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- Clinical medicine -- Decision making (1)
- Cochlear implants -- Patients -- Attitudes (1)
- Dystrophic Epidermolysis Bullosa (1)
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Articles 1 - 4 of 4
Full-Text Articles in Medicine and Health Sciences
From Clinical Phenotype To Genotypic Modelling: Incidence And Prevalence Of Recessive Dystrophic Epidermolysis Bullosa (Rdeb), Shaundra Eichstadt, Jean Y. Tang, Daniel C. Solis, M. Peter Marinkovich, Nedra Whitehead, Fang Fang, Stephen W. Erickson, Mary E. Ritchey, Max Colao, Kaye Spratt, Amir Shaygan, Mark Ahn, Kavita Y. Sarin
From Clinical Phenotype To Genotypic Modelling: Incidence And Prevalence Of Recessive Dystrophic Epidermolysis Bullosa (Rdeb), Shaundra Eichstadt, Jean Y. Tang, Daniel C. Solis, M. Peter Marinkovich, Nedra Whitehead, Fang Fang, Stephen W. Erickson, Mary E. Ritchey, Max Colao, Kaye Spratt, Amir Shaygan, Mark Ahn, Kavita Y. Sarin
Engineering and Technology Management Faculty Publications and Presentations
Background: Recessive dystrophic epidermolysis bullosa (RDEB) is an inherited genetic disorder characterized by recurrent and chronic open wounds with significant morbidity, impaired quality of life, and early mortality. RDEB patients demonstrate reduction or structural alteration type VII collagen (C7) owing to mutations in the gene COL7A1, the main component of anchoring fibrils (AF) necessary to maintain epidermal-dermal cohesion. While over 700 alterations in COL7A1 have been reported to cause dystrophic epidermolysis bullosa (DEB), which may be inherited in an autosomal dominant (DDEB) or autosomal recessive pattern (RDEB), the incidence and prevalence of RDEB is not well defined. To date, the …
Patient Empowerment Via Mobile Personal Health Records And Mobile Health Applications: A Review Of The Current Use, Abdulaziz S. Alhomod, Saeed Alzahrani
Patient Empowerment Via Mobile Personal Health Records And Mobile Health Applications: A Review Of The Current Use, Abdulaziz S. Alhomod, Saeed Alzahrani
Engineering and Technology Management Faculty Publications and Presentations
Consumer empowerment has gained a significant attention in the medical field recently, and despite the ambiguity of its definitions, elements and measurement tools, it is apparent that mobile and other communication technology can play a major role in keeping patients informed, involved and empowered. This paper aims to explore methods by which mobile applications contribute to consumer empowerment and allowed enhanced patient control over their health.
Technology Management Maturity Assessment Model: An Exploratory Multi-Criteria Approach For Healthcare Organizations, Amir Shaygan, Tugrul Daim
Technology Management Maturity Assessment Model: An Exploratory Multi-Criteria Approach For Healthcare Organizations, Amir Shaygan, Tugrul Daim
Engineering and Technology Management Faculty Publications and Presentations
Maturity Models are organizational management tools that have been developed and used for decades as organizations' way of responding to the constant pressure of trying to achieve and maintain competitive advantage through concurrent innovation, quality improvement, and cost reduction. The decision makers in the healthcare industry have been no exception in reaping the benefits of determining the merits and weaknesses of strategies through systematic quality improvement provided by maturity models. Although there are many healthcare maturity models in literature, there is a lack of models that provides managers and decision makers with a systematic, multi-criteria, and quantifiable maturity model. This …
Selecting Medical Hardware Using Pairwise Comparisons: A Patient's Perspective Of Cochlear Implant Device Selection, Timothy R. Anderson, Shabnam Razeghian Jahromi
Selecting Medical Hardware Using Pairwise Comparisons: A Patient's Perspective Of Cochlear Implant Device Selection, Timothy R. Anderson, Shabnam Razeghian Jahromi
Engineering and Technology Management Faculty Publications and Presentations
Selecting medical hardware can be a difficult and permanent decision for patients that they are often unprepared for. The authors explore the use of pairwise comparison techniques to better inform medical decision making in an application of choosing between three major cochlear implant manufacturers. This paper appears to be the first study to apply a pairwise comparison decision making approach for cochlear implant device selection. Also, unlike many medical decision making studies that are developed by the healthcare professional, this model and analysis was conducted entirely by the patient for the purpose of making the real-world decision of a device. …