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Seton Hall University Dissertations and Theses (ETDs)

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Narratives Of Grief And Loss From The Children Who Lost A Parent On 9/11, Ryan Sliwak Aug 2024

Narratives Of Grief And Loss From The Children Who Lost A Parent On 9/11, Ryan Sliwak

Seton Hall University Dissertations and Theses (ETDs)

Limited research exists on the grief experiences of children who lost a parent on 9/11, particularly how these children evolve in their grief process, including their comprehension of the loss and their evolving attachment to the deceased parent (Kaplow et al., 2018; Alvis et al., 2022). Existing frameworks often assume post-traumatic reactions without fully considering the nuances of grief experiences for these children (Chemtob, 2007; Hoven, 2005).

Two research questions guided this study: (a) How does the pre-loss relationship with the parent influence the ongoing internal relationship with the deceased parent? (b) How does maintaining an internal relationship with the …


Analyzing The Cognitive Complexity Of The Questions On The Advanced Placement Computer Science Principles Exam, Lauren Zirpoli May 2024

Analyzing The Cognitive Complexity Of The Questions On The Advanced Placement Computer Science Principles Exam, Lauren Zirpoli

Seton Hall University Dissertations and Theses (ETDs)

This convergent parallel mixed methods study with qualitative and quantitative content analysis was conducted to analyze and describe the cognitive complexity of the publicly released Advanced Placement Computer Science Principles Exam questions compared to the language of higher-order thinking found in research literature. Hess’ Cognitive Rigor Matrix was used to determine the frequency and percentage of questions categorized as higher-order thinking within each cell of the matrix. The qualitative method consisted of content analysis of the language of each question analyzed, followed by deductive coding, and culminated with categorizing the depth and type of thinking required on Hess’ Cognitive Rigor …


Fluorescence-Based Techniques For The Identification Of Small Biomolecules, Charnette Frederic May 2024

Fluorescence-Based Techniques For The Identification Of Small Biomolecules, Charnette Frederic

Seton Hall University Dissertations and Theses (ETDs)

Understanding fluorescence-based methods for detecting small biomolecules is a crucial area of focus in research investigations. Our studies focused on the challenge in two parts: Non-intrinsic fluorescence and intrinsic fluorescence. For studies on Non-intrinsic fluorescence, Rifampicin (Rif), an antibiotic harnessed for treating diverse bacterial infections, including tuberculosis (TB), serves as a focal point. Leveraging the Systematic Evolution of Ligands by Exponential Enrichment (SELEX) process, aptamers emerged from the nonspecific 40-mer Deoxyribonucleic Acid (DNA) library to interact with its target, Rif. During each SELEX cycle, the recovered nucleotides underwent amplification via Polymerase Chain Reaction (PCR) until the most selective aptamers were …


Exploring The Design Space Of Antifungal Peptides, Miryam Kikhwa May 2024

Exploring The Design Space Of Antifungal Peptides, Miryam Kikhwa

Seton Hall University Dissertations and Theses (ETDs)

The synthesis, characterization, and evaluation of antifungal activity of peptides FQ15 and FG10 will be conducted to address the hypothesis. The hypothesis of this thesis is that a peptide with similar properties to AS15 would have similar activity against Cryptococcus neoformans. This study addresses the challenge of drug- resistant microbes by developing inhibitors targeting lipid flippase and exploring their potential as antimicrobial agents against Cryptococcus neoformans. Chapter 1 provides a historical context of the background on the development of antimicrobials and common antifungal treatments, as well as an introduction about C. neoformans and its resistance mechanism. Chapter 2 introduces the …


Silent, Or Silenced: Repression Of The Middle Eastern Subaltern, Amanda Arodes May 2024

Silent, Or Silenced: Repression Of The Middle Eastern Subaltern, Amanda Arodes

Seton Hall University Dissertations and Theses (ETDs)

This paper employs subaltern theory to examine the socio-political landscapes of Palestine and Syria within postcolonial discourse. Drawing from the works of scholars like Gayatri Chakravorty Spivak, Ranajit Guha, and Juan R. Cole, this study uncovers the silenced narratives and marginalized perspectives of the Palestinian and Syrian people. Through a critical analysis of historical, cultural, and political dimensions, the basis of this research explores how subaltern groups in Palestine and Syria navigate structures of power, resistance, and identity formation. The experiences of various subaltern groups, including refugees, women, and ethnic minorities whose voices often remain obscured within dominant discourses are …


Locked-In Learning: Honorlock And Surveillance Capitalism In The First Year Writing Department, Tehyah Carver May 2024

Locked-In Learning: Honorlock And Surveillance Capitalism In The First Year Writing Department, Tehyah Carver

Seton Hall University Dissertations and Theses (ETDs)

This paper explores the impact of implementing the proctoring software Honorlock in the collegiate writing classroom. Through a framework inspired by Shoshana Zuboff’s The Age of Surveillance Capitalism and Foucault’s Discipline and Punish, the investigation analyzes the efficacy of Honorlock’s attempts to reduce plagiarism and student test-taking anxiety when applied to preliminary writing assessments in Seton Hall University’s First Year Writing program. With professor interviews, surveys, and observations, the paper exposes the flaws of Honorlock’s promise of student empowerment and honesty by dissecting the punitive language used in their marketing material to potential and current consumers, administrators and professors. …


Non-Destructive Determination Of Surface Area In Reverse Phase Chromatographic Columns, Margaret Figus May 2024

Non-Destructive Determination Of Surface Area In Reverse Phase Chromatographic Columns, Margaret Figus

Seton Hall University Dissertations and Theses (ETDs)

Excess adsorption isotherms of acetonitrile and methanol from water were measured on eight commercial columns. Columns used in this study represent the latest examples in column development and include three different poroshell columns (Kinotex C18, Ascentis C18, and Halo C18) as well as conventional columns with significantly different adsorbent geometries (Allure C18, YMC C18) and various hybrid-silica columns (Gemini C18, Xterra C18, and XBridge C18). Comparison of the excess adsorption isotherms measured on all these columns and expressed in surface-specific form demonstrated significant similarity of the adsorption properties of all columns, which allows the introduction of the Standard Excess Adsorption …


“Class And Consciousness”: An Application Of Marxist Theory And Posthumanism To Kazuo Ishiguro’S The Remains Of The Day, Never Let Me Go And Klara And The Sun, Renee Elizabeth Samuel May 2024

“Class And Consciousness”: An Application Of Marxist Theory And Posthumanism To Kazuo Ishiguro’S The Remains Of The Day, Never Let Me Go And Klara And The Sun, Renee Elizabeth Samuel

Seton Hall University Dissertations and Theses (ETDs)

Kazuo Ishiguro’s works are introspective explorations of how one’s prescribed role in society shapes one’s identity; this self-reflection is evident in three of his novels, The Remains of the Day, Never Let Me Go, and Klara and the Sun. All three novels heavily rely on the point of view of a member of the subservient class, and this perspective provides insight into the unnamed hierarchies within society and the relationship, or lack thereof, between divided classes. Despite their similarities in structure, each novel explores class relationships in different ways. The Remains of the Day focuses on an individual living …


Exploring Hispanic Immigrant Parents Literacy Needs In Navigating Life With Children In The United States, Michelle Lowry May 2024

Exploring Hispanic Immigrant Parents Literacy Needs In Navigating Life With Children In The United States, Michelle Lowry

Seton Hall University Dissertations and Theses (ETDs)

The responsibility of raising a child is demanding on all parents, but immigrant parents with limited literacy skills in English may find parenting even more demanding than native born parents. Hispanic immigrant parents are rarely consulted about their literacy needs. Furthermore, they are often overlooked as experts on their own needs. Using two of the most widely accepted models of literacy, The Simple View of Writing and The Simple View of Reading, this study explored Hispanic immigrant parents' literacy needs in the United States. The current study was conducted on N=30 Hispanic Immigrant parents, ages early 30s to mid 70s. …


Exploring The Perceptions Of Adolescents And Young Adults With Sickle Cell Disease Regarding The Use Of A Mhealth Technology App To Support Their Transition From Pediatric To Adult Care And Adult Self-Management Practices, Jamillah Mansaray May 2024

Exploring The Perceptions Of Adolescents And Young Adults With Sickle Cell Disease Regarding The Use Of A Mhealth Technology App To Support Their Transition From Pediatric To Adult Care And Adult Self-Management Practices, Jamillah Mansaray

Seton Hall University Dissertations and Theses (ETDs)

Background and Purpose of the Study: The transition from pediatric to adult self- care management practices for Adolescents and Young Adults (AYAs) with SCD is a pivotal period in their life. According to the literature, there is a positive interest and intention toward utilizing mHealth technology apps to support the transition and adult self-management practices. However, mHealth technology apps with appropriate SCD transition and adult self-management features does not currently exist for the AYA population and has not been reported on in the literature. The purpose of thisembedded mixed method study is to explore in AYA’s with SCD, …


A Content Analysis: Girls And Young Women In Computer Science, Wilma Ann Anderson May 2024

A Content Analysis: Girls And Young Women In Computer Science, Wilma Ann Anderson

Seton Hall University Dissertations and Theses (ETDs)

The national conversation about STEM education continues. While math and science have been a constant in K–12 and higher education, curriculum in technology and engineering have not been consistently part of the tapestry of American education. As such, there is a dearth of qualified candidates for the ever-growing number of computer science and engineering career opportunities. Prevailing stereotypes that depict the typical workforce in these industries as White and male contribute to the lack of representation of other groups. This study focused on the representation of girls and young women in computer science between the years of 2005–2018. Data tracking …


Understanding The Role Of Academic Advising And Student Resilience In Male College Students' First-Year Retention: Differences By Race/Ethnicity, Brittany K. Gogates May 2024

Understanding The Role Of Academic Advising And Student Resilience In Male College Students' First-Year Retention: Differences By Race/Ethnicity, Brittany K. Gogates

Seton Hall University Dissertations and Theses (ETDs)

Institutions of higher education continue to struggle with retaining and graduating students within 6 years, and gender and racial/ethnic disparities are apparent. Only 60% of male and 67% of female students who entered a 4-year institution in 2014 graduated within 6 years (U.S. Department of Education, 2022). In 2022, only 27.6% of Black and 20.9% of Hispanic/Latino Americans between ages 25 and 29 have completed a baccalaureate degree (U.S. Census Bureau, 2023). For those students who entered college in fall 2017, Black students had the lowest first-year retention of 52.1%, and Hispanic/Latino students were not far ahead, with a 59.5% …


Mythos And Meaning: Medieval Appropriations Of Mythological Types In The Consolation Of Philosophy And Later Western Literatures, Francis J. Hunter May 2024

Mythos And Meaning: Medieval Appropriations Of Mythological Types In The Consolation Of Philosophy And Later Western Literatures, Francis J. Hunter

Seton Hall University Dissertations and Theses (ETDs)

Often referred to as the last Roman and first medieval, Boethius, author of The Consolation of Philosophy, has been widely received as an unoriginal philosopher who sought to preserve Platonic thought as the Western Roman Empire fell. However, this essay features an investigation into the literary originality of Boethius who initiates a line of Christian and Platonic literatures to follow in the medieval European tradition. Boethius demonstrates himself to be a poet who makes great use of philosophy rather than as a philosopher writing poetry. Boethius’ poetic influence is felt most strongly in major aspects of Dante’s Divine Comedy and …


Unseen Battles, Academic Frontlines: The Impact Of Military Experience On Student Veteran Persistence In Private Higher Education, Julius W. Moore Ii May 2024

Unseen Battles, Academic Frontlines: The Impact Of Military Experience On Student Veteran Persistence In Private Higher Education, Julius W. Moore Ii

Seton Hall University Dissertations and Theses (ETDs)

The purpose of this qualitative study was to understand how ten student veterans persist after entering private, 4-year institutions of higher education during or following their military service. The study’s conceptual framework, drawing from Vacchi’s Model of Student Veteran Support (2011, 2013), employs a narrative approach to spotlight the varied backgrounds and identities of the student veteran population. This research uncovers significant findings through the restorying of participants’ narratives and employing multiple rounds of coding—including deductive, open, in vivo, and process coding. These findings highlight the critical role of Adaptation to Academic Life, which emphasizes the veterans’ ability to adjust …


Understanding Medical Students' Perceived Readiness To Serve As Culturally Competent Practitioners, Michel'le Janae Bryant May 2024

Understanding Medical Students' Perceived Readiness To Serve As Culturally Competent Practitioners, Michel'le Janae Bryant

Seton Hall University Dissertations and Theses (ETDs)

Background: The US population is more culturally diverse than ever. Although advancements have been made in improving the nation’s overall health, health disparities continue among different racial and ethnic groups. To promote person-centered care practices, medical students must be ready to serve diverse patient populations and provide equitable care. Despite their training, some medical students report feeling unprepared to treat diverse patient populations, potentially impacting their clinical practice and patient care outcomes.

Purpose: This study’s purpose was to explore the perceived readiness of final-year medical students in the US to provide culturally competent care utilizing the Readiness Theory and The …


The Experiences Of Staff Nurses Who Remained In Their Permanent Positions During The Covid-19 Pandemic, Huifang Cheng Apr 2024

The Experiences Of Staff Nurses Who Remained In Their Permanent Positions During The Covid-19 Pandemic, Huifang Cheng

Seton Hall University Dissertations and Theses (ETDs)

Amidst the persistent shortage of practicing nurses in the nursing profession, exacerbated by the unprecedented challenges of the COVID-19 pandemic, this study investigates the experiences of permanent staff nurses during the pandemic, with a specific focus on the factors influencing their decision to remain in their roles despite the adversities. Employing a phenomenological approach, in-depth interviews were conducted with thirteen permanent staff nurses to explore the intricacies of their experiences. Throughout the pandemic, the participants encountered profound ethical dilemmas. However, their determination to persist was fueled by a sense of professional duty, solidarity within their professional community, and deep camaraderie …


The Role Of Evidence-Based Practice In The Decision-Making Processes Of School-Based Speech-Language Pathologists, James Farley Mar 2024

The Role Of Evidence-Based Practice In The Decision-Making Processes Of School-Based Speech-Language Pathologists, James Farley

Seton Hall University Dissertations and Theses (ETDs)

The American Speech-Language-Hearing Association (ASHA) encourages speech- language pathologists (SLPs) to implement evidence-based practice (EBP) in clinical decision- making processes. Through the utilization of EBP, SLPs increase their ability to make informed decisions and recommendations for treatment. Despite ASHA’s position that EBP is necessary to ensure the provision of high-quality care, there is conflicting evidence as to how consistently SLPs in public middle schools implement it. The purpose of this study was to explore the degree to which middle school-based SLPs use EBP for determining student eligibility for speech- language services and in their decision-making processes. For this qualitative study, …


Exploring Practices Of Board-Certified Pediatric Clinical Specialst Physical Therapists In Addressing Needs Of Children Diagnosed With Autism Spectrum Disorder, Olga Chaikovsky Mar 2024

Exploring Practices Of Board-Certified Pediatric Clinical Specialst Physical Therapists In Addressing Needs Of Children Diagnosed With Autism Spectrum Disorder, Olga Chaikovsky

Seton Hall University Dissertations and Theses (ETDs)

ABSTRACT

Background: Autism spectrum disorder (ASD) is a complex condition affecting multiple domains of development. Physical Therapists (PTs) are members of the interprofessional team addressing the needs of individuals with ASD. A lack of uniformity in evidence-based assessments and practices employed by therapists to address the needs of children with ASD exists in the literature. PTs often implement approaches that are not evidence-based but rather learned from more experienced professionals or discovered by trial and error.

Pediatric clinical specialist physical therapists (PCSPTs) are PTs who possess advanced education and clinical skills in Pediatrics. As pediatric experts, PCSPTs play a major …


A Thematic Analysis Of The Experiences Of Black Female Coaches’ Evolution In Women’S College Basketball, Jessica E. Jones Feb 2024

A Thematic Analysis Of The Experiences Of Black Female Coaches’ Evolution In Women’S College Basketball, Jessica E. Jones

Seton Hall University Dissertations and Theses (ETDs)

According to the NCAA Demographics database, among the Division I, Division II, and Division III teams' women's basketball rosters for the 2020-2021 season, Black women only held 12% of head coaching positions, while White women held 45% of head coaching positions. The statistics should raise concern as Black and other female athletes of color make up 50% of NCAA's basketball rosters across all three divisions but they do not transition into coaching or leadership positions.

The current study explored the lived experiences of Black female coaches in NCAA women's basketball, including their career advancement, experiences as coaches, and their perception …


A Content Analysis Of Title Ix Sexual Misconduct Violations Using The Office For Civil Rights Investigative Findings For Higher Education In New Jersey, Monise Princilus Dec 2023

A Content Analysis Of Title Ix Sexual Misconduct Violations Using The Office For Civil Rights Investigative Findings For Higher Education In New Jersey, Monise Princilus

Seton Hall University Dissertations and Theses (ETDs)

Submitted already


An Interdisciplinary Education And Service Bundle To Reduce Hospital Resource Utilization And Decrease Pediatric Asthma-Related Morbidity And Mortality, Emily Yates Dec 2023

An Interdisciplinary Education And Service Bundle To Reduce Hospital Resource Utilization And Decrease Pediatric Asthma-Related Morbidity And Mortality, Emily Yates

Seton Hall University Dissertations and Theses (ETDs)

The purpose of this quality improvement project was to reduce hospital resource utilization and improve health outcomes for children with asthma by providing an evidence-based, interdisciplinary education and service bundle to patients and families admitted to a Children’s Hospital in Northern New Jersey with a primary diagnosis of asthma. The 2020 Asthma Management Guidelines published by the U.S. Department of Health and Human Services (2020), the Global Initiative for Asthma (GINA) and a modified systematic review identified common themes among children at risk for asthma-related morbidity and mortality and high hospital resource utilization. These themes included medication misuse, asthma trigger …


Assessing Generalization Of Behavioral Interventions In Teaching Independent Play Skills To Individuals With Autism Spectrum Disorder: A Systematic Review, David Anthony Defranco Dec 2023

Assessing Generalization Of Behavioral Interventions In Teaching Independent Play Skills To Individuals With Autism Spectrum Disorder: A Systematic Review, David Anthony Defranco

Seton Hall University Dissertations and Theses (ETDs)

A myriad of evidence-based practices has been effective in teaching independent play skills to individuals with Autism Spectrum Disorder (ASD). These interventions include video modeling, activity schedules, task correspondence training, task organization, individual work systems, and matrix training. This systematic review is aimed at examining the various behavioral interventions used to teach independent play skills to children and adolescents with ASD as the independent play literature will be evaluated to see if generalization was programmed for and assessed within the study. As one of the main dimensions of behavior analysis, generalization of skills, specifically independent play skills, is important to …


Relational Empowerment Among Public Safety Outreach Workers And Violence Interventionists In U.S. Cities: A Qualitative Inquiry, Christopher M. Thompson Dec 2023

Relational Empowerment Among Public Safety Outreach Workers And Violence Interventionists In U.S. Cities: A Qualitative Inquiry, Christopher M. Thompson

Seton Hall University Dissertations and Theses (ETDs)

The nation-wide uprisings for racial justice in the Summer of 2020 brought into mainstream awareness the calls to shift resources away from police departments and channel funds to mental health, education, and other social services. However, in the wake of recent post-pandemic surges in community violence, police budgets increased, while public opinion for grassroots, radical initiatives like “defund the police” that many activists, organizers, and abolitionists pushed into public consciousness has faltered. Studies have shown that the implementation of community-led public safety programs significantly reduce incidents of street violence in U.S. cities. Thus, research that informs community-driven violence intervention and …


Thermocatalytic Plasma-Assisted Dry Reforming Of Methane Over Ni/Al2o3 Catalyst, Tyler Wong Dec 2023

Thermocatalytic Plasma-Assisted Dry Reforming Of Methane Over Ni/Al2o3 Catalyst, Tyler Wong

Seton Hall University Dissertations and Theses (ETDs)

Plasma catalysis is an advantageous approach that combines the effects of plasma with the enhancements of a catalyst. By utilizing a nickel catalyst in the plasma discharge zone of a dielectric barrier discharge (DBD), it can give an enhancement to the electrical field, boost microdischarges, and increase conversion and selectivity rates of CH4 and CO2 in the dry reforming of methane (DRM) reaction.

Industrial application of nickel catalysts in DBD Plasma DRM process are limited by poor stability, which is caused by the sintering of active metal particles and coke deposition on the catalyst surface. In this work, …


A Qualitative Study Of Principals’ Perception As Implementers Of The Teacher Evaluation Model, Achievenj, And Federal Education Policies In An Urban Public School District In New Jersey, Petra Liz-Morell Dec 2023

A Qualitative Study Of Principals’ Perception As Implementers Of The Teacher Evaluation Model, Achievenj, And Federal Education Policies In An Urban Public School District In New Jersey, Petra Liz-Morell

Seton Hall University Dissertations and Theses (ETDs)

The study explores the implementation of teacher evaluation models and federal education policies, particularly AchieveNJ, in an urban public school district in New Jersey. It focuses on principals' experiences and perceptions, uncovering their challenges and thoughts on the policy's effectiveness in enhancing teacher performance and student learning outcomes. The research delves into the complexities and uncertainties principals face, examining how these align with their leadership practices and impact policy execution. It also investigates the contextual factors influencing AchieveNJ's execution and effectiveness, providing insights for future policy formulation and practical implementation.

A key aspect of the study is its use of …


Emergency Department Patient Navigator Post Chest Pain Diagnosis Discharge, Nancy Simoes Dec 2023

Emergency Department Patient Navigator Post Chest Pain Diagnosis Discharge, Nancy Simoes

Seton Hall University Dissertations and Theses (ETDs)

Abstract The most common complaint seen in the Emergency Department, along with abdominal pain, is nonspecific chest pain. Often, these complaints cause prolonged lengths of stay in the ED, followed by hospital admissions and subsequent readmissions for various reasons. When thinking about these various reasons, the question for prevention of readmission comes to mind. What could we do as a department to keep patients from continuously using the Emergency Department as a primary point of care instead of outpatient facilities when necessary? Project Aim: The purpose of this quality improvement project was to initiate the need for a patient navigator …


A Qualitative Study Exploring Us Graduate Medical Education Program Directors Decision-Making Practices Regarding The Selection Of Surgical Residency Applicants For Interview, Lashari Valentin Dec 2023

A Qualitative Study Exploring Us Graduate Medical Education Program Directors Decision-Making Practices Regarding The Selection Of Surgical Residency Applicants For Interview, Lashari Valentin

Seton Hall University Dissertations and Theses (ETDs)

Background: The goal of the General surgery residency selection process is to select residents who will transition easily from medical school to residency, complete the training program, pass their boards, practice surgery in a safe and effective manner, and contribute to the advancement of the specialty. Residency training programs receive thousands of applications annually from which they must choose a select few for an interview. The reality is, if medical students do not get into a residency training program, they can never practice as a physician. Pin-pointing match-worthy applicants from an increasingly deep and similar applicant pool is an …


Exploring Nursing Faculty Perceived Individual And Organizational Readiness To Use Online Simulation As A Teaching Strategy, Luz-Patricia Torres Dec 2023

Exploring Nursing Faculty Perceived Individual And Organizational Readiness To Use Online Simulation As A Teaching Strategy, Luz-Patricia Torres

Seton Hall University Dissertations and Theses (ETDs)

Problem: Academic institutions have employed online simulations in nursing education to meet the needs of the growing nursing student population and demands for distance learning. While some nursing educators have been trained to use simulation learning experiences, few have specific training in applying online simulation as a teaching strategy. With a dearth of evidence in the literature specific to the use of online simulation in nursing education, exploring nursing faculty's perceived individual and organizational readiness to do so is warranted to optimize the use of this innovation.

Purpose: This study explored the nursing faculty's perceived individual and organizational readiness …


Investigating The Diffusion Of Solid Yttria Into Solid Zirconia For The Formation Of Yttria Stabilized Zirconia, Logan Thomas Ockershausen Nov 2023

Investigating The Diffusion Of Solid Yttria Into Solid Zirconia For The Formation Of Yttria Stabilized Zirconia, Logan Thomas Ockershausen

Seton Hall University Dissertations and Theses (ETDs)

A molecular dynamics simulation of yttria-stabilized zirconia (YSZ) is reported in order to analyze the diffusion of the oxygen atoms from the yttria into the zirconia from an initial structure containing a layer of yttria on zirconia. The simulation was performed starting from a pure zirconia slab which was amorphized at the surface followed by placing a slab of yttria on top and a vacuum layer above that. The yttria/zirconia system was simulated at increasing temperatures to 1500K under canonical (NVT) constraints for 6.98 ns until the yttrium atom diffusion was found to occur. The final run was analyzed for …


Caregiver Perspectives On The Daily Function Of People Living With Hnrnph2-Related Neurodevelopmental Disorder: Developing A Conceptual Model, Rachel Salazar Oct 2023

Caregiver Perspectives On The Daily Function Of People Living With Hnrnph2-Related Neurodevelopmental Disorder: Developing A Conceptual Model, Rachel Salazar

Seton Hall University Dissertations and Theses (ETDs)

Introduction: Neurodevelopmental disorders are a group of conditions that start in childhood and lead to impairments in functioning. HNRNPH2-related neurodevelopmental disorder is an ultra-rare disorder in which individuals present with cognitive, behavioral, language and motor function impairments that often leads to reliance on their caregivers. Existing conceptual models of neurodevelopment are not specific to this ultra rare disorder and do not highlight the caregiver impact of living with HNRNPH2-related neurodevelopmental disorder.

Purpose: The purpose of this study is to understand the caregiver perspective on the everyday functioning of people living with HNRNPH2-related neurodevelopmental disorder to generate a …