fields that tie closely to the idea of this approach. While implementing treatment in a pool setting may be limiting due to fears or ability, the literature review revealed that using pool DMT would benefit elderly health. Benefits to physical aspects such as balance, muscular …

Implementation Of A Primary Care Toolkit To Improve Dementia Diagnosis And Management In A Rural Setting, Meredith George-Wieland

Doctor of Nursing Practice Scholarly Projects

BACKGROUND: There are six million people with dementia living in the United States and this number is expected to rise exponentially due to the aging population. In the United States, it is estimated that only two thirds of dementia cases are recorded during primary care visits and an estimated, one third of cases have been either missed or disregarded.

LOCAL PROBLEM: In a remote primary care clinic on Kodiak Island, off the southeastern coast of Alaska, there is a lack of dementia and related cognitive diagnoses in the primary care setting due to patients’ and families lack access to the …

The Brodmann Area 39/40 Of The Brain In Alzheimer’S, Mild Cognitive Impairment, And No Cognitive Impairment Subjects At Advanced Age Demonstrate Comparable Levels Of Blood-Brain Barrier Breach, Dhara Rana, Forum Mangrola, Randel L. Swanson, Venkat Venkataraman, David A. Bennett, Zoe Arvanitakis, David Libon, Robert Nagele, Nimish Acharya

Rowan-Virtua Research Day

• Alzheimer’s disease (AD) is one of the most common form of dementia

• Mild cognitive impairment (MCI), specifically amnestic subtype, more likely to progress to AD

• Pathogenesis Theories:

• o Accumulation of amyloid-beta peptides and neurofibrillary tangles containing hyperphosphorylated neuronal tau protein
• o Blood Brain Barrier (BBB) dysfunction is associated with AD pathogenesis

• Brodmann area 39/40: regions of parietal cortex are responsible for language, spatial cognition, memory retrieval, attention, phonological processing, and emotional processing

• Hypothesis: An increased BBB permeability in Brodmann area 39/40 of AD and age-matched MCI and no cognitive impairment (NCI) subjects

The Use Of Non-Immersive Virtual Reality As A Functional Rehabilitation Tool For Older Adults With Cognitive Decline, Ross M. Divers

LSU Master's Theses

There is currently no cure for age-related cognitive decline or dementia and current pharmacologic interventions have had limited success at improving daily functioning. Consequently, older adults who experience cognitive decline require assistance with daily activities, which can be quite expensive and lead to caregiver burden. Repeated performance of everyday tasks has been shown to improve performance but requires supervision and direction by another person. The present study evaluated a low-cost computer training program that will use non-immersive virtual reality to enable participants with dementia or cognitive decline to independently practice meaningful everyday activities (e.g., meal preparation). Participants (N= 8) with …

Dancing With Dementia: Using Dance And Movement To Combat The Negative Effects Of Occupational Deprivation In Skilled Nursing Facilities, Mikenzi R. Rivenbark

MOT Student Capstones

As human beings, it is natural to crave interaction with others and to engage within our surrounding environments. Unfortunately, individuals with dementia often lose their ability to independently access and participate within their environment; resulting in occupational deprivation. Occupational deprivation is seen frequently in residents with dementia within a skilled nursing facility (SNF) as they are often left disengaged and seated idle within the facility. Occupational deprivation can lead to psychological and physical illnesses, it can also enhance the progression of dementia, and result in premature death. The use of dance and movement with these residents can provide them the …

Determinants Of Subjective Memory In First-Degree Relatives And Care Providers Of Individuals With Dementia, Cassidy Tiberi, Sophia Demerdjian

Butler Journal of Undergraduate Research

Subjective memory may help practitioners understand who pursues assessment and treatment for memory concerns. Two factors that are related to subjective memory are depressive affect and fear of dementia, and two groups of older adults who may be susceptible to these factors are first-degree relatives and care providers of patients with dementia. This study seeks to determine how depressive affect and fear of dementia influence the subjective memory of these two groups. Fifty-five adults ages 55 and older who were care providers and/or first-degree relatives of patients with dementia reported their perceptions of their own memory, feelings of depression, and …

Alzheimer's And Patient Caregiver Burnout: A Review Of The Literature, Madeline Hekeler

James Madison Undergraduate Research Journal (JMURJ)

The term “silent epidemic” is fitting for Alzheimer’s disease (AD), as its negative impact is widely felt but rarely discussed. Burnout among AD caregivers has become an epidemic of its own as caregivers experience an increase in health risks, stress, and financial burden. This literature review focuses on caregiver burnout and how imperative it is that caregivers are better supported in their role. Researchers have developed instruments to assess and intervene in caregiver burnout that have shown effectiveness among caregivers and their families.Nevertheless, further longitudinal research is warranted regarding more effective interventions, including stress management and social support mechanisms.

Cognitive Reserve And Mild Cognitive Impairment: Predictors And Rates Of Reversion To Intact Cognition Vs Progression To Dementia, Maryam Iraniparast, Yidan Shi, Ying Wu, Leilei Zeng, Colleen J. Maxwell, Richard J. Kryscio, Philip D. St John, Karen S. Santacruz, Suzanne L. Tyas

Pathology Research and Scholarship

BACKGROUND AND OBJECTIVES: Little is known about the effect of education or other indicators of cognitive reserve on the rate of reversion from mild cognitive impairment (MCI) to normal cognition (NC) or the relative rate (RR) of reversion from MCI to NC vs progression from MCI to dementia. Our objectives were to (1) estimate transition rates from MCI to NC and dementia and (2) determine the effect of age,

METHODS: We estimated instantaneous transition rates between NC, MCI, and dementia after accounting for transition to death across up to 12 assessments in the Nun Study, a cohort study of religious …

Prevalence Of Dementia And Mild Cognitive Impairment In Indigenous Bolivian Forager-Horticulturalists, Margaret Gatz, Wendy J. Mack, Helena C. Chui, E. Meng Law, Giuseppe Barisano, M. Linda Sutherland, James D. Sutherland, Daniel Eid Rodriguez, Raul Quispe Gutierrez, Juan Copajira Adrian, Jesus Bani Cuata, Amy R. Borenstein, Ellen E. Waters, Andrei Irimia, Christopher J. Rowan, L. Samuel Wann, Adel H. Allam, Randall C. Thompson, Michael I. Miyamoto, David E. Michalik, Daniel K. Cummings, Edmond Seabright, Angela R. Garcia, Paul L. Hooper, Thomas S. Kraft, Caleb E. Finch, Gregory S. Thomas, Jonathan Stieglitz, Benjamin C. Trumble, Michael D. Gurven, Hillard Kaplan

ESI Publications

Introduction

We evaluated the prevalence of dementia and mild cognitive impairment (MCI) in indigenous Tsimane and Moseten, who lead a subsistence lifestyle.

Methods

Participants from population-based samples ≥ 60 years of age (n = 623) were assessed using adapted versions of the Modified Mini-Mental State Examination, informant interview, longitudinal cognitive testing and brain computed tomography (CT) scans.

Results

Tsimane exhibited five cases of dementia (among n = 435; crude prevalence = 1.2%, 95% confidence interval [CI]: 0.4, 2.7); Moseten exhibited one case (among n = 169; crude prevalence = 0.6%, 95% CI: 0.0, 3.2), all age ≥ 80 years. …

Most Home-Delivered Meal Recipients With Dementia Receive Support From Friends And Family, But More Social Activity Is Needed, Claire Pendergrast

Population Health Research Brief Series

Home-delivered meal programs reduce hunger and food insecurity, promote socialization, and improve health and wellbeing for older adults. Regular social support from home-delivered meal drivers, alongside social support from friends and family, may be key to preventing isolation and improving health for older adults with dementia. This research brief shows that home-delivered meal recipients with dementia receive significant support from friends and family, but 83% would like more social activity. To better support older adults with dementia and family caregivers, aging services providers should expand virtual and dementia-friendly social engagement programming.

An Intergenerational Playgroup In An Australian Residential Aged-Care Setting: A Qualitative Case Study, Gabrielle B. Rosa Hernandez, Carolyn M. Murray, Mandy Stanley

Research outputs 2014 to 2021

Intergenerational programs are emerging within the aged-care context as they provide a unique opportunity for older adults living with or without cognitive impairments to connect with children. One type of intergenerational program is an ‘intergenerational playgroup’ which creates opportunities for children to develop their skills, parents to create a local peer support network and provides older adults at risk of isolation with vital community interaction. The objective of this research was to evaluate an intergenerational playgroup taking place weekly within a residential aged-care setting. A qualitative case study research design was used to perform five observation sessions and semi-structured in-depth …

African-American Lay Pastoral Care Facilitators’ Perspectives On Dementia Caregiver Education And Training, Nik M. Lampe, Nidhi Desai, Tomeka Norton-Brown, Alexandra C. H. Nowakowski, Robert L. Glueckauf

The Qualitative Report

The African-American Alzheimer’s Caregiver Training and Support Project 2 (ACTS 2) is a faith-integrated, skills-training and support program for distressed African American family caregivers of persons living with dementia across Florida. Caregivers participate in a 12-week, telephone-based, skills-building and support program led by faith community workers (i.e., lay pastoral care facilitators) who provide volunteer services to their denominations. In this case study, we examined facilitators’ perspectives and recommendations for supplementary audiovisual and written training materials to optimize group process and goal-setting skills. Utilizing a qualitative approach, we explored facilitators’ needs, experiences in using current training materials, and recommendations for supplementary …

Effects Of Nonpharmacological Interventions On Disruptive Vocalisation In Nursing Home Patients With Dementia-A Systematic Review, Saad Bilal Ahmed, Alfredo Obieta, Tamsin Santos, Saara Ahmad Muddasir, Joseph Elliot Ibrahim

Department of Biological & Biomedical Sciences

Background: Vocally disruptive behaviour is a common and difficult to treat condition in older residents with dementia. The aim of this systematic review is to evaluate the efficacy of nonpharmacological interventions in its management in persons with dementia residing in a nursing home.
Methodology: A systematic search was conducted using Ovid MEDLINE, CINAHL, and Cochrane databases and reference lists from relevant publications on various nonpharmacological approaches to manage vocally disruptive behaviour in nursing home residents. The method of appraisal was through the National Institutes of Health scoring for the Quality Assessment of controlled intervention studies. Inclusion criteria included residents of …

Sensory Processing Abnormalities In Community-Dwelling Older Adults With Cognitive Impairment: A Mixed Methods Study, Elizabeth K. Rhodus, Elizabeth G. Hunter, Graham D. Rowles, Shoshana H. Bardach, Kelly Parsons, Justin M. Barber, Maryellen Thompson, Gregory A. Jicha

Sanders-Brown Center on Aging Faculty Publications

Mild cognitive impairment (MCI) or dementia often leads to behavioral and psychiatric symptoms of dementia (BPSD). Sensory processing abnormalities may be associated with BPSD. The purpose of this study was to explore relationships among sensory processing, behavior, and environmental features within the homes of people with MCI or dementia. This project used mixed methods to assess participants’ sensory processing, care partner perspectives on behaviors, and in situ observations of the home environment. Nine participants with cognitive impairment (MCI n = 8, early dementia = 1) and their care partners were included. Seven participants with cognitive impairment were reported to have …

Developing A Resource For Optimizing Occupational Engagement In Adults With Dementia, Maria Del Carmen Rosas Ojeda

OT Student Capstones

Dementia is an umbrella term for cognitive impairments in memory, language, executive function, which may affect behavior and personality. Globally, about 50 million people have dementia, and that number is expected to reach 150 million by the year 2050 (Fortinsky et al., 2020). Dementia is a progressive disease that affects an individual’s ability to perform their daily occupations. The progression of dementia stages can be classified as early/mild, middle/moderate, and late/severe. Alzheimer’s disease makes up 60-80% of all dementia cases, although there are various other types of dementia, including Frontotemporal dementia, Lewy Body dementia, Vascular dementia, and Parkinson’s disease dementia …

Holistic Occupational Therapy Dining Interventions Supporting Individuals With Dementia In Skilled Nursing Facilities, Kathleen Osio, Sabrina Anne Cezar, Ashley Lorton, Lisa Worsham

Occupational Therapy | MSOT Capstone Projects

The purpose of this project is to provide occupational therapy practitioners (OTPs) with a Holistic Occupational Therapy Dementia Dining Toolkit to enhance the dining experience in the SNF setting for individuals in all stages of dementia. Dementia is a prevalent condition seen in skilled nursing facilities (SNF) that is expected to continue to rise; in 2016, 47.8 percent of individuals living in a SNF had a diagnosis of dementia (Center of Disease Control, 2020). Dining experiences for individuals with dementia (IwD) are impacted by an individual’s cognition, physical, environmental, and psychosocial factors. Additionally, the task oriented and structured approach to …

Dementia Care Among Somali Elders, Emmanuel Asante Opoku

All Graduate Theses, Dissertations, and Other Capstone Projects

Caring for persons with dementia is demanding and complicated since there is “no one-size-fits all formula for dementia care. The care needs to be modified to fit the various stages of the condition and each family's unique situation. Racial and ethnic differences place unique demand on all the forms of dementia care; in-home care (IHC), long-term care (LTC), adult day centers(ADC), short term care (STC) and hospice care (HC).

This paper aimed to study how Somali elders think and interact with dementia care services, from in-home care to hospice care. Some recommendations to study this issue is to do a …