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Full-Text Articles in Entire DC Network
Parasocial Relationships With Artificial Intelligence (Ai): A Systematic Review Of Benefits And Risks, Jing Wen Hung, Charlotte K. Y. Lee, K. T. A. Sandeeshwara Kasturiratna, Andree Hartanto
Parasocial Relationships With Artificial Intelligence (Ai): A Systematic Review Of Benefits And Risks, Jing Wen Hung, Charlotte K. Y. Lee, K. T. A. Sandeeshwara Kasturiratna, Andree Hartanto
Research Collection School of Social Sciences
Advances in artificial intelligence (AI) have transformed AI systems into increasingly interactive and relational agents, raising questions about the consequences of the perceived sense of intimacy and reciprocity formed with AI systems. The present systematic review synthesised empirical evidence on the benefits and risks of AI parasocial relationships across diverse AI agents and contexts. Following PRISMA guidelines, 39 empirical records were identified and analysed using narrative thematic analysis. Through this, five key benefits of AI parasocial relationships were identified, namely personal development and adaptive functioning, emotional support, social needs fulfilment, enjoyment and entertainment, and community participation and social belonging. However, …
Radical Social Work In The United States: An Integrative Literature Review, Anastasia Miller
Radical Social Work In The United States: An Integrative Literature Review, Anastasia Miller
University Honors Theses
Scholars have noted that social work in the United States is particularly dependent on, and tied to, the government. While frameworks that are popular in the U.S. explicitly provide social support, they also implicitly maintain social order. Thus, social work in the U.S. may provide immediate, short-term relief, but as a result of government-imposed limitations, dominant social work frameworks do not work towards the ultimate liberation of humanity. Radical social work methods both challenge and liberate service users, along with those who deliver them. Existing scholarship has examined the development and implementation of radical social work across the globe– especially …
Psychological Architecture: Evaluating The "Greenhouse Model" As A Structural Standard For Lgbtq+ Well-Being, Ava Lee
University Honors Theses
Traditional LGBTQ+ mental health frameworks often conceptualize psychological safety as a matter of individual endurance. This paper critiques this focus on adaptive resilience, which systematically shifts responsibility from institutions to individuals. To counter this, the study introduces "Psychological Architecture," a framework viewing social environments as constructed infrastructures that can either support or undermine queer well-being. The model contrasts performative "Glasshouses," which prioritize visibility over safety, with engineered "Greenhouses" that nurture sustainable safety through three sequential pillars: Authentic Representation (walls), Emotional Validation (insulation), and Vocal Activism (ventilation).
Grounded in the findings of a 2024 qualitative pilot study of a queer roller …
Not Everyone Gets A Tree: Housing Values, Street Trees, And Equity In Portland, Matthew Moller
Not Everyone Gets A Tree: Housing Values, Street Trees, And Equity In Portland, Matthew Moller
University Honors Theses
Street trees are positively associated with Portland home sale prices, but exposure and capitalization are uneven by race/ethnic neighborhood context. Urban trees are ecological assets, but their economic and equity implications remain uneven. This thesis examines street-tree exposure and 2023 residential sale prices in Portland, Oregon (n = 6,414) using a mixed-methodology hedonic design. Ordinary least squares models measure inventoried street-tree counts within 20m, 50m, and 100m buffers together with structural controls and census-block racial and ethnic context. Trees are positively and significantly associated with logged prices at all radii, with scale-sensitive magnitudes and modestly better fit as wider buffers. …
Meeting The Needs: Examining The Response To Houselessness In Portland, Or, Miguel Angel Lopez Paz
Meeting The Needs: Examining The Response To Houselessness In Portland, Or, Miguel Angel Lopez Paz
University Honors Theses
All across the nation, there is an affordable housing crisis that has led to many people losing their homes. In this paper, This paper examines the current response to ending unsheltered homelessness in Portland, Oregon, and the ways that this response impacts the people it is intended to serve. The current mayor, Keith Wilson, ran his campaign with a plan to expand the number of shelter beds available. This plan has had mixed results as some people have been able to benefit, while others choose not to access shelters for various reasons. Besides opening more shelters, the city has another …
Evaluation Of Neuroplastic Changes In Psychological Intervention And Contemporary Treatments Of Depression, Taylor Severance
Evaluation Of Neuroplastic Changes In Psychological Intervention And Contemporary Treatments Of Depression, Taylor Severance
Dissertations
Major depressive disorder is one of the most prevalent mental health disorders worldwide. There is a vast range of treatment options for depression, with varying levels of effectiveness. Recent treatments for depression have expanded, increasing alternative treatments, and it is unknown which treatments have the largest impact on depression. This research was designed to examine the treatments of depression, with a focus on psychotherapy and contemporary treatments such as ketamine, psilocybin, and transcranial magnetic stimulation. A literature review was conducted to assess treatment outcomes and neuroplastic changes in these interventions, as well as combinations of the interventions. Data were evaluated …
Beyond The Page: Transmedia Storytelling To Promote Gedsi Among Youth, Clara Evi Candrayuli Citraningtyas, Gita Widya Laksmini Soerjoatmodjo, Isti Utami, - Supriyanto, Slamet Budiharjo
Beyond The Page: Transmedia Storytelling To Promote Gedsi Among Youth, Clara Evi Candrayuli Citraningtyas, Gita Widya Laksmini Soerjoatmodjo, Isti Utami, - Supriyanto, Slamet Budiharjo
Journal of Youth Development
This article presents the results of an applied experimental study aimed at evaluating the effectiveness of a transmedia storytelling approach in increasing youth understanding and awareness of gender equality, disability, and social inclusion (GEDSI) issues. The study involved 198 young people aged 17–25 years who were randomly divided into control and experimental groups, with a pre- and post-test design to measure changes in attitudes and understanding. The intervention was done to the experimental group through a series of participatory activities: transmedia storytelling modules, quizzes, participatory games, and focus group discussion. The results showed an increase in GEDSI understanding and awareness …
How Adults Can Bridge The Trust Gap With Youth, Dana Mitra, Ghadir Al Saghir, Ashley Boat, Jerusha O. Conner, Samantha Holquist
How Adults Can Bridge The Trust Gap With Youth, Dana Mitra, Ghadir Al Saghir, Ashley Boat, Jerusha O. Conner, Samantha Holquist
Journal of Youth Development
Research has established positive relationships and trust as cornerstones for successful youth-adult partnerships (YAPs), yet limited work addresses how to sustain struggling partnerships, particularly in low-trust environments. Using an explanatory, sequential mixed-methods design, this study first quantitatively affirmed the importance of strong teacher-student relationships as precursors for the formation of classroom YAPs (known here as Student Voice Partnerships or SVPs). Subsequent qualitative data explains that youth define these relationships through the lens of trust, actively assessing adults to determine their trustworthiness—a process aligning with concepts of discernment and calculation. Drawing on organizational trust and relational resilience frameworks, this study offers …
Afterschool Program Attendance And Academic Outcomesin A Vermont District, Hans W. Cabra Hernandez
Afterschool Program Attendance And Academic Outcomesin A Vermont District, Hans W. Cabra Hernandez
Journal of Youth Development
Afterschool programs can bridge opportunity gaps by providing children with venues for learning and cultivating socioemotional skills. This paper examines the relationship between attendance in afterschool programs in a Vermont school district and two academic outcomes (the Scholastic Reading Inventory/SRI and the EasyCMB math test) using cross-sectional data from Spring 2018. Using multivariate regression analysis, this study found a positive association between afterschool program attendance and academic achievement on these tests. Moreover, the findings indicate the persistence of socioeconomic academic disparities. While the study’s design does not permit causal claims, the results suggest that afterschool programs are a valuable resource …
Relationships Matter: External Factors Influence High School Completion Among Black Young Adults, L. B. Simmons, Shawn Jones, Sepideh S. Soheilian, Chelsea Williams
Relationships Matter: External Factors Influence High School Completion Among Black Young Adults, L. B. Simmons, Shawn Jones, Sepideh S. Soheilian, Chelsea Williams
Journal of Youth Development
To identify whether and how contextual (i.e., spiritual, educational, and cultural contexts) and relational (i.e., physical and psychological caregiving) resilience influence high school completion among Black young adults, the team conducted logistic regression and moderation analyses. The interaction between contextual resilience and relational resilience revealed that at higher levels of relational resilience, increased contextual resilience is associated with an increased likelihood of high school completion. Importantly, the findings also suggest that at lower levels of relational resilience, increased contextual resilience is associated with a decreased likelihood of high school completion among Black young adults. Themes emerging from this study highlight …
Relationships Matter: External Factors Influence High School Completion Among Black Young Adults, L. Blair Simmons, Shawn Ct Jones, Sepideh S. Soheilian, Chelsea D. Williams
Relationships Matter: External Factors Influence High School Completion Among Black Young Adults, L. Blair Simmons, Shawn Ct Jones, Sepideh S. Soheilian, Chelsea D. Williams
Journal of Youth Development
To identify whether and how contextual (i.e., spiritual, educational, and cultural contexts) and relational (i.e., physical and psychological caregiving) resilience influence high school completion among Black young adults, the team conducted logistic regression and moderation analyses. The interaction between contextual resilience and relational resilience revealed that at higher levels of relational resilience, increased contextual resilience is associated with an increased likelihood of high school completion. Importantly, the findings also suggest that at lower levels of relational resilience, increased contextual resilience is associated with a decreased likelihood of high school completion among Black young adults. Themes emerging from this study highlight …
Fostering Developmentally Nurturant Relationships To Promote Character And Thriving: Perspectives Of Program Practitioners In Rural South Africa, Jonathan M. Tirrell, Alexa Hasse, Margaret Mackin, Elizabeth Dowling, Kirsten Olander, Roya Abbasi-Asl, Katherine Mcconnel, Thobeka Kwela, Raah Msimango, Justine Mccarthy-Martin, Tyler Howard, Angela Larkan, Richard Lerner
Fostering Developmentally Nurturant Relationships To Promote Character And Thriving: Perspectives Of Program Practitioners In Rural South Africa, Jonathan M. Tirrell, Alexa Hasse, Margaret Mackin, Elizabeth Dowling, Kirsten Olander, Roya Abbasi-Asl, Katherine Mcconnel, Thobeka Kwela, Raah Msimango, Justine Mccarthy-Martin, Tyler Howard, Angela Larkan, Richard Lerner
Journal of Youth Development
Developmentally nurturant relationships are fundamental to enabling children to thrive across contexts, including homes, schools, and communities. Such relationships are also a central feature of effective positive youth development (PYD) programming. As strengths-based PYD programs are increasingly being adopted in majority-world countries, a better understanding of how to foster and promote developmentally nurturant relationships is needed. As part of the Thanda Study of Character and Health, we interviewed 15 program practitioners about their understandings of and approaches to fostering developmentally nurturant relationships with children enrolled in Thanda programs in rural KwaZulu-Natal, South Africa. Phenomenological analysis indicated that practitioners’ understanding of …
Investigating Potential Bias In Public Acceptance Of Restorative Justice: The Influence Of Situational And Offender Characteristics, Kiara Haynes
Student Theses
Restorative Justice has been an emerging justice mechanism in the U.S. since the 1970s that advocates are working to expand more widely throughout the justice system. Due to victims and the broader community of the offender being an integral part of the Restorative Justice process, it is critical to consider the general public's support of this novel justice mechanism, as well as the influence that social biases among the public may have on the experience of defendants going through the system. The study conducted examined the effect that social biases toward an offender's personal characteristics have on attitudes and opinions …
The Security Of Llm-Generated Code, Christopher Brian Gonzalez Ayala
The Security Of Llm-Generated Code, Christopher Brian Gonzalez Ayala
Student Theses
The rapid adoption of Large Language Models (LLMs) in software development has transformed coding practices by enabling automated code generation, completion, and optimization. Despite these advantages, concerns persist regarding the security and reliability of LLM-generated code. This study presents a comprehensive evaluation of both the functional correctness and security of code produced by three prominent LLMs as of early 2026. A total of 4,800 code snippets were generated using 100 security-focused programming prompts derived from the OWASP Top 10:2025, translated across eight natural languages and two phrasing styles (literal and natural developer-oriented prompts). To assess performance, a multi-stage experimental framework …
Adversarial Robustness Of Perceptual Hashing Systems: A Unified Security Evaluation Framework, Avijit Roy
Adversarial Robustness Of Perceptual Hashing Systems: A Unified Security Evaluation Framework, Avijit Roy
Student Theses
Social network platforms, child safety organizations, and image provenance systems use perceptual hashing to identify known child sexual abuse material (CSAM), support content moderation and reverse image search, and verify image integrity. Perceptual hashing works by producing similar fingerprints for visually similar images, even after common transformations such as compression, resizing, or minor brightness changes. This useful similarity-preserving property also creates an adversarial attack surface, as attackers can use AI-assisted or conventional image manipulation techniques to move a hash across a matching threshold while maintaining visual similarity, often without access to specialized hardware.
The security failures produced by adversarial attacks …
Trace: Temporal Rhetorical Analysis And Consistency Evaluation For Legislative Speech, David Hernandez
Trace: Temporal Rhetorical Analysis And Consistency Evaluation For Legislative Speech, David Hernandez
Master's Theses
Legislators frequently discuss the same policy issues across multiple hearings and legislative sessions, sometimes maintaining consistent positions and other times modifying or reframing their stance over time. Understanding how these positions evolve is important for analyzing political discourse and democratic accountability, yet identifying such shifts at scale remains difficult.
We introduce TRACE (Temporal Rhetorical Analysis and Consistency Evaluation), a system built on the Digital Democracy Database (DDDB) for detecting rhetorical inconsistency in California legislative hearing testimony. TRACE organizes utterances into speaker-anchored timelines indexed by bill and session, then applies hybrid semantic retrieval — combining dense BGE embeddings with BM25 lexical …
Temporal Integration In Music And Aesthetic Judgments: Assessing Musical Taste Through A Transformer-Based Approach, Sophia M. Senderak
Temporal Integration In Music And Aesthetic Judgments: Assessing Musical Taste Through A Transformer-Based Approach, Sophia M. Senderak
Dissertations, Theses, and Capstone Projects
Music unfolds over time, requiring listeners to integrate information moment by moment to make aesthetic judgments. Although we know that music is likely processed on multiple timescales, it is not known which musical features contribute to short versus long timeframes. This study examined whether a computational measure of temporal integration could help explain aesthetic responses to music. Participants (N = 28) listened to 32 sixty-second clips of classical and electronic music, and continuously rated their enjoyment with a dial. After listening, they then gave an overall liking judgment for each clip. To quantify temporal integration, we derived an integration measure …
Japanese Learners And Mixed-Speech Styles, Nana Kawada
Japanese Learners And Mixed-Speech Styles, Nana Kawada
Dissertations and Theses
This study explores to what extent Japanese as a Target Language (JTL, henceforth) learners use mixed-speech styles. "Mixed-speech styles" refers to the phenomenon that occurs when speakers shift speech styles during the course of an interaction. The three primary speech styles are (1) the desu/masu forms, which are generally considered formal speech-level markers, (2) the non-desu/masu forms, considered informal speech-level markers, and (3) the Chūto shūryō-gata, which I translate to unfinished utterances that do not contain a clear style-marker.
The studies examined naturally occurring conversation point out that Japanese speakers often strategically manipulate and mix these speech styles …
The Effects Of Adverse Childhood Experiences On Female College Students' Social Emotional Development: Is Flourishing Possible?, Kaylee Kirkwood
The Effects Of Adverse Childhood Experiences On Female College Students' Social Emotional Development: Is Flourishing Possible?, Kaylee Kirkwood
University Honors Theses
Adverse childhood experiences are events of trauma and abuse that occur prior to age eighteen. High rates of sexual violence against girls and female undergraduate students inspired this study to explore how trauma may impact development and overall college experience. This thesis employed a small exploratory pilot study to investigate childhood trauma and social-emotional development among a small sample of female college students (ages 18-25; n = 41). Participants recruited through the Prolific Database completed an online Qualtrics survey consisting of screeners, demographic questions, measures of trauma history and emotional functioning, and optional open-ended experience-based questions. Measures were guided by …
Disability Experiences Of University Students: An Interview Study, Cece Austin
Disability Experiences Of University Students: An Interview Study, Cece Austin
University Honors Theses
This thesis explores the experiences of college/university students with disabilities within the educational system. Using a qualitative research design, semi-structured interviews were conducted with students who identify as disabled or having disabilities in order to explore impacts of disability on their lives, with a focus on experiences navigating academic environments and accessing accommodations. Findings revealed two recurring themes: 1) the importance of both registered accommodations and accessibility efforts from faculty, and 2) difficulties with accommodations, internalized ableism, and disclosure. This research contributes to broader discussions on disability, inclusion, and educational equity by highlighting the lived experiences of students with disabilities …
Ecological And Political Grief In College Students: Making Meaning In Uncertain Times, Kate Hlad
Ecological And Political Grief In College Students: Making Meaning In Uncertain Times, Kate Hlad
University Honors Theses
The study aims to explore grief experiences of college students in relation to world issues, namely ecological and political concerns and ways of making/finding meaning, hope, and purpose. To address a gap in research on manifestations of combined and multifaceted world grief experiences, qualitative research was conducted in the form of semi-structured interviews with 6 different college students. Common themes arose from the interviewees' grief experiences including hopelessness, overwhelm, anger, and changed future planning. Additionally, participants shared their experience finding community, engaging in creative pursuits, and taking action against oppressive systems in order to experience hope and purpose individually and …
School Counseling With Indigenous Students In Rural America: The Role Of A Counselor In Supporting An Indigenous Pedagogy Based Curriculum, Donovan Greene
School Counseling With Indigenous Students In Rural America: The Role Of A Counselor In Supporting An Indigenous Pedagogy Based Curriculum, Donovan Greene
University Honors Theses
Indigenous students are a huge population that are not fully supported by the school psychology field. This is primarily due to cognitive imperialism and the focus on a Western monoculture in education. This has led school psychologists and counselors feeling underprepared and lacking the tools to work with Indigenous students and as a result these students are harmed academically and in terms of their mental wellness. This essay opens with a literature review of scholarship on school counselors working with Indigenous students. To improve relations, I suggest implementing more culturally focused interventions. Unfortunately there is a lack of research on …
Daily Problematic Smartphone Use Predicts Decreases In Self-Control Capacity: Evidence From Random-Intercept Cross-Lagged Panel Model, Adalia Yin Hui Goh, Andree Hartanto
Daily Problematic Smartphone Use Predicts Decreases In Self-Control Capacity: Evidence From Random-Intercept Cross-Lagged Panel Model, Adalia Yin Hui Goh, Andree Hartanto
Research Collection School of Social Sciences
Amidst the widespread increase in global smartphone screen time and the phenomenon of ‘The Great Exhaustion’, where multiple surveys indicate pervasive tiredness and feelings of being drained, there is growing concern about the link between problematic smartphone use and the capacity for self-control. While numerous studies have investigated the relationship between problematic smartphone use and self-control capacity, they are mostly cross-sectional. Thus, it is unclear whether the lack of capacity for self-control is an antecedent or consequence of problematic smartphone use. Addressing the research gap, we conducted a 7-day diary study to investigate the bidirectional relationship between problematic smartphone use …
Extensive And Intensive Margin Labor Supply On Ride-Sourcing Platforms, Hao Sun, Hai Wang, Zhixi Wan
Extensive And Intensive Margin Labor Supply On Ride-Sourcing Platforms, Hao Sun, Hai Wang, Zhixi Wan
Research Collection School Of Computing and Information Systems
The rapid expansion of ride-sourcing platforms has enabled freelance drivers to flexibly determine both their participation and working hours. Understanding this flexible labor supply behavior is essential for managing platform capacity and evaluating the impacts of pricing and incentive policies on driver welfare. This study develops a labor supply model in which drivers optimally choose whether to participate (extensive margin) and how long to work (intensive margin) to maximize their utility from consumption and leisure. The model incorporates heterogeneity in drivers’ other income, idle time, and participation costs, allowing us to analytically characterize equilibrium labor supply decisions. The results show …
Long-Term Mine Planning: A Survey Of Classical, Hybrid And Artificial Intelligence-Based Methods, Nurul Asyikeen Azhar, Aldy Gunawan, Shih-Fen Cheng, Erwin Leonardi
Long-Term Mine Planning: A Survey Of Classical, Hybrid And Artificial Intelligence-Based Methods, Nurul Asyikeen Azhar, Aldy Gunawan, Shih-Fen Cheng, Erwin Leonardi
Research Collection School Of Computing and Information Systems
The aim of long-term mine planning (LTMP) is two-fold: to maximize the net present value of profits (NPV) and determine how ores are sequentially processed over the lifetime. This scheduling task is computationally complex as it is rife with variables, constraints, periods, uncertainties, and unique operations. In this paper, we present trends in the literature in the recent decade. One trend is the shift from deterministic toward stochastic problems as they reflect real-world complexities. A complexity of growing concern is also in sustainable mine planning. Another trend is the shift from traditional operational research solutions — relying on exact or …
Information Literacy Tutorials For High Enrollment Courses: An Iterative Design-Based Approach, Kimberly Casey, Rebekah Heleen
Information Literacy Tutorials For High Enrollment Courses: An Iterative Design-Based Approach, Kimberly Casey, Rebekah Heleen
Communications in Information Literacy
The purpose of this paper is to provide academic librarians practical guidance on how to provide information literacy support to high enrollment, general education courses. It includes a detailed description and analysis of our approach and findings throughout the project, as well as reflections and lessons learned. The project team developed asynchronous information literacy tutorials for first-year students at the University of Arkansas, utilizing a flipped classroom approach, to address challenges in delivering personalized instruction to high-enrollment courses. Collaborating with program directors, the team created online tutorials embedded with feedback surveys, which collected nearly 2,000 student responses. We also surveyed …
Evidence Brief: Shifting Attitudes And Social Norms On Fgm Through Community-Based Interventions In Isiolo And Narok Counties Of Kenya, Stella Muthuri, Dennis Matanda, Francis Obare, Robert Omondi, Stephen Kizito, Chi-Chi Undie
Evidence Brief: Shifting Attitudes And Social Norms On Fgm Through Community-Based Interventions In Isiolo And Narok Counties Of Kenya, Stella Muthuri, Dennis Matanda, Francis Obare, Robert Omondi, Stephen Kizito, Chi-Chi Undie
Sexual and Reproductive Health, Rights, and Choices
The Girl Generation: Support to the Africa-Led Movement (TGG-ALM) programme in Kenya demonstrates that community-based, dialogue-driven interventions can shift social norms, attitudes, and behavioural intentions related to female genital mutilation (FGM), while also strengthening gender-equitable beliefs. Drawing on evidence from Isiolo and Narok counties, this evaluation shows that exposure to intergenerational dialogues, women’s reflection circles, and couple-based engagement is associated with stronger personal opposition to FGM, increased acceptance of uncut girls, and greater willingness to abandon the practice.
Strategic Communication For Population Stabilization: From Narrative To Sbcc Action, Population Council Pakistan
Strategic Communication For Population Stabilization: From Narrative To Sbcc Action, Population Council Pakistan
Sexual and Reproductive Health, Rights, and Choices
The Population Council led a landmark national effort to redefine population discourse in Pakistan through the development of a unified, rights-based national narrative—Tawazun (Balance). This narrative, endorsed by the Federal Task Force on Population and adopted at the highest policy forums, reframed population from a fragmented and sensitive issue into a shared national development priority. Tawazun established a clear framework—balancing rights, responsibilities, and resources—positioning family planning within the broader goals of family well-being, human development, and national sustainability. Importantly, the narrative was formally adopted by federal and provincial governments, and integrated into policy frameworks, communication strategies, and development planning processes.
La Espiritualidad: Transmitting Peruvian Culturo-Spiritual Elements Into Occidental Systemic Spaces, Deisy Amorin-Woods
La Espiritualidad: Transmitting Peruvian Culturo-Spiritual Elements Into Occidental Systemic Spaces, Deisy Amorin-Woods
Research outputs 2022 to 2026
This paper is a decolonising, Indigenous qualitative inquiry that integrates elements of critical autoethnography, narrative methods and conceptual analysis to explore how Peruvian Andean cosmology can inform contemporary systems thinking and family therapy practice. Writing as a mestiza, a Peruvian migrant in Australia, the author traces the lived experience of cultural erosion within Western, individualistic contexts and her reconnection with ancestral Andean teachings. These teachings—rooted in reciprocity, ecological attachment, collective responsibility and relational balance—are presented as living epistemologies that offer timely contributions to working therapeutically. The author examines core Andean concepts including ayll (kinship-based community), ayni (sacred reciprocity), Yachay (aprenderes …
Public Attitudes Toward Cascade Genetic Screening In The United States, Hadley Stevens Smith, Emilie S Zoltick, Madison R Hickingbotham, Emily S Bonkowski, Stacey Pereira, Tara A Lavelle, David L Veenstra, Amy L Mcguire, Katherine E Bonini, Leila Jamal
Public Attitudes Toward Cascade Genetic Screening In The United States, Hadley Stevens Smith, Emilie S Zoltick, Madison R Hickingbotham, Emily S Bonkowski, Stacey Pereira, Tara A Lavelle, David L Veenstra, Amy L Mcguire, Katherine E Bonini, Leila Jamal
Center for Medical Ethics and Health Policy Staff Publications
Introduction: After a patient receives genetic test results that indicate an actionable health condition, cascade genetic screening (CGS) is the process of evaluating the patient's relatives for a potentially elevated genetic risk of disease. The United States primarily relies on patients to communicate with their relatives, resulting in suboptimal rates of risk communication, familial genetic testing uptake, and risk-reducing interventions. There is ongoing debate about whether and how best to inform relatives of a potentially increased genetic risk.
Methods: We conducted a nationally representative survey of US adults to assess attitudes toward informing at-risk relatives, acceptability of system-mediated communication, and …