Social and Behavioral Sciences Commons^™

Hearing The Patient Voice: Using Video Intervention/Prevention Assessment To Understand Teens With Cystic Fibrosis, Susan Horky Lscw, Laura E. Sherman Msw, Julie Polvinen, Michael Rich Md

Patient Experience Journal

This qualitative study asked two questions: 1) How do teens with cystic fibrosis (CF) feel about their treatments; and 2) What factors lead teens to adhere, or not adhere, to treatments. To answer these questions we used an innovative approach (Video Intervention/Prevention Assessment or VIA), to learn about the experiences of teens with CF. We loaned video camcorders to teens with CF and asked them to create visual narratives of their lives. Researchers logged and coded videotapes, identifying themes that arose from the material. A primary theme was “Doctors don’t understand.” Participants also highlighted the value of routines and parental …

Collaborating With Pediatric Gastroenterologists To Treat Co-Occurring Inflammatory Bowel Disease And Anxiety In Pediatric Medical Settings, Laura C. Reigada, Amanda Mcgovern, Megan E. Tudor, Deborah J. Walder, Carrie Masia

Department of Psychology Faculty Scholarship and Creative Works

Children and adolescents with inflammatory bowel disease (IBD) have distinct physical and emotional challenges that may place them at risk for developing anxiety and that may impede their receipt of mental health treatment. Only a handful of studies have applied empirically validated cognitive behavioral therapy (CBT) to IBD-related issues and no studies have examined the benefit of CBT for anxiety disorders in pediatric IBD. The aim of this paper is to describe a newly adapted cognitive behavioral treatment protocol, Treatment of Anxiety and Physical Symptoms related to IBD (TAPS. +. IBD), that has been tailored to concurrently address anxiety, including …

Illness Perceptions Of Polycystic Ovary Syndrome, Elizabeth Baker

USF Tampa Graduate Theses and Dissertations

Polycystic ovary syndrome (PCOS) is a chronic illness that affects approximately five million premenopausal women in the United States and is associated with significant cosmetic, reproductive, metabolic, and psychological consequences. Despite its prevalence, few studies have explored the lived experiences and illness perceptions of women living with PCOS. Identifying illness perceptions of women living with (WLW) PCOS is important, because mounting research suggests that a person's perceptions of their chronic illness and its management determine that person's coping behaviors (e.g., adherence, self-management) and, consequently, illness outcomes.

In this dissertation, the Common Sense Model (CSM) is used as a framework to …

Families With Severe Medical Conditions In Children: Effects And Interventions, Morgan Wilson

Master of Social Work Clinical Research Papers

Parents and primary caregivers are the most important providers of support and care for their children. Families with children with chronic or life-threatening medical conditions face many challenges that the average family does not. The purpose of this research project was to discover what the effects of having a child with a chronic or severe illness are on the family system. This was done by finding out what has been the most helpful to the family and each of its members during the time since the child has been diagnosed and by finding out what has been challenging to the …

Firefly Song, Lasantha Rodrigo

Theses and Dissertations

Chethiya is a brown, gay, disabled (ultimately), abused young man from Sri Lanka, who comes to the U.S. on a full scholarship. His dream is to be a Broadway star, but after coming out of his first relationship with an emotionally abusive, alcoholic man, he is diagnosed with multiple sclerosis, a chronic, degenerative neurological disease that results in demyelination, causing progressive debilitation. The story is divided into six chapters that narrate his life under various marginalizations he is subjected to, culminating in traumatization. The story, however, ends on a positive note of redemption with the narrator looking forward to his …

The Highs And Lows Of Caregiving For Chronically Ill Lesbian, Gay, And Bisexual Elders, Anna M. Muraco, Karen I. Fredriksen-Goldsen

Sociology Faculty Works

This study examines informal caregivers’ and LGB care recipients’ “best” and “worst” experiences of care within their relationship. Communal relationship theory guides the research. The work uses qualitative interview data from a sample of 36 care pairs (n=72), divided between committed partners and friends, to understand the similarities and differences in the care norms employed in varied relationship contexts. Findings from the study show that relationship context influences the experiences that caregivers and care recipients identify as “best” and “worst,” but often focus on the relationship and needs met at bests, and conflict and fear of worsening health as worsts.

Communication During First-Time Multidisciplinary Clinic Visits: Navigating Parental Decision Making And Uncertainty Management In Pediatric Chronic Illness, Anna M. Kerr

Theses and Dissertations--Communication

Individuals with chronic illnesses must manage long-term uncertainty and decision making as they cope with the ways the illness influences almost every aspect of their lives. In the context of pediatric illnesses, parents assume the burden of uncertainty management and decision making during the diagnosis and treatment of their child’s illness. It is common for children with complex chronic illnesses to see multiple specialists for the treatment of their condition. The first visit to a specialist is often more elaborate than a routine primary care visit. While previous research has explored parents’ decision making and uncertainty management during a child’s …

"It Was Nice To Wake Up From That One" : An Exploratory Qualitative Content Analysis Of Vivid Dreams And Nightmares Reported By People Living With Hiv/Aids As Side Effects Of Efavirenz, Joel C. Coburn

Theses, Dissertations, and Projects

This is an exploratory, qualitative content analysis of 50 vivid dream and nightmare narratives posted to an online forum by people living with HIV/AIDS and taking the anti-HIV drug Efavirenz. It examines thematic connections among the dreams with consideration of how these themes might be linked to and reflective of complex subjective experiences of living with HIV/AIDS. This thesis demonstrates that the phenomenon of vivid dreams and nightmares as purported side effects of Efavirenz is of substantial interest to people living with HIV/AIDS. Furthermore, it argues that vivid dreams and nightmares experienced by people living with HIV/AIDS and taking Efavirenz …