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James Madison University

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Chronic illness

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Sickening Responsibility- Thoughts On Care Work From A Chronically Ill Scholar Activist, Samuel Z. Shelton May 2023

Sickening Responsibility- Thoughts On Care Work From A Chronically Ill Scholar Activist, Samuel Z. Shelton

International Journal on Responsibility

What does it mean to focus practices of responsibility around sick/unwellness during pandemic times? Using a disability justice framework and drawing from my experiences as a chronically ill / sick person, in this article, I argue that responsibility takes on different meanings when examined through a critical framework that recognizes sickness as an ordinary aspect of life under interlocking systems of power, such as capitalism, White supremacy, ableism/sanism, and cisheteropatriarchy. In particular, I contend that beginning conversations about responsibility from the assumption of sickness - that everyone either sick or has the potential to become sick and that sick people …