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Social and Behavioral Sciences Commons™
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Full-Text Articles in Social and Behavioral Sciences
Development And Preliminary Psychometric Testing Of The Aaspire Adult Autism Healthcare Provider Self-Efficacy Scale, Christina Nicolaidis, Gavin Schnider, Junghee Lee, Dora Raymaker, Steven K. Kapp, Lisa A. Croen, Anna Urbanowicz, Joelle Maslak
Development And Preliminary Psychometric Testing Of The Aaspire Adult Autism Healthcare Provider Self-Efficacy Scale, Christina Nicolaidis, Gavin Schnider, Junghee Lee, Dora Raymaker, Steven K. Kapp, Lisa A. Croen, Anna Urbanowicz, Joelle Maslak
School of Social Work Faculty Publications and Presentations
Our objective was to develop a measure of healthcare providers’ self-efficacy in providing healthcare to autistic adults and to better understand their training needs. We used a community based participatory research (CBPR) approach with academic researchers, autistic adults, supporters, and healthcare providers. We developed a 1-page questionnaire which included the new 6-item self-efficacy scale, two items on how challenging and rewarding it is to provide care to autistic adults, and seven items on provider characteristics. We surveyed 143 healthcare providers from eight primary care clinics in Oregon and California, USA. Preliminary psychometric testing found the AASPIRE Adult Autism Healthcare Provider …
Parent Health Beliefs, Social Determinants Of Health, And Child Health Services Utilization Among Us School-Age Children With Autism, Katharine Zuckerman, Olivia J. Lindly, Brianna Sinche, Christina Nicolaidis
Parent Health Beliefs, Social Determinants Of Health, And Child Health Services Utilization Among Us School-Age Children With Autism, Katharine Zuckerman, Olivia J. Lindly, Brianna Sinche, Christina Nicolaidis
School of Social Work Faculty Publications and Presentations
Objective—Substantial variation exists in ASD care by race, ethnicity, and socioeconomic status; however, the role of parent health beliefs in this variation is poorly understood. Study goals were to (1) examine variation in parent beliefs about ASD prognosis and treatment according to social determinants of health (SDH) and (2) assess whether this variation was associated with variable health services utilization, among 1420 children with special health care needs (CSHCN) having autism spectrum disorder (ASD). Methods—We used linked data from the 2011 Survey of Pathways to Diagnosis and Treatment and the 2009/10 National Survey of Children with Special Health Care Needs. …
Psychometric Testing Of Patient-Reported Instruments To Assess Healthcare Interventions For Autistic Adults, Christina Nicolaidis, Kelly Zhen, Junghee Lee, Dora Raymaker, Steven K. Kapp, Lisa A. Croen, Anna Urbanowicz, Joelle Maslak, Mirah L. Scharer
Psychometric Testing Of Patient-Reported Instruments To Assess Healthcare Interventions For Autistic Adults, Christina Nicolaidis, Kelly Zhen, Junghee Lee, Dora Raymaker, Steven K. Kapp, Lisa A. Croen, Anna Urbanowicz, Joelle Maslak, Mirah L. Scharer
School of Social Work Faculty Publications and Presentations
There is a growing recognition of the need for interventions to improve the healthcare of autistic adults. However, there is a dearth of validated measures to evaluate such interventions. Our objectives were to use a community based participatory research approach to create an accessible set of patient- and proxy-reported instruments to measure healthcare outcomes and potential intervention targets in autistic adults and to assess the instruments’ psychometric characteristics, including content validity, construct validity, and internal consistency reliability. We administered a survey to 244 autistic adults recruited from 12 primary care clinics in Oregon and California, USA (194 participating directly, and …