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Full-Text Articles in Social and Behavioral Sciences

The Critical Art And Hope Of Unraveling: A Review Of M. F. Alvarez’S Autoethnography Of Suicide And Renewal, Lucy E. Bailey Jun 2024

The Critical Art And Hope Of Unraveling: A Review Of M. F. Alvarez’S Autoethnography Of Suicide And Renewal, Lucy E. Bailey

The Qualitative Report

This review engages with the powerful critical and evocative autoethnography, Unraveling: An Autoethnography of Suicide and Renewal (2024). Written by M. F. Alvarez, Assistant Professor of Communication Studies at the University of New Hampshire, this book narrates the embodied experiences of a young Filipino gay man named Mike whose suffering from childhood trauma slowly escalates into relentless delusions and self-harm that eventually propel him to seek professional help. Alvarez’s beautifully sculpted book captures Mike’s multidimensional psychological life as he lives, observes, and narrates it within structures that medicalize people’s mental health experiences. Dividing his text into story and analysis, Alvarez …


Deconstructing The Richness Of Understanding The Nature Of Language, Learning, And Social Change: A Journey Through Sfl Action Research For Teachers In Pursuit Of A Multilingual Equity Agenda, Elih Sutisna Yanto Jun 2024

Deconstructing The Richness Of Understanding The Nature Of Language, Learning, And Social Change: A Journey Through Sfl Action Research For Teachers In Pursuit Of A Multilingual Equity Agenda, Elih Sutisna Yanto

The Qualitative Report

This essential volume, edited by Meg Gebhard, illustrates how K-12 teachers use Systemic Functional Linguistics (SFL) and action research to support the development of disciplinary literacy among diverse learners in high-stakes school reform contexts. With contributions from teachers, teacher educators, and researchers, this book empowers teachers to be agents of change in their schools by designing and implementing of curricula, instruction, and assessment that build on students' cultural and linguistic knowledge. This book provides a framework, tools and resources for teaching and supporting multilingual students and ELLs through case studies and contexts. This book aims to improve teachers' professional practice …


Humanizing The Research Process: Collaborative Reflections On Prioritizing Research Participants’ Agency, Trust, And Connection, Anne E. Pezalla, Alyssa Scott, Lex Nappa, Diane Hsieh Jun 2024

Humanizing The Research Process: Collaborative Reflections On Prioritizing Research Participants’ Agency, Trust, And Connection, Anne E. Pezalla, Alyssa Scott, Lex Nappa, Diane Hsieh

The Qualitative Report

All research is a social construction. In this paper, we work to illuminate those moments of co-constructed meaning by taking readers on a “behind the scenes” tour of a collaborative research project that explored educator relationships. We describe our priorities in and care for participant recruitment and scheduling, our post-hoc reflections on the differences in emotional tenor between interviews and focus groups, and our own roles and positionalities within the data collection and analysis process. Action-items are recommended for other group-based qualitative studies to humanize the process of research and prioritize moments of agency, trust, and connection among participants.


Social And Cultural Factors Beyond Washback Of The National Examination: Exploring The Impact Of High-Stakes Testing In Indonesian Secondary Schools From Teachers’ Experiences And Sociocultural Factors, Maya Puspitasari Jun 2024

Social And Cultural Factors Beyond Washback Of The National Examination: Exploring The Impact Of High-Stakes Testing In Indonesian Secondary Schools From Teachers’ Experiences And Sociocultural Factors, Maya Puspitasari

The Qualitative Report

This article investigates the conditions that cause a negative washback impact on English as language teaching (ELT) in Indonesian secondary schools. I interviewed eight English teachers to learn about the factors influencing their pedagogical choices for the test. This research draws on the literature of washback research and empirical evidence for the notion that contextual factors and external social cultural elements may have a significant role in defining the form of washback. Emphasizing the causal relationship concerning instruction and testing may be unduly simplified if it only covers its washback effect on the teachers and their teaching practices. High-stakes testing …


Challenges Confronted, During Data Collection Concerning Nurses And Paramedics In Bahawalpur, Pakistan, Humera Gul Dr, Syed Shakir Ali Ghazali Dr, Huma Qasim Jun 2024

Challenges Confronted, During Data Collection Concerning Nurses And Paramedics In Bahawalpur, Pakistan, Humera Gul Dr, Syed Shakir Ali Ghazali Dr, Huma Qasim

The Qualitative Report

Data collection is one of the initial steps in almost all research practices. This study describes the challenges and issues faced by a researcher, in a developing country like Pakistan, during the execution of time-use research on nurses and paramedics, working in public sector hospitals of District Bahawalpur. We collected the data from the year 2018 to 2021, in three phases from 364 participants. Obstacles faced included: non-cooperative behavior of health department officials, non-response, reluctance, disinformation and misinterpretation on behalf of participants during working hours or after working hours and limited resources regarding funds and time. This paper also highlights …


Daughters Of The Diaspora: Using Autoethnography To Interrogate Impositions Of Cultural Conformity, Rose M. Wake Dr, Jane Southcott, Maria Gindidis Jun 2024

Daughters Of The Diaspora: Using Autoethnography To Interrogate Impositions Of Cultural Conformity, Rose M. Wake Dr, Jane Southcott, Maria Gindidis

The Qualitative Report

In this collaborative autoethnography, I (Rose) discuss my personal experience with cultural transmission as cultural conformity. As a cultural hybrid and a daughter of a southern Italian proxy bride I share my narratives with a daughter of a Greek proxy bride (Maria). We find confluences in our experiences and understandings that suggest we are Daughters of the Diaspora. We may not be unique. Using a shared autoethnographical approach between ourselves and a collaborator (Jane), we construct and critique vignettes that capture and interrogate our understandings. This study offers a potential model for further inquiry by women who are daughters of …


Thematic Analysis Of Using Visual Methods To Understand Healthcare Teams, Muhammad Faisal Ahmed, Konain Ali, Muskaan Mann, Shannon L. Sibbald Jun 2024

Thematic Analysis Of Using Visual Methods To Understand Healthcare Teams, Muhammad Faisal Ahmed, Konain Ali, Muskaan Mann, Shannon L. Sibbald

The Qualitative Report

In healthcare, teams are essential in solving today’s toughest challenges. However, narrow disciplinary perspectives have limited our current understanding of how teams function in various healthcare contexts. Researchers often rely on traditional survey methods as their primary tool, which can prevent them from gathering comprehensive data. To overcome this limitation, sharing stories and narratives visually allows participants to create representations of their perceptions of team experiences and complex encounters using a variety of approaches. Despite the potential of this method, there is little empirical guidance on how to use it in health sciences research. To address this gap and provide …


Towards A Versatile And Impactful Qualitative Research Paradigm: A Comprehensive Guide To Grounded Theory For Organizational Researchers, Tito Dimas Atmawijaya Jun 2024

Towards A Versatile And Impactful Qualitative Research Paradigm: A Comprehensive Guide To Grounded Theory For Organizational Researchers, Tito Dimas Atmawijaya

The Qualitative Report

Cathy Urquhart's Grounded Theory for Qualitative Research: A Practical Guide (2nd ed.) provides a comprehensive and accessible introduction to the grounded theory methodology. The book explores the historical development of grounded theory, its diverse approaches, and applications, empowering readers to make informed decisions about the research method. Urquhart emphasizes the importance of reflexivity, theoretical sensitivity, and the role of the researcher, encouraging a participant-centered approach. The book's coverage of key concepts, practical exercises, and strategies for overcoming challenges make it an indispensable resource for researchers and teachers in fields like information systems and organizational studies. Urquhart also highlights promising …


Exposing Scholars To Poetry For Teaching Qualitative Research, Audra Skukauskaitė May 2024

Exposing Scholars To Poetry For Teaching Qualitative Research, Audra Skukauskaitė

The Qualitative Report

This article stems from dialogues in the context of the 15th TQR conference themed “Qualitative Inquiry: Access Denied?” where a workshop on Poetry in the Teaching and Learning Qualitative Research has resulted in participants creating a poem conference organizer encouraged to share with the readers of TQR. In this article, I provide an overview of the background and rationale for the workshop, the activities leading to the participants writing the poem, and a reflection on how the participant-created poem connected with the conference theme and the potentials of utilizing artistic practices in teaching and learning qualitative inquiry.


Exploring The Use Of Diary Entries For Qualitative Researchers: Mitigating Challenges When Investigating Sensitive Topics On Indian Women, Pavitra Mishra, Amit Gupta May 2024

Exploring The Use Of Diary Entries For Qualitative Researchers: Mitigating Challenges When Investigating Sensitive Topics On Indian Women, Pavitra Mishra, Amit Gupta

The Qualitative Report

This study seeks to understand the challenges encountered by qualitative researchers while investigating sensitive topics. We make a valuable contribution to the existing literature on researcher well-being and the mitigation of potential adverse incidents during data collection in studies on sensitive topics. The researchers maintained a comprehensive diary while conducting a study on the sensitive topic of work-family conflict among Indian working women. The analysis of these diary entries revealed three primary categories of challenges: (a) emotional challenges encompassing emotional sustenance, self-awareness, the element of care, building rapport, reciprocity, breaking the connection, preparing for exit, and researcher exhaustion; (b) methodological …


The Role Of Emotions In Qualitative Analysis: Researchers’ Perspectives, Hilary Lustick, Xiaoye Yang, Abeer Hakouz Apr 2024

The Role Of Emotions In Qualitative Analysis: Researchers’ Perspectives, Hilary Lustick, Xiaoye Yang, Abeer Hakouz

The Qualitative Report

Qualitative research is an inherently social and relational endeavor that relies on and engages our emotions. Yet, researchers receive little guidance on how to engage emotions without being swayed by personal biases. Lustick (2021) developed a framework called “emotion coding” for systematically engaging thoughts and emotions in qualitative data analysis by asking what a chunk of data can teach us about ourselves, our participants, and our study. In this study, we interviewed 15 researchers who had tried using the emotion coding technique, about their impressions of this technique and the role of emotion in qualitative research overall. Framed by Goffman …


My Journey In Researching Depression Among Black People: Experiences Of A Researcher In A Sensitive Study, Brightness L. Kgatla Apr 2024

My Journey In Researching Depression Among Black People: Experiences Of A Researcher In A Sensitive Study, Brightness L. Kgatla

The Qualitative Report

The interest in qualitative research on mental health within Black communities is rapidly growing. However, there are still debates on the conceptualization of depression among the Black community. This paper focuses on the researcher’s experiences as a young Black South African experiencing depression, and their reflections on interpretivist qualitative research focused on the realities of Black South African youth experiencing depression. The paper highlights the importance of reflexivity in a qualitative study and how the topics researched by a Black South African experiencing depression which is still considered a taboo within some parts of the Black community. If a researcher …


The Blurry Line Between Corporation And Cult: A Retrospective Autoethnographic Study, Ernst Graamans Apr 2024

The Blurry Line Between Corporation And Cult: A Retrospective Autoethnographic Study, Ernst Graamans

The Qualitative Report

In popular management literature corporations are sometimes loosely compared to cults. The comparison is a severe allegation as it implies the transgression of subordinate employees’ integrity. This paper explores to what extent such comparisons with cults are warranted as well as the implications this has for the practice of corporate culture management. On grounds of the author’s unique, first-hand experience in both corporate and cultic environments a retrospective autoethnographic (RAE) approach was chosen to further explore the supposed resemblance. The comparison is structured along Lifton’s eight criteria of thought reform and reveals that although akin to cults in all aspects …


Interpretative Phenomenological Analysis: Learnings From Employing Ipa As A Qualitative Methodology In Educational Research, Christine Robinson, Heath Williams Apr 2024

Interpretative Phenomenological Analysis: Learnings From Employing Ipa As A Qualitative Methodology In Educational Research, Christine Robinson, Heath Williams

The Qualitative Report

Interpretative Phenomenological Analysis (IPA) is an established qualitative methodology widely adopted within health-based research. However, one gap in the literature is that little has been written about IPA’s employability within educationally situated research. Our paper aims to demonstrate that IPA is a suitable methodology for education research. This paper has two parts. In the first part, the authors utilise the method of exegesis and theoretical analysis to explicate and provide clarity concerning the often-misunderstood philosophical and theoretical background of IPA. In the second part, we advocate for IPA as a suitable option for qualitative research in educational contexts. To execute …


Juggling Academic Practice And Care: Collaborative Autoethnography Within A Basque University Research Group, Asunción Martínez-Arbelaiz, Aingeru Gutierrez-Cabello, Estibaliz Aberasturi-Apraiz, Jose M. Correa-Gorospe Apr 2024

Juggling Academic Practice And Care: Collaborative Autoethnography Within A Basque University Research Group, Asunción Martínez-Arbelaiz, Aingeru Gutierrez-Cabello, Estibaliz Aberasturi-Apraiz, Jose M. Correa-Gorospe

The Qualitative Report

Many university scholars, including the authors of this article, acknowledge that they feel like they are riding an emotional roller coaster with academic success, as well as many project failures. Except for our PhD thesis, many of us complete our research tasks in relatively established research groups. However, little research has examined the potential these groups might have to mitigate feelings of academic isolation. To fill in this gap, we designed two methodological steps. First, we adopted the Woolfian metaphor of a room of our own, where we composed individual vignettes regarding our feelings of isolation. We read each other's …


Fold In The Cheese? An Approach To Teaching Qualitative Data Analysis To Students, Jennifer Jackson Phd Mar 2024

Fold In The Cheese? An Approach To Teaching Qualitative Data Analysis To Students, Jennifer Jackson Phd

The Qualitative Report

There are many elements of qualitative data analysis that may appear intangible to novice researchers. In this article, I present an approach to a data analysis workshop with students, where I do my best to avoid the instruction to “fold in the cheese,” as per the television series Schitt’s Creek. Students attend 90-minute workshops where they use an assortment of buttons to practice different strategies of qualitative analysis. The tactile mechanism of sorting objects has proven invaluable in workshops, as it helps students to physically organize their thoughts and takes pressure off to find the “right” answer. The nature of …


“It’S Always An Admixture Of So Many Identities”: Interpretative Phenomenological Analysis Of Indigenous Kalasha Cultural Identity, Fahad Riaz Choudhry Dr, Karen Jennifer Golden, Miriam Sang-Ah Park Mar 2024

“It’S Always An Admixture Of So Many Identities”: Interpretative Phenomenological Analysis Of Indigenous Kalasha Cultural Identity, Fahad Riaz Choudhry Dr, Karen Jennifer Golden, Miriam Sang-Ah Park

The Qualitative Report

This case study examined how an Indigenous Kalasha participant in northern Pakistan makes sense of his multi-faceted identity. The interpretative phenomenological analysis method was used to analyze data from an in-depth, single person case study. Our selected participant was a 36-year-old male postgraduate student from an Indigenous marginalized tribe, which is an ethnic and religious minority group in the northern Hindukush mountain region of Pakistan. Results are presented in four superordinate themes: (1) Identity: admixture of a number of identities, (2) Changing culture and its psychological impact, (3) Cultural protective factors against psychological problems and (4) Mental health perspective. …


How Can Generative Ai (Genai) Enhance Or Hinder Qualitative Studies? A Critical Appraisal From South Asia, Nepal, Niroj Dahal Mar 2024

How Can Generative Ai (Genai) Enhance Or Hinder Qualitative Studies? A Critical Appraisal From South Asia, Nepal, Niroj Dahal

The Qualitative Report

Qualitative researchers can benefit from using generative artificial intelligence (GenAI), such as different versions of ChatGPT—GPT-3.5 or GPT-4, Google Bard—now renamed as a Gemini, and Bing Chat—now renamed as a Copilot, in their studies. The scientific community has used artificial intelligence (AI) tools in various ways. However, using GenAI has generated concerns regarding potential research unreliability, bias, and unethical outcomes in GenAI-generated research results. Considering these concerns, the purpose of this commentary is to review the current use of GenAI in qualitative research, including its strengths, limitations, and ethical dilemmas from the perspective of critical appraisal from South Asia, Nepal. …


Photovoice: A Method To Interrogate Positionality And Critical Reflexivity, H. Shellae Versey Feb 2024

Photovoice: A Method To Interrogate Positionality And Critical Reflexivity, H. Shellae Versey

The Qualitative Report

Photovoice is a visual method for interrogating subjective perspectives. Rather than solely relying on investigator-developed tools, photovoice allows participants to inform research by “showing” their lived realities through photographs, resulting in a more collaborative, inclusive, and community-informed process. Though applicable to a wide range of social science research, photovoice remains relatively underutilized, especially as a tool for interrogating reflexivity. Given its power to reveal the unseen, this paper considers the potential for photovoice as a self-reflexive tool by turning the lens towards the investigator. Though typically used by the researcher to enhance transparency and navigate power differentials in community-based participatory …


Thematic Analysis Through Artificial Intelligence (Ai), Prokopis A. Christou Phd Feb 2024

Thematic Analysis Through Artificial Intelligence (Ai), Prokopis A. Christou Phd

The Qualitative Report

Thematic analysis, a well-enforced qualitative analytic method, is likely to continue evolving with the adoption of AI technologies. This how-to report does not delve into the details of thematic analysis itself, as there are ample existing studies on the topic. Instead, it acknowledges the potential impacts, dynamics, and pitfalls of AI in thematic analysis while offering valuable advice, particularly for novice analysts, on how to incorporate and document AI tools in each phase of a thematic analysis. The author underscores the importance of not allowing AI to overshadow the analyst's critical evaluative and interpretive skills but instead supporting the use …


Your Qualitative Research “Guide On The Side”: A Review Of Marilyn Lichtman’S Qualitative Research In Education: A User’S Guide (4th Edition), Martha Snyder Feb 2024

Your Qualitative Research “Guide On The Side”: A Review Of Marilyn Lichtman’S Qualitative Research In Education: A User’S Guide (4th Edition), Martha Snyder

The Qualitative Report

Lichtman’s fourth edition of Qualitative Research in Education: A User’s Guide has become my qualitative research guide on the side. From the book cover to the way she organizes and writes the chapters, Lichtman invites readers to join her on a journey to learn how qualitative research can address some of education’s most pressing problems. Up-to-date, easy to read, and useful, this book has earned a permanent place on my bookshelf. In this review I provide a review organized by themes. I describe each theme, offer excepts from the text that represent the theme and explain its importance to …


Building Community For Those Living With Hiv: Co-Empowerment And Participatory Action Research, Patricia M. Miller Dr., Brent Oliver Dr., Ken Lapointe, Kim A. Samson, Vincenzo Sabella Mr. Feb 2024

Building Community For Those Living With Hiv: Co-Empowerment And Participatory Action Research, Patricia M. Miller Dr., Brent Oliver Dr., Ken Lapointe, Kim A. Samson, Vincenzo Sabella Mr.

The Qualitative Report

The Calgary HIV Social Society (CHSS) self-determined and organized several social-recreational monthly events to reduce and understand the effects of social isolation and stigma that people living with HIV face every day. It has been found that COVID-19 had impacted the lives of people living with HIV by creating significant isolation for those already stigmatized because of living with HIV. Using a Participatory Action Research (PAR) methodology and focus group at the end of the events, the research showed how COVID 19, and the related concurring isolation has impacted the lives of people living with HIV. The research included three …


On Restorative Validity: Reorienting Inquiry Toward Peace, Justice, And Healing, Giovanni P. Dazzo Feb 2024

On Restorative Validity: Reorienting Inquiry Toward Peace, Justice, And Healing, Giovanni P. Dazzo

The Qualitative Report

This work begins with a simple premise: (re)imagining a healing and restorative space for inquiry. Drawing on the work of John H. Stanfield II (2006), who first suggested the restorative functions of qualitative inquiry, this manuscript forms the basis for an axiologically-actuated conceptual model, restorative validity, which asks what it would take to (re)humanize researcher and researched alike. Beginning with the knowledge of co-researchers in our collective, the formulation of this framework was organized to understand the importance of orienting our research and ourselves toward relationships, justice, and liberation. After this review, I discuss a series of reflexive questions, rooted …


Exploring Primary School Teacher Perspectives On Adaptability And Its Links With Classroom Management And Psychological Wellbeing: A Qualitative Inquiry, Robyn Davis, Andrew Holliman, Michael John Burrows, Daniel Waldeck, David Holliman Feb 2024

Exploring Primary School Teacher Perspectives On Adaptability And Its Links With Classroom Management And Psychological Wellbeing: A Qualitative Inquiry, Robyn Davis, Andrew Holliman, Michael John Burrows, Daniel Waldeck, David Holliman

The Qualitative Report

Teacher shortage is a major concern for educational institutions. One key psychological resource for teachers that may reduce teacher shortage (e.g., prevent burnout, improve wellbeing) is teacher adaptability (i.e., the capacity to adjust to situations of novelty and change). Indeed, teacher adaptability is known to be associated with positive functioning and wellbeing. However, little qualitative research has been conducted exploring how adaptability may be experienced by teachers. The present study set out to explore the unique perspective of a sample of teachers on their adaptability and its links with classroom management and wellbeing. Semi-structured interviews were conducted with four primary …


Reflection, Reflexivity, Learning And The Influence Of Formalised And Experiential Piano Training, Dorothy Li Jan 2024

Reflection, Reflexivity, Learning And The Influence Of Formalised And Experiential Piano Training, Dorothy Li

The Qualitative Report

This autoethnographic study examines how music learning is influenced by teachers and socio-cultural environments and how this influences not only our musical journeys but the way we view our lives, of the progress we have made, the goals in which we hope to achieve, and the way we perceive we will achieve them. This study explores how my musical background, understanding, learning, music-making abilities, and skills have shaped my present beliefs, attitudes and identity as a musician, educator, and researcher. Focusing on teacher pedagogy and practice, the study reveals how prevailing teacher-centred and didactic approaches to teaching impact the perspectives …


Teaching-Learning Patchwork Technique: Proposed Active Methodology Applied To Doctoral Education, Jonimar Silva Souza, Aloir Pedruzzi Junior, Queila Regina Sousa Matitz, Natália Rese Jan 2024

Teaching-Learning Patchwork Technique: Proposed Active Methodology Applied To Doctoral Education, Jonimar Silva Souza, Aloir Pedruzzi Junior, Queila Regina Sousa Matitz, Natália Rese

The Qualitative Report

The didactic-pedagogical innovation at the stricto sensu level can be the differential for a program to train qualified professionals for today's demands. Within this perspective, the study seeks to reflect on the application process and impacts of a teaching strategy based on the Teaching-Learning Patchwork Technique (TLPT) active methodology in a doctoral business administration course. Using duoethnography, the research was carried out with a teacher and two students, generating reflections of different visions about the same object, which provided a greater understanding of the phenomena experienced. The results support that TLPT promotes educational innovation from the promotion of teaching worked …


Transformative Visions Of Qualitative Inquiry: Performative, Philosophical, And Artistic Transformations, Niroj Dahal Jan 2024

Transformative Visions Of Qualitative Inquiry: Performative, Philosophical, And Artistic Transformations, Niroj Dahal

The Qualitative Report

I am writing this review, Transformative Visions for Qualitative Inquiry, considering performative, philosophical, and artistic transformations as an essential reading for faculty and students—novice and veteran. It inspires readers, writers, and novice and veteran researchers in various social sciences disciplines and educational landscapes to envision innovative approaches to healing from crises like the COVID-19 pandemic and/or earthquakes. These processes encourage resisting, recovering, connecting, finding joy, and embracing life. Likewise, Transformative Visions for Qualitative Inquiry centers on the concept of transformation and its potential for the future of qualitative research amidst a world grappling with the multifaceted implications of COVID-19, …


A Handy Guide To Qualitative Research In Education, Abd Aziz Ardiansyah Jan 2024

A Handy Guide To Qualitative Research In Education, Abd Aziz Ardiansyah

The Qualitative Report

Marilyn Lichman's Qualitative Research in Education: A User’s Guide is a well-written and valuable textbook for new and experienced researchers. Regarding title and content, this textbook focuses more on educational research. Still, it does not rule out the possibility that this book can be used in qualitative research outside education. An exciting thing was the division of phases into three stages: (1) Tradition, theory, and practice; (2) Research planning; and (3) Collect, organize, and communicate. This perfect division allows researchers who have read this book to conduct qualitative research. Readers will also find that the examples used throughout the text …


Craftivism As Inquiry: Holding Life’S Threads, Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace Jan 2024

Craftivism As Inquiry: Holding Life’S Threads, Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace

The Qualitative Report

In this article, we share insights regarding an arts-based research project where carers of people with dementia conveyed their experiences in cloth. Carers face high rates of mental ill health and burnout, while forming a largely undervalued and unrecognised workforce. Through this project, carers’ knowledge was valued and amplified using an innovative methodology – craftivism. During a series of five workshops in 2021, a small group of carers, researchers and artists gathered online to develop an exhibition of craftivist textile works. They evoked the complexity of their makers’ journeys supporting loved ones at the end of life, finding joy and …


“Everything Seems To Be The Right Eye In Our Family”: Intergenerational Family Living With Facial Eye Disfigurement: An Interpretative Phenomenological Analysis, Zali M. O'Dea Ms, Jane Southcott Jan 2024

“Everything Seems To Be The Right Eye In Our Family”: Intergenerational Family Living With Facial Eye Disfigurement: An Interpretative Phenomenological Analysis, Zali M. O'Dea Ms, Jane Southcott

The Qualitative Report

This paper presents the lived experience of an intergenerational family, spanning three generations living with Facial Eye Disfigurement (FED). Living with vision loss and FED is estimated to affect nearly 8 billion people worldwide. Inadequate attention is paid to the impact of Living with FED (LwFED) on the lives of individuals. This research offers a deep dive into the lived experiences of one family LwFED. This family comprises a grandfather (deceased), son, wife, and child, all of whom have lived or live with FED. In this Interpretive Phenomenological Analysis (IPA) study three interviewees are deemed the experts. Data were collected …