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Full-Text Articles in Social and Behavioral Sciences

Self-Perceived Stigma Of Caregivers With Children On The Autism Spectrum In Latin America, Leah Michelle Jara May 2023

Self-Perceived Stigma Of Caregivers With Children On The Autism Spectrum In Latin America, Leah Michelle Jara

Theses and Dissertations

With the prevalence of Autism Spectrum Disorder (ASD) continuing to spread along with limited knowledge on the disorder’s service accessibility, many caregivers are required to care for lifelong obligations, often at the sake of their own mental, physiological, and emotional health. This study aimed to explore self-perceived stigmas of caregivers in Latin America based on predictors including demographics, severity, and type of healthcare coverage. Participants included 2483 caregivers in Latin America who completed a survey targeting the challenges, priorities, barriers to care, and stigma they face caring for an individual with autism. Findings showed that age had a weak inverse …


Black Racial Identity And Externalizing Symptoms: The Regulatory Role Of Dyadic Relationships, Sultan A. Hubbard Jan 2023

Black Racial Identity And Externalizing Symptoms: The Regulatory Role Of Dyadic Relationships, Sultan A. Hubbard

Theses and Dissertations

This study explored caregiver impact on Black racial identity (BRI) and externalizing through the integration of BRI, racial socialization (RS), and social support theoretical frameworks. The study used 85 Black undergraduates (Mean age =19.3, SD=3.43) who rated three caregivers, respectively. Restricted maximum likelihood estimation was conducted to estimate variance components. BRI, RS, internalizing, and externalizing variables reflected significant trait effects and dyadic effects. However, racial centrality and public regard did not reflect significant dyadic effects. Participant burden due to randomization of caregivers and items likely suppressed dyadic effects. Moreover, caregivers who evoked private regard were perceived as having high cultural …


Mindfulness To Promote Healthy Aging In Older Adults With Mild Cognitive Impairment And Their Caregivers: A Mixed Methods Feasibility And Acceptability Study, Emma Mcbride Jun 2022

Mindfulness To Promote Healthy Aging In Older Adults With Mild Cognitive Impairment And Their Caregivers: A Mixed Methods Feasibility And Acceptability Study, Emma Mcbride

Theses and Dissertations

Mild cognitive impairment (MCI), thought be a precursor to dementia, is characterized by cognitive decline without functional impairment. As the population ages and the prevalence of MCI increases, non-pharmacologic interventions are needed to address well-being and disease progression in this population of older adults and their caregivers. In response to growing interest in mindfulness-based interventions (MBIs) as an adjunct to integrated care for this population, this single arm, mixed methods pilot study trialed a lightly adapted, 6-week MBI for both MCI patients and their caregivers (n=24). The intervention was feasible and acceptable in both groups. There was a trend toward …


Shared Decision Making In Adolescence: The Role Of Race And Health Status, Mona L. Quarless Jan 2022

Shared Decision Making In Adolescence: The Role Of Race And Health Status, Mona L. Quarless

Theses and Dissertations

Youth participation in Shared Decision Making (SDM) is still a novel clinical practice with unique considerations. Moreover, though SDM has been touted as an effective model for patient-centered care it has largely been underutilized and under-researched in Black and Latinx adolescent populations. The current study examined the association of health factors that may relate to Black and Latinx adolescents, their families, and HCPs engaging in SDM. Specifically, I examined within-group racial differences in relation to health conditions (i.e., pain, obesity, mental health status) and SDM during adolescence. Measures of adolescent chronic pain, BMI status (overweight/obese), mental health symptoms (depression/anxiety), SDM …


Respite Care, Stress, Uplifts, And Depression In Single Mothers Of Children With Autism Spectrum Disorders, Ruthann Grawe Christensen Jul 2014

Respite Care, Stress, Uplifts, And Depression In Single Mothers Of Children With Autism Spectrum Disorders, Ruthann Grawe Christensen

Theses and Dissertations

Single mothers of children with autism spectrum disorders (ASD) are likely to experience high levels of stress and be at risk for depression. However, respite care can reduce parenting stress and lower psychological distress in parents of children with disabilities. This study focused on single mothers of children with ASD and their reports of stress relative to respite care received. One hundred and twenty-two single mothers completed the Respite Care Instrument, Center for Epidemiological Studies Depression Scale, Hassles and Uplifts Scale, and Caregiver Burden Instrument. Results were mixed. Respite care was positively related to daily uplifts, but not significantly related …


The Influence Of Dementia Caregiver Mental Health On Quality Of Care In Argentina, Alejandra Morlett Paredes Jan 2014

The Influence Of Dementia Caregiver Mental Health On Quality Of Care In Argentina, Alejandra Morlett Paredes

Theses and Dissertations

This study examined the connections between cognitive functioning in individuals with dementia and caregiver burden, burden and mental health, mental health and quality of care. One hundred two dementia caregivers from San Lucas, Argentina completed questionnaires assessing these constructs. Caregiver burden, depression, anxiety, and satisfaction with life explained 18.8% of the variance in quality of care – respect and 14.7% of the variance in quality of care – provide. An SEM with generally adequate fit indices uncovered that cognitive functioning in individuals with dementia was inversely associated with caregiver burden, caregiver burden was inversely associated with mental health, and mental …


Family Needs, Caregiver Burden, And Mental Health: Caregivers Of Individuals With Various Neurological Conditions From Colombia And Mexico, Megan Elizabeth Sutter Jan 2014

Family Needs, Caregiver Burden, And Mental Health: Caregivers Of Individuals With Various Neurological Conditions From Colombia And Mexico, Megan Elizabeth Sutter

Theses and Dissertations

This cross-sectional study examined differences in family needs (informational, social, financial, health, and household support), caregiver mental health (depression, satisfaction with life, vitality, social functioning, and emotional role limitations), and caregiver burden (personal life, guilt, and psychological) among caregivers of individuals with traumatic brain injury, spinal cord injury, multiple sclerosis, and dementia from cities in Colombia and Mexico (N = 343). The study also examined the connections among family needs, caregiver mental health, and caregiver burden in the combined sample of caregivers of individuals with neurological conditions. Many significant differences were identified among groups, and implications are discussed. Family …


Primary Caregivers Of Children With Williams Syndrome: Posttraumatic Growth And Related Health Outcomes, Laura Slosky Apr 2013

Primary Caregivers Of Children With Williams Syndrome: Posttraumatic Growth And Related Health Outcomes, Laura Slosky

Theses and Dissertations

Background: Current literature on caregivers of children with chronic illnesses and developmental disabilities primarily focuses on negative aspects of adjustment, with maternal stress and depression as common outcome variables (Duvdevany & Abboud, 2003; Shin and Crittenden, 2003). While these pediatric caregivers have been shown to struggle more than caregivers of typically developing children, the possibility of positive psychological outcomes from such an experience is only beginning to be explored (Kim, Greenberg, Seltzer & Krauss, 2003; Scallan, Senior & Reilly, 2010). One such positive outcome is the idea of Posttraumatic Growth (PTG), a construct for which a widely accepted theoretical model …


A Brief Problem-Solving Intervention For Caregivers Of Children With Cancer, Jennifer Lamanna Apr 2012

A Brief Problem-Solving Intervention For Caregivers Of Children With Cancer, Jennifer Lamanna

Theses and Dissertations

OBJECTIVE: Pediatric cancer treatment is stressful for caregivers. Research has indicated that problem-solving coping reduces stress related to caregiving. The current study examines the effects of a problem-solving intervention (Parent Empowerment Program), based on Problem-Solving Therapy, for caregivers of children on active cancer treatment. It was hypothesized that participants who received the intervention would show decreases in caregiving stress and posttraumatic stress symptoms, and increases in problem-solving ability between baseline and post-test assessments compared to those who received an attention control. METHOD: Thirty-nine caregivers (all parents; 48% participation rate) participated. The majority were mothers (90%), married or partnered (59%) and …


The Role Of Positive Emotions In Health-Related Outcomes For Caregivers Of Veterans With Traumatic Brain Injury, Suzzette Chopin Feb 2012

The Role Of Positive Emotions In Health-Related Outcomes For Caregivers Of Veterans With Traumatic Brain Injury, Suzzette Chopin

Theses and Dissertations

The purpose of this study was to examine the relationship between both self-efficacy for caregiving and personal gain and several variables related to well-being in caregivers (N = 70) of veterans who sustained a traumatic brain injury (TBI). Specifically, the relationship between self-efficacy for caregiving and perceived physical health and the relationship between personal gain related to caregiving and depression and anxiety was examined. The relationship between caregiver personal gain and perceived care recipient behavior was also examined. Exploratory analyses considered kinship and racial/ethnic differences. This was a secondary analysis of pilot data collected at four Polytrauma Rehabilitation Centers (PRC) …