Social and Behavioral Sciences Commons^™

Exploring The Advocacy Experiences Of The Military Families With Children Who Have Disabilities, Institute For Veterans And Military Families At Syracuse University

Institute for Veterans and Military Families

This research review examines the experiences of 11 parents of children with disabilities, recruited through military and disability agencies using snowball sampling. The study reveals varying experiences within the Exceptional Family Member Program (EFMP), highlighting military families' resilience and reliance on peer support, and the military mothers' pivotal role in advocacy, often requiring their spouse's presence at IEP meetings for effectiveness. This IVMF review also provides implications for practitioners, policy, and future research surrounding military families of children with disabilities.

Veterans In Nevada, 2021, Nicole Diaz Del Valle, Annie Vong, Caitlin J. Saladino, William E. Brown Jr.

Demography

This fact sheet examines data on veterans in Nevada in 2021. The original data source, the U.S. Census Bureau’s, “2021 American Community Survey One-Year Estimates” includes data on veterans for all 50 states.

Differences Among Family And Professional Guardians: A Statewide Survey Of Characteristics, Training, And Practices Related To Decision-Making, Kristin Hamre, Derek Nord

Developmental Disabilities Network Journal

This cross-sectional study sought to examine the differences between family and professional guardians across personal and role characteristics, training received, and their inclusion of people they serve in decision making. A total of 237 subjects serving as guardian to adults in the state of Indiana completed an online survey. Results showed group differences across race, education, as well as diagnosis and age of those served. Overall, training was limited across both groups, and family guardians received significantly less training across several topics. Finally, family and professional guardians were found to significantly differ in their willingness to allow people they serve …

Toward An Equity-Driven Conceptual Model Of Covid-19 Vaccine Decision-Making For People With Idd, Lydia Ocasio-Stoutenburg, Reese Triana, Shelly Baer, Jairo Arana, Ana C. Sale, Douglene Jackson, Michelle Schladant, Nastasia Boulos, Grace Dima, Jeffrey Brosco

Developmental Disabilities Network Journal

COVID-19 presented a public health emergency in the U.S., resulting in severe illness, hospitalizations, high mortality rates, and long-term adverse health care conditions. Several studies examined the disparities in transmission rates, barriers to care, and negative health outcomes for persons with disabilities, particularly people with intellectual and developmental disabilities (I/DD). While data revealed similar trends among Black, Hispanic or Latino/a/x/e, Native, Indigenous, and Asian people, outcomes are compounded for people of color with I/DD. Several historical, pervasive, systemic, structural, and attitudinal barriers have constrained healthcare access and adequate treatment, instigating feelings of distrust among those in systems of care. Although …

A Descriptive, Multi-Site Case Study To Discover The Inclusion Of Disability Competencies In Undergraduate Public Health Program Curricula In California-Based Public Universities, Jacqueline Suzanne Siukola Tompkins

Doctoral Dissertations and Projects

Nearly one in four adults and one in six children in the United States (U.S.) have a disability. Despite the evidence documenting health differences, public health professionals receive inconsistent or little-to-no disability education in graduate public health curricula. Undergraduate public health (UGPH) programs have an expanding role in building the future public health workforce, including the U.S. governmental public health workforce. However, the inclusion of disability-related content within UGPH program curricula is currently unknown. The purpose of this multi-site case study was to conduct preliminary research to describe how disability-related curricula are or can be included in UGPH program curricula …

Gender And Disability: An Exploration Of Reflective Practice For Protection And Access Amid Complex Emergencies, Lindsey A. Mandolini

Electronic Theses and Dissertations

Gender and Disability: An Exploration of Reflective Practice for Protection and Access Amid Complex Emergencies is a qualitative research project exploring under what conditions and in what ways disabled persons’ organizations (DPOs) effectively protect and provide access to women and girls with disabilities amid complex emergencies. The study upheld a participatory approach and rights-based framework, emphasizing that authentic inclusion requires centering disabled voices in research. Drawing on extant research, grey literature, and data collected from online practitioner questionnaires and semi-structured interviews, the study conducted a multi-phased reflexive thematic analysis. The research findings culminate in a composite narrative that brings to …

Defining Social Inclusion For People With Disabilities In Governance: Scoping And Thematic Literature Review, Ismi Dwi Astuti Nurhaeni, Prama Wiratama, Intan Sani Putri, Asbiyal Nurdin, Asal Wahyuni Erlin Mulyadi, Tiyas Nur Haryani, Desiderius Priyo Sudibyo

BISNIS & BIROKRASI: Jurnal Ilmu Administrasi dan Organisasi

Consensus on a precise definition of social inclusion for people with disabilities remains elusive. This study aims to systematically review the definition of Social Inclusion for People with Disabilities in Governance (SIPDG) based on the related literature and offer basic theoretical insight into what might be considered relevant for establishing a definition of SIPDG. A scoping review was conducted with a qualitative synthesis of literature from SCOPUS. Articles were identified by final keywords of "social inclusion" AND “disability”*. The search produced 8,305 articles, of which 149 articles were included in the scoping review. A coding method was applied in the …

Unheard Victims Of Covid-19: The Impact Of Mask Use On Communication For D/Deaf And Hard Of Hearing People, Kym Couch

Boise State University Theses and Dissertations

Masks are effective at preventing the spread of COVID-19, but they also impact communication for d/Deaf and hard of hearing (DHH) people. This research is a mixed methods approach to analyzing the impact that the widespread use of masks in response to COVID-19 has had on DHH people. Building on the allowance for nuance and paradox presented by Deborah Stone in her book Policy Paradox: The Art of Political Decision Making (2012) and holding to the Social Model of Disability, this research involves the qualitative and quantitative analysis of a survey of one-hundred and ninety-eight (198) DHH people, interviews with …

Parent-Child Attachment When Parenting A Child With A Disability, Giulianna Zocchetti

Electronic Theses, Projects, and Dissertations

Parent-child attachment is a commonly researched topic, but parent-child attachment when a child has a disability has received limited attention in the literature. This study seeks to examine the impact of parenting a child with a disability on parent-child attachment. This study was conducted on a Facebook forum that posts about parenting with children who have developmental disabilities.

This research study used a variety of methods and procedures. First, this study was conducted using quantitative methods. The research used a self-administered survey on the platform SurveyMonkey. The study used snowball sampling to recruit participants. To analyze the data, descriptive and …

An Interactive Training Model To Promote Cultural Humility For Early Childhood Professionals, Anjali G. Ferguson, Chimdindu Ohayagha, Jackie Robinson Brock

Developmental Disabilities Network Journal

The disability population in the United States has grown, with an estimated 2.6 million households having at least one child with a disability in 2019 (Young, 2019). Racially minoritized children disproportionately represent disability categories with Black and Indigenous children being overdiagnosed with emotional disturbance disabilities (Oswald & Coutinho, 2001). Further, minoritized children often experience greater rates of complex trauma (Horowitz, Weine, & Jekel, 1995) and this exposure significantly impacts minoritized children’s mental health (Flannery, Wester, & Singer, 2004). Included in these social determinants of health are the impacts of racism and racial trauma. Racism has been associated with mental health …

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

Loving My Skin: A Self-Advocate’S Perspective From Dayton, Ohio, Shari Cooper

Developmental Disabilities Network Journal

No abstract provided.

Flipping The Script As A Black Mother Living In My Community: A Self-Advocate's Perspective From Baltimore, Jessica Salmond

Developmental Disabilities Network Journal

No abstract provided.