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Behavioral Adjustment In Children With Life Threatening Illness A Qualitative Study, E. Joseph Becher Jr.

Antioch University Dissertations & Theses

This study investigated factors that affect adjustment in children with life-threatening illness from the viewpoint of the parents/caregivers. The data were collected from parents/caregivers whose children have a life threatening diagnosis. Parents/caregivers were interviewed and asked to complete the Parent Request Questionnaire (PRQ) which was given to them after the in-person interview. This newly developed PRQ was utilized into prior research to predict the levels of adjustment in children. It includes age, whether the child has been informed of the diagnosis, whether the child engages in age-appropriate activities, the child's prior experience with death, the child's family's involvement in treatment, …

A Narrative Inquiry: Case Leaders' Perspectives On Resilience In Hospice Care, Gail Renee Ahern

Antioch University Dissertations & Theses

This study is a qualitative inquiry examining the perspective of team leaders within hospice organizations on resilience. The goal of this study was to examine how hospice leaders build resilience for themselves and within the interdisciplinary teams they lead. A framework of three key theories of leadership—servant, spiritual and authentic—was used to help in understanding the similarities and differences of the interviewed leaders and their key themes and practices. The eight leaders interviewed were from a range of hospices in diverse settings and all were directly responsible for leading interdisciplinary teams. In-depth phenomenological interviewing was undertaken until the study reached …

Value-Based Healthcare Through Care Coordination And Clinical Integration, Angelo Sinopoli, Jennifer Snow

Prisma Health

No abstract provided.

Extended-Release Hydrocodone: The Devil In Disguise Or Just Misunderstood?, Anne Schweighardt, Katherine Juba

Pharmacy Faculty/Staff Publications

Opioid abuse in the United States increased significantly over the past decade, leading to opioid-related deaths. Approval of Zohydro ER, a product that lacks an abuse-deterrent formulation, has provoked media controversy and aggressive legislative action from multiple stakeholders. Only the American Academy of Pain Management has released a position statement on this medication, and individual opinion varies. Additional single-entity extended-release hydrocodone formulations are in the pipeline, and Zohydro ER's limited clinical utility may make the controversy associated with its approval a moot point. As with other opioids, providers will need to assess individual patient risk versus benefit when prescribing Zohydro …

“Finishing Business” The Important Role Of The Psychosocial Worker In The Interdisciplinary Palliative Care Team: A Hypothetical Case, Merridy Rowe, Catherine Turnbull

Internet Journal of Allied Health Sciences and Practice

The assessment of the palliative client and family caregivers by an interdisciplinary team comprising medical, nursing, and allied health allows for all aspects including the physical, social, and psychological and spiritual needs to be incorporated into care planning. This comprehensive level of planning for the care of the client and family caregivers can allow for a client to fulfil their own definition of a good death, or dying well. Whilst the provision of psychosocial support can be the seen as the role of the social worker in the team, all members of the palliative care team, especially in rural and …

Palliative Care And Hospice Community Education, Mary Castang

Regis University Student Publications (comprehensive collection)

Executive Summary Palliative Care and Hospice Community Education Problem In the researcher's home hospice practice, a need for community education regarding Palliative Care and Hospice is recognized. Patients and family members need information about End of Life (EOL) care options prior to the urgency of a crisis. According to Szirony, Oopko, Masiulaniec and Binder (2011) many patients and family members learn of hospice and palliative care services only after admission into a program. The decision to sign in to a program reflects their perception of there being no other choice rather than understanding the options and benefits (Szirony, et al, …

Mid-Atlantic Ethics Committee Newsletter, Spring 2014

Mid-Atlantic Ethics Committee Newsletter

No abstract provided.

End Of Life-Decisions: An Islamic Perspective, Nasser Ibrahim Abu-El-Noor Dr., Mysoon Khalil Abu-El-Noor Dr

Journal of Health Ethics

Patients who live with a low quality of life and suffer from chronic pain may wish to end their suffering through different means such as active euthanasia, passive euthanasia, and physician-assisted suicide. These alternatives to end one’s own life create many ethical dilemmas for health care professionals, patients, and family members. Some of these decisions are forbidden in Islamic Religion, while others are permitted. In this paper, the authors will discuss how Islam looks at these decisions. Knowing about how Islam deals with such decisions will be of great help for health care providers who take care of Muslim patients. …

Utilizing Watson's Theory Of Caring To Develop A Palliative Care Proposal For Olmsted Medical Center, Tammie Johnson

Theses and Graduate Projects

Palliative care is aimed at alleviating the suffering of patients with serious or chronic illnesses. Literature examined to determine the needs of seriously or chronically ill patients and their farnilies found patients to have physical, psychosocial, and spiritual needs while coping with their illness. In addition, patients' family needed support in physical care of their loved ones, as well as information and psychosocial needs for themselves. The purpose of this project is to develop a proposal for an inpatient palliative care program for Olmsted Medical Center's (OMC's) consideration, Watson's Theory of Caring was utilized in the development of a palliative …

Impact Of Work Environment On Nurses' Job Satisfaction And Well-Being: Improving End-Of-Life Care And Services, Lise Fillion, Manon Truchon, Michel L'Heureux, Céline Gélinas, Marie Bellemare, Lyse Langlois, Jean-François Desbiens, Clémence Dallaire, Réjeanne Dupuis, Geneviève Roch, Marie Anik Robitaille

Rapports de recherche scientifique

Cliquez ici pour la version française de ce rapport

Avec le vieillissement de la population, la demande de soins palliatifs (SP) de fin de vie est croissante et les services de santé s’organisent. Au Québec, les SP de fin de vie sont surtout intégrés aux soins curatifs et on retrouve peu d’unités de SP spécialisées. Ces soins s'incorporent alors aux soins à domicile ou à ceux dispensés dans les unités de soins spécialisés en centre hospitalier, comme l’oncologie et les soins critiques. Les infirmières y jouent un rôle majeur. Selon ce choix organisationnel, les infirmières vivent un contexte de travail …

The Effect Of Family Centered Music Therapy Sessions On Relaxation States Of Informal Caregivers Of Hospice And Palliative Care Patients, Adrienne Claire Steiner

Theses and Dissertations--Music

Advances in healthcare and shifts toward patient and family centered care have allowed healthcare professionals to focus on the entirety of a patient and what affects his/her health. In noting such changes, and in consideration of what affects quality of life, findings in the literature address the physiological and physiological differences between those who are caregivers versus those who are not caregivers. This study investigated the relaxation state of those who were considered informal caregivers of hospice and palliative patients in an acute hospitalized setting.

A family centered music therapy session was conducted utilizing a music-­‐ assisted relaxation intervention incorporating …

Business Ethics: The Impact On Healthcare Professionals, Paul D. Longenecker

Health and Sport Sciences Faculty Scholarship

No abstract provided.

Learner-Based Teaching In Hospice And Palliative Care, Paul D. Longenecker

Health and Sport Sciences Faculty Scholarship

No abstract provided.

Palliative Care For The Medically Complex Child, Melanie Anspacher, Neha H. Shah

E-Learning Modules

**From the AAMC website: Contains time-sensitive information that will likely be inaccurate, obsolete, or irrelevant by August 12, 2016**

Children with special health care needs are increasingly prevalent in US hospitals. The pediatric hospitalist is often the primary provider of inpatient care for these patients. The Complex Care Curriculum was developed to provide a multi-modal educational curriculum for providers with the overall goal of improving inpatient care for this population. The curriculum is composed primarily of a series of topic-specific learning modules. This particular resource was created to provide pediatricians with educational materials related to palliative care for the medically …

The Role Of Leadership In Maximizing Ethical Hospice Care By Volunteers, Paul D. Longenecker

Health and Sport Sciences Faculty Scholarship

No abstract provided.

Communication Metaphor Of Patient Prognosis In The Spirit Of Hope, Dory Hanks

Theses and Graduate Projects

Prognosis for terminally ill patients is intended to serve the purpose of educating patients on the expected clinical outcome of their illness. This information is generally communicated to a patient by their primary physician when options for fufiher treattnent or "cure" are limited. Learning a prognosis may be helpful to some patients, while burdensome to others. A review of the literature reveals many barriers to effective communication of prognosis. The purpose of this project is to develop a metaphor for enhanced communication of prognosis to be used by hospice nurses that incorporates a caring perspective on living with hope during …

Gently Into The Good Night: Toward A Compassionate Response To End-Stage Illness, George P. Smith Ii

Scholarly Articles

End-of-life decision making by health care providers must respect individual patient values. Indeed, these values must always be viewed as the baseline for developing and pursuing patient-centered palliative care for those with terminal illness. Co-ordinate with this fundamental bioethics principle is that of beneficence or, in other words, respect for conduct which benefits the dying patient by alleviating end-stage suffering — be it physical or existential. Compassion, charity, agape and/or just common sense, should be a part of setting normative standards and of legislative and judicial responses to the task of managing death. Aided by the principles of medical futility, …

I'M Still Standing: Five Strategies To Survive Going Back To School, Janice Hawkins

Ellmer School of Nursing Faculty Publications

[First paragraph] Making the decision to return to school for a PhD was difficult for me. I feared the unknown but inescapable lifestyle adjustments. I’m resistant to change. When facing life’s cold waters, I wade, rather than plunge. There’s no wading into a PhD program. In spite of my cautious nature, I took the plunge.

Spiritual Care Interventions To Improve The Quality Of Life In Patients With Advanced Cancer Receiving Palliative Care, Maria Ballen-Sanchez

HIM 1990-2015

Title: Spiritual Care Interventions and Quality of Life in Cancer Patients Receiving Palliative Care Background: Despite the evidence supporting spiritual care in nursing and an increased quality of life among patients, patients feel that their spiritual needs are not being supported by medical professionals. Nurses agree that the role they play is significant in addressing the needs of cancer patients; however, they feel that they lack the knowledge for addressing spirituality concerns at the end of life. The purpose of this study is to identify spiritual care interventions that nurses can implement to improve quality of life (QOL) in patients …

The Effect Of Heart Failure Education On Intermediate Care Unit Nursing Staff's Knowledge Of Heart Failure, Self-Care, And Best Practice Guidelines, Carol Budgin

Evidence-Based Practice Project Reports

Heart failure (HF) is a chronic disease affecting nearly six million people in the United States with an annual cost of nearly 33 billion dollars. If nurses are inadequately prepared to care for and/or educate patients with HF, evidence-based (EB) nursing care will be suboptimal and hospital readmission rates with the subsequent increased costs for care will continue to soar. To address their higher-than-national average HF readmission rates, an EB nursing project was implemented at a local, urban community hospital to assess intermediate care unit (IMCU) nursing staff’s knowledge of HF, selfcare, and best practice guidelines. The Rossworm & Larrabee …

Two Cultures Of Caring: A Comparative Study, Lisa Armstrong, Chistina Polito

Honors Theses and Capstones

There is much that the UK and the US could and should learn from each other to understand the quality of end-of-life care, through comparison of practice, analysis of care patterns and via original research (Higginson, 2005, p.170). Although comparisons between end-of-life care in the United Kingdom and United States have demonstrated similarities and disparities in many contexts, there is little evidence of research that directly compares nursing perspectives between the two Atlantic partners. This research explores nurse’s perceptions and experiences of caring for people within a hospice context and identifies themes of commonalities and disparities in theory and practice, …

Music Therapy To Sever The Silence Of A Childhood Holocaust Survivor, Amy Clements-Cortés

Music Faculty Publications

No abstract provided.

The Mediating Effect Of Distress Caused By Constipation On Predictors Of Quality Of Life Of Hospice Patients With Cancer., Abdel Alkhalouf

USF Tampa Graduate Theses and Dissertations

Abstract

The Mediating Effect of Distress Caused by Constipation on Predictors of Quality of Life of Hospice Patients with Cancer.

Key positive outcomes for hospice patients include the prevention and alleviation of physical and psychological distress, maintenance of physical and mental functioning and all aspects of quality of life. This research used secondary analysis of previously gathered data to answer new research questions with alternative strategies to examine relationships not previously analyzed. The researchers collected data from 717 cancer patients who had been admitted to one of two private hospices. The aim of their experimental intervention was to define the …

An Educational Intervention For Hospice Volunteers, Susan Conrey

Nursing Masters

Background and Significance: The House of John is a two-bed comfort care home located in rural, upstate NY and is staffed, in part, by a pool of adult volunteers. This researcher is an active member of that volunteer group. Volunteers are required to complete an eight week training course before they can begin caring for residents and fulfilling their volunteer hours. An estimated 60% of the active volunteers participated in their initial hospice volunteer training more than 5 years ago and have had little or no continuing or ongoing education since that time. In February of 2009, the newly organized …

Wright State University Celebration Of Research, Scholarship And Creative Activities Book Of Abstracts Friday, April 8, 2011, Wright State University Office Of Undergraduate Research And Stemm Activities

Celebration of Undergraduate & Graduate Research, Scholarship, and Creative Activities Materials

The student abstract booklet is a compilation of abstracts from students' oral and poster presentations at Wright State University's second annual Celebration of Research, Scholarship and Creative Activities on April 8, 2011.

Holistic Comfort And Bereavement Of Families Receiving Prenatal Hospice Support During The Loss Of An Unborn Child With Lethal Anomalies, Sally S. Smith

Nursing Theses and Capstone Projects

The purpose of this descriptive study was to explore the grieving process and coping mechanism of families that was faced with the impeding loss of their unborn child. Grief is a very lonely process.

The aim of this research is to examine how parents cope with the lost of an unborn child with the aid of perinatal hospices. Giving families a broader range of options in regards to continuing their pregnancy. Each family has a right to choice what option is right for them. Choices should be in the hands of the family in regards to continuing with their pregnancy …

Palliative Care: A Novel Solution To The Healthcare Crisis, R. Sean Morrison

Center for Policy Research

No abstract provided.

The White Rose Program – Assuring Respect And Dignity For The Terminally Ill., Miriam Ramos-Martinez Msn, Rn, Cmsrn, Tami Meltsch Bsn, Rn, Pccn, Cnml.

Patient Care Services / Nursing

No abstract provided.

The Ethical Balancing Act Of Hospice Care, Paul D. Longenecker

Health and Sport Sciences Faculty Scholarship

In providing hospice care, clinicians are confronted with ethical challenges on a daily basis involving their patients and families, their personal values and beliefs, and organizational practices. Being able to objectively understand these ethical challenges and having a plan of action to address is essential in effectively fulfilling the role of being a hospice professional.

Understanding Nurses’ Experiences Of Providing End-Of-Life Care In The United States Hospital Setting, Susan Johnson

Theses and Dissertations

Nurses perform a vital role in the care of dying patients and their families. Hence, experiences of nurses are a meaningful source from which to advance holistic end-of-life care. In this study, a hermeneutic phenomenological perspective was used to explore the phenomenon of end-of-life nursing care. Details derived from a scientific exploration into the experiences of 13 registered nurses who provided care for patients and families at end-of-life in the inpatient hospital setting offer understandings regarding this important phenomenon. The hermeneutic phenomenological methods of Max van Manen guided data collection and analysis. Three main themes described the participants’ experience of …