Social and Behavioral Sciences Commons^™

Longitudinal Associations Among Individual Factors, Parenting Behaviors, And Medical Responsibility In Youth With Spina Bifida: Mediation, Moderation, And Growth Analyses, Alexa R. Stern

Dissertations

The objective of this research was to examine how youth individual factors (neuropsychological functioning and depressive symptoms) and maternal and paternal acceptance, behavioral control, and psychological control were associated with child medical responsibility among youth with spina bifida (SB). These longitudinal studies examined multimethod, multi-informant data from families of youth with SB, their parents, and teachers. The first study used bootstrapping methods to examine two competing, mediational pathways through which depressive symptoms, executive functioning, and attention were associated with medical responsibility over time. The second study used moderation analyses to examine how parenting behaviors moderated the relationship between these cognitive …

Self-Management In Youth With Spina Bifida: Associations With Parent Factors In The Context Of A Summer Camp Intervention, Colleen F. Bechtel Driscoll

Dissertations

Achieving condition-related independence is an important developmental milestone for youth with spina bifida (SB) that can be impacted by a variety of parent factors. This study aimed to investigate (1) the cross-sectional associations between parent factors (adjustment, perceptions, attitudes, behaviors) and youth self-management (e.g., youth's condition-related responsibility and mastery), (2) relations between these same parent factors and changes in youth self-management following participation in a summer camp intervention for one summer, and (3) associations between parent factors and growth in self-management variables over two summers. Participants were 89 camper-parent dyads recruited at a summer camp for youth with SB (Myouth …

The Impact Of Sociodemographic Factors On Health-Related, Neuropsychological, And Psychosocial Functioning In Youth With Spina Bifida, Jaclyn Lennon Papadakis

Dissertations

Objective: There is a lack of research on the impact of sociodemographic factors on youth with spina bifida (SB). This is concerning given the pervasive health disparities that exist in pediatric chronic illness groups. The aims of this study were to examine: (1) differences in health-related, neuropsychological, and psychosocial functioning among youth with SB based on sociodemographic risk; (2) cumulative risk as a predictor of youth outcomes, as moderated by age; (3) SB-related family stress as a mediator of the associations between sociodemographic/cumulative risk and youth outcomes, longitudinally. Methods: Participants (M age = 11.43, 53.6% female) were recruited as part …

Sleep-Wake Disturbances In Adolescents With Spina Bifida: Prevalence And Associations With Bio-Neuropsychosocial Functioning, Caitlin Beth Murray

Dissertations

Sleep is a critical component of healthy development during adolescence, and when disrupted, has been linked to difficulties with physical status, psychological health, family functioning, neuropsychological symptoms, and academic performance. The overarching goal of this project was to examine sleep-wake disturbances in association with bio-neuropsychosocial functioning in a vulnerable pediatric population of adolescents with spina bifida (SB). Specifically, this study aimed to 1) examine sleep-wake patterns in adolescents with SB using a multimodal sleep assessment, 2) identify daily temporal associations between sleep and pain as well as sleep and mood, and 3) identify the relationship between sleep-wake disturbances and bio-neuropsychosocial …

Social Skills In Youth With Spina Bifida: A Longitudinal Multimethod Investigation Of Bio-Neuropsychosocial Predictors, Christina Ehrman Holbein

Dissertations

Objective: Despite research documenting social dysfunction in youth with spina bifida (SB), little is known about the etiology of these social difficulties; most investigations identifying predictors of social deficits have concentrated exclusively on one domain. This longitudinal study examines the relative predictive power of neurocognitive (attention and executive function), family (cohesion and conflict), and health-related (body mass index, condition severity) variables on later social skills in youth with SB.

Methods: 112 youth with SB (T1 mean age = 11.19 years) and their families participated in study visits two years apart. Study variables were assessed by multiple methods (questionnaire, medical chart …

Profiles Of Neuropsychological Functioning In Children And Adolescents With Spina Bifda, Rachel Wasserman

Dissertations

The current study examined neuropsychological performance among children with spina bifida (SB) to determine if there are distinct subgroups or "profiles" of cognitive functioning. 96 children with SB myelomeningocele (ages 8-15) completed a brief assessment battery. Hierarchical and non-hierarchical cluster analyses were used to identify and confirm a cluster solution. Hypothesized predictors of cluster membership included lesion level, number of shunt surgeries, history of seizures, age, ethnicity, socio-economic status, family stress, and family environment. Outcomes included independence, academic success, expectations for the future, and quality of life.

Ward's cluster method indicated a 3-cluster solution, and was replicated with 2 other …

Neuropsychological Functioning, Parenting Behaviors, And Healthcare Behaviors Among Youth With Spina Bifida, Lauren Kelly O'Hara

Dissertations

Objective This study was designed to examine whether neurocognitive functioning (attention and executive functions) and parenting behaviors (acceptance, behavioral control and psychological control) are associated with medical adherence and autonomy among preadolescents and adolescents with spina bifida. Methods Questionnaire and observational data were collected from a sample of 8 to 15 year olds with spina bifida (n = 139) and their mothers, fathers, and teachers. Youth also completed neuropsychological testing. Results Youth with spina bifida demonstrated impairment on measures of attention and executive function, based on questionnaire and test data. Attention, executive function, and parenting behaviors were associated with medical …

Social Cognitive Functioning And Social Competence In Children And Adolescents With Spina Bifida And Hydrocephalus: Social Cognitive Neuroscience As A Model, Caitlin Reid Roache

Dissertations

The purpose of the current study was to examine social cognition in children with spina bifida and congenital hydrocephalus (SBH) and to determine whether deficits in these domains are associated with poor social competence, utilizing concepts from social cognitive neuroscience. To build upon extant literature, multi-method assessments, multi-informant data, and a developmental, biopsychosocial perspective were utilized. Distinct aspects of social competence, as defined by social performance, social skills, and social adjustment, were considered.

The current study was designed to investigate: (1) differences in social cognition between children and adolescents with SBH and the general population, (2) potential neuroanatomical predictors of …

The Direct And Indirect Impact Of Pain Intensity, Weight Status, And Activity Involvement On Social Competence Outcomes In Children And Adolescents With Spina Bifida, Bonnie S. Essner

Dissertations

The purpose of this study was to test a mediated effects model in which youth with spina bifida who have greater pain, are more overweight, or have worse motor control were expected to have fewer friends and to display worse social performance in part because their higher degree of condition severity interferes with their involvement in developmentally-appropriate activities.

Data for the current study were drawn from the first wave of a larger, longitudinal study of psychosocial adjustment of children and adolescents with spina bifida. The sample was comprised of 108 children and adolescents with spina bifida and shunted hydrocephalus, ages …