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Full-Text Articles in Entire DC Network
The Place Of Nuclear Weapons In Russian Identity: An Ontological Security Analysis, Peter Ernest Yeager
The Place Of Nuclear Weapons In Russian Identity: An Ontological Security Analysis, Peter Ernest Yeager
Graduate Program in International Studies Theses & Dissertations
On May 9, 2008, Russia’s Victory Day, four 14-wheeled MAZ-7917s drove through Red Square carrying Topol intercontinental ballistic missiles. This was the first time nuclear weapons had been paraded through Moscow since before the end of the Cold War. The previous August, Russia had resumed nuclear-capable bomber patrols, and in January, 2007, President Putin acknowledged Russia had begun to build new nuclear weapons. These remarkable events were met with little acknowledgement in the West, as if they were completely normal. Instead, they represented a major evolution in the bilateral relationship between the United States and Russia. Sixteen years of fitful …
Research Review: "Transgenerational Factors Associated With Military Service: Comparison Of Children Of Veterans And Nonveterans In A Nationally Representative Sample", Institute For Veterans And Military Families At Syracuse University
Research Review: "Transgenerational Factors Associated With Military Service: Comparison Of Children Of Veterans And Nonveterans In A Nationally Representative Sample", Institute For Veterans And Military Families At Syracuse University
Institute for Veterans and Military Families
This review examines the impact of military service on the children of veterans post-service, using data from the 2018-2019 National Survey of Children’s Health. Children from veteran families were found to have higher family incomes and health insurance coverage but also exhibited higher rates of clinically recognized externalizing behavioral conditions compared to children from nonveteran families. Despite adjusting for socioeconomic factors, children of veterans still showed elevated levels of externalizing problems, suggesting a need for integrated child-focused screening and services within veteran support systems. This review also contains implications of these findings for practice, policy, and future research.
The Employment Situation Of Veterans: March 2024, Institute For Veterans And Military Families At Syracuse University
The Employment Situation Of Veterans: March 2024, Institute For Veterans And Military Families At Syracuse University
Institute for Veterans and Military Families
No abstract provided.
Research Review: "Entrepreneurship Education And Its Role In Transitional Entrepreneurship As Veterans Transition From Military To Civilian Life", Institute For Veterans And Military Families At Syracuse University
Research Review: "Entrepreneurship Education And Its Role In Transitional Entrepreneurship As Veterans Transition From Military To Civilian Life", Institute For Veterans And Military Families At Syracuse University
Institute for Veterans and Military Families
This IVMF review examines the effectiveness of entrepreneurship education programs for military veterans transitioning to civilian life. Despite the significant expansion of these programs in the last decade, their efficacy remains understudied. Analyzing data from the National Survey of Military-Affiliated Entrepreneurs (NSMAE) (n = 2649), the study highlights the importance of entrepreneurship education and training during the transition period. It calls for interdisciplinary research to inform policy development and expand support for military veterans in entrepreneurship. This review also emphasizes implications for policy, practice, and future research, advocating for enhanced and tailored entrepreneurship education initiatives for veterans.
Mapping And Analyzing Urban Growth In The Abu Dhabi Metropolitan Using Geospatial Technologies Integrated With Machine Learning, Hamsa Mohamed Yusuf
Mapping And Analyzing Urban Growth In The Abu Dhabi Metropolitan Using Geospatial Technologies Integrated With Machine Learning, Hamsa Mohamed Yusuf
Theses
Urbanization is happening at a rate twice the increase in population on a worldwide scale. This has great environmental and social impacts, along with large impacts on regional climate and one of the reasons for this is the ever-continuous change of land use and land cover. The availability of high-resolution satellite imagery in addition to the advancements in geospatial technology allow mapping of LULC changes to be done accurately, efficiently and covering wide areas. This thesis studies the urban Land Use and Land Cover Change (LULCC) that happened in Abu Dhabi city for the last 3 decades by utilizing geospatial …
Modeling The Impact Of Connected And Automated Vehicles On Driving Behaviors And Safety: A Driving Simulator Study, Abdalziz Alruwaili
Modeling The Impact Of Connected And Automated Vehicles On Driving Behaviors And Safety: A Driving Simulator Study, Abdalziz Alruwaili
Civil & Environmental Engineering Theses & Dissertations
Connected vehicles (CVs), equipped with advanced sensors, can communicate safety messages to drivers. Automated vehicles (AVs), designed with the ability to automate safety critical control functions, will redefine the traditional role of drivers. This dissertation aims to investigate the impact of connected and automated vehicles (CAVs) on driving behaviors and safety outcomes using data from driving simulator experiments. More specifically, the research objectives include:
1. Modeling the impacts of CVs on driving aggressiveness and situational awareness in highway crash scenarios.
2. Modeling the impacts of CV technologies on driving behaviors and safety outcomes in highway crash scenarios under diverse weather …
Stakeholders From Multiple Sectors Views And Policy Approaches To Marine Debris Removal: A Qualitative Case Study Of Virginia's Elizabeth River, Robin Rene’ Dunbar
Stakeholders From Multiple Sectors Views And Policy Approaches To Marine Debris Removal: A Qualitative Case Study Of Virginia's Elizabeth River, Robin Rene’ Dunbar
School of Public Service Theses & Dissertations
Marine debris is a wicked problem and there is a call for action for stakeholders from across multiple sectors to address this issue in Virginia. Marine debris can have negative impacts on navigation, aquatic life, recreation, and economies. Research is rapidly growing on ocean debris, but so far, it is limited regarding estuarine river debris in an industrial port and harbor. River systems function as pathways to the sea for the transport of plastic pollution that can be detrimental due to animal ingestion, entanglement, and accumulation. Views and policies about marine debris removal are unknown among stakeholders of Virginia’s Elizabeth …
Crisis Support Through Policies For Medical Professionals In 2020 And 2021 During The Covid-19 Pandemic, Malik James Fonville-Simmons
Crisis Support Through Policies For Medical Professionals In 2020 And 2021 During The Covid-19 Pandemic, Malik James Fonville-Simmons
Walden Dissertations and Doctoral Studies
No abstract provided.
Law’S Impact On Collaboration: A Three-Case Study Of Federal Advisory Committees Managed By The U. S. Coast Guard, Brian K. Mcnamara
Law’S Impact On Collaboration: A Three-Case Study Of Federal Advisory Committees Managed By The U. S. Coast Guard, Brian K. Mcnamara
School of Public Service Theses & Dissertations
Much remains to be learned about law’s impact on collaboration. Although law is one of the foundational disciplines of public administration, scholars assert that the field focuses on management principles to the detriment of law. Whether this assertion is correct as a general matter for the field, collaboration scholarship lacks empirical examination of the law’s role in collaboration processes.
This three-case study of federal advisory committees managed by the U.S. Coast Guard examines law’s impact on collaboration through the lens of Thomson and Perry’s (2006) Process Model. A qualitative method is used to capture participants’ perceptions of law and their …
Wellness As A Predictor Of Turnover Intention In The Active Duty Military, Thomas Clifford Seguin
Wellness As A Predictor Of Turnover Intention In The Active Duty Military, Thomas Clifford Seguin
Counseling & Human Services Theses & Dissertations
Due to the unique nature of military service compared to civilian professions, military attrition is difficult to predict using methods derived from career development theories, so turnover remains an ongoing concern for the active duty military. For this reason, military attrition, through turnover intention, should be investigated through a novel lens with the intention of capturing an essence of military service which previous methods may have overlooked, namely the holistic construct of perceived wellness. Previous studies have shown how wellness-related factors affect turnover intention, but none has studied the relationship between perceived wellness and turnover intention. The main hypothesis of …
Trust And Contexts: A Conceptual Framework For Understanding Coastal Household Preparedness, Ogechukwu M. Agim Nwandu-Vincent
Trust And Contexts: A Conceptual Framework For Understanding Coastal Household Preparedness, Ogechukwu M. Agim Nwandu-Vincent
School of Public Service Theses & Dissertations
Despite research findings that show the benefits of being prepared for increasingly tumultuous natural and coastal hazard events, studies on hazard preparedness indicate that low levels of preparedness may occur in vulnerable areas due to the uncertainty around hazard risks, expected hazard onset and impact strength, as well as associated effects. Study findings indicate that trust may impact the uncertainty and complexity faced by people dealing with unfamiliar, infrequent, and complex hazards, as well as contexts such as factors such as age, gender, prior hazard experience, and homeownership.
While studies have looked at the relationship between trust and compliance (desired …
Consensus On Best Practices In Neuroscience-Informed Treatment Of Combat-Related Posttraumatic Stress In Military Veterans: A Delphi Study Of Experts In The Field Of Mental Health, Danielle Lauren Winters
Consensus On Best Practices In Neuroscience-Informed Treatment Of Combat-Related Posttraumatic Stress In Military Veterans: A Delphi Study Of Experts In The Field Of Mental Health, Danielle Lauren Winters
Counseling & Human Services Theses & Dissertations
The purpose of this study was to capture consensus among mental health professionals who work with combat trauma-afflicted veterans and/or utilize a neuroscience-informed counseling approach, about a set of best practices for uniting neuroscience-informed treatment modalities with the treatment of veterans who present with Post Traumatic Stress (PTS). A multi-round Delphi study was used to elicit information from mental health professionals, which led to the proposition of ways in which mental health professionals may more efficiently work with combat veterans while utilizing neuroscience-informed treatments such as Prolonged Exposure Therapy, Eye Movement Desensitization and Reprocessing (EMDR) neuro-informed Cognitive Behavioral therapy (nCBT), …
Preserving Location Authenticity: Multi-Sensor System To Thwart Gps Spoofing In Self-Driving Vehicles, Peng Jiang
Preserving Location Authenticity: Multi-Sensor System To Thwart Gps Spoofing In Self-Driving Vehicles, Peng Jiang
Electrical & Computer Engineering Theses & Dissertations
The ubiquity of the Global Positioning System (GPS) has cemented its role as the cornerstone for an array of location-based services and navigation systems, spanning applications from autonomous vehicles and drones to maritime vessels and wearable technology. Nonetheless, ensuring the integrity of reported geographical coordinates poses a formidable challenge, owing to the proliferation of diverse GPS spoofing tools. This predicament is compounded by the pervasive availability of tools like Fake GPS, Lockito, and software-defined radios, enabling even unsophisticated users to commandeer and disseminate counterfeit GPS coordinates. This dissertation undertakes the task of devising an encompassing and resilient framework, integrating a …
From Collaboration To Continuity: Exploring Stakeholder Engagement For Sustainable Global Health Partnerships, Annabelle Falconer
From Collaboration To Continuity: Exploring Stakeholder Engagement For Sustainable Global Health Partnerships, Annabelle Falconer
Independent Study Project (ISP) Collection
Global health partnerships have been identified as crucial to achieving the Sustainable Development Goals and targets related to health and wellbeing. Specifically, the Global Fund, UNAIDS Joint Programme, and the World Food Programme are examples of some of the relevant partners currently engaged in this work, filling roles in global health financing, governance, and delivery. Current literature has identified that the effective engagement of stakeholders in partnerships can be crucial in effective project implementation and that global health partnerships during the era of the Millennium Development Goals did impact health outcomes. This research aims to investigate the current strategies for …
The Efficacy Of The Legal Infrastructure Of Proportionality In Contemporary Armed Conflicts, Reed Caney
The Efficacy Of The Legal Infrastructure Of Proportionality In Contemporary Armed Conflicts, Reed Caney
Independent Study Project (ISP) Collection
Proportionally in armed conflict is one of the key principles of international law, playing a crucial role in ensuring that both civilians are protected in armed conflict, but also that a military is able to accomplish its goals. This paper attempts to discern if the international legal infrastructure is well equipped to deal with proportionality in armed conflicts, especially in regard to contemporary armed conflicts. In an attempt to answer this question, this paper explores the existing legal infrastructure, looking at International Humanitarian Law as a moral system and International Criminal Law as the accompanying legal system to see how …
Impact Of Nato Enlargement On Eastern Europe Security: Case Study Of Ukraine War, Heeyoung Chae
Impact Of Nato Enlargement On Eastern Europe Security: Case Study Of Ukraine War, Heeyoung Chae
Independent Study Project (ISP) Collection
In a situation where Russia attacked Ukraine in 2022, the role and the major dilemma of NATO is rediscovered. The blame is that while NATO had expanded its power towards the East European countries, it had provoked Russia to react to the threat of the NATO enlargement process. Within this background, this research’s objective is to examine the impact of the NATO enlargement in Eastern Europe related to the case of the Ukraine war, within the lens of Eastern European citizens’ perception of their security and NATO. The research aims to answer the role of NATO in securing the preservation …
On Puar’S “Right To Maim”: Conflict-Related Sexual Violence As An Instrument Of Debility, Jeffrey Camille
On Puar’S “Right To Maim”: Conflict-Related Sexual Violence As An Instrument Of Debility, Jeffrey Camille
Independent Study Project (ISP) Collection
In enacting war and terrorism, armed combatants frequently and deliberately utilize sexual violence to target civilians. This crime is widespread, systemic, and organized, and its perpetration against vulnerable populations is a haunting reality of warfare. Although scholarship has speculated about the motivations behind conflict-related sexual violence (CRSV), no one answer is sufficient to grasp a phenomenon whose constitution is complicated by a multitude of variables. Thus, scholars must continue in their efforts to rationalize why this crime takes place. This article does just that. Drawing from Jasbir K. Puar’s book The Right to Maim (2017), I fashion an intervention to …
Lisbon’S Electric Vehicle (Ev) Fleet: A Cost-Benefit Analysis Of A Mass Adoption Of Evs In Lisbon By 2050, Maya Estrera
Lisbon’S Electric Vehicle (Ev) Fleet: A Cost-Benefit Analysis Of A Mass Adoption Of Evs In Lisbon By 2050, Maya Estrera
Independent Study Project (ISP) Collection
As the impacts of climate change increase, the EU and its member countries are attempting to achieve carbon neutrality by 2050. The adoption of electric vehicles is proving to be a promising solution to achieve this goal, and specifically, reductions in the transport sector emissions. This study analyzes the potential costs and benefits resulting from a mass adoption of electric vehicles in Lisbon by 2050. Through a cost-benefit analysis, this study aims to quantify the major costs and benefits associated with electric vehicles. The results display the potential monetary benefits of a city-wide shift to electric vehicles in addition to …
Navigating Intersectional Identities: Mental Health Challenges And Accessibility To Mental Health Care Among Sub-Saharan Migrant Women In Morocco, Soraya Babahaji
Navigating Intersectional Identities: Mental Health Challenges And Accessibility To Mental Health Care Among Sub-Saharan Migrant Women In Morocco, Soraya Babahaji
Independent Study Project (ISP) Collection
Since the beginning of the 21st century, as Morocco transitions from solely being a transit point to Europe to becoming a destination country for Sub-Saharan migrants, policies have been implemented to improve migrant integration. Morocco launched the National Strategy on Immigration and Asylum in 2015 which strives to ensure accessibility to essential services for migrants, such as education, healthcare, and integration into the workforce. In addition, through the 2013 New Migration Policy framework, King Mohammed VI aims to “include avenues for regularization” to help migrants integrate into Moroccan society.
This paper addresses how intersecting factors of identity can lead to …
La Crisis Contemporánea Y Los Cuidados: Respuesta Gubernamental Al Trabajo De Cuidado Feminizado Y La Pandemia / The Contemporary Crisis And Care: Government Response To Feminized Care Work And The Pandemic, Iris Diez
Independent Study Project (ISP) Collection
Este proyecto investiga cómo las respuestas gubernamentales al trabajo no remunerado de cuidado realizado por mujeres, durante la época de la crisis socioeconómica de la pandemia, impactan el uso del tiempo en trabajo no remunerado doméstico de cuidado por parte de mujeres en Argentina. Basándose en la teoría feminista y en las ideas de Verónica Gago, Lucí Cavallero y Tithi Bhattacharya, este proyecto busca crear una perspectiva critica de las interaciones entre genero, economia, deuda y el trabajo reproductivo. El método de análisis sigue descripciones de las respuestas gubernamentales con respecto del trabajo de cuidado y también presentaciones de datos …
How Can Morocco’S Crisis Management And Disaster Response Be Optimized? Lessons From The Al Haouz Earthquake Response, Clara Normand
How Can Morocco’S Crisis Management And Disaster Response Be Optimized? Lessons From The Al Haouz Earthquake Response, Clara Normand
Independent Study Project (ISP) Collection
Morocco’s disaster management strategy has evolved in reaction to historical crises. On September 8th, 2023, the Al Haouz region of Morocco was struck by a 7.2 magnitude earthquake. The area was especially vulnerable to such a disaster due to its underdeveloped infrastructure, remote location, and lack of services. As the last phase of the disaster management cycle is unfolding, seven months after the earthquake, this research assesses the successes and challenges of the response and establishes areas of improvement to implement in national policies to optimize future crisis management across all four stages of the disaster management cycle.
Complementariedad En La Comuna De Putre: Reflexiones Sobre El Sistema De Salud Y Los Conocimientos Comunitarios Aymaras, Grace Benish
Complementariedad En La Comuna De Putre: Reflexiones Sobre El Sistema De Salud Y Los Conocimientos Comunitarios Aymaras, Grace Benish
Independent Study Project (ISP) Collection
In the comuna of Putre, which lies in the XV region of Chile, exists a community and culture unique from the rest of the country. Half of the population identifies as part of the Aymara indigenous group, which according to Chilean law, means that a system of intercultural health must exist in the commune. Our objective included establishing the format in which the intercultural system of health functions nowadays and assessing how well the system serves the community, keeping in mind the history of the commune, barriers to access, community needs, and Aymaran culture. Furthermore, the domination of the Aymaran …
Reflejos De La Injusticia: Narrativas De Estudiantes Mexicano-Estadounidense En El Sistema Educativo, Kiana Montserrat González Montañez
Reflejos De La Injusticia: Narrativas De Estudiantes Mexicano-Estadounidense En El Sistema Educativo, Kiana Montserrat González Montañez
Independent Study Project (ISP) Collection
Este trabajo examina los relatos personales de integración, discriminación y racismo institucionalizado entre dos estudiantes mexicano-estadounidense del sur de California. A pesar de tener diversas historiales de migración, sus experiencias se encuentran teniendo mucho en común por causa del racismo internalizado y estructuras discriminatorias en el sistema educativo. Mediante el método de investigación cualitativa, que incluye entrevistas semiestructuradas y análisis temático, el estudio pretende ampliar el discurso sobre los polifacéticos factores que influyen las desigualdades y estratificación racial de los estudiantes mexicano-estadounidense. Al centrarse en las voces de los estudiantes, la investigación desvela las complejidades de abordar la identidad cultural, …
Guía Didáctica Para Talleres De Habilidades Fundamentales Y Creatividad En Albergues Para Niños, Niñas, Y Adolescentes En Tránsito, Lindsay Ravetz
Guía Didáctica Para Talleres De Habilidades Fundamentales Y Creatividad En Albergues Para Niños, Niñas, Y Adolescentes En Tránsito, Lindsay Ravetz
Independent Study Project (ISP) Collection
Este proyecto es una investigación-acción para abordar el problema de la falta de recursos educativos para los niños, niñas, y adolescentes (NNA) migrantes. El objetivo fue crear una guía didáctica de talleres para NNA migrantes en albergues, diseñada para ser dirigida por voluntarios. La guía está fundamentada en la investigación de las experiencias de los migrantes que pasan por México, las características de los NNA, y sensibilidad a los afectos del trauma psicológico en los NNA migrantes. La metodología del proyecto se lleva a cabo a través de la revisión de la literatura, observaciones en el albergue COMI, y entrevistas …
Identidad Bajo Amenaza En Chinchero, Perú: El Megaproyecto Del Aeropuerto Internacional Plantea La Cuestión: ¿Cuál Es Más Importante Para El Estado Peruano—El Turismo O El Patrimonio?, Celeste Funari Muse
Identidad Bajo Amenaza En Chinchero, Perú: El Megaproyecto Del Aeropuerto Internacional Plantea La Cuestión: ¿Cuál Es Más Importante Para El Estado Peruano—El Turismo O El Patrimonio?, Celeste Funari Muse
Independent Study Project (ISP) Collection
El megaproyecto del Aeropuerto Internacional de Chinchero inicialmente fue propuesto hace 46 años, así que ha sido un símbolo del futuro del distrito durante casi cinco décadas. Ubicado a sólo una hora de distancia de la ciudad de Cusco, el pueblo de Chinchero es conocido por su hermoso paisaje, tradición e impresionantes ruinas incas. De todo el mundo, los turistas desembarcan en el aeropuerto de Cusco y pasan por Chinchero de camino al valle sagrado y Machu Picchu. Desde el inicio de la construcción en 2017, el sitio del nuevo aeropuerto es visible desde casi cualquier lugar de Chinchero, como …
10 Meters To Disaster: The Challenges Of Premature Application Of Circular Economy Strategies In Jakarta’S Waste Management Structure, Almira Bowo
Independent Study Project (ISP) Collection
Jakarta's complex issue of waste management encompasses a multitude of challenges that include inefficiencies in infrastructure, a lack of public awareness of the consequences of an inadequate waste system, socioeconomic disparities, and a deficiency in intersectoral collaboration. The urgency for holistic and sustainable solutions that prioritize proactive waste collection is underscored by the complexities of these dynamics. This field study paper argues that the attention that is being drawn towards trending waste management innovations, which are reactive strategies, could bring the waste crisis in Jakarta to an even more critical state. The sections will critically examine current waste management efforts …
The Reconfiguration Of The Spanish-Moroccan Border Regime: The Impact Of The 2021 Diplomatic Border Crisis, Shayra Nunez
The Reconfiguration Of The Spanish-Moroccan Border Regime: The Impact Of The 2021 Diplomatic Border Crisis, Shayra Nunez
Independent Study Project (ISP) Collection
The paper focuses on the relationship between Morocco and Spain, particularly those affecting migration control at the border in the autonomous cities of Ceuta and Melilla. The research question is: how do the events of May 2021 (the unauthorized opening of the border by Morocco) impact migration control practices in Ceuta and Melilla, and what are the implications for Spanish-Moroccan operational cooperation? The unauthorized opening of the border is conceptualized as a “diplomatic border crisis,” which is also a main contribution of this paper. The study analyzes this incident, which has impacted the border regime and led to changes in …
The Role Of Between-Session Homework In Cognitive-Behavioral Therapy For Comorbid Obsessive-Compulsive Disorder And Autism: A Case Vignette, Molly J Church, Katie H Mangen, Jordan T Stiede, Samuel D Spencer, Eric A Storch
The Role Of Between-Session Homework In Cognitive-Behavioral Therapy For Comorbid Obsessive-Compulsive Disorder And Autism: A Case Vignette, Molly J Church, Katie H Mangen, Jordan T Stiede, Samuel D Spencer, Eric A Storch
Center for Medical Ethics and Health Policy Staff Publications
Objective: Cognitive-behavioral therapy (CBT), which includes a decided emphasis on exposure and response/ritual prevention (ERP) and between-session practice of treatment principles, has consistently demonstrated efficacy for the treatment of obsessive-compulsive disorder (OCD) and is a gold standard, recommended first-line treatment. CBT with ERP has been successfully adapted to fit the needs of autistic individuals with OCD. The present article provides a brief overview of CBT for OCD and outlines special considerations and adaptations needed when working with patients with OCD and comorbid autism, with an emphasis on the importance of between-session homework.
Method: A case vignette is presented.
Results: This …
Genetic Researchers' Use Of And Interest In Research With Diverse Ancestral Groups, Kaitlyn Jaffe, Amanda K Greene, Luyun Chen, Kerry A Ryan, Chris Krenz, J Scott Roberts, Brian J Zikmund-Fisher, Amy L Mcguire, J Denard Thomas, Erica E Marsh, Kayte Spector-Bagdady
Genetic Researchers' Use Of And Interest In Research With Diverse Ancestral Groups, Kaitlyn Jaffe, Amanda K Greene, Luyun Chen, Kerry A Ryan, Chris Krenz, J Scott Roberts, Brian J Zikmund-Fisher, Amy L Mcguire, J Denard Thomas, Erica E Marsh, Kayte Spector-Bagdady
Center for Medical Ethics and Health Policy Staff Publications
Importance: Genetic researchers must have access to databases populated with data from diverse ancestral groups to ensure research is generalizable or targeted for historically excluded communities.
Objective: To determine genetic researchers' interest in doing research with diverse ancestral populations, which database stewards offer adequate samples, and additional facilitators for use of diverse ancestral data.
Design, setting, and participants: This survey study was conducted from June to December 2022 and was part of an exploratory sequential mixed-methods project in which previous qualitative results informed survey design. Eligible participants included genetic researchers who held US academic affiliations and conducted research using human …
Data Stewardship In Ftld Research: Investigator And Research Participant Views, Jalayne J Arias, Ana M Tyler, Laura M Beskow, Maria C Carillo, Susan Dickinson, Jill Goldman, Mary A Majumder, Michelle M Mello, Heather M Snyder, Jennifer S Yokoyama
Data Stewardship In Ftld Research: Investigator And Research Participant Views, Jalayne J Arias, Ana M Tyler, Laura M Beskow, Maria C Carillo, Susan Dickinson, Jill Goldman, Mary A Majumder, Michelle M Mello, Heather M Snyder, Jennifer S Yokoyama
Center for Medical Ethics and Health Policy Staff Publications
Introduction: Federal policies and guidelines have expanded the return of individual results to participants and expectations for data sharing between investigators and through repositories. Here, we report investigators' and study participants' views and experiences with data stewardship practices within frontotemporal lobal degeneration (FTLD) research, which reveal unique ethical challenges.
Methods: Semi-structured interviews with (1) investigators conducting FTLD research that includes genetic data collection and/or analysis and (2) participants enrolled in a single site longitudinal FTLD study.
Results: Analysis of the interviews identified three meta themes: perspectives on data sharing, experiences with enrollment and participation, and data management and security as …