Social and Behavioral Sciences Commons^™

“Respect The Way I Need To Communicate With You”: Healthcare Experiences Of Adults On The Autism Spectrum, Christina Nicolaidis, Dora Raymaker, Katherine E. Mcdonald, Amelia E.V. Baggs, Sebastian Dern, Steven K. Kapp, Michael Weiner, Cody Boisclair, Elesia Ashkenazy

School of Social Work Faculty Publications and Presentations

Our objective was to obtain an in-depth understanding of autistic adults’ experiences with healthcare and their recommendations for improving care. Our academic-community partnership used a community based participatory research (CBPR) approach to conduct semi-structured, open-ended interviews with 39 autistic adults and 16 people who had experience supporting autistic adults in healthcare settings. Participants identified patient-level, autism-related factors that impact healthcare interactions, including verbal communication skills, sensory sensitivities, challenges with body awareness, slow processing speed, atypical non-verbal communication, and challenges with organization. However, the success of healthcare interactions largely depended on the interplay between patient- and provider-level factors, as well as …