Social and Behavioral Sciences Commons^™

The Psychosocial Impact Of Rare Diseases Among Children And Adolescents Attending Mainstream Schools In Western Australia, Esther A. Adama, Diana Arabiat, Mandie Foster, Ebenezer Afrifa-Yamoah, K. Runions, R. Vithiatharan, A. Lin

Research outputs 2014 to 2021

Living with a long-term medical condition is associated with heightened risk for mental health and psychosocial difficulties, but further research is required on this risk for children and adolescents with a rare disease in the educational setting. The aim of this study is to describe parents’ perceptions of the psychosocial impact of rare diseases on their school-aged children in Western Australia. A cross-sectional survey of 41 parents of school-aged children and adolescents diagnosed with a rare disease completed an online questionnaire. Questions related to their perceptions of health-related stigma, bullying, social competencies and mental health difficulties faced by their child. …

Bully Me, Bruce Roberts Mutard

Research outputs 2014 to 2021

What price bullying? Is it as simple as saying: ‘hit back’ or, ‘toughen up’? Or, is it to be endured, because it won’t last forever? But what if it does last? What if the bullies finally go away, but you’re left with the worst bully of all: yourself? Your inner voice telling you you’re no good, you’re ugly, you’re the worst in the world and it would be better off without you?

How do you escape the bully that lives inside your head, all day, every day, every night?

This is the story of how I managed to escape that …