Social and Behavioral Sciences Commons^™

Dementia Caregivers: An Exploration Of Their Knowledge, Beliefs, And Behavior Regarding Advance Care Planning For End-Of-Life Care, Mariette Klein

Theses and Dissertations

The purpose of this study is to explore what knowledge dementia caregivers have about advance care planning (ACP), how they learn to execute formal advance directives (ADs) or have engaged in an informal ACP process, and how they understand their roles as decision makers for the patients. Factors that contribute to the completion of an ACP process such as demographic, psychosocial, and situational factors are identified. From the grounded theory data analysis, a theory emerged about how ACP is accomplished and used by caregivers. Findings reveal that caregivers understand ACP as having the power to shape the dying process for …