Social and Behavioral Sciences Commons^™

My Mind Is A Forest: An Autistic Wandering Through The Language Of Silence And The Poems Of Mary Oliver, Torri Blue

Ought: The Journal of Autistic Culture

The autistic experience has been widely medicalized, pathologized, mischaracterized, and misunderstood. Through this series of essays, I attempt to paint an alternative picture of (an) autistic life—one not defined by deficits, but (at the risk of sounding cliché) differences—by re-storying autism through an Autistic Poetic.

Autistic Poetics, or the poetry of autistic existence, offers to our imagination a new way of relating to the world—alternative pictures of what it means to be human and all the possibilities therein. Autists, as human beings who often express being more at home with the earth-others and more-than-human world, can offer our writings as …

Project Attain: Advancing Trauma-Informed Care For Youth With Intellectual And Developmental Disabilities And/Or Gender Diverse Youth, Kady F. Sternberg, Charlotte E. Bausha, Charlotte Jones, Erin Knight, Crystal N. Steltenpohl, Rebecca R. Parton, Jennifer L. Mclaren, Erin R. Barnett

Developmental Disabilities Network Journal

Children with Intellectual and Developmental Disabilities (IDD) and/or gender diversity are at higher risk of experiencing trauma. Provider knowledge is lacking; trauma, disability, and LGBTQ+ resources are often siloed; and few providers screen for trauma in this population. This paper describes the design, delivery, and initial evaluation of Project ATTAIN (Access to Trauma-informed Treatment and Assessment for Neurodivergent and/or Gender-expansive Youth).

ATTAIN is an ongoing 5-year state-wide initiative aiming to assess readiness to engage in new roles and practices over time; provide state-wide training and consultation in trauma, disability, and LGBTQ+-informed practices; install screening and assessment of trauma exposure and …

Makayla's Voice: A Letter To The World, Monica Blizek

Journal of Religion & Film

This is a film review of Makayla’s Voice: A Letter to the World (2023), directed by Julio Palacio.

Paraprofessionals In A Special Education Setting: A Qualitative Exploration Of Their Perceptions, Chana S. Max, Keisha Mccoy-Dailey

The Qualitative Report

Paraprofessionals support teachers and students in the classroom. Their roles and responsibilities vary; however, their goal is always to improve student achievement. The purpose of the study was to fill a gap in the literature related to special education paraprofessionals’ perceptions, attitudes, and beliefs on the support and trainings they receive prior to and during their job as a paraprofessional for students in a special education setting. Generic qualitative methodology was used to capture the thoughts, experience, and perceptions of 42 paraprofessionals across the United States. Data collection included an eight-question online questionnaire. Results of the study revealed five patterns …

The Future Of Critical Autism Studies (Cas): Thinking Through Critical Discourse Studies And Postcolonial Feminism, Cansu Elmadagli

Ought: The Journal of Autistic Culture

The field of Critical Autism Studies (CAS) has evolved significantly since its inception, with scholars continually redefining its key tenets and objectives. CAS emerged as a response to conventional medical and social deficit-based models of autism and seeks to challenge the prevailing norm that considers neurotypicality as the unquestioned standard. This article, written by an autistic scholar, aims to contribute to the ongoing discussions in CAS. The article introduces novel perspectives by suggesting connections between CAS, Critical Discourse Studies (CDS), and postcolonial feminism. It advocates for the incorporation of concepts and tools from these traditions to enrich CAS’s approach. Furthermore, …

Critical Autism Studies Beyond Academia: An Annotated List, Alyssa Hillary Zisk

Ought: The Journal of Autistic Culture

This is an introduced and annotated list of sources from beyond academia which are, have been, or may yet be important texts for critical autism or neurodiversity studies. The defining actions of critical autism studies, or of critical neurodiversity studies, have been taken outside academia and will continue to be taken outside academia. This list serves as a reminder of this reality through examples.

Smart Technology In Autism Care: Is Rootines Usable, Useful, And Acceptable In Clinical Practice?, Isak Beck, Lonnie Sears

The Cardinal Edge

Smart technologies are rapidly appearing in the healthcare landscape. In this study, we evaluate Rootines, a smartphone app offering remote patient monitoring for kids with developmental and behavioral health concerns. We’re asking families served by the Norton Children’s Autism Center in Louisville, Kentucky to use Rootines together with their child’s clinician for two weeks. Following this, we will use surveys and interviews to probe for the usability (how well the technology can be used), usefulness (how valuable users find the technology), and acceptability (whether the technology can meet user needs) of the Rootines app. Trials in clinical settings are crucial …

Breaking Me Down And Lifting Me Up: An Autoethnography Of Being A Black Autistic Woman Online, Morgan Harper-Nichols

Ought: The Journal of Autistic Culture

This autoethnography investigates the diverse challenges associated with being a Black, undiagnosed autistic woman coming of age on the internet, and examines how online experiences shaped my identity over the past twenty years. Early encounters with racism and cautious self-expression on platforms such as forums, GeoCities, Myspace, and YouTube are explored as my initial efforts to "fit in" in virtual spaces. I discuss how engaging with platforms like Instagram and Etsy enabled my participation in the gig economy while grappling with my pre-diagnosis social struggles. I also share how I navigate post-2020 experiences as a Black autistic online creator, how …

Talking Heads, Fear Of Music, And The "Different Thinking" Of David Byrne, John Bruni

Ought: The Journal of Autistic Culture

This article proposes that the 2006 post on the website of David Byrne, the vocalist/guitarist of Talking Heads, announcing his self-diagnosis as an autistic person, invites a reappraisal of the band’s discography, especially Fear of Music (1979), which foregrounds his lyrical approach. Fear of Music, I suggest, relies on “autistic misdirections” that illustrate Byrne’s “different thinking” about his body, mind, communicative (in)ability, and relationship to physical spaces – all prominent and productive areas of exploration within critical autism studies.

“Different thinking” is taken from the 2020 memoir of Chris Frantz, the drummer of Talking Heads, in describing, retroactively, how …

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

Honors Thesis – Awareness Of Autism In Black And Brown Communities, Varun Kota

Mako: NSU Undergraduate Student Journal

Autism Spectrum Disorder (ASD) affects a multitude of races and ethnicities as its impact varies from person to person. ASD is typically diagnosed around the age of two to three years old since signs and symptoms of Autism become clinically apparent at that time. Increased reporting of Autism in local communities has surged from diagnostic tools and criteria. However, even with these advancements, the African American community suffers a delayed diagnosis of ASD. This issue poses problems for both the parents and children with Autism and has broader implications for the South Florida community; opportunities are limited for developmental services …

Preparing For The Next Disaster: Lessons Learned From The Early Experiences Of Autistic Adults During The Covid-19 Pandemic, Amber Pomponio Davidson, Cecilia Feeley, Beth Pfeiffer, Mark Salzer

Internet Journal of Allied Health Sciences and Practice

Purpose: Disasters, such as the worldwide COVID-19 pandemic, create significant disruptions for individuals and their communities. Understanding these disruptions is a first step towards planning for future events and disaster recovery. This research aims to explore how the initial COVID-19 restrictions, including lockdowns, impacted adults with Autism (ASD). Method: Using semi-structured interviews to understand how individuals with ASD experienced the early months of the COVID-19 pandemic, twelve participants were interviewed: six individuals with ASD (ages 20-38), three parents of individuals with ASD, and three support staff for individuals with ASD. Analysis: Grounded theory methods were used to analyze the impacts …

Parent Perceptions Of Post-Secondary Programming Completed By Their Adult Children With Autism Spectrum Disorder, Christopher Ramos, Katherine Wheeler, Jennifer Hamrick, Alexis Favela, Katelyn Pennington, Anthonia Prince

Journal of Human Services: Training, Research, and Practice

Texas Tech University's Burkhart Center for Autism Education and Research works with communities & families in the greater West Texas area to provide supports and services to individuals with Autism Spectrum Disorder with a primary focus on building independent living and vocational skills in a post-secondary environment. In this study, parents of individuals with ASD who had completed the Burkhart Center’s Transition Academy completed an online survey. Parents identified areas in which they were satisfied with their child’s post-secondary experience as well as dissatisfaction, and of additional need. The findings of this current study may provide critical information to post-secondary …

Remote Working And Online Education Among Neurodiverse Individuals, Kendall Smith

Emerging Writers

Many jobs and schools closed in response to the Covid-19 pandemic, and a vast majority of students and employees found it difficult to resume their education and careers online; however, those on the neurodiverse spectrum found it much harder. Upon first glance, it was easy to see how frustrating and stressful online schooling was for special needs students. Many had difficulty concentrating during virtual lectures or lacked motivation to stay on task. Likewise, many neurodiverse employees found that at-home distractions were far worse than in-office ones, and the loneliness from staying home all day was jarring. But after pulling research …

Autism, Sexuality, And Bdsm, Ariel E. Pliskin

Ought: The Journal of Autistic Culture

This paper will explore the following areas in which idiosyncratic, sensitive and intense autistic ways of being result in patterns of sexual behavior and reasons autistic people may be particularly drawn to BDSM: 1) autistic sensorimotor intensity promotes non-normative movement, including sadomasochistic, patterns of movement 2) the autistic preference for literal and concrete language matches the BDSM culture’s norms of explicit verbal consent 3) idiosyncratic autistic attention fits will with opportunities within BDSM for developing a long-term career of learning and deep engagement. 4) the double empathy problem results in marginalization of autistic people from mainstream society while BDSM communities …

Everything’S Gonna Be Kinda Queer: Autistic Gender & Sexuality In Everything’S Gonna Be Okay, Jinx Mylo

Ought: The Journal of Autistic Culture

This paper analyzes the representations of autistic characters in the television show Everything’s Gonna Be Okay in relation to gender and sexuality. In contrast to previous screen representations, the four autistic characters provide a variety of gender expressions and sexual orientations, challenging the stereotypes that perpetuate the idea of autism being limited to heterosexual men. Issues explored include attitudes toward autistic sexual consent and agency, sexual experimentation, and the impacts of communication norms on romantic relationships.

Association Between Therapeutic Interventions And Quality Of Life In People With Autism, Taline Movsessian, Tolulope A. Osoba

Journal of Social, Behavioral, and Health Sciences

Research exploring the association of autism interventions with the quality of life (QoL) of adults with autism spectrum disorders was scarce. Although a multitude of interventions are used to target a specific challenge facing the individual with autism, their correlation with achieving a better QoL is largely unknown. We conducted a cross-sectional, correlational survey study to determine the association between seven interventions—behavioral, social, mental health, daily living skills (DLS), vocational, mindfulness, and medications—and the QoL of adults 18 years and older with autism with no intellectual disability (ID) living in Canada. A national sample of 182 autistic adults or proxy …

Autism Assessment In The Schools: A Review Of Rating Scales And Observation Systems., Jaime Flowers, Dallin Marr, Nina Ellis-Hervey, Trudy Georgio, Jessica Cuitareo

Journal of Human Services: Training, Research, and Practice

School psychologists are tasked with assessing students with Autism Spectrum Disorders (ASD). While not used alone, ASD measures can help practitioners make informed decisions regarding special education eligibility. The purpose of this paper is to review the psychometric strengths and weaknesses of the following measures: Autism Diagnostic Interview, Revised (ADI-R); Autism Diagnostic Observation Schedule, Second Edition (ADOS-2); Autism Spectrum Rating Scale (ASRS); Childhood Autism Rating Scale, Second Edition (CARS-2); and Gilliam Autism Rating Scale, Third Edition (GARS-3).

The Road To Championship: An Example Of An Individual With Autism Spectrum Disorder, Halil Sarol, Rıfat Kerem Gürkan, Bülent Gürbüz

Baltic Journal of Health and Physical Activity

The aim of this research is to investigate the road to championship of an individual with Autism Spectrum Disorder (ASD) who began physical activity in childhood under parental influence and won medals in competition as an athlete. In this research, founded on the phenomenological pattern from qualitative research models, data were collected in a semi-structured interview. Face-to-face interviews were held with the family, coach and the research participant. The content analysis method was used. The individual with ASD began a physical activity program in a special education center in childhood under parental influence and psychiatric referral. The individual with ASD …

Autism Camouflaging In Relation To Views About Autism, Mental Health, And Gender Identity, Joshua A. Evans

Global Tides

This study examined relationships between autism camouflaging behavior, personal views about autism, community support, camouflaging emotional impact, depression, anxiety, ability to be one’s authentic self and gender in autistic adults. Participants were recruited through Facebook groups. There were 248 participants (174 cisgender women, 22 cisgender men, and 43 nonbinary people). It was hypothesized autism camouflaging behavior, its emotional impact and authentic self would correlate with depression and anxiety. Gender and camouflaging emotional impact were correlated with depression levels, but camouflaging behavior was not correlated with depression or anxiety. Participants with lower self-reported acceptance of authentic self had higher depression and …

Parental Burnout As A Health Determinant In Mothers Raising Disabled Children, Aleksandra Sadziak, Wojciech Wilinski, Marta Wieczorek

Baltic Journal of Health and Physical Activity

Background: The aim of the study was to determine and compare the current risk of parental burnout in mothers of children with autism and with mild and moderate intellectual disabilities. Material and methods: ‪The study was conducted among 30 mothers of children with autism, 30 mothers of children with moderate intellectual disabilities and 20 mothers of children with mild intellectual disabilities. A diagnostic survey was the research method, a survey was the technique used, and the Parental Burnout Questionnaire by M. Sekułowicz and P. Kwiatkowski was the applied research tool. Results: ‪The average level of parental burnout risk significantly differentiates …

Educational Pandemic Impacts In Applied Behavior Analysis (Aba) Classrooms: Qualitative Outcomes From Board Certified Behavior Analyst (Bcba) And Registered Behavior Technicians (Rbt) Perspectives, Chana S. Josilowski-Max, Nicole Lambright

The Qualitative Report

The current COVID-19 pandemic has led to unprecedented changes in how Applied Behavior Analysis (ABA) services are provided to students/clients with autism spectrum disorders (ASD), and scant literature is available from which to determine the best course of action for providing safe services during a pandemic. The research question for this study is: What is the essence of experiences of parents, teachers, and Board-Certified Behavior Analysts of students with ASD who are now receiving ABA services remotely due to the COVID-19 pandemic school closures? Generic qualitative design was used to analyze the responses of nine participants who are either Board …

Being The Curriculum, Alyssa Hillary Zisk

Ought: The Journal of Autistic Culture

This article is a work of creative non-fiction. Part of the work is my reflections on one systemically awkward experience of introducing my neurodivergence, autism, to my classmates in my graduate program in neuroscience. Part of the work engages with theory and neuroscientific/cognitive findings that I either shared during the presentation or encountered since but would have been relevant to the experience. The two parts are intertwined, because life isn't neatly separable.

What Are Intended As Systems Of Support Become Systems Of Struggle, Kevin Timpe

Ought: The Journal of Autistic Culture

Education is, in theory, a human right owed to all individuals, including those who are disabled. In practice, however, that right is often not satisfied. While disabled students now have a federal right to a public education in the United States, the Individuals with Disabilities Education Act is often not followed. And even when it is, ensuring that it is often places undue demands on disabled students and their families. The system that is supposed to support disabled students all too often is itself a source of struggle.

Understanding And Promoting The Human Rights Of Autistic People, Keri E. Iyall Smith Phd

Societies Without Borders

Rates of autism diagnosis are on the rise and autistic people are entering the public sphere in new ways, represented in theater, on television, as international experts, and more. Yet, do autistic people experience their full human rights? Experts argue that autistic people suffer discrimination and violations of their human rights, noting that more must be done to ensure the full entitlement of human rights for autistic people (Autism Society ND, Baron-Cohen 2017 and Sarrett 2012). To better understand and promote the human rights of autistic people, this paper applies theories of disability to autism, looking at the biomedical model, …

Challenges For Children And Adolescents With Autism And Their Families During The Covid-19 Pandemic, Orsolya Pachner, Gabor Aranyi

Journal of Global Awareness

The restrictions and lockdown measures implemented in response to the Covid-19 pandemic have posed a pronounced risk to the mental health of people with autism and their families. We discuss specific difficulties affecting children and adolescents with autism and their families during the pandemic, drawing on a broad range of recently published research in many countries and regions. A global perspective is adopted to provide an overview of the state of affairs and identify good practices. We consider challenges in four areas: research and practice related to autism, challenges facing children and adolescents with autism, specific difficulties in their education …

“It’S An Opportunity To Get Opportunities”: A Brief Report On The Working Lives Of Individuals With Intellectual And Developmental Disabilities During The Covid-19 Pandemic, James Sinclair, Carly B. Gilson, Mary Whirley, Yi-Fan Li

Developmental Disabilities Network Journal

The Covid-19 pandemic has impacted countless individuals, including those who experience intellectual and developmental disabilities (IDD). Even amid a pandemic, for many individuals, working continues to be a critically important aspect of their life, providing opportunities to accomplish their desired quality of life. Currently, limitations exist to understanding both the working lives of individuals with IDD, but also how individuals with IDD make meaning from their work during a pandemic. Using a psychology of working theory (PWT; Blustein, 2006), this research brief summarizes a qualitative study on the working experiences of individuals with IDD. This study included interviews with six …

Self Care, Mental Health And Covid-19: An Exploratory Study Of The Coping Strategies Of Caregivers Of Individuals With Autism During The Pandemic (In Hyderabad, India), Triveni Goswami Vernal

BAU Journal - Society, Culture and Human Behavior

COVID-19 (Coronavirus Disease-19), an infectious condition was first identified in December 2019, in Wuhan, in China. It has led to a worldwide pandemic with millions of people affected—not just health wise, but also economically and psychologically. The uncertainty associated with it, has caused immense anxiety, stress and trauma to people all over the world. India’s response to COVID-19 has comprised of a series of phases of Lockdown and subsequent Unlock. In mid-March, India announced a nationwide Lockdown, that led to the closure of educational institutions, factories, work places, transport, cinema halls, hotels, malls etc. The only places that were open …

Building A Strength-Based Support Program For College Students With Autism, Deann Lechtenberger, Wesley H. Dotson, Eriko Fukuda, Rebecca Beights, Jennifer Hamrick, James Williams, Barry Lovelace

Journal of Human Services: Training, Research, and Practice

Abstract

Understanding Social-Emotional Reciprocity In Autism: Viewpoints Shared By Teachers, Lizaan Schwartz, Wendi Beamish, Loraine Mckay

Australian Journal of Teacher Education

Poor social-emotional reciprocity (SER) has been identified as one of the defining traits of autism. It is a key criterion in recent Diagnostic and Statistical Manual of Mental Disorders editions, DSM-IV and DSM-V (American Psychiatric Association [APA], 1994, 2013). Yet this difficulty related to socially engaging and interacting with others is poorly understood. The study reported here was a small-scale, qualitative inquiry underpinned by a phenomenological approach in which social-emotional reciprocity (SER) was the phenomenon being studied. Semi-structured interviews with three experienced teachers at an Australian autism-specific school were used to capture their understandings and experiences related to the trait. …