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Associations Between Concepts Of The Family Management Style Framework, And Measures Of Child Adherence To Treatment For Heterozygous Familial Hypercholesterolemia, Heather Harker Ryan
Associations Between Concepts Of The Family Management Style Framework, And Measures Of Child Adherence To Treatment For Heterozygous Familial Hypercholesterolemia, Heather Harker Ryan
Graduate Doctoral Dissertations
Background: Heterozygous Familial Hypercholesterolemia (HeFH) is an underdiagnosed, autosomal dominant, monogenic condition affecting ~1:250 individuals in the United States (U.S.), resulting in cardiovascular events 10-20 years earlier than in unaffected peers.
Sample: Fifty-one parents of youth aged 2-18 years followed for HeFH in a pediatric specialty clinic.
Purpose: Assess parental perceptions of HeFH, child adherence to treatment, and parenting in HeFH-affected households.
Methods: A cross-sectional, descriptive, and correlational survey study congruent with elements of the Family Management Style Framework (FMSF). Pearson’s and Spearman’s correlations assessed linear relationships between parentally observed HeFH treatment adherence measures, parenting style, and parental perceptions of …