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Social and Behavioral Sciences Commons™
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Full-Text Articles in Social and Behavioral Sciences
Caregiving, Services, And Advocacy Among Siblings Of Individuals With Disabilities, John Kramer, Thinkwork! At The Institute For Community Inclusion At Umass Boston
Caregiving, Services, And Advocacy Among Siblings Of Individuals With Disabilities, John Kramer, Thinkwork! At The Institute For Community Inclusion At Umass Boston
All Institute for Community Inclusion Publications
In today’s presentation, we will make a case for how and why a critical disability studies perspective would deepen and strengthen our knowledge about the lifelong experiences of siblinghood. We have a wide range of goals today and will present for you some of our current thinking on this relatively small, but expanding interest in sibling-disability research. First, we highlight how sibling disability research has differed and been narrower in focus than other research about siblings where neither has a disability and trace the reason for this to institutionalisation and deinstitutionalisation. We then identify the impact of the overwhelmingly psychological …
Reciprocity And Social Capital In Sibling Relationships Of People With Disabilities, John Kramer, Allison Hall, Tamar Heller
Reciprocity And Social Capital In Sibling Relationships Of People With Disabilities, John Kramer, Allison Hall, Tamar Heller
All Institute for Community Inclusion Publications
Sibling relationships are some of the longest-lasting relationships people experience, providing ample opportunities to build connections across the lifespan. For siblings and people with intellectual and developmental disabilities (I/DD), these connections take on an increased significance as their families age and parents can no longer provide care. This paper presents findings from a qualitative study that addresses the question, “How do siblings support each other after parents no longer can provide care to the person with I/DD?” Findings in this study suggest that siblings with and without disabilities experience reciprocity as a transitive exchange, which occurs through the creation of …