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Social and Behavioral Sciences Commons™
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Articles 1 - 5 of 5
Full-Text Articles in Social and Behavioral Sciences
Participatory Privacy In Urban Sensing, Katie Shilton, Jeffrey A. Burke, Deborah Estrin, Mark Hansen, Mani B. Srivastava
Participatory Privacy In Urban Sensing, Katie Shilton, Jeffrey A. Burke, Deborah Estrin, Mark Hansen, Mani B. Srivastava
Ethics in Science and Engineering National Clearinghouse
Urban sensing systems that use mobile phones enable individuals and communities to collect and share data with unprecedented speed, accuracy and granularity. But employing mobile handsets as sensor nodes poses new challenges for privacy, data security, and ethics. To address these challenges, CENS is developing design principles based upon understanding privacy regulation as a participatory process. This paper briefly reviews related literature and introduces the concept of participatory privacy regulation. PPR reframes negotiations of social context as an important part of participation in sensing-supported research. It engages participants in ethical decision-making and the meaningful negotiation of personal boundaries and …
Research In The Biotech Age: Can Informational Privacy Compete?, Wilhelm Peekhaus
Research In The Biotech Age: Can Informational Privacy Compete?, Wilhelm Peekhaus
Wilhelm Peekhaus
This paper examines the privacy of personal medical information in the health research context. Arguing that biomedical research in Canada has been caught up in the government’s broader neo-liberal policy agenda that has positioned biotechnology as a strategic driver of economic growth, the author discusses the tension between informational privacy and the need for medical information for research purposes. Consideration is given to the debate about whether privacy for medical information serves or hinders the ‘public good’ in respect of medical research, and to discussions of informed consent as an element of ‘fair information practices’ designed to safeguard the privacy …
Personal Health Information In Canada: A Comparison Of Citizen Expectations And Legislation, Wilhelm Peekhaus
Personal Health Information In Canada: A Comparison Of Citizen Expectations And Legislation, Wilhelm Peekhaus
Wilhelm Peekhaus
This paper explores whether the Canadian legislative protections in place to safeguard medical privacy meet the expectations of Canadians. An overview of current governance systems designed to protect the privacy of personal health information at both the federal and provincial levels is first presented. This is followed by an empirical analysis of the results of a public opinion survey conducted to determine Canadian attitudes about medical privacy, particularly genetic privacy. The analysis highlights areas where legislation and public opinion converge and diverge.
A Study Of Us Library Directors' Confidence And Practice Regarding Patron Confidentiality, Trina J. Magi
A Study Of Us Library Directors' Confidence And Practice Regarding Patron Confidentiality, Trina J. Magi
University Libraries Faculty and Staff Publications
This article reports the results of a paper survey mailed to all 213 directors of public and academic libraries in Vermont. The purpose of the study, which yielded a 71 percent response rate, was to learn how many libraries take specific measures to protect patron confidentiality other than having a written policy, to measure library directors' confidence in their own ability and that of their workers to follow confidentiality policies, and to learn what types of support directors need to better protect confidentiality.
Clinician Assessments Of Workplace Security Training - An Informatics Perspective, Juanita Fernando, Linda Dawson
Clinician Assessments Of Workplace Security Training - An Informatics Perspective, Juanita Fernando, Linda Dawson
Associate Professor Linda Dawson
This paper describes and analyses clinicians’ assessments of workplace privacy and security (PaS) training in the context of contemporary health information system (HIS) practice. The PaS training underpins national e-health frameworks. The paper draws on findings from a forthcoming dissertation. The ‘questerview’ technique was applied to this case study of 26 clinicians in three Victorian (Australia) public hospitals. The technique relies on data collection that applies standardised questions and questionnaires during interviews. Respondents were recorded while they completed the standardised questions and questionnaires and were encouraged to discuss their responses to items in detail. Data analysis involved the scrutiny of …