Social and Behavioral Sciences Commons^™

Are We Accurately Counting The Disabled Population In The United States?, Nastassia Vaitsiakhovich, Scott D. Landes, Bonnielin K. Swenor

Population Health Research Brief Series

Over 1 in 4 Americans are disabled (26.8%), yet health disparities for this subpopulation remain under-addressed. Tackling health disparities for people with disabilities requires effective public health and disability policies that cannot be developed without standardized and accurate disability data. The National Health Interview Survey (NHIS) annually collects data on health outcomes for the non-institutionalized U.S. population, including those with disabilities. The questions to measure disability in the NHIS have changed over time, raising concerns about how these changes affect the accuracy of the count of people with disabilities in the U.S. This brief summarizes findings from a recent study …

How Did Healthcare Affordability Change For U.S. Adults With Intellectual Disability After The Implementation Of The Affordable Care Act?, Nastassia Vaitsiakhovich

Center for Policy Research

Individuals with intellectual disabilities are marginalized in the United States and have worse health outcomes than their peers without disabilities. Lower socioeconomic status and a reliance on social welfare benefits and public health insurance programs often create barriers to access to care. In 2010, the Affordable Care Act (ACA) aimed to make healthcare services more accessible. This brief summarizes the findings from a recent study that examined patterns in healthcare affordability under the ACA or noninstitutionalized adults ages 18-64 with intellectual disabilities. The findings suggest that the ACA increased the likelihood that adults with intellectual disabilities would access medical, specialty, …

How Did Healthcare Affordability Change For U.S. Adults With Intellectual Disability After The Implementation Of The Affordable Care Act?, Nastassia Vaitsiakhovich

Population Health Research Brief Series

Individuals with intellectual disabilities are marginalized in the United States and have worse health outcomes than their peers without disabilities. Lower socioeconomic status and a reliance on social welfare benefits and public health insurance programs often create barriers to access to care. In 2010, the Affordable Care Act (ACA) aimed to make healthcare services more accessible. This brief summarizes the findings from a recent study that examined patterns in healthcare affordability under the ACA or noninstitutionalized adults ages 18-64 with intellectual disabilities. The findings suggest that the ACA increased the likelihood that adults with intellectual disabilities would access medical, specialty, …

Cdc Guidelines Hide The Alzheimer Disease Mortality Burden Among Adults With Down Syndrome, Scott D. Landes

Population Health Research Brief Series

Alzheimer's disease is much more common among adults with than without Down syndrome. While an estimated 11.3% of adults in the general population over age 65 have Alzheimer's disease, nearly all adults with Down syndrome have Alzheimer's neuropathology by age 40, and half develop Alzheimer's disease by age 60. However, CDC guidelines for completing death certificates hide the actual Alzheimer's disease mortality burden among adults with Down syndrome. This brief summarizes results from a recent study seeking to accurately measure the disparity in the Alzheimer's disease mortality burden between adults with versus without Down syndrome for the years 2005-2019.

The Association Between Child Behavior Problems And Parenting Stress In Families Of Children With Disabilities In The United Arab Emirates (Uae): Family Resilience Processes As Protective Factors, Sara Alansaari

Theses - ALL

No abstract provided.

Critical Aspirations: Disability, Education, And Community Cultural Wealth In A Sanctuary City, Chelsea Stinson

Dissertations - ALL

This study explores the needs and experiences of refugee parents of emergent bilingual students labeled as disabled (EB/LADs) and their networks of interpreters and community-based educators. This investigation focuses on the relationships (and disconnects) within these networks related to language, migration, culture, race, disability, and special education experiences in formal and community-based schooling contexts. The bulk of extant scholarship regarding parental experiences in special education typically centers school-based experiences rather than community- and home-based experiences, such as daily acts of nurturing and communication (e.g., Cioè-Peña, 2018). However, school-based spaces, processes, and resources are in many ways inaccessible to EB/LAD families …

Presence Of Large Racial-Ethnic Differences In Adhd Prevalence Among U.S. Children, Ashlyn W.W.A Wong

Population Health Research Brief Series

This data slice compares adolescent ADHD diagnoses across racial-ethnic groups. It shows large racial/ethnic differences, with the highest rates among Non-Hispanic (NH) Alaskan Native/American Indian children, followed by NH White, NH Black, and NH Other Race children. Rates were substantially lower for Hispanic and NH Asian.

Racial-Ethnic Disparities In Educational Attainment Among Adults With Intellectual Disability, Erin Bisesti

Population Health Research Brief Series

Racial-ethnic minorities with intellectual disability experience compound disadvantage because of the intersection of their disability and racial minority group status. This research brief examines whether birth cohort trends (from the early-1900s to late-1990s) in educational attainment among adults with intellectual disability differed among non-Hispanic Whites, non-Hispanic Blacks, and Hispanics. Results show that although all racial-ethnic groups saw a substantial increase in the probability of attaining a high school degree or more over subsequent birth cohorts, the timing and amount of education attained varied across racial-ethnic groups.

Introducing The Intellectual And Developmental Disability (Idd) Age-At-Death Data Tracker, Scott Landes, Nader Mehri, Janet Wilmoth

Population Health Research Brief Series

Adults with intellectual and developmental disabilities (IDD) die younger than those without such disabilities in the U.S. This data slice introduces a new data tracking tool that shows age-at-death trends for adults with intellectual disability, Down syndrome, cerebral palsy, and other rare developmental disabilities, as well as those without IDD. The website, which will be updated annually, allows users to compare age-at-death patterns for each IDD group by U.S. state, year, biological sex, and race-ethnicity.

More Uncertainty Leads To Less Accuracy On Death Certificates For Adults With Intellectual Disability, Erin Bisesti, Scott D. Landes

Population Health Research Brief Series

Causes of death are often inaccurately reported on death certificates for individuals with intellectual disability. This research brief examines whether uncertainty surrounding the death is associated with the inaccurate reporting of intellectual disability as the underlying cause of death. Results show that increased uncertainty surrounding deaths, especially in instances of choking related deaths, increases the probability that intellectual disability is inaccurately reported as the underlying cause of death.

Covid-19 Risk For Individuals With Intellectual And/Or Developmental Disabilities Varies By Type Of Residential Setting, Ashlyn W.W.A. Wong, Scott D. Landes

Population Health Research Brief Series

COVID-19 case and fatality rates are higher for people with IDD who are living in Skilled Nursing Facilities compared with those living in other types of facilities or those living in individual residences or their family home.

Progress In Closing The Age-At-Death Disparity For Adults With Intellectual And Developmental Disabilities, Scott D. Landes

Population Health Research Brief Series

Intellectual and/or developmental disabilities (IDD) directly impact the course of an individual’s life, including the age at which they die.

Less Worthy Lives? We Must Prioritize People With Intellectual And Developmental Disabilities In Covid-19 Vaccine Allocation, Scott D. Landes, Margaret A. Turk, Katherine E. Mcdonald, Maya Sabatello

Population Health Research Brief Series

Individuals with developmental and intellectual disability should prioritized during COVID-19 vaccination allocation.

Covid-19 Trends Among Adults With Intellectual And Developmental Disabilities (Idd) Living In Residential Group Homes In New York State Through July 10, 2020, Scott D. Landes, Margaret A. Turk, Margaret K. Formica, Katherine E. Mcdonald

Population Health Research Brief Series

While COVID-19 case rates increased between April 10, 2020 and July 10, 2020 for both groups, from April 10 to May 1, the case rate increased by 2.5 times for people with IDD, from 2,225 to 5,544 cases per 100,000, but only increased by 1.6 times for New York State, from 886 to 1,584 cases per 100,000.

Redefining The Meanings Of Daily-Occupations And Life Quality Amongst Mothers Living With Their Autistic Children, Eko Sumaryanto, Gandes Mutiara Aziz

English Language Institute

Raising children with autism is very challenging for mothers due to changes on how occupational performance and occupational roles are performed. This circumstance demands these mothers to redefine the meaning of doing occupations and how they perceive their well-being in general. This study empirically investigates how mothers redefine the meaning of daily activities and self-report their well-being. The study employs in-depth interviews and formulates specific themes of findings. The study uses the phenomenology approach to investigate the dynamics of meanings experienced by the respondents and how they construct the new version of well-being from raising the autistic children.

Increased Covid-19 Risk For Adults With Intellectual And/Or Developmental Disability Living In Residential Group Homes, Scott D. Landes

Population Health Research Brief Series

Adults with intellectual and/or developmental disability living in group homes in New York are at higher risk of severe COVID-19 outcomes, including death.

Major Causes Of Death Among Adults With Down Syndrome, Scott D. Landes

Population Health Research Brief Series

Adults with Down syndrome often die at earlier ages than their peers in the general population. This data slice describes increased risk of death across different age groups from Dementia/Alzheimer’s, Influenza/Pneumonia, and Pneumonitis for adults with Down syndrome.

Workers With Disabilities May Remain Unemployed Long After The Covid-19 Pandemic, Jennifer D. Brooks

Population Health Research Brief Series

While the re-opening of the U.S. economy promises a return to work for some, this may not be the case for many displaced workers with disabilities. This issue brief describes the intricacies of employability of workers with disabilities .

Covid-19 Mortality Rates Are Higher Among People With Intellectual And Developmental Disability, Scott D. Landes

Population Health Research Brief Series

Despite higher risk of severe outcomes from COVID-19 among people with intellectual and developmental disabilities (IDD), there has been limited reporting of COVID-19 trends for this population. This research brief shows that higher COVID-19 case fatality rates among people with IDD. Risk is especially high among people are younger ages.

A Tale Of Two Statistics: Has Unemployment Among Adults With Disabilities Really Declined?, Jennifer D. Brooks

Population Health Research Brief Series

This data slice describes that although the unemployment rate has declined among both those with and without disabilities, the percentage of working-age adults in both groups who are out of the labor force altogether (i.e., not looking for work or unable to work) is higher than a decade ago.

Covid-19 And Pneumonia: Increased Risk For Individuals With Intellectual And Developmental Disabilities During The Pandemic, Scott D. Landes, Dalton Stevens, Margaret A. Turk

Population Health Research Brief Series

Adults with intellectual and developmental disabilities (IDD) are more likely to develop pneumonia than adults without IDD. This brief describes the implications of higher rates of pneumonia among individuals with IDD for increased risk of serious complications (including death) from COVID-19.

Potential Impacts Of Covid-19 On Individuals With Intellectual And Developmental Disability: A Call For Accurate Cause Of Death Reporting, Dalton Stevens, Scott D. Landes

Population Health Research Brief Series

Why might the COVID19 case fatality rate be higher among people with intellectual and development disabilities?

Effects Of Physiological Arousal On Speech Motor Control And Speech Motor Practice In Preschool-Age Children Who Do And Do Not Stutter, Victoria Tumanova, Carly Woods, Qiu Wang

Communication Sciences and Disorders - All Scholarship

Purpose: We examined the effects of physiological arousal on speech motor control and speech motor practice effects in preschool-age children who do (CWS) and do not stutter (CWNS). Method: Participants included 18 CWS (mean age 4 years, 5 months) and 18 age- and gender-matched CWNS. The participants repeated a phrase “buy bobby a puppy” interspersed with viewing pictures from the International Affective Picture System under two experimental conditions speaking after viewing pictures with (1) negative, and (2) neutral valence. Participants’ lip movements were tracked using Optotrak system. The spatio-temporal index (STI; Smith, Goffman, Zelaznik, Ying & McGillem, 1995) and mean …

People With Developmental Disabilities Have Much More Life To Live, Dalton Stevens

Population Health Research Brief Series

On average, adults with any type of developmental disability die 23.5 years before those without a developmental disability. Despite this disadvantage, health care providers, policymakers, and scholars have done little to address or understand the significantly shorter lifespans of people with developmental disabilities. This research brief discusses age-at-death mortality patterns for adults with various types of developmental disabilities.

Having A Disability Reduces Chances Of Employment For All Racial/Ethnic Groups, Jennifer D. Brooks

Population Health Research Brief Series

Regardless of race, adults with disabilities are less likely to be employed than those without disabilities. This data slice explains how race-ethnicity affects employment rates among adults with and without disabilities.

Having A Disability Increases The Likelihood Of Food Insecurity Despite Federal Programs To Prevent This Hardship, Colleen Heflin, Claire Altman, Laura Rodriguez

Population Health Research Brief Series

In 2016, more than 41 million people living in the United States were food insecure. Food insecurity is more pronounced among individuals with disabilities. Work-limiting disability is associated with food insecurity in multiple ways. This research brief shows how such high rates of food insecurity among the disabled population stems from ineffective national policies the many ways in which disabilities increase risk of food insecurity.

Quieter Hour – A Friendlier Shopping Experience For People With Autism, Rachel Brachman

Honors Capstone Projects - All

This thesis centers on autism and the exclusionary effects of it. While there is a wealth of new research on this diagnosis indicating that while there is an entire spectrum of autism, many people are fully functional in society. Many of these people simply have limitations. If these limitations were attended to by society, there would be no need for exclusion of people with these types disabilities. Many of the changes needed to promote an environment of inclusion instead of exclusion are not incredibly difficult to make, yet they have not been made.

While people on the spectrum are excluded …

What Are We Hiding? Preventable Causes Of Death Are Not Accurately Counted For Adults With Intellectual Disability, Scott D. Landes

Population Health Research Brief Series

This research brief reports on findings from a recent research on errors in cause of death reporting on death certificates for individuals with disabilities. Analyzing the death certificates of over 30,000 adults with developmental disabilities who died between 2012 and 2016, Landes and his collaborators found that nearly half of death certificates identify a developmental disability itself as the direct cause of death for individuals with disabilities.

Research Brief: "Women Military Veterans, Disability, And Employment", Institute For Veterans And Military Families At Syracuse University

Institute for Veterans and Military Families

This study compares the disability status of female veterans to non-veterans and male veterans using American Community Survey data pooled from 2008, 2009, and 2010. In practice, both female and male veterans who have a service-related disability and are involved in the civilian labor force should familiarize themselves with their employment rights under the American with Disabilities Act (ADA). In policy, the Department of Labor (DOL) might continue enforcing federal laws to protect veterans with service-related disabilities and help them gain employment in the civilian workforce. The VA and the DOL might also partner to assist female veterans in obtaining …

Research Brief: "Economic Well-Being Among Older-Adult Households: Variation By Veteran And Disability Status", Institute For Veterans And Military Families At Syracuse University

Institute for Veterans and Military Families

This brief is about the impact of veteran and disability statuses on poverty and material hardship among elderly veterans. In policy and practice, veterans should use support services, such as the VA and local veterans groups, and social workers should take into account veteran and disability statuses when determining needs; the VA could change their income support programs to help disabled veterans. Suggestions for future research include accounting for individual differences among households and looking at how elderly veteran poverty affects family members.