Digital Commons Network^™

A Scoping Review Of Health Research With Racially/Ethnically Minoritized Adults With Intellectual And Developmental Disabilities, Heather J. Williamson, Tara Chico-Jarillo, Samantha Sasse, Leticia Rennie, Jennifer R. Etcitty, Carol L. Howe, Michele Sky Lee, Julie S. Armin

Developmental Disabilities Network Journal

Living with intersectional identities, having a disability, and being a member of a racial or ethnic minoritized group in the U.S., contributes to marginalization that may result in health disparities and health inequities. The purpose of this scoping review is to describe health research regarding adult racial/ethnic minoritized individuals in the U.S with intellectual and developmental disabilities (I/DD). Eight electronic databases were searched to identify literature on the topic published since 2000. Of the 5,229 records, 35 articles were included in the review. Eligible studies included research conducted in the U.S., published in English, and research focused on adults with …

Factors Impacting Access To Community Services By People With Intellectual Disabilities, Caitlin Crabb, Randall Owen, Tamar Heller

Developmental Disabilities Network Journal

Background: People with intellectual disabilities increasingly live in smaller community settings rather than institutional settings. Home- and community-based services (HCBS) are a type of long-term care in which services and supports are provided in people’s homes and communities. HCBS are essential for people with disabilities to remain in the community.

Method: The 2015-2016 National Core Indicators survey data, along with other datasets, were used to determine how factors impacted service utilization and additional services needed for adults with intellectual and development disabilities (I/DD) in the US. Three groups of factors were used: individual, interpersonal, and public policy factors.

Results: Variables …

Older Adults With A History Of Psychiatric Conditions Experience More Cognitive Decline Than Older Adults Without This History, Maria T. Brown, Miriam Mutambudzi

Population Health Research Brief Series

Having psychiatric conditions (such as bipolar disorder, schizophrenia, and major depressive disorder) throughout one’s life can lead to faster rates of cognitive decline as one ages. This data slice explores the associations between psychiatric history and cognitive function among U.S. White, Black, and Hispanic adults ages 65 and older from 1995-2014. Findings demonstrate that having a history of psychiatric problems is related to lower cognitive functioning and a faster rate of cognitive decline for all three groups, but Black and Hispanic adults experience steeper declines compared with White adults.

Affect Variability And Physical Health: The Moderating Role Of Mean Affect, Brooke N. Jenkins, Lydia Q. Ong, Hee Youn (Helen) Lee, Anthony D. Ong, Julia K. Boehm

Psychology Faculty Articles and Research

Research has only begun to explore how affect variability relates to physical health and has typically not assessed long-term associations nor considered the moderating role of mean affect. Therefore, we used data from the Midlife in the United States Study waves 2 (N = 1512) and 3 (N = 1499) to test how affect variability predicted concurrent and long-term physical health while also testing the moderating role of mean affect. Results indicated that greater negative affect variability was associated concurrently with a greater number of chronic conditions (p = .03) and longitudinally with worse self-rated physical health (p …

Evaluating Approaches For Constructing Polygenic Risk Scores For Prostate Cancer In Men Of African And European Ancestry, Burcu F Darst, Jiayi Shen, Ravi K Madduri, Alexis A Rodriguez, Yukai Xiao, Xin Sheng, Edward J Saunders, Tokhir Dadaev, Mark N Brook, Thomas J Hoffmann, Kenneth Muir, Peggy Wan, Loic Le Marchand, Lynne Wilkens, Ying Wang, Johanna Schleutker, Robert J Macinnis, Cezary Cybulski, David E Neal, Børge G Nordestgaard, Sune F Nielsen, Jyotsna Batra, Judith A Clements, Australian Prostate Cancer Bioresource, Henrik Grönberg, Nora Pashayan, Ruth C Travis, Jong Y Park, Demetrius Albanes, Stephanie Weinstein, Lorelei A Mucci, David J Hunter, Kathryn L Penney, Catherine M Tangen, Robert J Hamilton, Marie-Élise Parent, Janet L Stanford, Stella Koutros, Alicja Wolk, Karina D Sørensen, William J Blot, Edward D Yeboah, James E Mensah, Yong-Jie Lu, Daniel J Schaid, Stephen N Thibodeau, Catharine M West, Christiane Maier, Adam S Kibel, Géraldine Cancel-Tassin, Florence Menegaux, Esther M John, Eli Marie Grindedal, Kay-Tee Khaw, Sue A Ingles, Ana Vega, Barry S Rosenstein, Manuel R Teixeira, Nc-La Pcap Investigators, Manolis Kogevinas, Lisa Cannon-Albright, Chad Huff, Luc Multigner, Radka Kaneva, Robin J Leach, Hermann Brenner, Ann W Hsing, Rick A Kittles, Adam B Murphy, Christopher J Logothetis, Susan L Neuhausen, William B Isaacs, Barbara Nemesure, Anselm J Hennis, John Carpten, Hardev Pandha, Kim De Ruyck, Jianfeng Xu, Azad Razack, Soo-Hwang Teo, Canary Pass Investigators, Lisa F Newcomb, Jay H Fowke, Christine Neslund-Dudas, Benjamin A Rybicki, Marija Gamulin, Nawaid Usmani, Frank Claessens, Manuela Gago-Dominguez, Jose Esteban Castelao, Paul A Townsend, Dana C Crawford, Gyorgy Petrovics, Graham Casey, Monique J Roobol, Jennifer F Hu, Sonja I Berndt, Stephen K Van Den Eeden, Douglas F Easton, Stephen J Chanock, Michael B Cook, Fredrik Wiklund, John S Witte, Rosalind A Eeles, Zsofia Kote-Jarai, Stephen Watya, John M Gaziano, Amy C Justice, David V Conti, Christopher A Haiman

Faculty, Staff and Student Publications

Genome-wide polygenic risk scores (GW-PRSs) have been reported to have better predictive ability than PRSs based on genome-wide significance thresholds across numerous traits. We compared the predictive ability of several GW-PRS approaches to a recently developed PRS of 269 established prostate cancer-risk variants from multi-ancestry GWASs and fine-mapping studies (PRS269). GW-PRS models were trained with a large and diverse prostate cancer GWAS of 107,247 cases and 127,006 controls that we previously used to develop the multi-ancestry PRS269. Resulting models were independently tested in 1,586 cases and 1,047 controls of African ancestry from the California Uganda Study and 8,046 cases and …

Making Home: The Role Of Social Networks On Identity, Health, And Quality Of Life Among Rural Lesbian And Gay Older Adults, Marc A. Guest, Elizabeth G. Hunter, Nancy E. Schoenberg

UK CARES Faculty Publications

Background and Objectives: Gay and lesbian older persons face a host of health inequalities related to their identity as they age. Challenges to health access and appropriate social support may be even more exacerbated for those living in rural environments; this may be due to the lack of supportive and affirming social connections. This project aimed to explore and describe the social networks and the relationship of these social networks to identity, health, and quality of life of gay and lesbian individuals in rural communities.

Research Design and Methods: Social network data on network type, size, and social capital were …

Living Below The Line: Racial And Ethnic Disparities In Economic Security Among Older Americans, 2022, Jan Mutchler, Yan-Jhu Su, Nidya Velasco Roldán

Center for Social and Demographic Research on Aging Publications

New estimates based on the 2022 Elder IndexTM show that the risk of economic insecurity in later life is especially high for people of color. Comparing household incomes to the Elder Index, we calculate the percentage of independent older adults with incomes that fall short of what is required to support economic security. National averages suggest that among older people living alone, 43% who are White, 59% of those who are Asian, 61% of those who are Black, and 67% of those who are Latino have annual incomes below the Elder Index. The risk of economic insecurity is lower among …

Aging In Berlin: A Community Needs Assessment, Mary Krebs, Caitlin Coyle

Center for Social and Demographic Research on Aging Publications

This report describes research undertaken by the Center for Social & Demographic Research on Aging (CSDRA) within the Gerontology Institute at the University of Massachusetts Boston, on behalf of the Town of Berlin. The goals of this project were to investigate the needs, interests, preferences, and opinions of Berlin residents age 18 or older by engaging the community regarding their experiences and needs relevant to the Social Services alongside the Council on Aging’s objectives to serve the needs of all Berlin citizens 60 and older. The contents of this report are meant to inform the Town of Berlin, the Berlin …

The Moderating Effect Of Race On Ipts Factors And Suicidal Ideation In A Military Sample, Shelan A. Porter

Research Psychology Theses

Suicide rates have increased over the last 20 years in all ethnic and racial groups in the US, but most prominently for veterans and non-white racial subgroups. Suicidal Ideation is a predictor for suicide but there is limited research looking at mental health differences in the at-risk military community due to race. 794 military personnel were surveyed electronically on a range of mental health measures in a southern US joint forces training center between 2014 and 2015. Guided by the Interpersonal-Psychological Theory of Suicide, this secondary data analysis considered the moderating effect of a three-group race model on the relationship …

Extreme Heat Vulnerability Among Older Adults: A Multi-Level Risk Index For Portland, Oregon, Jacklyn N. Kohon, Katsuya Tanaka, Dani Himes, Paula Carder, Eiji Toda, Bryant Carlson

Institute on Aging Publications

Background and Objectives

Extreme heat is an environmental health equity concern disproportionately impacting low-income older adults and people of color. Exposure factors, such as living in rental housing and lack of air conditioning, and sensitivity factors, such as chronic disease and social isolation, increase mortality risk among older adults. Older persons face multiple barriers to adaptive heat mitigation, particularly for those living in historically temperate climates. This study measures two heat vulnerability indices to identify areas and individuals most vulnerable to extreme heat and discusses opportunities to mitigate vulnerability among older adults.

Research Design and Methods

We constructed two heat …

Singapore's Hospital To Home Program: Raising Patient Engagement Through Ai, John Abisheganaden, Kheng Hock Lee, Lian Leng Low, Eugene Shum, Han Leong Goh, Christine Gian Lee Ang, Andy Wee An Ta, Steven M. Miller

Research Collection School Of Computing and Information Systems

Because of their complex care needs, many elderly patients are discharged from hospitals only to be readmitted for multiple stays within the following twelve months. John Abisheganaden and his fellow authors describe Singapore’s Hospital to Home program, a community care initiative fueled by artificial intelligence.

Energetic Costs Of Testosterone In Two Subsistence Populations, Benjamin C. Trumble, Herman Pontzer, Jonathan Stieglitz, Daniel K. Cummings, Brian Wood, Melissa Emery Thompson, David Raichlen, Bret Beheim, Gandhi Yetish, Hillard Kaplan, Michael Gurven

ESI Publications

Objective

Testosterone plays a role in mediating energetic trade-offs between growth, maintenance, and reproduction. Investments in a high testosterone phenotype trade-off against other functions, particularly survival-enhancing immune function and cellular repair; thus only individuals in good condition can maintain both a high testosterone phenotype and somatic maintenance. While these effects are observed in experimental manipulations, they are difficult to demonstrate in free-living animals, particularly in humans. We hypothesize that individuals with higher testosterone will have higher energetic expenditures than those with lower testosterone.

Methods

Total energetic expenditure (TEE) was quantified using doubly labeled water in n = 40 Tsimane forager-horticulturalists …

Use Of Advance Directives In Us Veterans And Non-Veterans: Findings From The Decedents Of The Health And Retirement Study 1992–2014, Ho-Jui Tung, Ming-Chin Yeh

Health Policy & Community Health: Faculty Publications

Evidence shows that older patients with advance directives such as a living will, or durable power of attorney for healthcare, are more likely to receive care consistent with their preferences at the end of life. Less is known about the use of advance directives between veteran and non-veteran older Americans. Using data from the decedents of a longitudinal survey, we explore whether there is a difference in having an established advance directive between the veteran and non-veteran decedents. Data were taken from the Harmonized End of Life data sets, a linked collection of variables derived from the Health and Retirement …

Shared Disposition Decision Making In The Emergency Department For Persons Living With Dementia, Justine Seidenfeld, Fernanda Bellolio, Anita Vashi, Courtney Van Houtven, Susan Hastings

Journal of Geriatric Emergency Medicine

N/A

Dying In Prison: End-Of-Life Care Services In A State Correctional Facility, Brook Cooley Webb, Mollee K. Steely Smith, Tusty Ten Bensel

Qualitative Criminology (QC)

The aging inmate population in American prisons has noticeably increased, contributing to a more significant number of offenders who will die in prison, thus forcing correctional facilities to aid in caring for prisoners at the end of life. Two common responses have emerged to deliver adequate healthcare to inmates, including hospice programs and End-of-Life (EOL) care services. This study aimed to explore the nature of EOL care in a state prison by interviewing correctional administrators, correctional officers, and relevant medical personnel (N=17). The current study provided insight into the inclusion criteria for inmates who utilized EOL care in the prison …

Initial Understanding Of Public Stigma Against Childhood Cancer Survivors, Nele Loecher

USF Tampa Graduate Theses and Dissertations

As childhood cancer survival rates climb to new records, it is increasingly important to focus on improving the psychological wellbeing of survivors living years beyond their diagnosis. One potential contributor to psychological distress for childhood cancer survivors (CCSs) is stigma. The fear of stigma can lead to CCSs concealing their identity as a CCS, which in turn can strain workplace and intimate relationships, creating a strain on CCSs’ social and work life. Additionally, the internalization of negative stereotypes or rejection of falsely positive stereotypes around cancer can exacerbate psychological distress. To establish what stereotypes and stigma CCS might be contending …

Assessing The Correlation Between The Socioeconomic Level And Cognitive Function Among Older Adults In Egypt, Macy Abougabal

Theses and Dissertations

The number of older adults is increasing worldwide at an unprecedented rate. Some countries began to understand the challenges of aging, while others are still at the stage of comprehending the true dimensions of the situation. There is a global focus on aging research to appropriately mitigate the negative impact of aging and cognitive decline. Not only that dementia add economic pressure on governments, it also increase the psychological and physical burden of the caregivers. Scholars have previously studied socioeconomic level in three variables, namely work, education, and income, and their relationship with cognitive function. It was concluded that the …

Striving For Being In The Line Of Life: Personal Active Ageing Strategies In Iranian Seniors, Fatemeh Raeesi Dehkordi, Ahmad Ali Eslami, Fereshteh Zamani Alavijeh, Hossein Matlabi, Mehdi Nakhodaeezadeh

The Qualitative Report

Active ageing is a multidimensional, relative, and context-dependent concept with different paths and outcomes. This qualitative study aimed to explore personal active aging strategies in a specific context. Following a directed thematic analysis procedure, we conducted semi-structured individual interviews with 39 seniors (men and women) between the ages of 60-97 years selected with purposeful sampling, data collection and analysis were concurrent. We used directed content analysis to analyze the data from interviews, written narratives, and field notes. The reliability of data was fulfilled following Lincoln and Guba criteria. We stopped data collection when no new concepts were added, and data …

The Meaning Of A Choice, Julie-Louise Zeitoun

Masters Theses

If you are disabled or disadvantaged, you will be dismissed and stifled. Few people will actively care for your struggles. As a person with autism, I was deeply fearful of the persecution I had faced throughout my life; it was a fear that followed me with terrifying determination. I desperately wanted to blend into society. So I designed myself to be devoid of any weakness, and productivity was the way I chose to conceal any difficulties I faced. It was a way to measure my success — a way to measure my normalcy.

Standard medical textiles are generic, cumbersome devices. …

Paperwork, Paradox, And Prn: Psychotropic Medication Deficiencies In Assisted Living, Sarah Dys, Paula Carder

Institute on Aging Publications

Individual state approaches to assisted living/residential care (AL/RC) licensing and oversight in the United States result in different practice standards and requirements, including psychotropic medication use. We examined 170 psychotropic medication deficiency citations issued to 152 Oregon AL/RC settings from 2015 to 2019. Applied thematic analysis resulted in the following themes: (1) documentation issues are primarily responsible for noncompliance, (2) unclear parameters place direct care workers in a role paradox, and (3) there is a persistent disconnect about when to seek qualified expertise before requesting psychotropic medications. AL/RC-specific mechanisms for medication prescription and administration are necessary to improve the structure …

Enhancing Older Adults’ Mobility In Active Living And Tiered Living Communities, Yongping Zhang, Carol Kachadoorian, Wen Cheng, Edward Clay

Mineta Transportation Institute

The U.S. population is aging rapidly. As people get older, they increasingly face issues such as increased susceptibility to injuries and the need to be assisted with many day-to-day activities. Older adults have the opportunity to opt-in to live in an older adult community (OAC) based on their needs and capabilities. This study comprehensively reviews existing governing development regulations and design criteria related to the older adults’ communities, conducts surveys among people involved with some of these communities in California, and recommends improvements to community design for active living and tiered living communities. This study proposes a new scoring system …

Aging In Brockton: A Community Needs Assessment, Caitlin E. Coyle, Setarreh Massihzadegan, Josef Kijewski, Ceara Somerville

Center for Social and Demographic Research on Aging Publications

This report describes research undertaken by the Center for Social & Demographic Research on Aging (CSDRA) within the Gerontology Institute at the University of Massachusetts Boston, on behalf of the City of Brockton. The goals of this project were to investigate the needs, interests, preferences, and opinions of Brockton’s residents age 60 or older by engaging the community regarding their experiences and needs relevant to the COA’s objective to identify and serve the needs of all Brockton citizens 60 and older. The contents of this report are meant to inform the City of Brockton, the Brockton COA, Senior Center, and …

Social Capital, Social Support, And Subjective Well-Being Of Older Adults In Ghana And South Africa: The Moderating Role Of Country, Paul K. Ayernor

Dissertations, Theses, and Capstone Projects

The study objective is to test the influence of social capital and social support on subjective well-being. It is also interested in the combined effects of macro-level factors as encapsulated in a macro-level variable - country that exerts influence on micro-level variables such as social capital and social capital. Additionally, the present study is one of the earliest studies to begin to assess the effect of older adults' perception of neighborhood happiness or sadness on the subjective well-being of older adults in a sub-Saharan Africa context.

Data comes from wave 1 of a multi-country Study on Global Ageing and Adult …

The Influence Of Subjective Socioeconomic Status On Executive Functions In Middle-Aged And Older Adults, Yu Ping Wong, Hwajin Yang

Research Collection School of Social Sciences

Subjective socioeconomic status (SES) has been shown to influence both psychological and biological outcomes. However, less is known about whether its influence extends to cognitive outcomes. We examined the relation between subjective SES and executive functions (EF)—a set of cognitive control processes—and its underlying mechanisms. By analyzing a nationally representative cohort of middle-aged and older adults (age 40–80) from the MIDUS 2 National Survey and Cognitive Project, we tested a serial mediation model with sense of control and health as sequential mediators. Using structural equation modeling, we found that subjective SES is indirectly related to EF via sense of control …

Introduction, Marama Muru-Lanning, Hilary Lapsley

Pacific Studies

This special issue of Pacific Studies focuses on well-being amongst indigenous Pacific elders. Well-being is a widely used concept, but research is lacking on how well-being is understood in Oceania. This issue involves studies on the well-being of elders from Rotuma, Papua New Guinea and Pollap, as well as Māori and Pacific peoples in Aotearoa/New Zealand.

Our collection emphasizes two pou, or posts, supporting well-being amongst Pacific elders. The first, aging in place, has a Pacific twist, where homeplaces are whenua, ancestral places of deep connection imbued with cultural and relational significance. Vā, meaning relational space, is a related concept. …

Vol. 46 No. 1 (2023): Pacific Studies Full Issue, The Jonathan Nāpela Center For Hawaiian And Pacific Islands Studies

Pacific Studies

Pacific Studies is published two times a year by The Jonathan Nāpela Center for Hawaiian and Pacific Studies, Brigham Young University Hawai‘i #1979, 55–220 Kulanui Street, Lā ‘ie, Hawai‘i 96762, but responsibility for opinions expressed in the articles rests with the authors alone. Subscription rate is US$40.00 yearly, payable to The Jonathan Nāpela Center for Hawaiian and Pacific Studies. The Jonathan Nāpela Center for Hawaiian and Pacific Studies (formerly The Pacific Institute) is an organization funded by Brigham Young University Hawai‘i. The Center assists the University in meeting its cultural and educational goals by undertaking a program of teaching, research, …

Aging And Well-Being On Rotuma In Historical Perspective, Alan Howard, Jan Rensel

Pacific Studies

In this article, we present a historical overview of the conditions affecting the experience of aging among Rotumans on their home island. We draw on an array of cultural, social, and personal data derived from censuses, fieldwork, and archival sources covering more than one hundred years on Rotuma, which we divide into three segments for comparison: a baseline period (1903–60), the transition to modernity (1960–99), and the twenty-first century (2000–19). Among the changes that have affected the welfare of the elderly on the island are medical conditions, household size and composition, economic changes, and the proportion of older people on …

Climate Change Policies And Older Adults: An Analysis Of States’ Climate Adaptation Plans, Bryant Carlson, Jacklyn N. Kohon, Paula Carder, Dani Himes, Eiji Toda, Katsuya Tanaka

Institute on Aging Publications

Background and Objectives

As climate change drives more frequent and intense weather events, older adults face disproportionate impacts, including having the highest mortality rates from storms, wildfires, flooding, and heat waves. State governments are critical in deploying local resources to help address climate change impacts. This policy study analyzes states’ climate adaptation plans to assess the methods through which they address the impact of climate change on older adults.

Research Design and Methods

This study uses content analysis to analyze available climate change adaptation plans for all U.S. states for strategies designed to increase resilience of older adults to impacts …

Older Adults In The Great Recession: Labor Force Transitions, Perceived Workplace Ageism And Life Satisfaction, Duygu Başaran Şahin

Dissertations, Theses, and Capstone Projects

Until the global economic crisis caused by the Covid19 pandemic, the Great Recession (GR) of 2007-2009 was the most severe economic downturn since the Great Depression in the U.S. History. Previous research argues that older adults were relatively protected from the GR’s harshest impact because their unemployment rates were relatively lower compared to younger adults. However, the focus on unemployment rate as the ultimate indicator of a recession’s impact might have downplayed older adults’ experiences. Indeed, some studies showed that despite relatively lower unemployment rates, once unemployed, older adults took significantly longer to be reemployed compared to adults in younger …

Beyond The Treatment: The Role Of Race, Sex, And Education In Health Trajectories Between Cancer Survivors And Noncancer Older Adults, Minzhi Ye, Eva Kahana, Gary Deimling, Adam Perzynski, Kurt Stange

School of Social Work Faculty Publications

Introduction:

The number of older, long-term cancer survivors is increasing. However, little is known about how cancer and aging affect the health trajectories of older adults differently. In addition, the impact of race, sex, and education on the processes of aging and the cancer experience needs further investigation. The current study aims to address this knowledge gap by combining two National Cancer Institute (NIC)-funded longitudinal studies conducted in Cleveland from 1998 to 2010.

Materials and Methods:

The unique cross-sequential design facilitates a comparison between the health changes in long-term (five years +) older cancer survivors (breast, prostate, and colorectal cancer) …