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Articles 871 - 900 of 13953
Full-Text Articles in Entire DC Network
Young Adults’ Views On Personal Death, Victor N. Soto
Young Adults’ Views On Personal Death, Victor N. Soto
Anthós
Within academic discussions of death and dying, there is a deficit of qualitative studies on how young adults view personal death. This article explores young adults’ (18-24) views on personal death using inductive coding of the transcriptions of three 1:1 interviews and one focus group. Soto’s findings show that young adults view their personal death in three ways: 1) they reflect on family death experiences as frames of reference for personal death, 2) they rely on a life well- lived to ease anxiety around personal death, and 3) they use humor as a coping mechanism in thinking about and discussing …
Consumption Pressure In Estuaries Peaks At Intermediate Salinities, Catherine E. De Rivera, Amy A. Larson, Benjamin G. Rubinoff, Luna R. Soto, Seth L. Wright, Edwin D. Grosholz, Gregory M. Ruiz, Andrew L. Chang
Consumption Pressure In Estuaries Peaks At Intermediate Salinities, Catherine E. De Rivera, Amy A. Larson, Benjamin G. Rubinoff, Luna R. Soto, Seth L. Wright, Edwin D. Grosholz, Gregory M. Ruiz, Andrew L. Chang
Environmental Science and Management Faculty Publications and Presentations
The nature and strength of biotic interactions change along stress gradients, but the importance of these interactions across estuarine gradients is under studied. Here, we examined how consumption varies across estuarine salinity gradients by deploying standardized baits (‘squidpops’) to measure consumption pressure along the gradients of five estuaries in Oregon, USA. The relationship between consumption and stress was nonlinear: consumption pressure peaked slightly at mid salinity and decreased at low salinity, especially as temperature increased, in the five estuaries studied. This finding does not support either of two existing models for consumption across gradients, including the Consumer Stress Model and …
Fueling Adaptation: Collaborative Wildfire Governance In The Colorado Front Range Landscape, Mahmood Muttaqee, Cody Evers, Lindsay K. Campbell, Max Nielsen-Pincus, Olivia Awbrey, Kathryn Hixson, Michelle Johnson, Erika Svendsen
Fueling Adaptation: Collaborative Wildfire Governance In The Colorado Front Range Landscape, Mahmood Muttaqee, Cody Evers, Lindsay K. Campbell, Max Nielsen-Pincus, Olivia Awbrey, Kathryn Hixson, Michelle Johnson, Erika Svendsen
Environmental Science and Management Faculty Publications and Presentations
Collaborative governance plays a critical role in wildfire risk mitigation efforts. This study examines collaborative wildfire governance networks within the Colorado Front Range, a landscape that was designated under the USDA Forest Service's Wildfire Crisis Strategy (WCS). Collaborative governance networks in the Colorado Front Range leverage partnerships across multiple organizational actors including federal, state, and local agencies, non-profits, fire districts, and research institutions. Through survey data collected from 281 respondents revealing a collaborative network of 401 organizations, the study aimed to identify the structure, capacity, and gaps in governance networks addressing wildfire risk in the Colorado Front Range. Survey results …
Urban Heterogeneity Drives Dissolved Organic Matter Sources, Transport, And Transformation From Local To Macro Scales, Rebecca L. Hale, Kristina G. Hopkins, Krista A. Capps, John S. Kominoski, Jennifer L. Morse, Allison H. Roy, Shuo Chen, Annika Quick, Andrew J. Blinn, Liz Ortiz Muñoz, Gwendolynn Folk
Urban Heterogeneity Drives Dissolved Organic Matter Sources, Transport, And Transformation From Local To Macro Scales, Rebecca L. Hale, Kristina G. Hopkins, Krista A. Capps, John S. Kominoski, Jennifer L. Morse, Allison H. Roy, Shuo Chen, Annika Quick, Andrew J. Blinn, Liz Ortiz Muñoz, Gwendolynn Folk
Environmental Science and Management Faculty Publications and Presentations
Urbanization reshapes dissolved organic matter (DOM) sources, transport, and transformations through changes in vegetation, hydrology, and management of waste and water. Yet the impacts of urbanization on DOM are variable within and among cities. Predicting heterogeneous responses to urbanization is challenged by diverse human activities and underlying biophysical variation along stream networks. Using data from the 486 largest urban areas in the continental United States and seven focal cities, we identified macro and local scale urban gradients in social, built, and biophysical factors that are expected to shape DOM. We used these gradients and the literature to develop hypotheses about …
Disability In Exile: The "Union Of Russian Invalids" In Interwar Bulgaria And Yugoslavia, Evguenia Davidova
Disability In Exile: The "Union Of Russian Invalids" In Interwar Bulgaria And Yugoslavia, Evguenia Davidova
History Faculty Publications and Presentations
This article examines the post-war experience of a specific group of war veterans: the Russian refugees after the October Revolution in 1917. What happened when disabled veterans were stateless and dispersed among several foreign states? The focus is on comparing interwar Bulgaria and Yugoslavia, two countries on opposite sides of the Great War. There the refugees established various societies, mostly dominated by the military. Drawing on unpublished archival sources, this article investigates how the Russian societies for disabled persons functioned at four levels: amid the other Russian associations in Bulgaria and Yugoslavia; among the greater diaspora known as “Russia Abroad”; …
Displaced: Distinguishing Housing Outcomes From Judicial Outcomes In Oregon’S Eviction Cases, Colleen Carroll, Minji Cho, Lisa K. Bates
Displaced: Distinguishing Housing Outcomes From Judicial Outcomes In Oregon’S Eviction Cases, Colleen Carroll, Minji Cho, Lisa K. Bates
Urban Studies and Planning Faculty Publications and Presentations
In an eviction case, the tenant’s housing outcome refers to whether the tenant remains in their home (the unit) at the end of the eviction process. At the end of the eviction process, either the tenant remained in the home or was displaced. Unfortunately, housing outcomes are not systematically recorded as part of the eviction process. In some cases, the tenant’s housing outcome is recorded in the case records or court documents, but this is not always consistent. To address this, we developed three categories of housing outcomes—remained, displaced, and undeterminable—to measure the outcomes of eviction cases filed in Multnomah …
A Profile Of Sophomore Inquiry Students Fall 2025, Rowanna L. Carpenter
A Profile Of Sophomore Inquiry Students Fall 2025, Rowanna L. Carpenter
University Studies Assessment Research
In order to better understand the students who enroll in Sophomore Inquiry (SINQ) courses and begin to identify areas where they may need support, University Studies (UNST) began collecting and compiling data on these students. This report presents a profile of SINQ students from Fall 2025. It presents an overview of all students enrolled in SINQ during Fall 2025 and then summarizes information from the Prior Learning Survey. It is organized around three areas that contribute to student success: academic preparation and concern; financial and physical wellbeing; and connectedness to campus.
Citizen’S Rare Plant Watch, Nora Dunkirk, Gabriel Campbell, Kris Freitag
Citizen’S Rare Plant Watch, Nora Dunkirk, Gabriel Campbell, Kris Freitag
Rae Selling Berry Seed Bank and Plant Conservation Program
Rare species data for plants is lacking, hindering land management decisions and conservation outcomes. With Citizen's Rare Plant Watch, we empower citizen scientists to provide the “eyes on the ground” and collect data needed for conservation decision making in Oregon.
Language, People, Classrooms, World: Blending Disparate Theories For United Language Education Practices, Masatoshi Sato, Steven L. Thorne, Marije Michel, Theodora Alexopoulou, John Hellermann
Language, People, Classrooms, World: Blending Disparate Theories For United Language Education Practices, Masatoshi Sato, Steven L. Thorne, Marije Michel, Theodora Alexopoulou, John Hellermann
World Languages and Literatures Faculty Publications and Presentations
With a forward‐looking and problem‐solving mindset, this article aims to combine theoretical knowledge and empirical evidence from different schools of thought in the field of second language (L2) learning and teaching—namely, instructed second language acquisition, generative linguistics, and an ecological perspective that includes multiple frameworks. Acknowledging numerous fundamental differences in our theoretical and methodological perspectives on how to conduct research, we are united on two fronts: First, we believe that researchers with differing theoretical commitments can and should work together to advance L2 research. Second, differing theoretical beliefs are potentially of limited relevance to those who will implement our pedagogical …
Rising From The Ashes: Reading Impacts And The Effects Of Recovery Educational Services Following A Major Natural Disaster, Tiffanie Lousia Lambert
Rising From The Ashes: Reading Impacts And The Effects Of Recovery Educational Services Following A Major Natural Disaster, Tiffanie Lousia Lambert
Educational Leadership Professional Doctorate Dissertations
This Improvement Science Dissertation examined solutions to improving literacy outcomes for students in an elementary school that experienced a wildfire during the pandemic. School data revealed lagging reading growth among students displaced by the wildfire despite educational recovery efforts. A root cause analysis to understand students' limited reading recovery led to more global concerns about school-wide literacy programming and the limited use of evidence- based approaches. School-wide data revealed that fewer than 30% of students in the school met literacy benchmarks since the wildfire. Though the fires disproportionally impacted low-income neighborhoods with higher representation of English Learners and students receiving …
Beyond Traditional Education: Graduation Rates At An Alternative High School, Kayla Dawn Marie Crook
Beyond Traditional Education: Graduation Rates At An Alternative High School, Kayla Dawn Marie Crook
Educational Leadership Professional Doctorate Dissertations
The study addressed the problem of practice of improving on-time graduation rates for students in alternative education settings. Traditional educational systems often fail to meet the unique needs of students in alternative education programs, which could lead to increased barriers towards on-time graduation. Based on improvement science principles, this research utilized Plan-Do-Study-Act (PDSA) cycles to systematically test and refine prioritized change ideas to mitigate these barriers with the goal of increasing graduation rates at the focus school. These change ideas included improving social emotional learning through teacher coaching, personalizing attendance calls, and developing individualized student success plans. Through rapid iterative …
Growing Together: Strategies For Attracting And Retaining Community-Reflective Early Learning Professionals, Tonya Jo Coker
Growing Together: Strategies For Attracting And Retaining Community-Reflective Early Learning Professionals, Tonya Jo Coker
Educational Leadership Professional Doctorate Dissertations
The recruitment and retention of a diverse early learning workforce remains a critical challenge in special education. This study explores the multifaceted issues of workforce shortages, turnover rates, and the disparity between the demographics of educators and students in the Department of Early Learning within an education service district in Oregon. Through a detailed analysis of historical and current data, this study identifies systemic challenges contributing to the difficulty in attracting and retaining qualified staff, especially those who are representative of the communities they serve. Using improvement science as a methodological framework, the study tested change ideas focused on recruitment, …
Aquatic Invasive Species Survey And Treatment On Lake Umatilla And Lake Celilo 2023-2024 Report, Garbiel E. Campbell, Jacob Rose
Aquatic Invasive Species Survey And Treatment On Lake Umatilla And Lake Celilo 2023-2024 Report, Garbiel E. Campbell, Jacob Rose
Center for Lakes and Reservoirs Publications and Presentations
Flowering Rush (Butomus umbellatus) is an invasive aquatic plant in the Pacific Northwest that threatens salmon habitat. The Center for Lakes and Reservoirs staff surveyed for this and other aquatic species from 2023 and 2024 in the Columbia River in Lake Umatilla and Lake Celilo. This document summarizes their survey efforts including their protocols, data, and small-scale removal efforts.
Permafrost And Structural Controls On Holocene Bedrock Landslide Occurrence Around Eyjafjörður, North‐Central Iceland, Adam Booth, Halldór G. Pétursson
Permafrost And Structural Controls On Holocene Bedrock Landslide Occurrence Around Eyjafjörður, North‐Central Iceland, Adam Booth, Halldór G. Pétursson
Geology Faculty Publications and Presentations
Rapid, transient, landscape‐scale changes associated with deglaciation can condition slopes for failure and trigger bedrock landslides. However, the mechanisms leading to paleo rock slope failures following the last glacial period are challenging to infer because observations of how both landsliding and potential driving factors were distributed in space and time are limited. Here, we map and analyze the spatiotemporal pattern of 676 post‐glacial bedrock landslides around Eyjafjörður in north‐central Iceland using 2‐m resolution digital elevation data generated from optical stereo satellite imagery. Frequency‐ratio analysis demonstrates that after controlling for slope, landslides are most overrepresented within 2.6 km horizontal distances from …
The Petrology Of The Ozerki Meteorite Constrained By Electron Backscatter Diffraction And X-Ray Computed Tomography, Alice Macente, Luke Daly, Sammy Griffin, Maria Gritsevich, Jarmo Moilanen, Josh Franz Einsle, Patrick Trimby, Chris Mulcahy, Jonathan Moffat, Alexander M. Ruzicka
The Petrology Of The Ozerki Meteorite Constrained By Electron Backscatter Diffraction And X-Ray Computed Tomography, Alice Macente, Luke Daly, Sammy Griffin, Maria Gritsevich, Jarmo Moilanen, Josh Franz Einsle, Patrick Trimby, Chris Mulcahy, Jonathan Moffat, Alexander M. Ruzicka
Geology Faculty Publications and Presentations
Combining electron backscatter diffraction (EBSD) with X-ray computed tomography (XCT) offers a comprehensive approach to investigate shock deformation and rock texture in meteorites, yet such integration remains uncommon. In this study, we demonstrate the synergistic potential of XCT and EBSD in revealing deformation metrics, thereby enhancing our understanding of petrofabric strength and shock-induced deformation. Our analysis focuses on the Ozerki (L6, S4/5, W0) meteorite fall, which was instrumentally observed on June 21, 2018, and subsequently recovered by the Ural's branch of the Russian Fireball Network (UrFU) recovery expedition a few days later. The trajectory analysis conducted by the Finnish Fireball …
Global Patterns Of Coseismic Landslide Runout Mobility Differ From Aseismic Landslide Trends, Alex R. R. Grant, Natalie K. Culhane
Global Patterns Of Coseismic Landslide Runout Mobility Differ From Aseismic Landslide Trends, Alex R. R. Grant, Natalie K. Culhane
Geology Faculty Publications and Presentations
Coseismic landslides significantly contribute to human and economic losses during and immediately following earthquakes, yet very little data on the runout of such landslides exist. While well-established behavior of aseismic (e.g., hydrologically triggered) landslide runout mobility suggests strong correlation between landslide size and mobility, limited studies of coseismic landslide runout find conflicting mobility trends. We present a global dataset of runout lengths produced from a new automated method for estimating landslide runout, developed and validated using 1726 manually mapped landslides from five unique earthquakes. We then apply the automated runout tool to 23 global earthquake-induced landslide inventories, producing a compiled …
The Geography Of Rock Glaciers In The American West, Allison Reese Trcka, Andrew G. Fountain, Bryce Allen Glenn
The Geography Of Rock Glaciers In The American West, Allison Reese Trcka, Andrew G. Fountain, Bryce Allen Glenn
Geology Faculty Publications and Presentations
Rock glaciers are relatively common in conterminous United States west of the 100° meridian, yet their distribution and number are not well known. Using aerial and satellite imagery, we inventoried the population of rock glaciers, yielding 2,257 rock glaciers totaling 234.28 km2 with an area of uncertainty of 7 percent. Of these, 1,561 (155.44 km2) are considered intact (moving) and 696 (76.84 km2) relict. Based on published estimates of ice content, total water-equivalent volume is roughly 2.52 km3. Rock glacier elevations increase from the northwest (Washington) to the southeast (Colorado), following a spatial …
Historicity And Axiology: Temporal Implications For Axiology, Bennett Gilbert
Historicity And Axiology: Temporal Implications For Axiology, Bennett Gilbert
History Faculty Publications and Presentations
To develop the axiology of moral (or ethical) values, phenomenological analysis must look at temporality in a way that is unfamiliar to it. This way is through knowledge and experience of the actual historical past, from which it has been separated by the Heideggerian conception of historicity and its classical Husserlian analysis of time consciousness. The development of historical studies helps to make this possible. A simple sample model of the diachronesis of the awareness of ethical significance, value, and obligation is presented. It moves the analysis from a presentist focus to the field of experience in which subjects develop …
History’S Movement: The Historical Ontology In Social Ontology, Bennett B. Gilbert
History’S Movement: The Historical Ontology In Social Ontology, Bennett B. Gilbert
History Faculty Publications and Presentations
Social ontology and the philosophy of history both concern themselves with human collectives. Social ontology is supposed to be theoretical, although the social sciences are supposed to be empirical. Philosophy of history is supposed to be theoretical, although historiography is supposed to be empirical. In fact, the a priori and the a posteriori mix in both theoretical and empirical endeavors in similar ways. Since the two endeavors hold part of their objects of inquiry in common, they should be able to speak to another. In what follows I aim to expose some of the ways their dialogue stresses and can …
Interdependence And Identity: Moral Relation In An Historical World, Bennett B. Gilbert
Interdependence And Identity: Moral Relation In An Historical World, Bennett B. Gilbert
History Faculty Publications and Presentations
The twin concepts in the title will be introduced in the contexts of the philosophy of history and of philosophical personalism, as distinct from (though related to) their uses as logical and metaphysical categories. Overviews of varieties of philosophy of history and of basic principles I employ are foundations of the argument. Concepts, or ideas, in general have, I argue, real existence through the way that personal agents use them in creating the histories of human relations. I introduce a Personalist account, which has a more thoroughly diachronic character. Further remarks on the power of ideas to create relations expands …
Review: Dielectric Barrier Discharge Plasma Actuators For In-Flight Applications, Sabeel Saleem Mohammed
Review: Dielectric Barrier Discharge Plasma Actuators For In-Flight Applications, Sabeel Saleem Mohammed
Anthós
Dielectric barrier discharge (DBD) is a phenomenon observed when high voltage is passed through a dielectric barrier at high frequencies. Current DBD plasma actuators (PAs) excel at laminar fluid boundary layer control but suffer from limited momentum flux and fluid mechanic inefficiencies. In this article, Mohammed analyzes previous discourse on DBD PAs and offers directions for future research and potential DBD PA applications. Previous work on DBD PAs documented thrust generation at high voltages and frequencies, thrust in varying fluid compositions, and vortex generation. However, certain arrangements hinder flow magnitudes, limiting the use of multiple DBD PAs in close proximity. …
The Tyrant King Of The Auction House: The Disastrous “Fine Artification” Of The Dinosaur, Amelia C. Kolstad
The Tyrant King Of The Auction House: The Disastrous “Fine Artification” Of The Dinosaur, Amelia C. Kolstad
Anthós
This article examines how fine art auctioneers market dinosaur fossils as art pieces to wealthy collectors, depriving the paleontological field of specimens for scientific research. Drawing from recent examples of fossils sold at fine art auctions, this article notes how rising auction prices for specimens as ‘art’ prevent museums and research institutions from acquiring specimens for research and restoration. Kolstad concludes that the art auction houses’ marketing of fossils as art is detrimental to paleontological research. To protect fossils and their scientific value, Kolstad proposes alternatives, such as selling replicas to collectors and highlighting the importance of original specimens for …
Lift Force Measurements And Laser-Based Position Tracking On A Maglev Vehicle, Abigail Jolene Chable
Lift Force Measurements And Laser-Based Position Tracking On A Maglev Vehicle, Abigail Jolene Chable
Maseeh Summer Undergraduate Research Experience
Magnetic levitation (maglev) vehicles are transportation systems that float above a track using magnetic forces rather than traditional wheels This eliminates physical contact, reducing friction and enabling efficient, high-speed travel. A specific form of maglev, the Electrodynamic Wheel, uses wheels with embedded permanent magnets that rotate above a conductive aluminum track. As the wheels spin, their moving magnetic fields induce eddy currents in the track. These currents create opposing magnetic fields, producing both lift and drag. In this project, the EDW maglev platform consists of four brushless DC motor–driven wheels mounted on a small vehicle chassis designed to levitate above …
Statistical Analysis Of Atomic Crystal Structures In Highly Disordered Materials Using Python, Sabeel Saleem Mohammed
Statistical Analysis Of Atomic Crystal Structures In Highly Disordered Materials Using Python, Sabeel Saleem Mohammed
Maseeh Summer Undergraduate Research Experience
This python tool statistically analyzes the crystal structure properties of highly disordered materials by parsing an atomic coordinate file and identifying local polyhedra, then classifying them based on neighboring atom composition and geometry and calculating detailed structural statistics. This tool was applied to AgSbTe2 to correlate its lattice structure properties with its thermal conductivity. This tool provides the framework for linking atomic-scale disorder to material properties.
Exploring The Durability Of Marine Picocyanobacteria Micro-Colonies, Erik Swanson
Exploring The Durability Of Marine Picocyanobacteria Micro-Colonies, Erik Swanson
Maseeh Summer Undergraduate Research Experience
Synechococcus are primary-producing marine picocyanobacteria that play a critical role in global carbon cycling, oxygen production, and aquatic food webs. While these organisms typically exist as single cells, they form micro-colonies in response to environmental stress; however, the mechanisms governing micro-colony formation and their structural durability remain poorly understood. This study evaluated the durability of Synechococcus micro-colonies across two distinct strains (CC9605 and CC9311) under physical disruption methods, specifically vortexing and sonication. Population distributions and micro-colony abundances were quantified using flow cytometry (gated by chlorophyll and phycoerythrin fluorescence levels) and analyzed with FlowJo and RStudio. Contrary to the initial hypothesis …
Speed And Torque Analysis Of A Contra Rotating Magnetic Gear, Teresa Nguyen
Speed And Torque Analysis Of A Contra Rotating Magnetic Gear, Teresa Nguyen
Maseeh Summer Undergraduate Research Experience
This project is the testing and charicterization of a Contra Roatating magnetic gear mechanism. it is a pair of nested rings each comprised of alternating magnets that allows for transmision of torque without the "Gears" to actauly touch. testing was focused on pusging the mechanism to its thermal limit. a maximum speed of 2500 RPM before overheating. After disasembly it was discovered that one of the magnets was in the wrong orientation potenitaly reducing capabilities. it is also suggested to ivestigate possible error from the method of captruing torque data.
Largely Enhanced Out-Of-Plane Electromechanical Coupling Effects In Two-Dimensional Molybdenum-Disulfide/Boron-Nitride Heterostructures, Qiong Liu, Vijay Kumar Choyal, James E. Morris, Timon Rabczuk, Xiaoning Jiang, Xiaoying Zhuang
Largely Enhanced Out-Of-Plane Electromechanical Coupling Effects In Two-Dimensional Molybdenum-Disulfide/Boron-Nitride Heterostructures, Qiong Liu, Vijay Kumar Choyal, James E. Morris, Timon Rabczuk, Xiaoning Jiang, Xiaoying Zhuang
Electrical and Computer Engineering Faculty Publications and Presentations
The electromechanical coupling effects in two-dimensional (2D) transition metal dichalcogenides (TMDs) have attracted great interest. However, for 2D TMDs, piezoelectricity is confined to the basal plane, and the flexoelectricity-derived out-of-plane electromechanical response is usually faint, limiting the applications of this material family using the out-of-plane electromechanical effects. Here, this work reports a facile strategy to greatly enhance the out-of-plane electromechanical response of hexagonal molybdenum disulfide (2H-MoS2) nanoflakes by stacking monolayer hexagonal boron nitride (h-BN) on 2H-MoS2 nanoflakes to form MoS2/BN heterostructures. The deff/33 coefficient of MoS2/BN can reach a value comparable …
Ecobuoys For Scalable Oceanography, Anuscheh Nawaz, Michael Steele, Ruth Branch, David Burnett, Kuotian Liao, Mallory Parker, Eleftheria Roumeli
Ecobuoys For Scalable Oceanography, Anuscheh Nawaz, Michael Steele, Ruth Branch, David Burnett, Kuotian Liao, Mallory Parker, Eleftheria Roumeli
Electrical and Computer Engineering Faculty Publications and Presentations
An approach to scalable surface-drifting buoys is needed to enable the high spatial and temporal resolution of oceanographic data that the science and meteorological communities are asking for. With the number of active buoys predicted to increase by a factor of 100 or more, the impact on the environment becomes even more important. Here, we present a pathway to a scalable and sustainable generation of buoys. We identify the main criteria to be used when developing such buoys to be low cost, with reliable data and neutral or even positive environmental impact. For each buoy subsystem—hull, electronics, energy generation and …
Clea Labs For Planetary Astronomy Bottled For Silicon Macintosh, Yuktha Shetty, Hansika Reddy Bandela, Jack C. Straton
Clea Labs For Planetary Astronomy Bottled For Silicon Macintosh, Yuktha Shetty, Hansika Reddy Bandela, Jack C. Straton
Physics Faculty Publications and Presentations
Project CLEA -- CONTEMPORARY LABORATORY EXPERIENCES IN ASTRONOMY -- develops laboratory exercises that illustrate modern astronomical techniques using digital data and color images.
These Labs were developed for Windows, but the authors have bottled them for Silicon Macintosh computers.
Guidelines For The Creation Of Accessible Consent Materials And Procedures: Lessons From Research With Autistic People And People With Intellectual Disability, Kelly B. Beck, Kristen T. Mackenziem, Anne V. Kirby, Ian Moura, Kaitlyn Breitenfeldt, Christina M. Nicolaidis, Shannon Roth, Multiple Additional Authors
Guidelines For The Creation Of Accessible Consent Materials And Procedures: Lessons From Research With Autistic People And People With Intellectual Disability, Kelly B. Beck, Kristen T. Mackenziem, Anne V. Kirby, Ian Moura, Kaitlyn Breitenfeldt, Christina M. Nicolaidis, Shannon Roth, Multiple Additional Authors
School of Social Work Faculty Publications and Presentations
Informed, voluntary, ongoing consent is a central tenet of ethical research. However, consent processes are prone to exclusionary practices and inaccessibility. Consent materials are often too long and complex to foster understanding and ensure that people make truly informed decisions to participate in research. While this complexity is problematic for all people, these challenges are compounded for autistic people and people with intellectual disability. Consent materials and procedures rarely incorporate accommodations for processing and communication differences common in autism and intellectual disability. Failure to provide such accommodations ultimately threatens the conduct of ethical research. We describe lessons learned across multiple …