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Social and Behavioral Sciences Commons

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Full-Text Articles in Social and Behavioral Sciences

The Centrality Of Disclosure Decisions To The Illness Experience For Youth With Chronic Conditions: A Qualitative Study, Roberta Lynn Woodgate, Pauline Tennent, Sarah C. Barriage, Nicole Legras Sep 2020

The Centrality Of Disclosure Decisions To The Illness Experience For Youth With Chronic Conditions: A Qualitative Study, Roberta Lynn Woodgate, Pauline Tennent, Sarah C. Barriage, Nicole Legras

Information Science Faculty Publications

The aim of this paper is to illuminate findings of disclosure experiences for youth living with chronic illness using a non-categorical approach. The findings were derived from a larger qualitative study framed by social constructivist grounded theory that sought to understand youth's involvement in healthcare decision-making in the context of chronic illness. Fifty-four youth participated in the study, ranging from 9 to 24 years. Three main themes representing the youth's perspectives and experiences of disclosing chronic illness were identified: (1) disclosure is central to the illness experience; (2) spectrum of disclosure; and (3) navigating others' reactions to disclosure. The findings …


Getting Back To My Life: Exploring Adaptation To Change Through The Experiences Of Breast Cancer Survivors, Charles A. Foster Jan 2012

Getting Back To My Life: Exploring Adaptation To Change Through The Experiences Of Breast Cancer Survivors, Charles A. Foster

Antioch University Dissertations & Theses

The holding environment concept, developed by Donald Winnicott, has been used to represent the type of support that encourages adaptive change during psychosocial transitions. The leadership and change literature posited that the holding environment had the ability to shape the trajectory of the transition, yet did not test this empirically. The psychosocial breast cancer literature empirically researched support during and after treatments ended, but did not incorporate the holding environment concept. This presented the opportunity to inform both the leadership and breast cancer fields by studying holding environments in the breast cancer setting. This study had a twofold purpose: 1) …