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Social and Behavioral Sciences Commons™
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Articles 1 - 30 of 41
Full-Text Articles in Social and Behavioral Sciences
The Legitimacy Of The Patient Story: The Unofficial Autoethnography, Kathy Saldana
The Legitimacy Of The Patient Story: The Unofficial Autoethnography, Kathy Saldana
Patient Experience Journal
While communication is the foundation of patient experience, survey data and comments are the primary source of results. The focus on data, though meaningful, reduces humans to text on reports. With a focus of autoethnography in both her baccalaureate and post-graduate studies, the author, (a fulltime patient experience professional) shares her professional focus on the value of the data and comments, esteeming it all as valuable research given by the only people who can report patient experience – patients. She compares her stance regarding patient experience before and after receiving a diagnosis of breast cancer. The author shares how the …
The Lived Experiences Of Middle Eastern Immigrant Women During Their Cancer Survivorship Journey: A Phenomenological Study, Enam Alsrayheen, Khaldoun Aldiabat, Catherine Aquino-Russell
The Lived Experiences Of Middle Eastern Immigrant Women During Their Cancer Survivorship Journey: A Phenomenological Study, Enam Alsrayheen, Khaldoun Aldiabat, Catherine Aquino-Russell
The Qualitative Report
The number of Middle Eastern immigrant women (MEIW) living in Canada has significantly increased. However, this group of women is underrepresented in health research and there is a gap in knowledge of their cancer survivorship experiences in Canada. This phenomenological qualitative approach was employed to uncover the meaning of the lived experiences of MEIW during their cancer survivorship journey (CSJ). Data were collected through unstructured interviews and one written description from three MEIW. The participants' perspectives of cancer risk factors were believed to be the cause of their cancer, and their CSJ was fear-inducing and anxiety-provoking. There appears to be …
The Incidence And The Type Of Stomatognathic Disorders In Patients With Gardner Syndrome. A Systematic Review, Olga Preuss, Aleksandra Jaron, Anna Grzywacz, Magda Aniko-Wlodarczyk, Grzegorz Trybek
The Incidence And The Type Of Stomatognathic Disorders In Patients With Gardner Syndrome. A Systematic Review, Olga Preuss, Aleksandra Jaron, Anna Grzywacz, Magda Aniko-Wlodarczyk, Grzegorz Trybek
Baltic Journal of Health and Physical Activity
Background: Diseases of genetic origin are very often associated with oral disorders. One of them is Gardner syndrome (GS) a rare variant of familial adenomatous polyposis (FAP), whose main manifestation is colon cancer. Its most common oral cavity symptoms include osteomas, odontomas and impacted or supernumerary teeth. Material and methods: Medline (PubMed), Medline (Ebsco), Scopus and Google Scholar databases were searched oral manifestations of Gardner Syndrome.Results: Thirty-eight articles met inclusion criteria. The most frequently mentioned oral changes included osteomas, impacted teeth, supernumerary teeth and odontomas. Conclusion: This review provides evidence for associating FAP with oral disorders. Dentists can be the …
Sportsman’S Authority In The Perspective Of Man’S Weakness, Marcin Pasek
Sportsman’S Authority In The Perspective Of Man’S Weakness, Marcin Pasek
Baltic Journal of Health and Physical Activity
Background: History of glory and fall of the cyclist Lance Armstrong refers to the issues from the borderline of sociology, psychology, pharmacology and qualified sport. It stirs many emotions and extreme opinions in which human attitudes are focused on phenomena impossible to be interpreted unequivocally. The purpose of this research was to learn opinions on the life path of Lance Armstrong, regarding his struggle both with cancer and his rivals in the peloton, but at the same time marked with forbidden doping. Material and methods: The research was carried out using the survey method, which asked one question about the …
Choosing To Thrive: An Autoethnographic Journey Of Cancer, Companionship, And Carrots, Bruce Lilyea
Choosing To Thrive: An Autoethnographic Journey Of Cancer, Companionship, And Carrots, Bruce Lilyea
The Qualitative Report
In this autoethnography, I explore the companionship experience of someone supporting a cancer patient who is endeavoring to thrive in the face of this disease. A wide range of studies has been conducted on the emotional and social issues relating to cancer and specifically to breast cancer. Appropriately, most of the research relating to the personal narrative focuses on the stories of the person who has been diagnosed with cancer, and limited research has highlighted the perspective and experiences of their companions. My primary goals for this autoethnographic research are to: (1) Begin to answer the question: What role do …
Integrative Power Of Illness: A Qualitative Study Of Cancer Patients, Hossein Afrasiabi, Kasra Barzideh
Integrative Power Of Illness: A Qualitative Study Of Cancer Patients, Hossein Afrasiabi, Kasra Barzideh
The Qualitative Report
Our aim of this study was to explore the constructions of cancer patients about their everyday interactions using an interpretive-qualitative approach. We wanted to know how cancer patients understand their condition and the challenges they face in family and everyday relationships. Accordingly, a basic qualitative research method was used, and interviews were conducted with 21 cancer patients and their caregivers. Participants were selected through the purposeful sampling in Ahvaz City, Iran. The collected data were firstly transcribed and then analyzed by the grounded theory coding analysis. The findings were represented in five main categories included: pressure on relatives, the limitation …
Review Of: The Cancer Crisis In Appalachia: Kentucky Students Take Action, Stephenie Kennedy-Rea
Review Of: The Cancer Crisis In Appalachia: Kentucky Students Take Action, Stephenie Kennedy-Rea
Journal of Appalachian Health
The Journal of Appalachian Health is committed to reviewing published media that relates to contemporary concepts affecting the health of Appalachia. With cancer mortality rates higher in rural and Appalachian communities, a focus on how cancer impacts our families and communities is more important than ever. Dr. Stephenie Kennedy-Rea reviews the book The Cancer Crisis in Appalachia: Kentucky Students Take Action.
The Ant Home Care Model In Palliative And End-Of-Life Care. An Investigation On Family Caregivers’ Satisfaction With The Services Provided., Veronica Zavagli
The Ant Home Care Model In Palliative And End-Of-Life Care. An Investigation On Family Caregivers’ Satisfaction With The Services Provided., Veronica Zavagli
Translational Medicine @ UniSa
The World Health Organization plan for a Decade of Healthy Ageing 2020-2030 has established some priorities in the field of palliative and end-of-life care. It states that “people require non-discriminatory access to good-quality palliative and end-of-life care” and recommends the “implementation of strategies for the provision of information, training, respite and support for informal caregivers”. The priorities described are in line with the home care services that National Tumor Assistance (ANT) Foundation has been providing in Italy. This 5-years investigation was designed to measure caregivers’ satisfaction and determine what types of support services are associated with greater satisfaction. 5.441 family …
An Assessment Of Knowledge, Attitude, And Practice Of The Kuantan Community On The Effects Of Monosaccharides On Cancer, Muhammad Alif Mazlan, Muhammad Kamil Che Hasan, Afzan Mat Yusof, Muhammad Lokman Md Isa
An Assessment Of Knowledge, Attitude, And Practice Of The Kuantan Community On The Effects Of Monosaccharides On Cancer, Muhammad Alif Mazlan, Muhammad Kamil Che Hasan, Afzan Mat Yusof, Muhammad Lokman Md Isa
Makara Journal of Health Research
Background: Cancer knowledge, attitude, and practice (KAP) levels of communities are essential to be assessed to enhance cancer educational programs. This study aimed to determine the KAP level of the Kuantan community on the effects of monosaccharides on cancer. The association between the sociodemographic data and KAP level of the community has also been evaluated.
Methods: A cross-sectional survey was performed among residents living in the Kuantan community. Only 303 of 380 responses were included in the data analysis using the chi-square test.
Results: The knowledge and practice levels were moderate, whereas the attitude was at a …
The Landscape Of Connected Cancer Symptom Management In Rural America: A Narrative Review Of Opportunities For Launching Connected Health Interventions, Ming-Yuan Chih, Anna Mccowan, Sadie Whittaker, Melinda Krakow, David K. Ahern, Eliah Aronoff-Spencer, Bradford W. Hesse, Timothy W. Mullett, Robin C. Vanderpool
The Landscape Of Connected Cancer Symptom Management In Rural America: A Narrative Review Of Opportunities For Launching Connected Health Interventions, Ming-Yuan Chih, Anna Mccowan, Sadie Whittaker, Melinda Krakow, David K. Ahern, Eliah Aronoff-Spencer, Bradford W. Hesse, Timothy W. Mullett, Robin C. Vanderpool
Journal of Appalachian Health
Background: The 2016 President’s Cancer Panel called for projects focusing on improving cancer symptom management using connected health technologies (broadband and telecommunications). However, rural communities, like those in Appalachia, may experience a “double burden” of high cancer rates and lower rates of broadband access and adoption necessary for connected health solutions.
Purpose: To better understand the current landscape of connected health in the management of cancer symptoms in rural America.
Methods: A literature search was conducted using four academic databases (PubMed, CINAHL, MEDLINE, and PsycINFO) to locate articles published from 2010 to 2019 relevant to connected cancer symptom management in …
Personalized Medicine: The Use Of Biomarkers And Molecularly Targeted Therapies For Patient Care And Cancer Intervention, Wafa Asad, Emily Schmitt Lavin
Personalized Medicine: The Use Of Biomarkers And Molecularly Targeted Therapies For Patient Care And Cancer Intervention, Wafa Asad, Emily Schmitt Lavin
Mako: NSU Undergraduate Student Journal
Personalized medicine and targeted therapy have been emerging fields of study for the remediation and inhibition of cancer. Personalized medicine in the treatment of cancer involves using genetic, immune, and proteomic profiling to provide therapeutic options as well as prognostic background for every patient and their tumor’s genetic mutations. Targeted therapies allow researchers and medical personnel alike to determine the appropriate treatment for a patient based on the molecular basis and mechanistic actions of a cancerous tumor. The overall significance of this study was to express how these treatments use biomarkers to pinpoint the location, and severity of the cancer, …
A Comprehensive Call Center Supporting Safe, Efficient Operations During A Pandemic, Janice P. Finder, Ashlyn Proske, Judy Overton, Elizabeth Comcowich Garcia, Michael Frumovitz
A Comprehensive Call Center Supporting Safe, Efficient Operations During A Pandemic, Janice P. Finder, Ashlyn Proske, Judy Overton, Elizabeth Comcowich Garcia, Michael Frumovitz
Patient Experience Journal
Research has shown that a comprehensive call center can support a safe, efficient, and quality experience for patients and their families. When a patient receives a cancer diagnosis, the stakes are already high. Add a pandemic to an immunocompromised patient population and fear escalates. In order to accommodate the ever-changing information and ease patients’ anxieties surrounding their cancer diagnoses, it is necessary that an institution be available 24/7 to inform, help navigate systems, and manage symptoms because the emergency room, and many times the clinics, have too many inherent risks.
MD Anderson expanded the hours of operation for askMDAnderson, a …
Experiencing Cancer In Appalachian Kentucky, Melanie Mccomsey, David Ahern, Robin C. Vanderpool, Timothy W. Mullett, Ming-Yuan Chih, Meghan Johnson, Michele Ellison, Karen Onyeije, Bradford W. Hesse, Eliah Aronoff-Spencer
Experiencing Cancer In Appalachian Kentucky, Melanie Mccomsey, David Ahern, Robin C. Vanderpool, Timothy W. Mullett, Ming-Yuan Chih, Meghan Johnson, Michele Ellison, Karen Onyeije, Bradford W. Hesse, Eliah Aronoff-Spencer
Journal of Appalachian Health
Nothing tells the story of people working together better than a community quilt. A diversity of talents, colors, and materials brought together through skill and shared purpose. Perhaps never before have we as Americans needed a stronger reminder that many hands make short work of big problems. The work presented here by the L.A.U.N.C.H. Collaborative offers a new framework for health care that could be compared to a digital quilt, powered by community-based participatory design, with lived expertise and the newest advances in broadband-enabled connected health solutions. This work demonstrates the value and need to engage local communities and what …
Preface: Experiencing Cancer In Appalachian Kentucky, Michele Ellison, Robin C. Vanderpool
Preface: Experiencing Cancer In Appalachian Kentucky, Michele Ellison, Robin C. Vanderpool
Journal of Appalachian Health
Connected cancer care is of increasing importance in light of the COVID-19 pandemic. The Linking & Amplifying User-Centered Networks through Connected Health (L.A.U.N.C.H.) Collaborative in Appalachian Kentucky has pioneered a new roadmap for equipping communities with the transformative power of broadband to innovate around the future of cancer care and to better scale their ideas. The roadmap involves reaching across disciplines, including public health, anthropology, telecommunications, and user-centered design. The goal is to leverage connectivity and cancer communication research and practice to make a real difference for patients and families.
Expanding The Capacity Of Rural Cancer Care With Teleoncology, Jason Semprini
Expanding The Capacity Of Rural Cancer Care With Teleoncology, Jason Semprini
Online Journal of Rural Research & Policy
Background: In the United States, 6 of the 25 leading causes of death stem from site-specific cancers, resulting in over 1.7 million deaths annually. Yet, this burden is not evenly distributed. While the incidence of cancer is significantly higher in urban areas, rural regions face higher rates of cancer mortality. Identifying the factors contributing rural cancer disparities can facilitate more effective and feasible policy solutions.’
Problem Definition: Rural Americans are geographically isolated from high-quality cancer services and face systemic barriers to NCI designated comprehensive cancer centers. Given this disparity, rural Americans have failed to fully realize the benefits of expanded …
Paying It Forward: A Cancer Survivor And His Wife Share Their Reflections And Recommendations As A Patient And Caregiver, Justin Sandler
Paying It Forward: A Cancer Survivor And His Wife Share Their Reflections And Recommendations As A Patient And Caregiver, Justin Sandler
Patient Experience Journal
I grew up in the north suburbs of Chicago and had a relatively normal childhood but not necessarily an easy one. Shortly after graduating from Indiana University, I moved out west and have been working in the entertainment industry ever since. My life has been a beautiful and interesting adventure with twists and turns I could have never predicted.
In 2016 it seemed like everything was really coming together. I had been happily married to my wife and business partner Mary Lou Sandler since 2011, and we had been growing our photography/film production studio for as many years. I was …
Barn-Raising On The Digital Frontier: The L.A.U.N.C.H. Collaborative, Bradford W. Hesse, David Ahern, Michele Ellison, Eliah Aronoff-Spencer, Robin C. Vanderpool, Karen Onyeije, Michael C. Gibbons, Timothy W. Mullett, Ming-Yuan Chih, Victoria Attencio, Grant Patterson, Jessica Boten, Christopher Hartshorn, Ben Bartolome, Katie Gorscak, Melanie Mccomsey, Alexandra Hubenko, Bin Huang, Corey Baker, Don Norman
Barn-Raising On The Digital Frontier: The L.A.U.N.C.H. Collaborative, Bradford W. Hesse, David Ahern, Michele Ellison, Eliah Aronoff-Spencer, Robin C. Vanderpool, Karen Onyeije, Michael C. Gibbons, Timothy W. Mullett, Ming-Yuan Chih, Victoria Attencio, Grant Patterson, Jessica Boten, Christopher Hartshorn, Ben Bartolome, Katie Gorscak, Melanie Mccomsey, Alexandra Hubenko, Bin Huang, Corey Baker, Don Norman
Journal of Appalachian Health
A meta-analysis of oncology papers from around the world revealed that cancer patients who lived more than 50 miles away from hospital centers routinely presented with more advanced stages of disease at diagnosis, exhibited lower adherence to prescribed treatments, presented with poorer diagnoses, and reported a lower quality of life than patients who lived nearer to care facilities. Connected health approaches—or the use of broadband and telecommunications technologies to evaluate, diagnose, and monitor patients beyond the clinic—are becoming an indispensable tool in medicine to overcome the obstacle of distance.
Introducing The L.A.U.N.C.H. Collaborative, F. Douglas Scutchfield Md, Kevin Patrick
Introducing The L.A.U.N.C.H. Collaborative, F. Douglas Scutchfield Md, Kevin Patrick
Journal of Appalachian Health
The L.A.U.N.C.H. Collaborative: Linking & Amplifying User-Centered Networks through Connected Health: A Demonstration of Broadband-Enabled Connected Health and Community-Based Co-Design brings together a group of organizations that are eager to use Appalachian Kentucky as a site for the development of a project aimed at creating an environment that addresses two of the nation’s major concerns about cancer. First, individuals who live in rural and remote areas are more likely to die of cancer than those who live in urban or suburban settings. And second, geographic obstacles hinder their ability to access evidence-based strategies that can prevent cancer or treat it …
Cancer Health Disparities Among African Americans: A Socioecological Approach, Seth M. Spitzley
Cancer Health Disparities Among African Americans: A Socioecological Approach, Seth M. Spitzley
The Hilltop Review
Research shows that health outcomes are influenced by race or ethnicity, socioeconomic status, education and literacy levels, and the physical environment (U.S. Department of Health and Human Services, 2014). The health statuses of minority groups, such as African Americans, are adversely impacted by inequality (Randall, 2009). In Kalamazoo, Michigan, the leading cause of death for all residents in Kalamazoo County was cancer, where black individuals have the highest death rate among any other racial or ethnic group. That African Americans comprise less than 11% of the population in Kalamazoo County thus suggests that African Americans are disproportionately impacted by cancer …
How Have Patients' Experiences Of Cancer Care Been Linked To Survival? A Systematic Review, Saleh A. Alessy, Margreet Lüchtenborg Dr, Elizabeth A. Davies Dr.
How Have Patients' Experiences Of Cancer Care Been Linked To Survival? A Systematic Review, Saleh A. Alessy, Margreet Lüchtenborg Dr, Elizabeth A. Davies Dr.
Patient Experience Journal
Patient experience of care remains an important indicator of health care quality. Although studies show care experiences are associated with health outcomes for some conditions, the situation for cancer is unclear. New datasets on cancer patients in the US, Canada, and UK linking information on experiences and survival may enable an exploration of any association. This review aimed to identify studies linking any aspect of cancer patients’ experiences to their survival, to inform future analyses. We performed a systematic review using Medline database from January 1998 until March 2018.
The settings included outpatient oncology clinics, primary care, hospitals, and cancer …
A Critical Analysis Of The Delivery Of A Psychosocial Workshop For Cancer Survivors With Lymphedema, Ryan Hamilton, Roanne Thomas, Yvonne Anisimowicz, Marquelle Piers, Renee Matte
A Critical Analysis Of The Delivery Of A Psychosocial Workshop For Cancer Survivors With Lymphedema, Ryan Hamilton, Roanne Thomas, Yvonne Anisimowicz, Marquelle Piers, Renee Matte
The Qualitative Report
Secondary lymphedema is a chronic condition that can develop after the treatment of cancer and can often lead to negative psychological and social impairments. When dealing with chronic illness, hoping and coping are interdependent. Previous research has assessed the outcomes of workshops designed to enhance hope but has not examined the workshop itself to determine how those outcomes were achieved. This study deconstructs the Living Hopefully with Lymphedema workshop to identify (1) what aspects of the workshop facilitated or interfered with therapeutic progress, (2) key aspects of facilitation that contributed to the functioning of the workshop, and (3) how participants …
“We Were Learning Together And It Felt Good That Way.” A Case Study Of A Participatory Group Music Program For Cancer Patients, Laurie Sadowski
“We Were Learning Together And It Felt Good That Way.” A Case Study Of A Participatory Group Music Program For Cancer Patients, Laurie Sadowski
Patient Experience Journal
Though there are similarities to music therapy, the field of community music in healthcare, while in its infancy, is steadily growing. This case study explored how semi-formal, active music-making can play a role in illness and recovery and provide patients with a sense of voice, connection, and community, and the efficacy of community music programming in a hospital. Six participants began and three participants completed a 6-week music class learning the ukulele. Interpretative Phenomenological Analysis (IPA) was used as a method for data analysis from semi-structured pre-questionnaires, transcribed classes, transcribed post-interviews, and weekly questionnaires from both the participants and the …
Organisational Problems And Solutions In Oncology: A Content Analysis Of The Narratives Of Italian Cancer Unit Professionals, Simone Cheli, Luca Pezzullo, Francesco Velicogna
Organisational Problems And Solutions In Oncology: A Content Analysis Of The Narratives Of Italian Cancer Unit Professionals, Simone Cheli, Luca Pezzullo, Francesco Velicogna
The Qualitative Report
The aim of this qualitative research is to explore the perception of the organizational climate in Italian cancer units. The survey was the first step of a two year action-research project, involving 14 hospitals and different professions (n=475). We report the methodology and the thematic clusters that emerged in analysing the answers to three questions: (i) perceived problems with colleagues, (ii) perceived problems with patients and their relatives, and (iii) coping strategies. Narratives were analysed through computer aided qualitative data analysis software. The results identify two main significant issues in describing problems and solutions: interpersonal communication and group cohesiveness.
An Examination Of The Relative Accuracy Of Family Cancer History Knowledge And Perceptions Of Spousal Influence In A Younger Population, Emily Hartung, Wendy Birmingham
An Examination Of The Relative Accuracy Of Family Cancer History Knowledge And Perceptions Of Spousal Influence In A Younger Population, Emily Hartung, Wendy Birmingham
Journal of Undergraduate Research
Cancer is the second leading cause of death in the United States, yet many people are not aware of their own personal familial risk. This may be especially true in younger individuals in the population. According to the American Cancer Society, over 1.5 million Americans will be diagnosed with cancer and over 500,000 cancer deaths will occur this year. Cancer remains the second most common cause of death in the United States, accounting for nearly 1 in every 4 deaths. Survival rates vary by type and stage at diagnosis but early detection through screening improves survival odds and healthier behaviors …
Stock Market Reactions To The Iarc Announcement Linking Red Meat And Processed Meat To Cancer, Scott B. Lehman
Stock Market Reactions To The Iarc Announcement Linking Red Meat And Processed Meat To Cancer, Scott B. Lehman
Journal of Environmental and Resource Economics at Colby
This study investigates how food companies were affected by the International Agency for Research on Cancer’s report that linked processed meat and red meat consumption to increased risk of cancer. The results indicate that neither fast food companies nor meat producers were greatly affected by the announcement in the days immediately following the release.
Liminality And Ritual In Biographical Work: A Theoretical Framework For Cancer Survivorship, Alix G. Sleight
Liminality And Ritual In Biographical Work: A Theoretical Framework For Cancer Survivorship, Alix G. Sleight
International Journal of Transpersonal Studies
This article offers a theoretical framework for understanding the biographical work of cancer survivorship using two concepts from social anthropology: liminality and ritual. The framework is intended to foster greater understanding of survivorship and facilitate innovative psychosocial treatment approaches. First, the concept of biographical work will be defined. The notion of prolonged liminality will then be introduced in relation to the biographical work of cancer survivorship. Finally, the performance of ritual will be suggested as one possible approach to ending prolonged liminality and completing successful biographical work. Ultimately, it is proposed that marking a life transition through ritual may help …
A Vision For Using Online Portals For Surveillance Of Patient-Centered Communication In Cancer Care, Hardeep Singh, Neeraj K. Arora, Kathleen M. Mazor, Richard L. Street Jr
A Vision For Using Online Portals For Surveillance Of Patient-Centered Communication In Cancer Care, Hardeep Singh, Neeraj K. Arora, Kathleen M. Mazor, Richard L. Street Jr
Patient Experience Journal
The Veterans Health Administration (VHA) is charged with providing high-quality health care, not only in terms of technical competence but also with regard to patient-centered care experiences. Patient-centered coordination of care and communication are especially important in cancer care, as deficiencies in these areas have been implicated in many cases of delayed cancer diagnosis and treatment. Additionally, because cancer care facilities are concentrated within the VHA system, geographical and system-level barriers may present prominent obstacles to quality care. Systematic assessment of patient-centered communication (PCC) may help identify both individual veterans who are at risk of suboptimal care and opportunities for …
Use Of Semi-Structured Interviews To Explore Competing Demands In A Prostate Cancer Prevention Intervention Clinical Trial (Pcpict), Theresa Crocker, Karen Besterman-Dahan, David Himmelgreen, Heide Castañeda, Clement K. Gwede, Nagi Kumar
Use Of Semi-Structured Interviews To Explore Competing Demands In A Prostate Cancer Prevention Intervention Clinical Trial (Pcpict), Theresa Crocker, Karen Besterman-Dahan, David Himmelgreen, Heide Castañeda, Clement K. Gwede, Nagi Kumar
The Qualitative Report
In this paper we report on findings from the first known study using qualitative methods to explore factors influencing physicians’ participation in an ongoing federally-funded prostate cancer chemoprevention clinical trial. We sought to identify ways to improve collaboration between researchers and physicians and enhance the success of future projects and employed purposive sampling to recruit physician/investigators who were involved or invited to participate in the trial. Using the data from open-ended semi-structured interviews, we examined patterns in their languaging and created themes. We found that individual and structural factors served as barriers and facilitators to participation. Willingness and desire to …
Learning What High Quality Compassionate Care Means For Cancer Patients And Translating That Into Practice, Fiona Mckenzie, Katherine Joel, Charlotte Williams, Kathy Pritchard-Jones Professor
Learning What High Quality Compassionate Care Means For Cancer Patients And Translating That Into Practice, Fiona Mckenzie, Katherine Joel, Charlotte Williams, Kathy Pritchard-Jones Professor
Patient Experience Journal
In 2010, UCLPartners, a partnership of health care providers and universities in North Central London, began a collaboration with local commissioners that aimed to think about cancer care and diagnosis differently. Understanding that a good patient experience can only be delivered by putting patients first and working together along their journey from symptoms to recovery, we brought clinical leaders together with patients to think about how to improve outcomes for patients, outside institutional barriers. From the very beginning this new network, an integrated cancer system, focused on understanding what mattered most to patients and organising how it worked and how …
Living With Cancer Aged 75 And Older: A Biographical Narrative Case-Study, Nicholas David Hughes
Living With Cancer Aged 75 And Older: A Biographical Narrative Case-Study, Nicholas David Hughes
The Qualitative Report
Aging is associated with greater incidence of disease and illness, including cancers. Extensive literature reports incidence, prevalence, and treatment of cancers in older individuals. The subjective perceptions of older individuals undergoing the experience of cancer remain largely unknown. The case-study reported in this article is derived from a larger study whose aim was to investigate the experiences of older people of living with cancer. Data were generated using narrative interviews with 20 individuals aged 76-87 diagnosed with one of four common cancers. Interview data were analysed using the concept of the “illness trajectory” (Corbin & Strauss, 1988). In this article …