Open Access. Powered by Scholars. Published by Universities.®
Social and Behavioral Sciences Commons™
Open Access. Powered by Scholars. Published by Universities.®
Articles 1 - 2 of 2
Full-Text Articles in Social and Behavioral Sciences
Syndrome-Related Stigma In The General Social Environment As Reported By Women With Classical Congenital Adrenal Hyperplasia, Heino F.L. Meyer-Bahlburg, Jazmin Reyes-Portillo, Jananne Khuri, Anke A. Ehrhardt, Maria I. New
Syndrome-Related Stigma In The General Social Environment As Reported By Women With Classical Congenital Adrenal Hyperplasia, Heino F.L. Meyer-Bahlburg, Jazmin Reyes-Portillo, Jananne Khuri, Anke A. Ehrhardt, Maria I. New
Department of Psychology Faculty Scholarship and Creative Works
Stigma defined as “undesired differentness” (Goffman, 1963) and subtyped as “experienced” or “enacted,” “anticipated,” and “internalized” has been documented for patients with diverse chronic diseases. However, no systematic data exist on the association of stigma with somatic intersexuality. The current report concerns women with classical congenital adrenal hyperplasia (CAH), the most prevalent intersex syndrome, and provides descriptive data on CAH-related stigma as experienced in the general social environment (excluding medical settings and romantic/sexual partners) during childhood, adolescence, and adulthood. A total of 62 adult women with classical CAH [41 with the salt-wasting (SW) variant and 21 with the simple-virilizing (SV) …
Stigma In Medical Settings As Reported Retrospectively By Women With Congenital Adrenal Hyperplasia (Cah) For Their Childhood And Adolescence, Heino F.L. Meyer-Bahlburg, Jananne Khuri, Jazmin Reyes-Portillo, Maria I. New
Stigma In Medical Settings As Reported Retrospectively By Women With Congenital Adrenal Hyperplasia (Cah) For Their Childhood And Adolescence, Heino F.L. Meyer-Bahlburg, Jananne Khuri, Jazmin Reyes-Portillo, Maria I. New
Department of Psychology Faculty Scholarship and Creative Works
Objectives To perform a qualitative study of stigma experienced in medical settings by children and adolescents with congenital genital ambiguity (CGA). Methods 62 women with classical congenital adrenal hyperplasia (CAH) of variable severity took part in a qualitative retrospective interview that focused on the impact of CAH and its medical treatment, with an emphasis on childhood and adolescence. Categorization of stigmatization was based on deductive content analysis of the interview transcripts. Results Many women recalled experiencing the genital examinations in childhood and adolescence as adverse, stigmatizing events, leading to avoidance reactions and self-perception as abnormal, particularly when the examinations included …