Social and Behavioral Sciences Commons^™

Illuminating The Lived Experiences Of Research With Indigenous Communities, Catherine E. Burnette, Sara Sanders, Howard K. Butcher, Emily Matt Salois

Aboriginal Policy Research Consortium International (APRCi)

The historical exploitation experienced by indigenous people in the United States has left a number of negative legacies, including dis- trust toward research. This distrust poses a barrier to progress made through culturally sensitive research. Given the complex history of research with indigenous groups, the purpose of this descriptive phenomenological study was to illuminate the lived experiences of both indigenous and non-indigenous researchers conducting cul- turally competent research with indigenous people. Interviews from 13 social science research experts revealed 6 underlying themes about their research with indigenous people, including respect and commitment, mutual trust, affirmation, harmony among multiple worldviews, responsibility, …

‘We Are Not Just Participants—We Are In Charge’: The Naccho Ear Trial And The Process For Aboriginal Community- Controlled Health Research, Traven Lea, Richard Murray, Margaret Culbong

Aboriginal Policy Research Consortium International (APRCi)

Objective. Methodological criteria that characterise ethically sound community-based studies are often described in overviews but are rarely documented in clinical studies. Research investigating the health of Aboriginal Australians is often small-scale, descriptive and largely driven by non-Indigenous people. The ‘community-controlled’ model of research relating to Aboriginal peoples health is a form of ‘participatory’ research that shifts the balance of control towards those being researched. This paper describes the methodological issues and principles that underpin community-controlled health research; their practical application; and encourages their adoption in research involving Indigenous populations.

Design. Descriptive report of the methods used to conduct the landmark …