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Full-Text Articles in Social and Behavioral Sciences
Trajectories Of Adaptive Functioning Among Youth With Spina Bifida: The Influence Of Neurocognitive Functioning And Parental Scaffolding, Adrien Winning
Trajectories Of Adaptive Functioning Among Youth With Spina Bifida: The Influence Of Neurocognitive Functioning And Parental Scaffolding, Adrien Winning
Master's Theses
Youth with spina bifida (SB), a congenital birth defect affecting the central nervous system, are at risk of experiencing an array of psychosocial and functional deficits (Copp et al., 2015; Holmbeck et al., 2003). Indeed, previous research has documented difficulties across the three adaptive functioning domains outlined by the American Association on Intellectual and Developmental Disabilities (AAIDD): conceptual (e.g., communication, self-direction, functional academics), social (e.g., interpersonal skills), and practical (e.g., self-care, navigating health-care; Copp et al., 2015). Despite this evidence, whether or not children with SB typically acquire skills across development is largely unknown. Additionally, little is known about risk …
Condition Severity And Parent Psychosocial Functioning In Families Of Youth With Spina Bifida: The Role Of Parental Attitudes And Beliefs, Elicia Wartman
Condition Severity And Parent Psychosocial Functioning In Families Of Youth With Spina Bifida: The Role Of Parental Attitudes And Beliefs, Elicia Wartman
Master's Theses
Past research suggests that parents of youth with spina bifida (SB) have worse psychosocial outcomes than parents of typically developing youth. SB is a complex medical condition that is accompanied by varying degrees of physical disability and cognitive deficits. Research on stress and coping suggests that parents' attitudes and beliefs may contribute to their own psychosocial adjustment. This study unpacks condition severity and examines the role of severity of condition-related factors in predicting parental adjustment and parental attitudes and beliefs. Participants were recruited as part of a larger longitudinal study. Information on condition severity, including type of SB, lesion level, …