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Social and Behavioral Sciences Commons™
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- Arts-based research (1)
- Care culture (1)
- Care setting (1)
- Community-based end-of-life residence (1)
- Complex adaptive systems (1)
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- Culture change (1)
- Dying and death (1)
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- Long-term care (1)
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- Personal support workers (1)
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- Terminal cancer (1)
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Articles 1 - 2 of 2
Full-Text Articles in Social and Behavioral Sciences
Understanding The Context And Social Processes That Shape Person- And Family-Centered Culture In Long-Term Care: The Pivotal Role Of Personal Support Workers, Ellen Helena Melis
Understanding The Context And Social Processes That Shape Person- And Family-Centered Culture In Long-Term Care: The Pivotal Role Of Personal Support Workers, Ellen Helena Melis
Antioch University Dissertations & Theses
This single, exemplar case study explored the context and social processes that shape person-and family-centered culture in a long-term care (LTC) home, using grounded theory and situational analysis for the data collection and analysis. Findings revealed one core dimension: needing to be heard, valued, and understood, and five key roles: personal support workers (PSWs), executive director (ED), senior leadership, nurse managers, and residents and families, which informed five dimensions, each focused on enhancing care for residents: (a) attending to residents’ daily care needs (PSWs), (b) advocating strategically (ED), (c) translating vision into programs and policies (senior leadership), (d) ensuring quality …
Making Space For Dying: Portraits Of Living With Dying, Elise Lark
Making Space For Dying: Portraits Of Living With Dying, Elise Lark
Antioch University Dissertations & Theses
In Making Space for Dying: Portraits of Living with Dying, I describe the everyday lived experience of dying and the care culture within freestanding, community-based, end-of-life residences (CBEOLR) utilizing portraiture and arts-based research. I craft four case studies into “portraits,” based on interviews, on-site visits, up-close observation, and field notes. In the person-centered portraits, I reveal the inner landscape of two terminally ill women, with data represented in poetry. In the place-centered portraits, I “map” the social topography of two CBEOLRs to illustrate how lives and care of the dying are emplaced, from the perspectives of community leaders, …