Medicine and Health Sciences Commons^™

Accessing Asthma Care: A Case Study Of Urban Children, Andrea Wallace

Andrea S. Wallace

The purpose of this exploratory, descriptive study was to identify factors that facilitate or impede the use of health care resources by urban children with asthma. Using an embedded case study design, the study considered the issue of health care access for urban children with asthma by focusing on attributes that impede and facilitate these children's access to health care resources. Interview, demographic, survey, and medical records data were analyzed for 34 parent-child dyads accessing asthma care in one metropolitan health care system. Interview data from 14 health care professionals were also analyzed. These findings were then compared with utilization …

Ineffective Family Participation In Professional Care: A Concept Analysis Of A Proposed Nursing Diagnosis, A. Lee, Martha Craft-Rosenberg

Martha J. Craft-Rosenberg

PURPOSE: To discuss the label, definition, defining characteristics, and related factors of a proposed nursing diagnosis, "ineffective family participation in professional care." DATA SOURCES: Published research articles, clinical handbooks, textbooks. DATA SYNTHESIS: Although a number of family-related nursing diagnoses exist, none really addresses the problems encountered if family members are unwilling or unable to participate in patient care. This is critical because the bulk of care occurs outside the hospital setting. CONCLUSIONS: A new nursing diagnosis, "Ineffective family participation in professional care" is needed. This diagnosis has been submitted to the Nursing Diagnosis Extension and Classification for consideration. PRACTICE IMPLICATIONS: …

Families In Transition: Incarcerated Women Connecting With Family And Self, Janette Taylor, M. Eliason

Janette Y. Taylor

No abstract provided.

Building The Foundation For The Family Options Project, Joanne Nicholson, Kathleen Biebel, Valerie Williams, Karen Albert

Joanne Nicholson

This article describes how the long-standing partnership between Employment Options, Inc., a psychosocial rehabilitation agency in Marlborough, MA, and the University of Massachusetts Medical School's (UMMS) Center for Mental Health Services Research led to the development of the Family Options program.

Mothers With Mental Health Disorders: Mental Health Promotion In The Context Of Parenting, Joanne Nicholson, Elizabeth Aaker, Michael Agar, Karen Albert, Steven Banks, Kathleen Biebel, Bernice Gershenson, Antonia Seligowski, Valerie Williams, Brenda Warren, Sierra Williams, Katherine Woolsey

Joanne Nicholson

Parenting is a meaningful role for the majority of American women, including those with mental health disorders. Success in this role, particularly for women with mental health disorders, would seem to be intimately related to mental health promotion, the recovery process, and successful functioning in other major life domains (e.g., employment, community living, and personal health and well-being). The achievement of maximum social participation for women with mental health disorders may hinge on addressing the challenges they face as parents. Presented at Margins to Mainstream: World Congress on Mental Health Promotion and Prevention. Melbourne, Victoria, Australia, September 2008.

Critical Issues For Parents With Mental Illness And Their Families, Joanne Nicholson, Kathleen Biebel, Beth Hinden, Alexis Henry, Lawrence Stier

Joanne Nicholson

This report discusses the outcomes of a study that investigated the impact of parents who have mental illness on children and families. The report discusses the scope of the issue and the experiences of parents with mental illness, federal and State policies impacting policies and practices relating to parents with mental illness, current programs for parents with mental illness and their families, and recommended steps for improving and expanding services. Prepared for the Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, Rockville, MD.

The Invisible Children’S Project: A Family-Centered Intervention For Parents With Mental Illness, Beth Hinden, Kathleen Biebel, Joanne Nicholson, Liz Mehnert

Joanne Nicholson

Citation: Hinden, B., Biebel, K., Nicholson, J., & Mehnert, (2002) The Invisible Children’s Project: A family-centered intervention for parents with mental illness. Rockville, MD: Center for Mental Health Services, Substance Abuse and Mental Health Services Administration. This report describes an evaluation of the Invisible Children's Project (ICP), a program in Orange County, New York, that provides home-based, family-centered case management services for parents with mental illness. Policy implications and program recommendations are also discussed. Prepared for the Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, Office of Policy, Planning and Administration, Rockville, MD.

Children Of Parents With Mental Illnesses, Joanne Nicholson, Janice Cooper, Rachel Freed, Mareasa Isaacs

Joanne Nicholson

Citation: Nicholson, J., Cooper, J., Freed, R., & Isaacs, M. (2008) Children of parents with mental illnesses. In Gullotta, T.P. & Blau, G. (Eds.) Family influences on childhood behavior and development. New York: Routledge, pp. 231-266. ISBN 0415965322, 9780415965323. This chapter of Family Influences on Childhood Behavior and Development: Evidence-Based Prevention and Treatment Approaches explores the risks faced by children living with parents with mental illness. Individual, family, and community factors influencing risk and resiliency are considered, along with evidence-based treatment interventions, psychopharmacology recommendations, strategies for preventing psychopathology in children, and recommended best practices for clinicians. Limited preview available via …

Exploring The Concept Of “Young Carer” In Families Living With Parental Mental Illness, Antonia Seligowski, Peter Mcnamee, Karen Albert, Valerie Williams, Joanne Nicholson

Joanne Nicholson

Background Information: The concept of “young carers” has been framed in the literature as children providing care and assuming household responsibilities when parents have physical and/or mental disabilities (Aldridge & Becker, 2003). In the United Kingdom, young carers have been studied extensively, leading to increased access to services and supports (Dearden & Becker, 2004). Our goal is to explore the concept of young carers in the U.S.

Aims: 1) To describe the care giving and household responsibilities of children and youth living with parents with mental illnesses, how often they are performed, and the feelings of children and youth about …

Programs For Families With Parental Mental Illness: Results Of A Us National Survey, Joanne Nicholson, Beth Hinden, Kathleen Biebel, Alexis Henry, Lawrence Stier

Joanne Nicholson

Citation: Nicholson, J., Hinden, B., Biebel, K., Henry, A., & Stier, L. (2004). Programs for families with parental mental illness. Visions: British Columbia Mental Health and Addictions Journal, 2(2), 27-29. Available at: http://www.heretohelp.bc.ca/publications/visions/parenting. Summary: Survey of programs in the U.S. for parents with mental illness.

A Multi-Disciplinary, Whole-Of-Family Approach To Supporting Parents With Mental Illness, Joanne Nicholson

Joanne Nicholson

Summary: Family members are likely to have multiple and overlapping needs & roles – individuals with mental illness, carers & siblings. There are many opportunities & strategies for intervention. The best care requires the engagement of multiple stakeholders working in partnership. Citation: Nicholson, J. (2010, November). A multi-disciplinary, whole-of-family approach to supporting parents with mental illness. Presented as a plenary at the Developing Strength and Resilience in Children conference of Voksne for Barn, Oslo, Norway.

Parenting, Joanne Nicholson, Laura Miller

Joanne Nicholson

Citation: Nicholson, J. & Miller, L.J. (2008) Parenting. In Mueser, K. & Jeste, D.V. (Eds.) The clinical handbook of schizophrenia. New York: The Guilford Press, pp. 471-480. ISBN 1593856520, 9781593856526. Limited preview available via Google Book Search.

The Family Networks Implementation Study, Susan Maciolek, Joanne Nicholson, Nicole Dube, Jodi Adams, Bernice Gershenson

Joanne Nicholson

Family Networks is a comprehensive system transformation initiative to redesign and integrate traditional categorical services across Massachusetts into local systems of care for children, youth, and families served by the child welfare system. The Family Networks Implementation Study, a partnership between the Massachusetts Department of Social Services and the University of Massachusetts Medical School, is a two-year study of the process of implementing local systems of care that began in January 2007, and will continue through December 2008. Presented at the 21th Annual Research Conference. A System of Care for Children’s Mental Health: Expanding the Research Base. Tampa, Florida, February …

Mental Illness: Understanding The Impact On Families And How To Help, Joanne Nicholson

Joanne Nicholson

Abstract: Family is the context where mental health recovery takes place. Mental health services need to take a whole-of-family approach when working with people with a mental illness. Supporting people with a mental illness in their family roles actually improved the mental health outcomes of people participating in their programs. Citation: Nicholson, J. (2010, May). Mental illness: Understanding the impact on families and how to help. Presented as the 12th Annual Bruce Woodcock Memorial Lecture, Mental Illness Fellowship Victoria, Melbourne, Victoria, Australia.

Family Members With Overlapping Mental Health Needs Require The Transformation Of Systems And Services, Joanne Nicholson, Kathleen Biebel, Beth Hinden, Valerie Williams, Bernice Gershenson, Judith Katz-Leavy

Joanne Nicholson

Women and men with a lifetime prevalence of psychiatric disorder are at least as likely to be parents as are adults without psychiatric disorder. The majority of adults in all diagnostic categories are parents, including those meeting criteria for affective and anxiety disorders, PTSD, and non-affective psychosis. Children with Serious Emotional Disturbance (SED) receiving services in Systems of Care (SOCs) programs may have multiple family risk factors. Family-centered, strengths-based practices require a paradigm shift in the way administrators and providers view and intervene with children and adults. Presented at The Santa Fe Summit on Behavioral Health, the American College of …

Building The Evidence Base For Families Living With Parental Mental Illness, Joanne Nicholson

Joanne Nicholson

No abstract provided.

Parenting Well When You're Depressed: A Complete Resource For Maintaining A Healthy Family, Joanne Nicholson, Alexis Henry, Jonathan Clayfield, Susan Phillips

Joanne Nicholson

Citation: Nicholson, J., Henry, A.D., Clayfield, J. & Phillips, S. (2001) Parenting well when you’re depressed: A complete resource for maintaining a healthy family. Oakland, CA: New Harbinger Publications, Inc. ISBN 1572242515, 9781572242517. This guide, based on more than ten years of study of depressed parents and their families, offers strategies, action plans, and resources to help readers provide for their children's healthy development.

The Prevalence Of Parenthood In Adults With Mental Illness: Implications For State And Federal Policymakers, Programs, And Providers, Joanne Nicholson, Kathleen Biebel, Judith Katz-Leavy, Valerie Williams

Joanne Nicholson

Citation: Nicholson, J., Biebel, K., Williams, V.F., & Katz-Leavy, J. (2004) Prevalence of Parenthood in Adults with Mental Illness: Implications for State and Federal Policy, Programs, and Providers. In Center for Mental Health Services. Mental Health, United States, 2002. Manderscheid, R.W., & Henderson, M.J., eds. DHHS Pub No. (SMA) 3938. Rockville, Maryland: Substance Abuse and Mental Health Services Administration, Chapter 10, pp. 120-137.

The Massachusetts Family Networks Implementation Study, Susan Maciolek, Joanne Nicholson, Jodi Adams, Bernice Gershenson, Katherine Woolsey, Brenda Warren

Joanne Nicholson

Family Networks is a comprehensive systems transformation initiative to redesign and integrate traditional categorical services across the Commonwealth into local systems of care for children, youth, and families served by the child welfare system. The Family Networks Implementation Study, a partnership between the Massachusetts Department of Social Services (MA/DSS) and the University of Massachusetts Medical School, is a two-year study of the process of implementing local systems of care that began in January 2007, and will continue through December 2008. Findings from the Family Networks Implementation Study will inform MA/DSS strategic planning, system refinements, and the Family Networks outcomes evaluation. …

Steps Toward Evidence-Based Practices For Parents With Mental Illness And Their Families, Beth Hinden, Kathleen Biebel, Joanne Nicholson, Alexis Henry, Lawrence Stier

Joanne Nicholson

Citation: Hinden, B., Biebel, K., Nicholson, J., Henry, A., & Stier, L. (2002) Steps toward evidence-based practices for parents with mental illness and their families. Rockville, MD: Center for Mental Health Services/Substance Abuse and Mental Health Services Administration. This report discusses the outcomes of a project that investigated evidence-based practices for parents with mental illness and their families by identifying and systematically describing existing interventions. Findings from two studies indicate that family-centered, strengths-based values and practices may be the key to program success and improved outcomes for parents and children. Prepared for the Center for Mental Health Services, Substance Abuse …

Parents With Severe Mental Illness And Their Children: The Need For Human Services Integration, Andrea Blanch, Joanne Nicholson, J. Purcell

Joanne Nicholson

Citation: Blanch, A., Nicholson, J. & Purcell, J. (1998) Parents with severe mental illness and their children: The need for human services integration. In Levin, B.L., Blanch, A.K. and Jennings, A. (Eds.) Women’s mental health services: A public health perspective. Thousand Oaks, CA: Sage Publications, Inc. ISBN 076190509X, 9780761905097.

Supporting Parents: Multi-Needs And The Need For Multi-Institutions’ Coordination Of Supports, Joanne Nicholson

Joanne Nicholson

Summary: Family members are likely to have multiple and overlapping needs & roles – individuals with mental illness, carers & siblings. There are many opportunities & strategies for intervention. The best care requires the engagement of multiple stakeholders working in partnership.

Citation: Nicholson, J. (2010, May). Supporting parents: multi-needs and the need for multi-institutions coordination of supports. Presented as a keynote at the Conference on Ondersteuning Ouders met Psychiasche Problemen,The Hague, The Netherlands.

Parenting With A Mental Illness. A Radio Interview For Abc Radio National, Australia Public Radio (Audio File), Joanne Nicholson

Joanne Nicholson

Interview (mp3 audio file, 9.8 MB) by Dr. Joanne Nicholson with Richard Aedy, host and producer, “Parenting with a Mental Illness” on Life Matters, ABC Radio National, Australia public radio, May 25, 2010. Nicholson says that keeping families intact benefits both the family as a whole, and the ill parent's recovery. She argues too many health professionals make treatment plans without considering the family context. Citation: Nicholson, J. Interview with Richard Aedy, host and producer, “Parenting with a Mental Illness” on Life Matters, ABC Radio National, Australia public radio. May 25, 2010. Available from: http://www.abc.net.au/rn/lifematters/stories/2010/2906312.htm.

Helping Families— Shifting The Emphasis, Joanne Nicholson

Joanne Nicholson

Abstract: Family members are likely to have multiple and overlapping needs & roles – individuals with mental illness and carers. There are many opportunities & strategies for intervention. The best care requires the engagement of multiple stakeholders. Citation: Nicholson, J. (2010, May). Helping families – Shifting the emphasis. Presented as a keynote address at the Annual Corporate Breakfast with the Lord Mayor, Mental Illness Fellowship Victoria, Melbourne, Victoria, Australia.

Parents With A Mental Illness And Implementation Of The Adoption And Safe Families Act, Barbara Friesen, Joanne Nicholson, Katharine Kaplan, Phyllis Solomon

Joanne Nicholson

Citation: Friesen, B.J., Nicholson, J., Kaplan, K., & Solomon, P. (2009) Parents with a mental illness and implementation of the Adoption and Safe Families Act. In Golden, O., & Macomber, J. Eds.) Intentions and results: A look back at the Adoption and Safe Families Act. Washington, D.C.: Urban Institute, Center for the Study of Social Policy, pp. 102-114. This paper examines how implementation of the Adoption and Safe Families Act (ASFA) may affect families in which a parent has a mental illness. We present evidence that such parents may suffer discrimination when the psychiatric diagnosis alone leads to an assumption …

Supporting Parents With Mental Health Needs In Systems Of Care, Barbara Friesen, Judith Katz-Leavy, Joanne Nicholson

Joanne Nicholson

Summary: Community-based systems of care (SOCs) must address both the needs of parents with mental illness and the needs of their children. Learning more about the challenges faced by SOCs in this area, and the strategies they implement to overcome them, provides insights with implications for the broader field. This project was intended to learn more about efforts to assess parents’ mental health needs, effectively engage and support them, and improve system coordination and access to services to inform service delivery and system reform, especially for those involved in both child welfare and mental health. This report presents information gathered …

Supporting Parents With Psychiatric Disabilities And Promoting Recovery: An International Challenge, Peter Van Der Ende, Joanne Nicholson

Joanne Nicholson

Introduction: Parenting is a significant life role for adults with psychiatric disabilities. Not only is success in this role a normal life goal for many, but functioning as well as possible as parents would seem to be intimately related to the recovery process and successful functioning in other major life domains. Research on the prevalence and needs of parents with psychiatric disabilities in two countries, the U.S. and The Netherlands, provides the framework for developing and testing interventions. Essential program components include supports for parents in meeting their children’s needs as well as managing their own. Research Question: What are …

Parenting And Recovery For Mothers With Mental Disorders, Joanne Nicholson

Joanne Nicholson

Citation: Nicholson, J. (2010) Parenting and Recovery for Mothers with Mental Disorders. In Levin, B.L. & Becker, M. (Eds.) A public health perspective of women’s mental health. New York: Springer, pp. 359-372. ISBN 1441915257, 9781441915252. DOI: 10.1007/978-1-4419-1526-9_19.

Limited preview also available via Google Book Search.

Implementation Challenges In Wrapping Interventions Around Families Living With Parental Mental Illness, Joanne Nicholson, Beth Hinden, Joan Mikula, Kathleen Biebel, Valerie Williams, Katherine Woolsey, Elizabeth Aaker

Joanne Nicholson

Citation: Hinden,B., Mikula, J., Nicholson, J., Bieble, K., Williams, V., Woolsey, K., & Aaker, E. (2008). Implementation Challenges in Wrapping Interventions Around Families with Parental Mental Illness. In C. Newman, C. Liberton, K. Kutash, and R/ Friedman (Eds.), Proceedings of the 20th Annual Research Conference, A System of Care for Children’s Mental Health: Expanding the Research Base. Tampa, FL: University of South Florida, Florida Mental Health Institute, Research and Training Center for Children’s Mental Health.

Summary: Parental mental illness challenges service providers in adult mental health, child welfare and children’s mental health systems of care. This presentation describes the development …