Social and Behavioral Sciences Commons^™

Health-Y Sharing Of Human Data, Sarah Olesen

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Data from research with humans is not published or shared at the same rate as other disciplines. But as more funding agencies and journal publishers, including those responsible for human studies, encourage and incentivise researchers to publish these data, more are seeking to do so. Human data often include personal and sensitive information that makes them subject to privacy laws and the human research ethics standards that govern research institutions. In many cases, human data can be published and shared safely and ethically with great success when it is planned for, participants are informed, and privacy is maintained by confidentialising …