Medicine and Health Sciences Commons^™

Caregivers’ Incongruence: Emotional Strain In Caring For Persons With Stroke, Linda L. Pierce, Teresa L. Thompson, Amy L. Govoni, Victoria Steiner

Nursing Faculty Publications

Purpose:Guided by Friedemann's framework, the purpose of this study was to examine the dimensions of new family caregivers’ emotional strain in caring for persons with stroke. Method: Seventy-three caregivers who were new to that role participated in an interview every 2 weeks for a year as part of a NIH project. Of these caregivers, 36 participants were randomly assigned and had access to a Web-based intervention and its e-mail discussion. In this secondary data analysis, 2,148 e-mail discussion messages plus 2,455 narrative interview entries were used to examine dimensions of caregivers’ emotional strain. Rigorous content analysis was applied to these …

The Effectiveness Of Secondary Prevention Lifestyle Interventions Designed To Change Lifestyle Behavior Following Stroke: Summary Of A Systematic Review, Maggie Lawrence, Susan Kerr, Caroline Mcvey, John Godwin

Dr. Maggie Lawrence

Background A feature of stroke is that it recurs (25% within

five-years). Risk factors for stroke and recurrent stroke

include smoking, alcohol consumption, poor diet, and physical

inactivity.

Aim To evaluate the effectiveness of secondary prevention

lifestyle interventions designed to change lifestyle behavior

following stroke. This short paper presents a summary of the

systematic review process and findings.

Methods Ten major databases were searched using subject

headings and key words. Papers were screened using

review-specific criteria. Critical appraisal and data extraction

were conducted independently by two reviewers. Data were

pooled in statistical meta-analysis; where this was not possible

findings were …

Defining And Measuring Patient-Centred Care: An Example From A Mixed Methods Systematic Review Of The Stroke Literature., Maggie Lawrence, Sue Kinn

Dr. Maggie Lawrence

Background

Involving patients in the determination of their care is increasingly important, and healthcare professionals worldwide have recognised a need for clinical outcome measures and interventions that facilitate patient-centred care delivery in a range of settings.

Aim

A mixed-methods review was conducted, which aimed to identify stroke-specific patient-centred outcome measures, patient-centred interventions, and family-centred interventions.

Search strategy

Databases searched included MEDLINE and PsycINFO; search strings were based on MeSH terms and keywords associated with the terms ‘stroke’ and ‘patient-centred’.

Data extraction and analysis

Descriptive statistics were used to report quantitative data; papers included in the review were also underwent thematic …

Pirandello’S Analogy: A Source For A Better Understanding Of The Social Impact Of Stroke, M.A.C. Van Haaren, Maggie Lawrence, P.H. Goossens, B. Van Den Bossche, M.J.H. Wermer, A.A. Kaptein

Dr. Maggie Lawrence

Background: Suffering a stroke has major implications for the patient. To understand human suffering, one should understand society. Pirandello described society as a higher entity than the individual, thereby justifying human adaptability to society. We explore a qualitative finding that suggests that social trends may influence how stroke patients prioritize aspects of their rehabilitation. Methods: We compare a contemporary patient’s experience of stroke recovery with that of a fictional character from the works of Luigi Pirandello. Both patients had two main residual symptoms: hemiparesis and aphasia. Results: The rehabilitation priorities of the two patients differed, and appeared to reflect the …

Determining The Needs, Priorities, And Desired Rehabilitation Outcomes Of Young Adults Who Have Had A Stroke, Maggie Lawrence, Sue Kinn

Dr. Maggie Lawrence

Background: Guidelines state that young adults’ rehabilitation needs and priorities following stroke are different from older adults’. However, there is a lack of evidence regarding young adults’ perspectives of their needs and priorities.

Aims: To gain an understanding of young adults’ experience of stroke and associated rehabilitation needs, priorities and desired outcomes.

Methods: Longitudinal data were gathered using unstructured interviews and analysed using phenomenological reduction.

Results: Ten young adults took part in up to four interviews over two years. An overarching theme, Embodied Disorientation, and three sub-themes: Mortal Body, Situated Body, and Embodied Perception of Difference, described the young adults’ …