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Parental Participation In Intellectual And Developmental Disability Research: A Review Of Diversity, Lauren Grove, Yingying Yang, Dai’Jah Diggs, Arielle Hershkovich

Department of Psychology Faculty Scholarship and Creative Works

Parents provide important insights into the psychology, behaviors, and activities of themselves and their children with intellectual and developmental disabilities (IDD). However, it is unknown how prevalent parental participation in IDD research is in general, nor the diversity of geographical locations and research methods of these studies with parental participation. The current review screened 7845 published works in 7 IDD-focused journals between 2010-2019. A total of 1519 articles, accounting for 19.37% of all screened articles, included at least one parental measure. For each parental article, we coded the country/continent of authors/participants, measurement tools used to obtain data from parents (e.g., …