Social and Behavioral Sciences Commons^™

At The Intersection Of Ableism Entelechy, And Policy Debate, Alex Mcvey, Matthew Gerber

Speaker & Gavel

This article investigates the causes of ableism and inaccessibility in policy debate, and also envisions alternatives to the current conception of debate that could open doors to more participants at all levels of ability. We argue that the rhetorical theories of Kenneth Burke help to illuminate symbolic practices in debate which function to exclude disabled voices. We also forward the argument that the competitive nature of policy debate, along with its dominant discursive practices and speech codes, constitutes an example of what Kenneth Burke calls ‘entelechy’. We further argue that the entelechial nature of policy debate is at the root …

Improving Disability Inclusion Through Professional Development, Carli Spina

Urban Library Journal

Building a shared understanding of the importance of disability inclusion and the concrete steps everyone at the library can take towards this goal, is an important first step towards improving services for disabled patrons and the work environment for disabled employees. Offering training on these specific topics can jumpstart this activity at virtually any library. Guided by existing research in the field, this article offers concrete guidance on creating and offering this training at libraries to improve disability inclusion in the community.

Does What Doesn’T Kill You Make You Stronger? Examining The Effects Of Resilience And Functional Outcomes On Post-Traumatic Growth In Adults With Acquired Disability, Dominique Renee Ghirardi M.S.

Theses and Dissertations

Disabilities acquired in adulthood are often unexpected and disruptive because a loss of functioning can affect one’s ability to maintain employment, pursue their interests, and participate in social activity without assistance or accommodation. This is especially true for those who experience a life-altering injury or develop a chronic health condition between the ages of 18 and 64, as they likely have not planned for the financial and social adjustments that life with a disability involves. However, factors such as post-traumatic growth can reveal the extent to which someone experiences personal growth and improvement in the wake of a traumatic and …

Mi Casa Sin Mí Parada No Es Casa: Conceptualizations Of Functioning And Functional Impairment In Rural Chiapas, Mexico, Sarah Joy Hartman, Néstor Noyola, Viena Murillo, Fátima Rodríguez Cuevas, Esteban V. Cardemil

Psychology

In mental healthcare, functional impairment is an essential element in diagnosing and monitoring the severity of mental disorders. However, current clinical practices do not account for how context and culture might shape conceptions of functional impairment, given the demonstrated influence of cultural context on mental health, particularly in Mexico. We interviewed 16 members of a rural community in Chiapas, Mexico to understand how they understood functioning and how functioning is impacted by distress. We analyzed the data using thematic analysis with a critical lens. With regards to conceptions of functioning, participants described that to function was to work (nuestra vida …

Exploring The Advocacy Experiences Of The Military Families With Children Who Have Disabilities, Institute For Veterans And Military Families At Syracuse University

Institute for Veterans and Military Families

This research review examines the experiences of 11 parents of children with disabilities, recruited through military and disability agencies using snowball sampling. The study reveals varying experiences within the Exceptional Family Member Program (EFMP), highlighting military families' resilience and reliance on peer support, and the military mothers' pivotal role in advocacy, often requiring their spouse's presence at IEP meetings for effectiveness. This IVMF review also provides implications for practitioners, policy, and future research surrounding military families of children with disabilities.

Falling Into Action, Kent Hoffman

The Goose

Kent Hoffman explores human movement, his own mobility, and how it influences the way he moves on land. This personal essay, told through the lens of disability and accessibility, outlines his experience of living with Becker muscular dystrophy. Hoffman's approach to walking and mobility is heavily influenced by a fear of falling. As his mobility is changing, he's adapting and seeking out new ways to move on land. Different modes of mobility determine the way we experience personal movement, but accessibility determines who is welcome in spaces in the first place. Accessibility in the form of providing equal access is …

Air Pollution Associated With Perception Of Increased Health Risks For People Living With Disabilities In Utah, Bosede Adejugbe, Gabriele Ciciurkaite, Sydney O'Shay, Jessica D. Ulrich-Schad

Utah People and Environment Poll (UPEP)

Air quality is one of the top environmental concerns for Utahns today¹. Health risks associated with air pollution can range from mild physiological impacts to death from cardiovascular and respiratory disease^2-4. Little is known about the ways that environmental risks impact people with disabilities because they are often excluded from clinical and social science research⁶. Gaining a more robust understanding of air pollution’s impacts on people living with disabilities (PLwD) is particularly important considering that PLwD comprise about 32.2%⁵ of the U.S. population and 22% of Utah’s population, the latter of which is …

The Spiritual Impact Of Disability On Parents And Caregivers, Grant Azbell

Discernment: Theology and the Practice of Ministry

This study was designed to examine the impact of disability on the faith and faith communities of parents and caregivers of persons experiencing disability. This study proceeded by asking nine parents or caregivers of persons experiencing disability a series of seven questions to evaluate the impact of disability on their faith and on their relationship to their faith community. The interviews were conducted on Zoom and the recordings were transcribed and coded to observe discernable patterns and themes amongst the participants. What emerged from the data is important for ministers, church leaders, and anyone wanting to know more about the …

Disability Awareness, Access & Inclusion Week (Library Resources), Holy Cross Libraries

Library Resources for Campus Events

A bibliography of resources available through the Holy Cross Libraries which provide additional information related to Disability Awareness, Access & Inclusion Week, an awareness event sponsored by the Office of Student Accessibility Services and supported by the Holy Cross Libraries.

This event was held at the College of the Holy Cross from October 16-20, 2023.

Addressing The Absence Of Disability Justice Through An Online Social Work Course, Rose C. B. Singh

Feminist Pedagogy

No abstract provided.

The Impact Of Preaching The Image Of God As Disability-Inclusive, Laurie E. Thompson

Doctoral Dissertations and Projects

According to Howard (2010), the North American Mission Board (NAMB) considers the disabled community in America to be unreached by the church. Hardwick (2021) also writes, “The disability community is the most unique community, the largest minority group in the world” (p. 12). This quantitative descriptive research study explored the frequency of preaching the biblical principle imago Dei, found in Genesis 1:27, in a way that includes the disabled, and how this preaching may impact disability-inclusivity in the church. The Word of God states, “So God created mankind in his own image, in the image of God he created them” …

Invisible Disability: A Review Of Hearing And Vision Impairment Challenges In The Workplace, Melissa Ann Aguinaldo

College of Science and Health Theses and Dissertations

This thesis explores the factors related to individuals with vision and hearing impairments in organizational contexts within the United States. It overviews the definitions, current state, and U.S. legislation pertaining to individuals with disabilities in the workplace. The thesis reviews disclosure practices, psychological theories, and recommendations for supporting and accommodating individuals with hearing and vision disabilities. In reviewing these factors, this research aims to enhance understanding of the challenges faced by individuals with hearing and vision impairments in organizations and contribute to fostering inclusive and supportive work environments. The thesis also identifies areas for further research in order to advance …

Veterans In Nevada, 2021, Nicole Diaz Del Valle, Annie Vong, Caitlin J. Saladino, William E. Brown Jr.

Demography

This fact sheet examines data on veterans in Nevada in 2021. The original data source, the U.S. Census Bureau’s, “2021 American Community Survey One-Year Estimates” includes data on veterans for all 50 states.

Spatial Disaggregation Of Poverty And Disability: Application To Tanzania, Tomoki Fujii

Research Collection School Of Economics

Estimating poverty measures for disabled people in developing countries is often difficult, partly because relevant data are not readily available. We extend the small-area estimation developed by Elbers, Lanjouw and Lanjouw (2002, 2003) to estimate poverty by the disability status of the household head, when the disability status is unavailable in the survey. We propose two alternative approaches to this extension: Aggregation and Instrumental Variables Approaches. We apply these approaches to data from Tanzania and show that both approaches work. Our estimation results show that disability is indeed positively associated with poverty in every region of mainland Tanzania.

News Media Framing Of Disabilities In Ghana: Journalistic Practices Amidst Advocacy Calls For Change, Pamela Ofori Boateng

Communication ETDs

The study contributes to expanding scholarly research on media portrayals of people with disabilities in Ghana. Drawing on theories of framing, ableism, and intersectionality, I analyzed news stories published in Graphic.com.gh. in 2021 and 2022 to explore how the editorial practices framed people with disabilities and how framing patterns revealed change and continuity in representation. The findings affirmed a shift to using more diverse and appropriate language to represent people with disabilities more fairly and accurately; the categorization of most of the disability stories under “General News,” which suggests the significance attached to disability related stories; and the …

You Don't Need Eyes To See: The Lived-Experience Of College Graduates Who Are Black Men, Born Into Poverty, And Living With A Visual Impairment, Ronald Dillard

Dissertations

The following study seeks to answer this research question: What is the lived experience of college graduates who are Black men, born into poverty, and living with a visual impairment? The researcher has used intersectionality as an aspect of Critical Race Theory (CRT) to conceptualize the research question and develop an interview protocol.

The researcher has conducted in-depth interviews for this qualitative inquiry, resulting in a narrative study. Purposeful sampling was implemented to identify three participants who fit the criteria of being a Black man, born into poverty, and living with a visual impairment. Data was reorganized to tell the …

Evaluation Of Telemental Health Services For People With Intellectual And Developmental Disabilities: Protocol For A Randomized Non-Inferiority Trial, Luther G. Kalb, Jessica M. Kramer, Tawara D. Goode, Sandra J. Black, Susan Klick, Andrea Caoili, Samantha Klipsch, Ann Klein, Micah P. Urquilla, Joan B. Beasley

Institute on Disability

Background: Roughly 40% of those with intellectual/developmental disabilities (IDD) have mental health needs, twice the national average. Unfortunately, outpatient mental health services are often inaccessible, increasing reliance on hospital-based services. While telemental health services hold potential to address this gap, little is known about the effectiveness of telemental health for the diversity of persons with IDD, especially as it relates to crisis prevention and intervention services. Accordingly, the aims of this study are to: (1) compare telemental health versus in-person crisis prevention and intervention services among people with IDD; and (2) understand if outcomes vary across subpopulations, in order to …

Willingness To Prepare For Disasters Among Individuals With Disabilities: An Essential Component For Building Disaster Resiliency, Dean Kyne

Sociology Faculty Publications and Presentations

This study focuses on exploring the factors influencing individuals’ preparedness for disasters. Drawing upon the protection motivation theory (PMT) and the prototype willingness model (PWM), a conceptual framework was proposed to investigate the determinants of willingness to prepare for disasters and its impact on disaster preparedness. Data was collected through an online survey, involving 377 participants with disabilities and medical special needs residing in the Rio Grande Valley (RGV). The collected data was analyzed using generalized structural equation modeling (GSEM) to examine the associations among the selected study variables. The findings indicate that both coping appraisal and threat appraisal significantly …

Differences Among Family And Professional Guardians: A Statewide Survey Of Characteristics, Training, And Practices Related To Decision-Making, Kristin Hamre, Derek Nord

Developmental Disabilities Network Journal

This cross-sectional study sought to examine the differences between family and professional guardians across personal and role characteristics, training received, and their inclusion of people they serve in decision making. A total of 237 subjects serving as guardian to adults in the state of Indiana completed an online survey. Results showed group differences across race, education, as well as diagnosis and age of those served. Overall, training was limited across both groups, and family guardians received significantly less training across several topics. Finally, family and professional guardians were found to significantly differ in their willingness to allow people they serve …

Toward An Equity-Driven Conceptual Model Of Covid-19 Vaccine Decision-Making For People With Idd, Lydia Ocasio-Stoutenburg, Reese Triana, Shelly Baer, Jairo Arana, Ana C. Sale, Douglene Jackson, Michelle Schladant, Nastasia Boulos, Grace Dima, Jeffrey Brosco

Developmental Disabilities Network Journal

COVID-19 presented a public health emergency in the U.S., resulting in severe illness, hospitalizations, high mortality rates, and long-term adverse health care conditions. Several studies examined the disparities in transmission rates, barriers to care, and negative health outcomes for persons with disabilities, particularly people with intellectual and developmental disabilities (I/DD). While data revealed similar trends among Black, Hispanic or Latino/a/x/e, Native, Indigenous, and Asian people, outcomes are compounded for people of color with I/DD. Several historical, pervasive, systemic, structural, and attitudinal barriers have constrained healthcare access and adequate treatment, instigating feelings of distrust among those in systems of care. Although …

Health And Quality Of Life Among People With Intellectual And Developmental Disabilities And Direct Support Professionals During The Early United States Covid-19 Pandemic, Erin Vinoski Thomas, Bridgette M. Schram, Sombal Bari, Rachel Odunlami, Kristina M. Ormond, Sydnie E. Smith

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) and the direct support professionals (DSPs) who support them have faced unique risks to their health and quality of life (QoL) throughout the COVID-19 pandemic. We sought to understand how COVID-19 has influenced QoL and overall well-being among these populations. We conducted a Rapid Qualitative Inquiry study with a sample of people with IDD and DSPs (n = 18) to gain deeper perspectives about QoL and well-being during the pandemic. Participants described that changes in QoL were typically negative and influenced primarily by reduced socialization and impacts on health and independence; however, …

A Descriptive, Multi-Site Case Study To Discover The Inclusion Of Disability Competencies In Undergraduate Public Health Program Curricula In California-Based Public Universities, Jacqueline Suzanne Siukola Tompkins

Doctoral Dissertations and Projects

Nearly one in four adults and one in six children in the United States (U.S.) have a disability. Despite the evidence documenting health differences, public health professionals receive inconsistent or little-to-no disability education in graduate public health curricula. Undergraduate public health (UGPH) programs have an expanding role in building the future public health workforce, including the U.S. governmental public health workforce. However, the inclusion of disability-related content within UGPH program curricula is currently unknown. The purpose of this multi-site case study was to conduct preliminary research to describe how disability-related curricula are or can be included in UGPH program curricula …

On-Campus Mental Health Service Use Among College Students With Autism: A Case Study Applying The Andersen Behavioral Model Of Health Services Use, Estella C. Lilyquist

Electronic Theses and Dissertations

The unique set of impairments and limitations presented by students with autism spectrum disorder (ASD) make the accessing of campus-based nonacademic resources more difficult and complicated than their typically developed peers. Each year, the rate of students entering college with disabilities continues to grow, but their mental well-being is relatively poor. The purpose of this qualitative case study was to apply the conceptual framework of the Andersen behavioral model of health services use (ABMHSU) to the experiences of college students with ASD to understand and predict their utilization of campus-provided mental health resources. The participants were seven college students with …

Improving Communication Access With Deaf People Through Nursing Simulation: A Cross-Disciplinary Collaboration, Jamie L. Mccartney Ph.D., Tracy Gidden, Jennifer Biggs, Kathy Geething, Karl Kosko Ph.D.

Journal of Gender, Ethnic, and Cross-Cultural Studies

Baccalaureate nursing and sign language interpreting students participated in a pediatric discharge simulation with a deaf person playing the role of the baby’s parent. At the conclusion of the simulation, participants were emailed a consent letter and a link to a 17-item questionnaire developed by the authors. Responses were analyzed both quantitatively and qualitatively, whereby nonparametric statistics were calculated to examine Likert-scale items. A Mann-Whitney test statistic was calculated, instead of an independent samples t-test, given the smaller sample in the current study (n = 26). A question was posed to participants that evaluated their self-perception of the effectiveness of …

“She Was No Taller Than Your Thumb. So She Was Called Thumbelina”: Gender, Disability, And Visual Forms In Hans Christian Andersen’S “Thumbelina” (1835), Hannah J. Helm

Journal of Gender, Ethnic, and Cross-Cultural Studies

This article explores representations of femininity and disability in Hans Christian Andersen’s fairy tale “Thumbelina” (1835) and select examples of his paper art. In this article, I argue that, on one level, the fairy tale and Andersen’s own paper cuttings uphold feminine and ableist norms. However, on another level, these literary and visual forms simultaneously work to destabilise social prejudices and challenge bodily normativity. I explore how characters and themes associated with the fairy tale and paper art can be (re)read in strength-based ways. In the story, Thumbelina experiences the world through her smallness, and key themes including accessibility, physical …

Enigmatic, Tragic, Crip; Or, Crip Time In Sophocles’S Oedipus And Aristotle’S Poetics, Maxwell Gray

Journal of Gender, Ethnic, and Cross-Cultural Studies

Tragedy represents a classical literary genre the field of disability studies often prefers not to approach too closely, lest disability also be called a tragedy by association. At the same time, my thinking is organized around my personal experience of chronic illness, pain, and disability that appear in early adulthood, when it’s maybe least expected and most difficult to comprehend; or, in a word, tragic. I turn to the literary genre of classical Greek tragedy to think about/with more enigmatic and tragic forms of disability and crip temporality. In particular, I read Sophocles’s classic tragedy Oedipus and Aristotle’s foundational interpretation …

Judging The Body: Disability, Class And Citizen Identity—A Case Study From An Ancient Greek Lawcourt, Justin L. Biggi

Journal of Gender, Ethnic, and Cross-Cultural Studies

This paper aims to showcase how one person's disabled identity—that of the unnamed defendant of the legal speech Lysias 24, who was accused of faking his disability to obtain social security payments—interacted with wider conceptions of citizen identity and citizenship in 5^th century BCE Athens. This paper brings a much-needed intersectional approach to the speech: by viewing the speaker's disabled identity as shaped by his economical status (and vice-versa), this in turn shapes the way we can interpret his experience of citizen identity, as well as his sense of belonging to a citizen body. Recent approaches in critical theory …

Disability, Race, And Origin Intersectionality In The Doctoral Program: Ableism In Higher Education, Theodoto W. Ressa, Scot Danforth

Education Faculty Articles and Research

This paper explores the experiences of a doctoral disabled student at a university to examine how ableist structures in graduate programs affect access to higher education and post-degree outcomes. Guided by the DisCrit framework and autoethnography approach, the article illuminates systems and processes that disadvantage graduate disabled students. Through intersectional analyses of disability, race, and origin, the article makes visible manifestations of disability microaggressions and systemic ableism, racism, and xenophobia. It interrogates the perpetuation and normalization of academic transgressions, including exclusionary practices that degrade and oppress graduate disabled students and hinder them from seeking success. Finally, the argument is made …

The Meaning Of A Choice, Julie-Louise Zeitoun

Masters Theses

If you are disabled or disadvantaged, you will be dismissed and stifled. Few people will actively care for your struggles. As a person with autism, I was deeply fearful of the persecution I had faced throughout my life; it was a fear that followed me with terrifying determination. I desperately wanted to blend into society. So I designed myself to be devoid of any weakness, and productivity was the way I chose to conceal any difficulties I faced. It was a way to measure my success — a way to measure my normalcy.

Standard medical textiles are generic, cumbersome devices. …

Gender And Disability: An Exploration Of Reflective Practice For Protection And Access Amid Complex Emergencies, Lindsey A. Mandolini

Electronic Theses and Dissertations

Gender and Disability: An Exploration of Reflective Practice for Protection and Access Amid Complex Emergencies is a qualitative research project exploring under what conditions and in what ways disabled persons’ organizations (DPOs) effectively protect and provide access to women and girls with disabilities amid complex emergencies. The study upheld a participatory approach and rights-based framework, emphasizing that authentic inclusion requires centering disabled voices in research. Drawing on extant research, grey literature, and data collected from online practitioner questionnaires and semi-structured interviews, the study conducted a multi-phased reflexive thematic analysis. The research findings culminate in a composite narrative that brings to …