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Articles 1 - 15 of 15
Full-Text Articles in Social and Behavioral Sciences
“You Take My Place; Let’S Switch!” What It Means To Be A Woman Powerlifter In Parasport, Aaron Carl S. Seechung, Maria Luisa M. Guinto
“You Take My Place; Let’S Switch!” What It Means To Be A Woman Powerlifter In Parasport, Aaron Carl S. Seechung, Maria Luisa M. Guinto
The Qualitative Report
Gendered disability in elite sport has emerged as a pertinent area of inquiry in sport psychology. However, qualitative research aimed at amplifying the voices of marginalized subgroups is notably sparse. Employing a phenomenological approach, we examined the lived experience of a Filipina para powerlifter, probing the intersection of gender, disability, and socioeconomic status in shaping how the participant made sense of life and identity, both within and outside the realm of sport. Three personal experiential themes were generated from the interview data's interpretative phenomenological analysis: “survival of the fittest,” “the voices in my head did not allow me to give …
Online Bilingual Co-Design: Developing Resources With People With Disability And Family Members From Refugee Backgrounds, Angela Dew, Mahmoud Murad, Louisa Smith, Joanne Watson, Kim Robinson, Maree Higgins, Cathy Preston-Thomas, Mardi Stow, Ingrid Culos, Mariano Coello, Shakeh Momartin, Christian Astourian, Kelley Johnson, Caroline Lenette, Katherine Boydell
Online Bilingual Co-Design: Developing Resources With People With Disability And Family Members From Refugee Backgrounds, Angela Dew, Mahmoud Murad, Louisa Smith, Joanne Watson, Kim Robinson, Maree Higgins, Cathy Preston-Thomas, Mardi Stow, Ingrid Culos, Mariano Coello, Shakeh Momartin, Christian Astourian, Kelley Johnson, Caroline Lenette, Katherine Boydell
The Qualitative Report
People with disability from Syrian and Iraqi refugee backgrounds living in Australia have limited access to information and resources in Arabic language. Our study aim was to use a co-design process to create a suite of Arabic-language resources to increase information access and build capacity of people with disability and family members from refugee backgrounds to use services, and of disability and refugee services to provide relevant support. Following a rapid literature review about access to supports and services for people with disability from refugee backgrounds, workshops were held with 38 people with disability and family members from Syrian and …
‘Why It’S Important To Talk About Our Toilet Needs In The Workplace’ – Using Maslow’S Needs Theory To Shine A Light On Workers Living With Ibd In The Workplace, Hannah Vaughan, Patricia A. Jolliffe Dr
‘Why It’S Important To Talk About Our Toilet Needs In The Workplace’ – Using Maslow’S Needs Theory To Shine A Light On Workers Living With Ibd In The Workplace, Hannah Vaughan, Patricia A. Jolliffe Dr
The Qualitative Report
Inflammatory Bowel Disease (IBD) can be challenging for employees diagnosed with the illness as they experience increased absenteeism, feelings of anxiousness, and negative career impact. Moreover, workplace relationships and a lack of understanding of the condition are anxiety-provoking. Utilising Maslow’s (1943) Needs Theory, this study evaluated the effect of IBD on the working lives of individuals diagnosed with the condition and the support they received. Employees from several organisations in a range of industries engaged with this qualitative study. Semi-structured interviews were conducted with seven individuals who had received an official diagnosis of IBD and worked in paid employment for …
Self-Portraits For Social Change: Audience Response To A Photovoice Exhibition By Women With Disability, Diane Macdonald, Angela Dew, Karen Fisher Assoc Prof, Katherine Boydell
Self-Portraits For Social Change: Audience Response To A Photovoice Exhibition By Women With Disability, Diane Macdonald, Angela Dew, Karen Fisher Assoc Prof, Katherine Boydell
The Qualitative Report
Negative attitudes about and behaviours towards women with disability are harmful and exclusionary, contributing to poorer health, income, educational, and employment outcomes. Our study focused on what audiences learnt, felt, and did (what changed) after viewing self-portraits and stories by women with disability. We questioned whether a public exhibition of their artworks, created through photovoice methodology, could be an effective platform to provoke social change and increase inclusion for people with disability. We collected audience response to our exhibition to address a research gap and to provide an example for other photovoice researchers. We employed interpretive thematic analysis through a …
Using Interviewing In Public Health Research: Experiences Of Novice Researchers, Caroline I. Wood, Nancy Daley-Moore, Rachel Powell
Using Interviewing In Public Health Research: Experiences Of Novice Researchers, Caroline I. Wood, Nancy Daley-Moore, Rachel Powell
The Qualitative Report
In this article, we provide the experiences of three novice public health researchers conducting studies with several vulnerable populations: women, people with disabilities, and children. We describe all phases of our interview studies including developing data collection guides, planning the interview in an appropriate setting, conducting the interviews, and bringing the interview to a close. Specific components of the interviews that are discussed include establishing rapport and minimizing the power imbalance inherent between interviewer and interviewee, including the added power imbalance that vulnerable populations experience. Issues of maintaining quality and rigor, as well as ethical considerations for working with our …
Writing With The ‘Other’: Combining Poetry And Participation To Study Leaders With Disabilities, Rama Cousik, Paresh Mishra, Mariesa K. Rang
Writing With The ‘Other’: Combining Poetry And Participation To Study Leaders With Disabilities, Rama Cousik, Paresh Mishra, Mariesa K. Rang
The Qualitative Report
In this paper, we describe the process of transformative co-authorship between researchers and a participant with disabilities. The researchers were conducting a larger study that aimed to identify different factors that shaped individuals with disabilities to assume leadership roles. Drawing from interview data obtained from the participant, one researcher wrote a poem that provided a stage for the researchers and the participant to engage in reflexive process that transformed the researchers-participant relationship to that of co-authors. This paper describes this transformative process and what everyone learned from this enriching experience.
Disability As Difference - A Fictional Representation, Jonathon S. Breen
Disability As Difference - A Fictional Representation, Jonathon S. Breen
The Qualitative Report
This study presents three perspectives about how the life experience of individuals with disabilities is profoundly affected by the attitudes of others. A first perspective is presented by three individuals who had sustained significant, traumatic injuries. They each shared with me their experiences with acceptance and the attitudes of others. A second perspective comes from me, as the author of this article. As a person with a virtually lifelong disability, I have interpreted those experiences through a lens mediated by my own relationship to disability. These interpretations have informed a third perspective, that of a fictional representation of the role …
“It Helps If You Are A Loud Person”: Listening To The Voice Of A School Student With A Vision Impairment, Jill Opie, Jane Southcott, Joanne Deppeler
“It Helps If You Are A Loud Person”: Listening To The Voice Of A School Student With A Vision Impairment, Jill Opie, Jane Southcott, Joanne Deppeler
The Qualitative Report
Students with vision impairment who attend mainstream secondary schools in Australia may not experience education as an inclusive and positive experience. This study of one senior secondary student with vision impairment provides a rare opportunity to give voice and provide understandings of the experience from the perspective of the student. The research question that drove this study was: What is the experience of mainstream schooling for a student with a vision impairment? The participant in this Interpretative Phenomenological Analysis study was Edward (pseudonym), a student in his final year of secondary schooling. Edward encountered significant barriers to inclusion, specifically teaching, …
The Impact Of Family Autism Camp On Families And Individuals With Asd, Luchara R. Wallace
The Impact Of Family Autism Camp On Families And Individuals With Asd, Luchara R. Wallace
The Qualitative Report
Families of children with disabilities, such as Autism Spectrum Disorders (ASD), often search for opportunities to acquire information about and receive emotional support from others who may have or had similar experiences. An evaluation of the Dakota Black Goose Family Autism Camp sought to determine the impact of the family camp experience. Pre- and Post-Camp surveys were administered upon families’ arrival at Camp and prior to their departure (n=17) to evaluate the overall quality of the program as well as the level of informational and emotional support anticipated and received. Follow-up interviews were completed six months post Camp to determine …
Youth With Disabilities Talk About Spirituality:A Qualitative Descriptive Study, Patricia J. Baldwin, Jan Evans, Nicole Etherington, Megan Nichols, Virginia Wright, Janette Mcdougall
Youth With Disabilities Talk About Spirituality:A Qualitative Descriptive Study, Patricia J. Baldwin, Jan Evans, Nicole Etherington, Megan Nichols, Virginia Wright, Janette Mcdougall
The Qualitative Report
There is little known about what spirituality means for youth with disability or about the potential relevance of youths’ spirituality in pediatric rehabilitation. This study explored perceptions of spirituality for youth with disabilities. Using a qualitative descriptive methodology, we examined the lived experiences of eighteen youth ages 11-20 years with disabilities including cerebral palsy, central nervous system disorder or autism spectrum disorder. In individual interviews, followed by a focus group, youth identified key spiritual themes – the importance of their beliefs, personal sources of comfort and strength, finding purpose in helping others, significance of personal connections, and strengths-based perspectives on …
What's Wrong With Me?: An Autoethnographic Investigation Of The Co-Cultural Communicative Practices Of Living With Tourette Syndrome During Adolescence, Mark Congdon Jr.
What's Wrong With Me?: An Autoethnographic Investigation Of The Co-Cultural Communicative Practices Of Living With Tourette Syndrome During Adolescence, Mark Congdon Jr.
The Qualitative Report
Using an Autoethnographic methodology, this essay explores how I was diagnosed with Tourette Syndrome. My experience illustrates a dynamic and difficult process of understanding and negotiating assimilation, using a variety of communication strategies related to self-perception, perceptions of others, and interactions with others. Using Co-Cultural theory (CCT) as a theoretical framework, three themes emerged from my experience: (1) nonassertive assimilation: negotiating with relationships of authority, (2) aggressive assimilation: negotiating relationships with peers, and (3) nonassertive separation: the convergence of negotiating relationships of authority and with peers. It is my hope that my story expands the awareness and conversation among and …
Studying The Study: Reflections On Exploring The Health And Disability Narratives Of Long-Term Sickness Benefits Recipients In The Uk, Kayleigh Garthwaite
Studying The Study: Reflections On Exploring The Health And Disability Narratives Of Long-Term Sickness Benefits Recipients In The Uk, Kayleigh Garthwaite
The Qualitative Report
Researching sensitive topics such as sickness and disability can encompass a wide range of demands that must be continually negotiated throughout the research process by both the researcher and research participants. Therefore, a studying the study approach is important when exploring the quality and ethical practice in qualitative research on sensitive issues with vulnerable populations. This becomes especially important within a UK context when considering the negative discourse surrounding the sickness benefits process in the UK. Drawing upon semi-structured interviews with 25 long-term sick and disabled benefits recipients in the UK, the study sought to uncover the health and illness …
Reflection On The Methodological Aspects Of A Critical Ethnographic Approach Used To Inform Change For Adolescents With Disabilities, Sonia Gulati, Margo Paterson, Jennifer Medves, Rebecca Luce-Kapler
Reflection On The Methodological Aspects Of A Critical Ethnographic Approach Used To Inform Change For Adolescents With Disabilities, Sonia Gulati, Margo Paterson, Jennifer Medves, Rebecca Luce-Kapler
The Qualitative Report
Debate remains about how to effectively obtain information from adolescents with disabilities in marginalized areas and how to apply this knowledge to shape rehabilitation activities. This study explored how to empower adolescents in the urban slums of North India to assume greater control over their rehabilitation within the context of a local community-based rehabilitation program. Participants included 21 adolescents with and 11 adolescents without disability (aged 12 to 18 years), and 10 community-based rehabilitation workers. A critical ethnographic approach was adopted. Fieldwork was conducted from January to May 2005 and October 2006 to March 2007. This paper focuses on the …
Accommodation Strategies Of College Students With Disabilities, Lucy Barnar-Brak, Deann Lectenberger, William Y. Lan
Accommodation Strategies Of College Students With Disabilities, Lucy Barnar-Brak, Deann Lectenberger, William Y. Lan
The Qualitative Report
College students with disabilities develop and utilize strategies to facilitate their learning experiences due to their unique academic needs. Using a semi-structured interview technique to collect data and a technique based in grounded theory to analyze this data, the purpose of this study was to discern the meaning of disclosure for college students with disabilities in relation to the strategies they invoke while seeking accommodations. The study revealed three underlying themes common to the accommodation-seeking strategies of the participants who were academically successful college students with disabilities. These themes include: scripting disclosure of one's disability; negotiating accommodations with faculty; and …
Exploring How Factors Impact The Activities And Participation Of Persons With Disability: Constructing A Model Through Grounded Theory, Joy Wee, Margo Paterson
Exploring How Factors Impact The Activities And Participation Of Persons With Disability: Constructing A Model Through Grounded Theory, Joy Wee, Margo Paterson
The Qualitative Report
This paper explores a conceptualization of how factors impact activities of daily living (ADL) and participation from the perspective of persons with disability. This study identified what, and how, factors perceived by participants affect their daily activities, to better inform reporting of scores obtained on measures of ADLs and participation such as the Barthel Index and the Participation Scale. Grounded theory methodology was used to conceptualize a model, employing semi-structured interviews guided by categories of the above measures. Eight themes emerged from 24 participants, resulting in conceptualization of the successful adaptation model, which demonstrates relationships amongst factors, activities, and participation. …