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Assisted Living, Residential Care, And Memory Care Staffing Level Dynamics: Oregon, 2017–2023, Sarah Dys, Ozcan Tunalilar Jan 2025

Assisted Living, Residential Care, And Memory Care Staffing Level Dynamics: Oregon, 2017–2023, Sarah Dys, Ozcan Tunalilar

Institute on Aging Publications

Objectives

To examine changes in staffing levels over time in Oregon assisted living and residential care (AL/RC) communities between 2017 and 2023.

Design

Longitudinal study of licensed AL/RC communities.

Setting and Participants

A total of 1720 setting-year observations from 535 individual AL/RC communities in Oregon between 2017 and 2023.

Methods

Primary data were collected through the Oregon Community-Based Care (CBC) study. Staffing levels were estimated as care staff hours per resident per day and reported overall and by staff type, including registered nurses, licensed practical nurses, certified nursing assistants, certified medication aides, unlicensed care staff, life enrichment staff, and social …


“I Have Nowhere To Go” : An Examination Of Post-Eviction Housing Outcomes Of Evicted Tenants, Alex Farrington, Natalie J. Cholula, Lisa K. Bates Jan 2025

“I Have Nowhere To Go” : An Examination Of Post-Eviction Housing Outcomes Of Evicted Tenants, Alex Farrington, Natalie J. Cholula, Lisa K. Bates

Urban Studies and Planning Faculty Publications and Presentations

Given the extent of the eviction crisis in Oregon, it is crucial to investigate what happens to tenants after they are displaced from their homes. This report investigates three main questions concerning tenants’ post-eviction housing outcomes: Where do tenants live after they have been evicted? How do post-eviction housing outcomes affect tenants’ health, finances, and safety? How do rental assistance and legal assistance affect post-eviction housing outcomes?

Nearly two thirds of evicted tenants moved directly into some form of homelessness, including sheltered, unsheltered, or doubled-up homelessness. These findings indicate that Oregon’s eviction crisis and homelessness crisis are closely linked.

Tenants …


Unseen Connections: A Storymap Exploring Case Studies In Water-Energy Transitions And Environmental Justice, Alida Cantor, Elizabeth Bartholomew, Kate Berry, James Blair, Dustin Mulvaney, Nancee Hunter Jan 2025

Unseen Connections: A Storymap Exploring Case Studies In Water-Energy Transitions And Environmental Justice, Alida Cantor, Elizabeth Bartholomew, Kate Berry, James Blair, Dustin Mulvaney, Nancee Hunter

Geography Faculty Publications and Presentations

Climate change is one of the most important challenges in the world today. Communities and decision makers at many levels, from local to international, are working to ensure that energy, water, and other societal infrastructures can transition and adapt to address climate change (IPCC, 2023). One major mitigation strategy involves the decarbonization of energy systems (Rockström et al. 2017). Despite wide recognition of the need to decarbonize globally, renewable energy infrastructures and technologies are often locally controversial, involving claims of environmental injustice and disputes over land and water (Cantor, Turley, and Maxfield 2023; Jerez, Garcés, and Torres 2021; Turley et …


Collaborative Governance And Hydrosocial Territorialization: Reaching Consensus On Salmon Restoration Goals In The Columbia River Basin, Thien-Kim Bui, Rebecca Mclain Jan 2025

Collaborative Governance And Hydrosocial Territorialization: Reaching Consensus On Salmon Restoration Goals In The Columbia River Basin, Thien-Kim Bui, Rebecca Mclain

Geography Faculty Publications and Presentations

Across the Cascadia bioregion, salmon and steelhead are ecological and cultural keystone species that contribute to and illustrate riverine health. Due to complex social, economic, and ecological relations over the past 150 years, many Columbia River Basin salmon and steelhead populations are now listed as threatened or endangered in the United States. This research uses the 2017–2020 Columbia Basin Partnership Task Force as a case study to understand how this collaborative governance effort of sovereign entities and nonsovereign stakeholders navigated competing water claims to reach consensus on aspirational qualitative and quantitative goals for salmon and steelhead restoration. Using semistructured interviews …


Whipped Into Shape: Infrastructure As Punishment For The Unruly Citizen, Eliza Mortimer Jan 2025

Whipped Into Shape: Infrastructure As Punishment For The Unruly Citizen, Eliza Mortimer

Anthós

This article interrogates how inflexible designs and policies of airline seating, as well as critical socio-political rhetoric, discipline and marginalize bodies that do not conform to normative standards. Situating airline seating within fat and disability studies models, Mortimer argues that these punitive measures are not neutral, but rather reflective of cultural narratives of productivity, morality, and bodily discipline. Mortimer draws from ethnographic analyses of first-person accounts and policy reviews to demonstrate how shrinking seats, rigid policies, and moralized discourse construct a “space of calculability” that pressures fat individuals to monitor and minimize their bodies to justify their presence in public …


A Proposed Ehrenfeucht-Fraïssé Game Model For Natural Language Processing Generative Adversarial Networks, Don Li Jan 2025

A Proposed Ehrenfeucht-Fraïssé Game Model For Natural Language Processing Generative Adversarial Networks, Don Li

Anthós

Large Language Models (LLM’s) (e.g., ChatGPT) constitute both a significant research area and commercial application of AI. Current major LLM’s are built on Generative Pre-Trained Transformer (GPT) neural network architecture to perform natural language processing (NLP) tasks. Generative Adversarial Network (GAN) is another popular neural network architecture, which leverages a zero-sum game between constituent neural networks within the architecture to train the GAN, and is widely used for visual data applications. This article proposes a new GAN architecture for NLP: an EF-GAN whose underlying algorithm uses Ehrenfeucht–Fraïssé (EF) games, a game-theoretic approach from model theory to determine elementary equivalence of …


Voices To Faces: The Midnight Cowboy’S Picaresque Journey, Dave Patterson Jan 2025

Voices To Faces: The Midnight Cowboy’S Picaresque Journey, Dave Patterson

Anthós

John Schlesinger’s 1969 film, Midnight Cowboy, tells the story of Joe Buck, a Texan who dreams of working as a hustler in New York. Schlesinger’s resulting tale follows the framework of the picaresque, wherein a naive rube ventures to the big city to pursue a better life and exposes societal ills along the way. In this article, Patterson reveals how Joe Buck’s internal tension derives from his materialism, symbolized as disembodied voices, and his devaluing of human connection and empathy, symbolized as faces. The voices from his radio’s advertisements and game shows reinforce his flawed assumptions about life. A midpoint …


Analyzing Rap Through Poetry: “Zen Scientist” By Milo & Kenny Segal, Mason S. Jensen Jan 2025

Analyzing Rap Through Poetry: “Zen Scientist” By Milo & Kenny Segal, Mason S. Jensen

Anthós

milo, now known as R.A.P. Ferraria, has described his music as synonymous with poetry. This article examines his song “zen scientist,” testing the linkage of poetry and rap through poetic analysis. Jensen analyzes the song through metrical systems, marking it in scansion, poetic feet, and rhyme to delineate rhythm and to show how rhythm is created and experimented with. Jensen then applies Vendler and Chan’s methods for deriving poetic meaning, providing potential interpretations of “zen scientist.” Jensen argues these poetic methods dissect the rap song into perspicuity. The article concludes that poetic analysis can be used effectively to analyze rap …


Seizing The Moment: Post-Covid-19 Enrollment Trends Among Nontraditional Honors Students, Solomon Aleph Jan 2025

Seizing The Moment: Post-Covid-19 Enrollment Trends Among Nontraditional Honors Students, Solomon Aleph

Anthós

This article investigates the motivations behind the rising enrollment of nontraditional students at Portland State University’s Honors College, which nearly doubled from 2019 to 2022 following the COVID-19 pandemic. Aleph argues that nontraditional students viewed education as a means of reclaiming agency and reshaping their futures. Through interviews and a focus group with four nontraditional students, Aleph explores how the pandemic created disruption and opportunities. The study finds that while economic instability and isolation were factors, intrinsic motivations—especially a desire for self-improvement, intellectual challenge, and rewriting personal narratives—were more prominent factors shaping enrollment decisions. Drawing from this qualitative analysis, Aleph …


Minoru’S Mecca: The World Trade Center, 9/11, And The End Of Architectural Modernism, Henry D. Senters Jan 2025

Minoru’S Mecca: The World Trade Center, 9/11, And The End Of Architectural Modernism, Henry D. Senters

Anthós

From 1966 until 2001, the World Trade Center complex and its skyscraper Twin Towers were a defining architectural feature of New York City and a landmark in architectural modernism. Minoru Yamasaki, the project’s architect, intended the massive complex to be a “mecca” that drew in and inspired urban workers, exemplifying the Islamic architectural language that he incorporated into his architecture. In this article, Senters examines how architectural criticism evolved while the towers stood and after they were destroyed in the 9/11 terrorist attack. Tracking early reviews, hopeful about the complex’s trade-promoting purpose, and the perennial—though limited—negative reception of the complex’s …


Young Adults’ Views On Personal Death, Victor N. Soto Jan 2025

Young Adults’ Views On Personal Death, Victor N. Soto

Anthós

Within academic discussions of death and dying, there is a deficit of qualitative studies on how young adults view personal death. This article explores young adults’ (18-24) views on personal death using inductive coding of the transcriptions of three 1:1 interviews and one focus group. Soto’s findings show that young adults view their personal death in three ways: 1) they reflect on family death experiences as frames of reference for personal death, 2) they rely on a life well- lived to ease anxiety around personal death, and 3) they use humor as a coping mechanism in thinking about and discussing …


Proper Conjugation Of Bodies: Chastity, Age, And Care Work In Sri Lankan Migrants’ Families, Michele Ruth Gamburd Jan 2025

Proper Conjugation Of Bodies: Chastity, Age, And Care Work In Sri Lankan Migrants’ Families, Michele Ruth Gamburd

Anthropology Faculty Publications and Presentations

Physical and symbolic aspects of bodies limit the migration trajectories of female domestic workers from a Buddhist community in coastal Sri Lanka. Government regulations and family decisions regarding women’s overseas labour draw upon and in turn influence discourses about gender, sexuality, age, health, and class. This ethnographic analysis illustrates that local norms task women with nurturing the brains of babies, preserving the chastity of teenage daughters, caring for frail elders, and preventing their working-class husbands from overindulging in liquor or having sex with other women. Successful social reproduction depends on the proper conjunctions of bodies in the extended family. Corporeal …


Rock: Riesz Occupation Kernel Methods For Learning Dynamical Systems, Victor W. Reilly, Chau Nguyen, Kamel Lahouel, Anthony Kolshorn, Nicholas Fisher, Bruno Jedynak Jan 2025

Rock: Riesz Occupation Kernel Methods For Learning Dynamical Systems, Victor W. Reilly, Chau Nguyen, Kamel Lahouel, Anthony Kolshorn, Nicholas Fisher, Bruno Jedynak

Mathematics and Statistics Faculty Publications and Presentations

We present a representer theorem for a large class of variational problems, generalizing regression, finite element methods, and providing techniques for learning partial and ordinary differential equations (PDEs and ODEs). We apply our formulation to the multivariate occupation kernel method (MOCK) for learning dynamical systems from data. Our generalized method outperforms the MOCK method on most tested datasets, while often requiring considerably fewer parameters. Experiments are presented for learning ODEs and PDEs.


Mock: An Algorithm For Learning Nonparametric Differential Equations Via Multivariate Occupation Kernel Functions, Victoria A. Rielly, Kamel Lahouel, Ethan Lew, Nicholas Fisher, Vicky Geneva Haney, Michael Wells, Bruno M. Jedynak Jan 2025

Mock: An Algorithm For Learning Nonparametric Differential Equations Via Multivariate Occupation Kernel Functions, Victoria A. Rielly, Kamel Lahouel, Ethan Lew, Nicholas Fisher, Vicky Geneva Haney, Michael Wells, Bruno M. Jedynak

Mathematics and Statistics Faculty Publications and Presentations

Learning a nonparametric system of ordinary differential equations from trajectories in a -dimensional state space requires learning functions of variables. Explicit formulations often scale quadratically in unless additional knowledge about system properties, such as sparsity and symmetries, is available. In this work, we propose a linear approach, the multivariate occupation kernel method (MOCK), using the implicit formulation provided by vector-valued reproducing kernel Hilbert spaces. The solution for the vector field relies on multivariate occupation kernel functions associated with the trajectories and scales linearly with the dimension of the state space. We validate through experiments on a variety of simulated and …


The Matryoshka Doll Prior – Principled Multiplicity Correction In Bayesian Model Comparison, Andrew Womack, Daniel Taylor-Rodríguez, Claudio Fuentes Jan 2025

The Matryoshka Doll Prior – Principled Multiplicity Correction In Bayesian Model Comparison, Andrew Womack, Daniel Taylor-Rodríguez, Claudio Fuentes

Mathematics and Statistics Faculty Publications and Presentations

This paper introduces a general and principled construction of model space priors with a focus on regression problems. The proposed formulation regards each model as a “local” null hypothesis whose alternatives are the set of models that nest it. Assuming constant ratio of prior probabilities for any “local” null and its alternatives provides a natural isomorphism of model spaces (like a matryoshka doll), constituting an intuitive way to correct for multiplicity in Bayesian model selection and averaging problems. This isomorphism yields the Poisson distribution as the unique limiting distribution over model dimension under mild assumptions. We compare this model space …


Consumption Pressure In Estuaries Peaks At Intermediate Salinities, Catherine E. De Rivera, Amy A. Larson, Benjamin G. Rubinoff, Luna R. Soto, Seth L. Wright, Edwin D. Grosholz, Gregory M. Ruiz, Andrew L. Chang Jan 2025

Consumption Pressure In Estuaries Peaks At Intermediate Salinities, Catherine E. De Rivera, Amy A. Larson, Benjamin G. Rubinoff, Luna R. Soto, Seth L. Wright, Edwin D. Grosholz, Gregory M. Ruiz, Andrew L. Chang

Environmental Science and Management Faculty Publications and Presentations

The nature and strength of biotic interactions change along stress gradients, but the importance of these interactions across estuarine gradients is under studied. Here, we examined how consumption varies across estuarine salinity gradients by deploying standardized baits (‘squidpops’) to measure consumption pressure along the gradients of five estuaries in Oregon, USA. The relationship between consumption and stress was nonlinear: consumption pressure peaked slightly at mid salinity and decreased at low salinity, especially as temperature increased, in the five estuaries studied. This finding does not support either of two existing models for consumption across gradients, including the Consumer Stress Model and …


Fueling Adaptation: Collaborative Wildfire Governance In The Colorado Front Range Landscape, Mahmood Muttaqee, Cody Evers, Lindsay K. Campbell, Max Nielsen-Pincus, Olivia Awbrey, Kathryn Hixson, Michelle Johnson, Erika Svendsen Jan 2025

Fueling Adaptation: Collaborative Wildfire Governance In The Colorado Front Range Landscape, Mahmood Muttaqee, Cody Evers, Lindsay K. Campbell, Max Nielsen-Pincus, Olivia Awbrey, Kathryn Hixson, Michelle Johnson, Erika Svendsen

Environmental Science and Management Faculty Publications and Presentations

Collaborative governance plays a critical role in wildfire risk mitigation efforts. This study examines collaborative wildfire governance networks within the Colorado Front Range, a landscape that was designated under the USDA Forest Service's Wildfire Crisis Strategy (WCS). Collaborative governance networks in the Colorado Front Range leverage partnerships across multiple organizational actors including federal, state, and local agencies, non-profits, fire districts, and research institutions. Through survey data collected from 281 respondents revealing a collaborative network of 401 organizations, the study aimed to identify the structure, capacity, and gaps in governance networks addressing wildfire risk in the Colorado Front Range. Survey results …


Urban Heterogeneity Drives Dissolved Organic Matter Sources, Transport, And Transformation From Local To Macro Scales, Rebecca L. Hale, Kristina G. Hopkins, Krista A. Capps, John S. Kominoski, Jennifer L. Morse, Allison H. Roy, Shuo Chen, Annika Quick, Andrew J. Blinn, Liz Ortiz Muñoz, Gwendolynn Folk Jan 2025

Urban Heterogeneity Drives Dissolved Organic Matter Sources, Transport, And Transformation From Local To Macro Scales, Rebecca L. Hale, Kristina G. Hopkins, Krista A. Capps, John S. Kominoski, Jennifer L. Morse, Allison H. Roy, Shuo Chen, Annika Quick, Andrew J. Blinn, Liz Ortiz Muñoz, Gwendolynn Folk

Environmental Science and Management Faculty Publications and Presentations

Urbanization reshapes dissolved organic matter (DOM) sources, transport, and transformations through changes in vegetation, hydrology, and management of waste and water. Yet the impacts of urbanization on DOM are variable within and among cities. Predicting heterogeneous responses to urbanization is challenged by diverse human activities and underlying biophysical variation along stream networks. Using data from the 486 largest urban areas in the continental United States and seven focal cities, we identified macro and local scale urban gradients in social, built, and biophysical factors that are expected to shape DOM. We used these gradients and the literature to develop hypotheses about …


The Fascist Economic Paradox: Countering And Co-Opting Capitalism And Socialism In Interwar Europe, Vicente Pérez Catalán Jan 2025

The Fascist Economic Paradox: Countering And Co-Opting Capitalism And Socialism In Interwar Europe, Vicente Pérez Catalán

History Undergraduate Departmental Honors Theses

One of the ambiguities within the study of fascism and political history in the 20th century is defining, in logical terms, the development of a coherent fascist economic identity. Three fascist governments will be examined in this project, Nazi Germany, Fascist Italy, and Vichy France, with the goal of understanding if there is indeed a distinction on their exertion of economic power as opposed to other ideological systems that could aid outlining fascism not merely as a political or philosophical doctrine, but perhaps also an economic one.

This study examines the political background prior to the formation of the three …


Disability In Exile: The "Union Of Russian Invalids" In Interwar Bulgaria And Yugoslavia, Evguenia Davidova Jan 2025

Disability In Exile: The "Union Of Russian Invalids" In Interwar Bulgaria And Yugoslavia, Evguenia Davidova

History Faculty Publications and Presentations

This article examines the post-war experience of a specific group of war veterans: the Russian refugees after the October Revolution in 1917. What happened when disabled veterans were stateless and dispersed among several foreign states? The focus is on comparing interwar Bulgaria and Yugoslavia, two countries on opposite sides of the Great War. There the refugees established various societies, mostly dominated by the military. Drawing on unpublished archival sources, this article investigates how the Russian societies for disabled persons functioned at four levels: amid the other Russian associations in Bulgaria and Yugoslavia; among the greater diaspora known as “Russia Abroad”; …


Map Marker Accuracy: Evaluating Spatial Data Quality In A Simplified Mapping Survey, Christopher Sean Ghormley Jan 2025

Map Marker Accuracy: Evaluating Spatial Data Quality In A Simplified Mapping Survey, Christopher Sean Ghormley

Masters in GIS Practicum Reports

Collecting spatial information using maps is a recurring need in research and policy (Evers, 2020; Gottwald et al., 2016; Hitchins, 2018; Tang & Liu, 2016). Survey participants frequently abandon map-based surveys at the first mapping task (Poplin, 2015). In his survey of wildfire risk management personnel, Evers (2020) applied a simplified web-mapping interface that uses circles as the sole input geometry for all spatial representations. The current project examines an updated version of this web map. An anonymous survey gathered data from participants who completed six mapping exercises within Portland, Oregon, and provided feedback on the survey experience. A working …


Does Coil Build Social Capital? Trust, Tolerance, And Political Engagement Among Students In The Usa And Uae, Lindsay J. Benstead, Kristina Katsos, Sally S. Mudiamu, Corinne Hughes Jan 2025

Does Coil Build Social Capital? Trust, Tolerance, And Political Engagement Among Students In The Usa And Uae, Lindsay J. Benstead, Kristina Katsos, Sally S. Mudiamu, Corinne Hughes

Politics and Global Affairs Faculty Publications and Presentations

Despite technological innovation and the COVID-19 pandemic, there is a dearth of experimental research on the effects of virtual instruction. Using an original field experiment conducted among 100 UAE and USA students, we investigate how a Collaborative Online International Learning (COIL) project on international development shapes social trust, tolerance, and political engagement. In an experimental design, UAE-based students were randomly assigned to a group with either their classmates or, through online interaction, with USA-based students, while in a quasi-experimental design, USA-based students collaborated online with UAE-based students. UAE-based COIL students developed greater interpersonal trust of others in their society, but …


Will Malaysia Become An Active Middle Power?, Bruce Gilley Jan 2025

Will Malaysia Become An Active Middle Power?, Bruce Gilley

Politics and Global Affairs Faculty Publications and Presentations

Malaysia’s economic growth and democratisation since 2003 have vaulted it into the ranks of the middle powers in the international system. However, Malaysia remains hesitant about its middle power status. It has assumed a counterhegemonic or pro-multipolarity role; it has supported some new international rules and institutions; it leads regional governance institutions; and it advocates for small countries on development issues. However, these middle power behaviours are countered by a continuation of traditional Malaysia diplomacy which is inactive in shaping the emergence of superpower China as well as being disruptive and personalistic, most recently because of its embrace of radicalisms. …


Book Review Of, Form Follows Fever: Malaria And The Construction Of Hong Kong, 1841-1849, Shawn Smallman Jan 2025

Book Review Of, Form Follows Fever: Malaria And The Construction Of Hong Kong, 1841-1849, Shawn Smallman

Politics and Global Affairs Faculty Publications and Presentations

Book Review of: Form Follows Fever: Malaria and the Construction of Hong Kong, 1841-1849. By Christopher Cowell. (Shaw Tin, NT., Hong Kong, Chinese University of Hong Kong Press, 2024. 320 pp.)


Capital Structure And Business Failure: The Collapse Of Canada’S Dome Petroleum, Bruce Gilley Jan 2025

Capital Structure And Business Failure: The Collapse Of Canada’S Dome Petroleum, Bruce Gilley

Politics and Global Affairs Faculty Publications and Presentations

In popular lore, the failure of Canada’s once-biggest company, Dome Petroleum, was caused by the interventionist policies of the federal government or its misadventures drilling for oil in the Arctic. But these factors acted in varied ways on the company. Rather, corporate finance theories offer more insight into the dynamics that led to Dome’s takeover by the American oil major Amoco in 1988. Dome was unique in its unwillingness to issue new share capital during its growth phase and instead relied on easy debt financing. This in turn was a result of both insider preferences as well as capital market …


Pathos, Winter 2025, Portland State University. Student Publications Board Jan 2025

Pathos, Winter 2025, Portland State University. Student Publications Board

Pathos

Editor: Adriana Stanzione


Displaced: Distinguishing Housing Outcomes From Judicial Outcomes In Oregon’S Eviction Cases, Colleen Carroll, Minji Cho, Lisa K. Bates Jan 2025

Displaced: Distinguishing Housing Outcomes From Judicial Outcomes In Oregon’S Eviction Cases, Colleen Carroll, Minji Cho, Lisa K. Bates

Urban Studies and Planning Faculty Publications and Presentations

In an eviction case, the tenant’s housing outcome refers to whether the tenant remains in their home (the unit) at the end of the eviction process. At the end of the eviction process, either the tenant remained in the home or was displaced. Unfortunately, housing outcomes are not systematically recorded as part of the eviction process. In some cases, the tenant’s housing outcome is recorded in the case records or court documents, but this is not always consistent. To address this, we developed three categories of housing outcomes—remained, displaced, and undeterminable—to measure the outcomes of eviction cases filed in Multnomah …


Subito 2025, Portland State University. School Of Music & Theater Jan 2025

Subito 2025, Portland State University. School Of Music & Theater

Subito: Student Voices from Portland State University School of Music & Theater

Issue 8, Spring 2025

Explore the boundless creativity and passionate inquiry within this year's journal. Topics range from microtonal tuning systems unrestricted by cultural boundaries, to creative tips from composer and interdisciplinary artists, to analysis of Arvo Pärt and poetic ruminations of singing Beethoven's 9th.


Spiritual Exercises In Novarodok Mussar And The Early Work, Martin Zwick Jan 2025

Spiritual Exercises In Novarodok Mussar And The Early Work, Martin Zwick

Complex Systems Faculty Publications and Presentations

This paper compares aspects of the teachings launched in pre-revolutionary and revolutionary Russia of two spiritual figures: Rabbi Yoseph Yozel Horwitz and George Gurdjieff. Yozel founded the Novarodok school of Mussar within Judaism; Gurdjieff founded the spiritual tradition known as “the Work” or “Fourth Way.” There are of course great differences between Judaism and the Work, but some similarities might be expected between spiritual disciplines, especially similarities in practice as opposed to doctrine. This paper explores similarities of some spiritual exercises in the Mussar school of Novarodok and secondarily in later or other Mussar teachings and in the early Gurdjieff …


Guidelines For The Creation Of Accessible Consent Materials And Procedures: Lessons From Research With Autistic People And People With Intellectual Disability, Kelly B. Beck, Kristen T. Mackenziem, Anne V. Kirby, Ian Moura, Kaitlyn Breitenfeldt, Christina M. Nicolaidis, Shannon Roth, Multiple Additional Authors Jan 2025

Guidelines For The Creation Of Accessible Consent Materials And Procedures: Lessons From Research With Autistic People And People With Intellectual Disability, Kelly B. Beck, Kristen T. Mackenziem, Anne V. Kirby, Ian Moura, Kaitlyn Breitenfeldt, Christina M. Nicolaidis, Shannon Roth, Multiple Additional Authors

School of Social Work Faculty Publications and Presentations

Informed, voluntary, ongoing consent is a central tenet of ethical research. However, consent processes are prone to exclusionary practices and inaccessibility. Consent materials are often too long and complex to foster understanding and ensure that people make truly informed decisions to participate in research. While this complexity is problematic for all people, these challenges are compounded for autistic people and people with intellectual disability. Consent materials and procedures rarely incorporate accommodations for processing and communication differences common in autism and intellectual disability. Failure to provide such accommodations ultimately threatens the conduct of ethical research. We describe lessons learned across multiple …