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Social and Behavioral Sciences Commons

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Medicine and Health Sciences

Northeastern Illinois University

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Full-Text Articles in Social and Behavioral Sciences

Recruiting And Retaining People With Disabilities For Qualitative Health Research: Challenges And Solutions, Jennifer R. Banas, Susan Magasi, Kim The, David E. Victorson Jan 2019

Recruiting And Retaining People With Disabilities For Qualitative Health Research: Challenges And Solutions, Jennifer R. Banas, Susan Magasi, Kim The, David E. Victorson

Health Sciences and Physical Education Faculty Publications

There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this …